The Autism Society Philippines (ASP) is a national, non-profit organization dedicated to the well-being of persons on the autism spectrum disorder. We envision a society where Filipinos on the spectrum become the best of their potentials -- self-reliant, independent, productive, socially-accepted citizens of an Autism-OK Philippines.
Showing posts with label nac. Show all posts
Showing posts with label nac. Show all posts

04 December 2013

Equality before the law

Article 7, one of the 30 articles included in the Universal Declaration of Human Rights adopted by the United Nations on December 10, 1948, explicitly states that “All are equal before the law and are entitled without any discrimination to equal protection under the law.” It’s been 65 years since then, and those covered by that particular article has been elaborated in several international treaties and covenants.

The year 2008, for instance, saw the Philippines join in ratifying the Convention on the Rights of Persons with Disabilities, which intends to protect the rights and dignity of persons with disabilities, as well as ensuring that they enjoy full equality under the law.

At the recently held 2013 Philippine National Autism Conference, Department of Justice (DOJ) Secretary Leila de Lima discussed how the government is striving to provide persons with disabilities (PWD) equal protection under the law. PWDs, and children with autism in particular, hold a special place in De Lima’s heart as she is mother to Israel and grandmother to Brandon, children with autism.

De Lima says that being the mother of a child with autism has not only taught her to be accepting, but vigilant when it comes to combating discrimination as well.

“I do not want people to feel that I am glossing over the difficulties and trials of being the parent and grandparent of children with autism. But my system was built on the premise that early and unequivocal acceptance equates to early joy,” she says. “Owing perhaps to my being a lawyer, I never felt threatened by institutions which may exclude or be discriminatory of my kids. I became more sensitized to the institutions barring access to true and complete fulfillment of rights of people.”

DEPARTMENT OF JUSTICE Secretary Leila de Lima (center) with Autism Society of the Philippines leaders (from left) Evelyn Go, Grace Luna Adviento, Dang Uy Koe, Mona Magno Veluz, Cecilia Santayana Sicam, and Jan Peña.

ACCESS TO JUSTICE

That vigilance was evident when she first took the helm of the Commission on Human Rights (CHR) in September 2007. She says that under her leadership, the CHR released a working paper on the rights of PWDs in accessing the justice system.

According to De Lima, the paper revealed that access to justice for people with disabilities often means overcoming obstacles of discrimination, communication, and physical access. Also worrying were the findings that showed that PWDs are at a higher risk of becoming victims of crime and exploitation and may be used by others for criminal purposes.

But the most distressing part about the 2008 study was how access to the legal system is often a difficult affair for PWDs.

“The CHR study concluded that the negative stereotyping and discrimination of PWDs by law enforcement officials and other employees of the justice system resulted in the disincentive to tap official government channels to enjoy respite from legal woes,” says De Lima. “For PWDs, communication with legal practitioners can be very difficult. Legal practitioners may not be able to understand or communicate with their clients as they may not have the adequate interpretation facilities.”

De Lima says that her current role as DOJ Secretary has helped her address the problems exposed by the 2008 CHR working paper. Under her tenure, the DOJ has created its own Action Center, situated right beside the gate of the DOJ complex in Padre Faura so as to ensure access to all people, even those with disabilities. De Lima also says that the DOJ will take an inventory of its prosecutors and frontliners to see whether they are sensitized to the needs of PWDs, particularly on the area of how to convey information and even facilitative communication.

The DOJ has also launched a PWD Legal Assistance Desk at the Quezon City Prosecutors office equipped with a manual on disability sensitivity for public attorneys and prosecutors. The Public Attorneys’ Office has also newly-designated PWD-friendly public attorneys who will handle complaints from PWDs.

FACING DISCRIMINATION

DOJ Secretary Leila de Lima outlines the avenues PWDs can pursue when faced with legal troubles or discrimination...

De Lima also stressed two new laws that PWDs can refer to when faced with discrimination in schools or in the job market. One of these laws is the act expanding the positions reserved for people with disability, which amends the Magna Carta of Disabled Persons.

“Such law seeks to address de facto discrimination against PWDs by making it mandatory for government agencies and government-owned corporations to reserve one percent of their workforce for disabled persons,” explains De Lima. “The new law also has an innovation as it encourages private companies with more than 100 employees to hire disabled persons and set aside at least one percent of their workforce for them.”

While the new law has no punitive clauses on heads of agencies or government owned and controlled corporations that do not comply with the wording and the spirit of the law, De Lima says PWDs can file an administrative case against the management invoking the Civil Service Commission’s administrative disciplinary rules.

Another law is the Anti-Bullying Act of 2013, which requires schools to adopt policies to prevent and redress all acts of bullying in their institutions.

“As parents who have put their autistic children in mainstream or even non-traditional schools will attest that their children are all prey to the antics and even cruelty of bullies,” she says. “The Anti-Bullying Law carries no criminal liability for violations. However, there are other laws that parents can resort to such as the Anti-Child Abuse Act, which has penal conditions unlike the Anti-Bullying Act.”

De Lima also trumpeted government institutions specifically targeting PWDs, such as The National Council for Disability Affairs and the Council on the Welfare of Children.

While De Lima says that the situation for PWDs in the Philippines is far from ideal, she says she hopes that the day will come when Filipino PWDs will enjoy full equality alongside their able-bodied countrymen.

“Clearly, there are so many things that need to be accomplished so that we can be close to the level of Scandinavian countries in engendering an environment where we can allow autistic loved ones to live their lives to the fullest so that they may self-actualize in the most poetic and beautiful way,” she says. “I am hopeful that in time, we will be able to put our acts together and build a more inclusive, sensitive, and embracing Philippines. I pray that we become instruments of their empowerment. Let us carry on our shoulders the plight of the PWDs.”

This article appeared on o2 December 2013 in the print and on-line versions of Manila Bulletin's "Angels Talk" under the by-line of Ronald Lim.

28 November 2013

A message from Mona Magno-Veluz

Ms. Mona Veluz

Our family's journey with autism began a little less than twenty years ago, with my eldest son, Carl. Back then, the only thing on our minds were getting the right therapy, finding a suitable school and helping him adjust to everyday life. As our son matured, my husband and I were made aware of more challenging questions. We were no longer looking at just the confines of our small orbit. We had to look at how our son can deal with the rigors adults face everyday and at how our son can find his place in a society, compassionate and accepting of him and his unique needs.

The theme of the 13th Philippine National Autism Conference -- "Hope for "A" Nation" -- resonates with me. It echoes my own belief that the autism community should bring our concerns and issues outside our home, schools and communities; and escalate them to the government, the church, the media, the business sector and other societal institutions which can be active agents of change towards the integration and acceptance of individuals with autism in Philippines society.

The Autism Society Philippines -- its leadership and volunteers -- designed the conference to bring respected experts from the Philippines, the United States and the ASEAN to talk about what many in our community clamor to know about -- the latest developments in education, law, media and employment and new insights in medicine, pharmacology and therapy.

But more important still, to the growing community of parents, family members and individuals on the autism spectrum, I hope that experiencing this year's conference will bring you HOPE.

In the service of the Filipino autism community,

MONA MAGNO-VELUZ
Conference Chair
Philippine National Autism Conference

26 November 2013

A message from Janette I. Peña

Ms. Janette Peña

The last 25 years in the history of autism in the Philippines has been both an educative and empowering experience in Filipino families living with autism. From nothing, we are now a legionary movement driven by fire, coming together to reach and learn from each other, embracing positive and hands on approaches in rearing children with autism, and moving synergistically with an entire sector that upholds the rights of the disadvantaged in the society.

The 13th Philippine National Conference attests to the solidarity of families, allied professionals, government, corporate and media in creating an accepting, friendly and supportive environment for persons with autism. It is an achievement that we must carry on for the good and interest of an increasing number of children living within the spectrum. The challenge of autism is for life, and Autism Society Philippines stands pat to help our nation overcome.

I thank all members and partners of ASP who have faithfully heeded the call to minister to our advocacy and help make a difference. To all the participants of the 13th PNAC, thank you for being with us in claiming HOPE for a nation.

To the cause!

MARY JANETTE I. PEÑA
President
Autism Society Philippines

24 November 2013

A message from Dang Uy-Koe

ASP Chaiman Emeritus Erlinda "Dang" Koe

The color green represents renewal, energy growth and harmony. Silver not only represents riches and wealth, but also hope and unconditional love.

Autism Society Philippines turns 25, silver, next year. With God's grace, the society has both been "green and silver" to the almost one million Filipino families living with autism every day.

Ever since my Gio was diagnose in 1997, I have never missed an ASP national conference because being with a legion of green-clad parents and other partners with silver wings have always energized me. Together, like green gemstone, we know we can help create balance, promote change, and share hopes. And like silver, we are mirrors for others to see themselves.

I cannot wait when ASP turns gold, helping illuminate our path towards wisdom, wellness, success and prosperity... not only just for own children, but for A nation.. our nation.

May we all abound in hope.

For I know the plans I have for you, "declares the Lord,
"plans to prosper you and not to harm you, plans to give
you hope and a future.

Jeremiah 29:11

DANG UY-KOE
Chair Emeritus
Autism Society Philippines

23 November 2013

A message from Secretary Enrique T. Ona M.D.

Mr. Enrique Ona

Warm greetings to the officers and members of the Autism Society Philippines as they hold its 2013 National Autism Conference with the theme, "Hope for A Nation."

This Annual Conference brings together expects in this noble field to share clinical knowledge and experience to improve treatment and management outcome of Autism in the country. This will indeed pave the way to a healthier future for our humanity. The Department of Health values our collaboration and assures you of our support in this endeavor.

May you continue to persevere in your work and join in our efforts to achieve our goal of Kalusugan Pangkalahatan.

Congratulations and mabuhay kayong lahat!

ENRIQUE T. ONA M.D.
Secretary
Department of Health

22 November 2013

Stemming the rumors

The National Autism Conference tackles what is fact and fiction when it comes to stem cell therapy and autism.

Over the past few months, stem cell therapy has taken hold of the imaginations of many Filipinos looking for a cure to a myriad number of conditions, autism among them.

All across different forms of media, the average Filipino encounters testimonials from celebrities and lay people alike who swear by the effectiveness of stem cell therapy in providing relief from disease.

However, the University of the Philippines’ Dr. Antonio Dans cautions against pinning all of one’s hopes on a treatment that has only recently been introduced here in the country, especially with regards to its effectivity in curing autism.

Dans outlined his reservations, reasons, and suggestions for the future of stem cell therapy and autism here in the Philippines at the recently held Philippine National Autism Conference, which aims to provide information on developments relevant to medical professionals and community workers who work with autism.

Dans was only one of the many speakers who participated in the event, some of whom were Department of Justice Secretary Leila de Lima, ASEAN Autism Network chairman Malai Haji Abdullah Bin Malai Haji Othman, Cavite governor Jonvic Remulla, and broadcast journalist Karen Davila.

Dr. Antonio Dans of the Philippine Society of General Internal Medicine and the University of the Philippines’ Departments of Clinical Epidemiology and Internal Medicine says stem cell therapy in the country should be regulated.

No Clinical Trials

Dans began his talk by explaining what exactly stem cell therapy is. According to him, stem cell therapy is a form of treatment wherein doctors use stem cells — premature cells within the body that grow to become specialized cells — for a multitude of applications.

“First, ‘yung regenerative medicine. ‘Yung meron sa katawan natin na matanda na, puwedeng palitan ng young cells. The second application is treatment. If you have diseased cells in your heart, they can be replaced by these cultured cells in the laboratory,” he explains.

Internationally, however, there are very few countries that actively endorse stem cell therapy at a clinical level. Stem cell therapy is practiced in China on a clinical level, but Western regulatory agencies caution against it because of the lack of regulation in China. Studies on stem cell treatment in South Korea that claimed to generate cells tailored to match patients were eventually discredited by an academic panel from the Seoul National University.

This is definitely not the case in the Philippines where personalities such as former President Joseph Estrada and former Senate President Juan Ponce Enrile endorse the treatment. Dans cautioned against listening to these testimonials, as they do not carry with them the rigorousness of a clinical trial. Clinical trials are sets of tests in medical research that determine the safety and efficacy of medical treatments.

“These are just case reports. One case, one success, a success rate of 100 percent. The highest study that we can use is a clinical trial and now the success rate is zero percent,” he says. “This is why the kind of study that we present is very important. Which one do you think is the most effective in convincing people to use a treatment, in a marketing sense? The case report is the most convincing. But the most important scientifically is the clinical trial.”

When it comes to clinical trials involving stem cell therapy and autism, Dans says that according to the website Stem Cells Australia, there are only clinical trials ongoing, neither of which are in the Philippines. The first one “Autologous Cord Blood Stem Cells for Autism,” is being held in the United States, while the second one, “Autologous Bone Marrow Stem Cells for Children With Autism Spectrum Disorders,” is being done in Mexico.

Questionable Motives

Dans also explained that there are three reasons that could exempt stem cell therapy from clinical trials, namely: the treatment is miraculous, it is an innovative treatment, and if it is compassionate for the patient to receive the treatment so his suffering can be eased.

A miraculous cure, says Dans, is something akin to Lorenzo’s oil, discovered by Augusto and Michaela Odone to help their son suffering from adrenoleukodystropohy.

“Scientifically, there are three components to a miracle. Number one, the course of the disease is uniformly poor. With adrenoleukodystropohy, you become bedridden and die. The child in Lorenzo’s Oil is the first patient to live until he was 30 years old. He was diagnosed at five and the doctors said he would die in two years. That was a big improvement,” he explains. “Everyone else who was genetically predisposed to the disease and were given the oil after birth totally avoided manifestations of the disease. There is also no other explanation for the improvement. He did not receive anything else. We need to ask ourselves if stem cell therapy fits those criteria. As far as I know, it has not.”

Even if stem cell therapy could be considered an innovative and compassionate treatment, Dans says that medical papers insist that these treatments eventually be subjected to clinical trials and regulation.

“There should be an oversight to make sure that the patient’s rights are not violated. The problem is that many who offer stem cell therapy refuse to subject themselves to regulation,” he says. “Besides regulation, we need to do the trials. We are the number one user, but there are no trials being done here. My third suggestion is publication. If it’s not published, it never happened.”

The intent, says Dans, is not to deprive people of the potential benefits of stem cell therapy, but to ensure that none of the patients, especially those desperate for a cure, end up being exploited by those who prey on their desire to alleviate their loved ones suffering.

“Stem cell therapy is a very expensive treatment, and there could be exploitation happening. If you refuse to be regulated, if you refuse to do research and there are no publications, but you charge millions of pesos, then your motives are questionable in offering stem cell therapy,” he warns.

This article appeared on 18 November 2013 in the print and on-line versions of Manila Bulletin's "Angels Talk" under the by-line of Ronald Lim.

21 November 2013

A message from Engineer Bien C. Mateo

Engr. Bien Mateo

We would like to congratulate the Autism Society Philippines for holding another successful conference. May this conference touch your lives as it has touched ours at SM Supermalls.

We will never forget how the Autism Society Philippines helped us in making our mall environment as inclusive as possible, making it a mall for all.

We acknowledge that many efforts have been made. We have been your partners in making the communities aware of the autism spectrum. But the work does not stop there. After awareness, we have to commit as a society to provide a good quality of life for everyone including persons living with autism. We have to allow them to dream, like any one of us. We have to give them respect, as we all want others to respect us. We must give them the same opportunities, as we would also want to be offered the same.

The tasks at hand are greater than ever. The challenges are harder than before. We must all step up for all the one million families in our country who are living with autism today.

We thank the parents, the teachers, the classmates, the care-givers, the siblings, the neighbours of our friends living with autism. You deserve the honour and respect for the support and encouragement that bring out the beauty in the persons living with autism.

We will continue to walk with you in the path towards an inclusive society for all.

Engr. BIEN C MATEO
Director
SM Program on Disability Affairs

20 November 2013

A message from Carmen R. Zubiaga

Ms. Carmen Zubiaga

The National Council on Disability Affairs commends the Autism Society Philippines for organizing the “Philippine National Autism Conference 2013,” another milestone to provide the latest trends on the acceptance and inclusion of individuals with autism at the national level and within the community.

Years ago, parents of children with autism were living in hopelessness and isolation with nowhere to go in search of knowledge and support on how to bring up their special children.

Autism Society Philippines provided through the years of working with parents of people with autism and professionals, that people with autism are capable of fulfilling proper education and harnessing their innate talents and capabilities.

Truly, the ASP is one of the most active support groups in the country, working to empower children and adults with autism spectrum disorder to be self-reliant, productive and socially accepted members of the community.

We look forward to the realization of the goals of the Conference, and to the success of your future undertakings geared towards disability inclusive development for all.

CARMEN R. ZUBIAGA
Acting Executive Director

12 November 2013

Hope Begins Here and Now

Kiel, second from the right, kneeling, among other young and not-so-young adults on the spectrum who attended the 13th Philippine National Autism Conference.

This article appeared on 11 November 2013 in the print and on-line versions of Manila Bulletin's "Angels Talk" under the by-line of Dang U. Koe, ASP Chair Emeritus.

Twenty-seven year old autism self-advocate Gerard Atienza, who is a freelance graphic designer, volunteered during the Autism Society Philippines’ 13th National Autism Conference held last Oct. 26 and 27. Calling himself and others like him on the autism spectrum “awesome,” the visuals he created for the entire conference are truly that – awesome. Gerard is also a blogger “autisticbigbro” and this week’s angel talker.

The theme of the conference, “Hope for ‘A’ Nation,” is highly appropriate for what the event had to offer. It presented diverse perspectives from lawmakers, experts in the field, parents and individuals on the autism spectrum. The speakers and the panelists presented how it is to live with hope for autism, a vision that is continually unveiling itself.

The MERALCO Multi-Purpose Hall was filled to the brim with hopefuls — parents, professionals, and even persons with autism who gathered for the vital information about autism and to know what is being done toward acceptance and inclusion for autistic people.

The confab featured Justice Secretary Leila de Lima, whose life with son and grandson, both with autism, inspired her to push for access for justice for persons with disabilities; ASEAN Autism Network chairperson Malai Othman, who went back to the grassroots level and focused on enabling people with disabilities; and BUHAY Party-List Representative Irwin Tieng, who discussed how ASP’s advocacy motivated him to push for rights of persons with autism and other disabilities. Cavite Governor Jonvic Remulla, who graced the second day of the conference, shared a message of hope on how his journey with daughter Stella, who has autism, inspired him to be an advocate himself.

The efforts of the government in pushing for autism acceptance and inclusion were also underscored in the conference. Mandaluyong City Mayor Benhur Abalos presented how their implementation of community-based rehabilitation helped shape persons with autism and other disabilities to become fully functional members of society, and how it inspired other local governments to follow suit. Former Ormoc City Mayor Beboy Codilla, himself a father of a child with autism, discussed what his government has done for individuals on the spectrum on the regional level.

Experts such as Dr. Alexis Reyes discussed the DSM-V and the implications of this latest revision in the diagnosis of autism, while Dr. Cornelio Banaag talked about the health issues affecting adults on the spectrum. Dr. Noel Vallesteros underscored the importance of oral and dental care for kids on the autism spectrum.

Teachers Anna Cortez and Ana Rivera showcased therapies for autism, using the techniques of yoga and dance, respectively; while Sensei Vicente Rubio, himself on the autism spectrum, discussed the basics of mentoring young adults on the spectrum, and how he himself lived with autism.

Addressing the Challenges

What interested me, though, was Dr. Tony Dans’s discussion on the highly-controversial stem cell therapy and its role as an autism therapy. As an anti-cure advocate myself who believes that autism is not a disease to be cured and eradicated, but rather a difference to live with, the discussion of the topic made me uncomfortable. However, Dr. Dans somehow dispelled my fears, as he objectively presented the principles and ethics of such therapy, and that it has yet to be proven before it could be used.

On the perspective of the corporate world, Unilab Foundation’s Rhodora Fresnedi discussed how Project Inclusion has integrated autistic individuals to the workplace, citing the experiences of fellow awesome Vico Cham, who is an employee at Unilab. Public Relations practitioner Amor Maclang challenged everyone to advocate for autism.

The panel of parents and siblings of adults on the autism spectrum, composed of Arch. Cathy Cham, DIWA Party-List Representative Em Aglipay, Dr. Marnie Prudencio, and Mommy Marivic Rimano, shared how they’re preparing themselves for the future of their children with autism.

Media leaders also came together to discuss the agenda of autism in mainstream media and its role in shaping autism advocacy and the acceptance of people on the autism spectrum. The panel of media leaders are composed of GMA Network executive Annette Gozon-Abrogar, advocacy filmmaker Mirana Medina, ANAK TV chairperson Mag Hatol, journalist Ivy Mendoza, and ABS-CBN broadcaster Karen Davila, herself a mother to David, fellow awesome.

On the employment sector, Verlie Dizon, Mann Hann senior manager; Regina de Leon, mom to fast-food staff and fellow awesome Paco; Gian Paolo Feranil, plan checker at Torsten Calvi and fellow awesome; and teachers Iris Gaballo and Archie David from the Independent Living and Learning Centre, discussed the opportunities and value of employing autistic people in a variety of jobs.

What struck me the most is the panel of fellow awesomes on the spectrum, composed of ASP Dreamgirl Danica Escasiñas, Hopewell Integrated School staff Paul Garcia, Performing Arts student Clarence Cruz, and IBM’s HR specialist Yanna Aragon. Led by Teacher My Sorongon, they discussed their own journeys as self-advocates and how they are pushing for their rights. Being the passionate self-advocate that I was, I asked my fellow awesomes in the house to stand up and be recognized by the sea of parents and professionals.

It was such an exhilarating experience to be part of this conference, and together with fellow autistic guys, whom I shall call Team Awesomeness, there is hope for autism. And it doesn’t stop at the conference. Hope begins here, and hope begins now.

The biggest gathering of autism angels will be held on Jan. 19, 2014 at the SM Mall of Asia Arena. It will kick off the celebrations of ASP’s 25th year, the National Autism Consciousness Week and nationwide Angels Walk for Autism. Follow us on Facebook and Twitter.

11 November 2013

A message from Malai

Mr. Malai

The ASEAN Autism Network (AAN), would like to congratulate the Autism Society of the Philippines (ASP) for organizing and hosting the 13th Philippine National Autism Conference. The AAN recognizes ASP as one of the oldest and leading Autism Organization in ASEAN region, a role model for all other AAN members in supporting and empowering the families of individuals with autism in the Philippines.

ASP is one of the founding members of AAN was established with “Family Comes First” as a core concept during the ASEAN Autism Workshop organized by the Asia-Pacific Development Center for Persons with Disabilities (APCD), in cooperation with JICA in Bangkok, Thailand on 13-15 December 2010.

AAN would continuously support the ASP’s programs in accordance to the network’s mission to support, assist, facilitate and enhance autism-related family support groups in collaboration with other stakeholders in the ASEAN region.

Once again, congratulations and wishing everyone a successful and meaningful conference.

MALAI HJ ABDULLAH BIN HJ MALAI OTHMAN
Chairperson
ASEAN Autism Network

09 November 2013

A message from Akiie Ninomiya

Mr. Akiie Ninomiya

On behalf of Asia-Pacific Development Center on Disability (APCD), I would like to congratulate Autism Society Philippines on your 13th National Autism Conference.

Since I believe that “disability is a gift from God” the Bible clearly says that “the works of God should be made manifest in person with disability” (John 9:3)Therefore, persons with autism are gift to our society; our “Hope for “A” Nation” comes from them.

APCD has been supporting autism organizations in South East Asi. APCD was instrumental in organizing the ASEAN Autism Network (AAN) during the 1st AAN Congress in Bangkok,Thailand in 2010. APCD assumed a vital role during the 2nd AAN Congress in Brunei Darussalam last April and supported the establishment of the Vietnam Autism Network (VAN) in August of this year.

APCD is committed to support initiatives to promote the rights of persons with autism. It will be collaborating with AAN and the Lao Autism Association for the "Autism Definition and Screening Workshop" in Laos. With the redefinition of Autism Spectrum Disorder (ASD) in the Diagnostic and Statistical Manual (DSM) 5, the ASEAN region may need to come up with a practical definition of autism based on this manual taking into consideration the social and cultural context of the region. APCD seeks for opportunities for collaboration in the field of autism. It has initial talks with the International Institute for Global Health of the United Nations University (UNU) to develop a screening system on autism and training program.

In North America, researches showed that 1% of primary school children sre diagnosed with autism. With this fact, autism will be one of the major groups among the disability sector.

The Autism Society Philippines (ASP) with 24 years of experience, 67 chapters and 10,000 members will surely contribute to create an "AUtism Friendly ASEAN" by 2015. ASP is the most active autism organization in ASEAN Region with its rich experiences on advocacy and technical capability, therefor ASP's leadership serves as an engine to realize an Autism Friendly Society.

AKIIE NINOMIYA
Executive Director
Asia-Pacific Development Center on Disability

08 November 2013

A message from Mayor Herbert M. Bautista

Mr. Herbert Bautista

Congratulations to the officers and members of the AUTISM SOCIETY PHILIPPINES on the occasion of your 2013 Philippine National Autism Conference.

Your commitment and trust to constantly upgrade the quality, understanding and standard of autism care is for the benefit of a huge number of families who live with this deficiency. The ASP underscores the importance of timely management responsive to your commitment to empower autistic children and adults to become self-reliant, productive, and socially active. You have indeed served and continue to reach a greater number of people, consistent with your theme: “Hope for ‘A’ Nation.”

We are proud to host your organization, thus, enabling Quezon City to maintain its status as the center of specialized institutions, caring for its medically disadvantage constituents. In fact, we have the distinction of being the Medical Tourism Capital of the Philippines. Health care and other wellness centers make our City competitive and an attraction for those who need competent and affordable medical rehabilitation, to recuperate in a homey atmosphere.

In coping with the recuperation needs of a vast city with a huge population, I look forward to sustaining our partnership as you continue to provide relevant, up to date and effective rehab activities for these special persons and encourage them to remain productive members of society.

MABUHAY TAYONG LAHAT!

HERBERT M. BAUTISTA
Mayor
Quezon City

07 November 2013

A message from Irwin C. Tieng Representative of Buhay Party-list

Cong. Irwin Tieng

My warmest Congratulations to the officers of the Autism Society of the Philippines (ASP) for organizing the Philippine National Autism Conference 2013, themed: “Hope for ‘A’ Nation.”

This intellectually stimulating and emotionally satisfying conference will strongly foster unconditional acceptance not only of those on the autism spectrum but within the community as well. This is a good venue for sharing information and exchanging ideas and experiences. Likewise, this will provide delegates with unparalleled opportunity to learn new knowledge that focus on improving the care and treatment of children and adults with autism.

May you continue with your mission to enrich autism social awareness and inspire individuals with autism to reach their highest potential. I believe each person in the autism spectrum has the opportunity to make a positive difference in this world.

Again, congratulations ASP and more power!

IRWIN C. TIENG
Representative
BUHAY Party-list

06 November 2013

A message from Vice President Jejomar Binay

Vice President Jejomar Binay

I would like to extend my warmest regards and congratulations to the Autism Society Philippines as you hold the Philippine National Autism Conference 2013.

Your theme, “Hope for a Nation,” is most apt. Awareness on and understanding autism remain to be a major challenge here in our country. There are close to a million Filipinos suffering from this condition and only a handful receives proper attention and care.

I salute your efforts in promoting progress using resources available to you. May this conference inspire other organizations and motivate them to help empower persons with autism.

Mabuhay kayo!

Jejomar Binay
Vice President
Republic of the Philippines

31 October 2013

A message from President Benigno S. Aquino

Pres. Noynoy Aquino

My warmest greetings to the Autism Society Philippines as you hold the Philippine National Autism Conference 2013.

Autism affects many Filipino families, and its prevalence here and worldwide calls for a more proactive campaign for awareness among our peoples. Coping with Autism Spectrum Disorder poses a difficult challenge to parents and family members; associations such as yours continue to lend them strength and guidance. Let this gathering serve as a laboratory of interaction and collaboration that provides you a support system and enlightens you on matters you seek to address. Hand in hand, let us build a nurturing environment that will further hone the skills and talents of ASD-afflicted members as they take their place as productive members of the community.

We in government share your aspiration for a just, equitably progressive Philippines that fully accepts, understands, and supports all citizens. Rest assured that we stand with you every step of the way, as we pursue programs and reforms that address the dynamic needs of our citizenry. We look forward to the success of this conference, and may this gathering yield a more driven and passionate collective that is sworn to protect and empower the vulnerable sectors of society.

BENIGNO S. AQUINO III
President
Republic of the Philippines

22 October 2013

Top reasons for attending the National Autism Conference

By Dang Koe
October 21, 2013

There are five reasons why I should attend the National Autism Conference on October 26 and 27 and help make a difference not only for my son and my family but also for others.

First of all, I should attend the confab because I am a parent. I have a son whose life is full of mystery and challenges. I have two other children and relatives who also need support in living with a family member who has autism.

As parents, we should not stop learning about breakthroughs in medicine, new laws, emerging trends in behavior management and other things that would make our sons or daughters become better persons. In Davao City where I work and reside, not all families have the luxury of time or money to go to Manila. Hence, attending this conference would give me an opportunity to share information and give advice to other families as well.

I am sure that parents will benefit from the discussion on “Autism Redefined: The Implications of Redefinition of ASD in DSM5 on Diagnosis and Prevalence” by Dr. Alexis Reyes, one of the top developmental pediatricians in the Philippines. There is also a talk on “Medical Issues and Morbidities in Adult ASD” by Dr. Cornelio G. Banaag, Jr., chairman of the Department of Psychiatry at The Medical City. Another very interesting topic is “The Truth about Stem Cell Therapy and Autism” by Dr. Antonio Dans, a professor and health advocate. I do hope his talk will give light to parents who are contemplating on trying this procedure on their child. Another important and practical topic is on “The Dental for a Person with Autism” by the executive director of the Pediatric Dentistry Center Philippines, Dr. Manuel V. Vallesteros, DMD.

Secondly, I should attend the autism conference because I am an educator. I am always a firm believer that one can learn a thing or two from resource speakers and from teacher-participants. By empowering myself with information, I hope I can share and update other teachers in Davao City on best practices in special education and keep their flames of commitment burning with compassion for students with special needs. The ASP lined up interesting topics for teachers. “Dance Therapy” will be discussed by Ana Rivera who has a diploma course in Special Education, a master’s degree in Speech Language Pathology and has had training in dance therapy in Wichita, Kansas. I am also curious about “Yoga for Sensory Integration” by Anna Escay-Cortez, a family and community yoga teacher certified by Kidz Yoga-Australia and Rainbow Kids Yoga. Vicente Rubio, diagnosed with Asperger’s Syndrome, will talk on “Building Successful Life Skills Strategies for Young People on the Autism Spectrum.” Rubio, director of Pathfinder Mentoring, currently designs and teaches alternative PE classes for students with autism and other social, behavioral, and academic challenges in public and private schools.

My third reason for attending the conference is because I am a columnist and writer for persons with autism. It is my personal responsibility to equip myself with facts and useful information from experts and professionals to be able to write reliable articles about autism. I hope I will be able to contribute in increasing the level of awareness and acceptance of individuals with autism, in my own simple way, by sharing knowledge gained from the conference. I am confident that the topic on “Autism in Media” will help me appreciate more my role as a SunStar Davao columnist. Prominent personalities who will join panel discussions include Karen Davila, an award-winning Filipino broadcast journalist and mother of a child on the spectrum; Atty. Anna Teresa Gozon-Abrogar, president of GMA Films; and journalist Ivy Lisa Mendoza.

The fourth reason why I always find the Philippine National Autism Conference worth attending is because I am a member of the Autism Society Philippines. It is a good experience to mingle with and learn from other parents who are ASP members, through an exchange of stories on parenting and teaching children with autism. It is also a way of getting recharged when you are aware that there is an ASP family whose members give genuine support and understanding to one another. I look forward to listening to parent-panelists on “How Families of Adults with Autism are Preparing for the Future” and self-advocates on “Challenges Adults with Autism Face in the Philippine Society.”

Last but not the least, I should attend the autism conference because I am an advocate of persons with autism and their families. Like other parents, I may have landed on this advocacy because of my son, but there are countless Filipino individuals affected with autism who need other people’s voices to express their needs and aspirations. By attending the confab, I affirm this commitment to actively involve the community in providing an inclusive environment for persons with autism. Two other parents living with autism will surely inspire me. They are Amor Maclang, founding director of GeiserMaclang Marketing Communications, Inc. who will talk on “Turning Families with Autism to Advocates,” and Ormoc City’s former mayor Engr. Eric Codilla on “Local Government – Bridging the Gap for PWA Inclusion.” Based on their actual experiences, Prof. Apollo Abelardo I. David, Jr., founder of Independent Living Learning Centre will moderate on “Employment and Livelihood for Adults on the Spectrum,” while Unilab Foundation’s senior vice president Rhodora Fresnedi will talk about “Advocating Inclusive Employment.”

I feel that my attendance in the 13th Philippine National Autism Conference will just be a thin, shining ray of this Hope for “A” Nation (theme for this year). But I pray that it can radiate a special glow and warm the hearts of people who live, love and care for individuals with autism.

Ms. Jane Gonzales

(The angel talker/writer is Jane Anne S. Gonzales, a SunStar Davao columnist, the school director of Independent Living and Learning Center – Davao, a staunch autism advocate, and most of all, the mother of 22-year old Jan who has autism. For more details about the conference, visit http://bit.ly/philnac2013.)

This article appeared in print and online versions of the Manila Bulletin on 21 October 2013, under the by-line of Dang U. Koe, ASP Chair Emeritus.

28 September 2013

2013 Philippine National Autism Conference



Hope for Autism. Hope for "A" Nation. This is the message of 2013 Philippine National Autism Conference. Join us on 26-27 October 2013 at the Meralco Multi-Purpose Hall. Register today -- http://bit.ly/philnac2013-regn.

Globaltronics, a leader in digital marketing solutions, has partnered with ASP for our conference. This 15-sec ad will be seen in major digital billboards all over Metro Manila.

26 September 2013

Ban Ki-Moon on Inclusive Development

Disability comes in many forms -- some outward, some unseen. The United Nations is one with organizations like the Autism Society Philippines in rallying behind the belief that “disability is not inability.” There is hope.

Our 13th Philippine National Autism Conference, entitled "Hope for 'A' Nation" looks beyond individual needs for therapy and intervention and braves questions on the integration and acceptance of individuals with autism in Philippine society — in education, law, media, employment, and other societal institutions.
UN Sec. Gen. Ban Ki Moon

The following message of at the UN Secretary General Ban Ki-Moon at the UN High Level Meeting of the General Assembly on 23 September 2013 runs parallel to ASP’s aspirations for genuine, inclusive national development.

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This is the most important period of the year at the United Nations.

Leaders from around the globe are gathering to focus on peace and security, development and human rights. I believe there is no better way to begin this momentous week than with this historic High-level Meeting.

I want to extend my warmest welcome to all of you -- especially persons with disabilities and their representative organizations. Thank you for bringing your strength and energy. Together, we are here to break barriers and open doors. We are here to forge the way forward and build a disability-inclusive development agenda towards 2015 and beyond.

Disability is part of the human condition; almost everyone will be temporarily or permanently impaired at some point in life. More than 1 billion persons live with some form of disability. Eighty per cent are of working age; 80 per cent live in developing countries. Yet far too many people with disabilities live in poverty.

Too many suffer from social exclusion. Too many are denied access to education, employment, health care, and social and legal support systems. Women and girls with disabilities often experience double discrimination – and so we must emphasize the gender dimensions of a disability-inclusive development agenda. All of us suffer when communities are divided; just as all of us benefit when communities are united.

The International Labour Organization found that excluding persons with disabilities from the labour market in some low- and middle-income countries costs economies as much as 7 per cent of Gross Domestic Product. We must remove barriers to equality of opportunity so that all people can be free from poverty and discrimination.

Let us proclaim in the loudest voice possible: Disability is not inability.

As I said in my report A Life of Dignity for All, persons with disabilities are integral to our forward march towards meeting the Millennium Development Goals and shaping the post-2015 agenda. The landmark Convention on the Rights of Persons with Disabilities is a powerful tool for inclusive development.

I urge all countries to ratify it without delay. I know you agree with me and Stevie Wonder -- we need it signed, sealed and delivered!

And we need more. We must further strengthen the international normative framework on
disability and development. We must build capacity and improve data and statistics on persons with disabilities. We must act now to remove barriers to access to physical environments, transportation and information and communications. And we must not only lift the physical barriers – but also the barriers in attitudes that fuel stigma and discrimination.

You are here to do more than change laws or policies or regulations. Ultimately, you are here to make sure every member of the human family has a chance to live their lives fully.

I think of the director of a programme for special needs children in Haiti who said “you should see the children’s faces when they put on their uniforms—money couldn’t buy the feeling of happiness.”

I think of the young football players I met in Sierra Leone a few years ago. Their limbs had been amputated during the war. And yet, there they were, playing soccer. To my eyes, they were even better than the World Cup soccer players.

I think of the Syrian mother in a refugee camp who finally received a wheelchair for her daughter with disabilities. She said “Now we can take her to see the doctor…now we can take her out. She has a right to see the sun.”

Everyone has the right to happiness… to score their own goals… to see the sun… and expand their horizons.

That is why you are here. That is your message and mission. I am proud to be at your side.
Together, let us turn a new page in the history of the United Nations by giving full meaning to the outcome document of this meeting. Let us work together so everyone, everywhere has the chance to live their dreams and use the gifts that they have been given. Let us advance disability-inclusive development, inspire change on the ground and ensure a life of dignity for all.

I thank you.

Ban Ki-moon is the eighth Secretary-General of the United Nations. His priorities have been to mobilize world leaders around a set of new global challenges, from climate change and economic upheaval to pandemics and increasing pressures involving food, energy and water. He has sought to be a bridge-builder, to give voice to the world’s poorest and most vulnerable people, and to strengthen the Organization itself.

26 August 2013

Hope for "A" Nation

Hope for a Nation Poster
The 13th Philippine National Autism Conference, dubbed “Hope for ‘A’ Nation” will be held on October 26-27 at the Meralco Multi-Purpose Hall.

This year’s conference braves questions on the integration and acceptance of individuals with autism in Philippine society — in education, law, media, employment, among others. The latest updates in medicine, pharmacology and therapy will be presented by respected experts from the Philippines and the United States.

The event is designed to provide information on developments relevant to allied medical professionals and community workers who work with autism. Most importantly, this event was created for the growing community of parents, family members and individuals on the autism spectrum who are seeking answers, quality support and fellowship.

Read more: http://bit.ly/philnac2013. Register at: http://bit.ly/philnac2013-regn

13 August 2013

The lowdown on DSM-5

By: Dang U. Koe, ASP Chair Emeritus

The autism community was all agog with the release this year of the new definition of autism in the Diagnostic and Statistical Manual of Mental Disorders (DSM)-5. The manual is one of the tools used by clinicians when diagnosing persons with or those suspected to have Autism Spectrum Disorder.

In the previous DSM-4, several disorders such as Autistic Disorder, Asperger’s Syndrome, and Pervasive Developmental Disorders not otherwise specified (PDD-NOS), were referred to as Pervasive Developmental Disorder. But under the new manual, all of these diagnoses now fall somewhere along the autism spectrum, and are therefore referred to as Autism Spectrum Disorder (ASD).

The three categories of autism symptoms in DSM-4 include impairments in social interaction, communication and repetitive or stereotypic behaviors. In DSM 5, there are only two categories: social communication and interaction, and restricted and repetitive behavior.

These changes are just among the five major developments in the diagnosis of autism that were approved by the American Psychiatric Association. We asked those who live with autism every day − the professionals, the parents and relatives of persons with autism (PWAs) as well as the PWAs themselves – what these changes mean to them and how it will affect their lives. Here is what they have to say.
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“We are grateful that the DSM-V has finally come out, which simplifies the categories for ASD and similar disorders. The categories in the past were far too numerous and confusing for both parents and the medical professionals.” — Alex Cabason, Autism Society Philippines (ASP) Marikina Chapter president, and parent of of 14-year-old PWA Vince.

“When my son was diagnosed at the age of three, I asked the developmental pediatrician about the severity of his autism. The doctor said she prefers not to specify what level he was in. In a way, her response spared me from additional stress apart from the devastating impact of hearing the diagnosis of my son. But at the same time, I also badly needed information on whether my son was low-functioning or high func-tioning as basis for my future actions. With the changes in the DSM-5, children can now be classified as Level 1, 2 or 3.

The new method of consolidating the diagnosis of Asperger’s syndrome, autism and PDDNOS into just one diagnosis would eliminate the notion that those with Asperger’s syndrome are better off than those with autism and PDD-NOS. On the other hand, the disadvantage would be if we correlate the parents’ level of hope with the level of functionality defined during assessment. The more a parent knows about the severity of autism in his or her child, the more helpless and distraught they may become. Likewise, the intensity of intervention may also be taken for granted by the parents of higher functioning children.” — Jane Gonzales, a columnist of Davao’s SunStar and mother to PWA Jan, 21

“As a SPED professional and community-based rehabilitation worker, I consider the DSM-5 as the beginning of uniformity in terminologies as far as diagnosis is concerned. Although the label is not to keep the child in the box, understanding the diagnosis is a step ahead in designing his/her IEP (Individualized Education Plan). I’m pretty sure that the learning characteristics of the child with ASD will remain unchanged, and it is the level of severity that will continue to challenge the teaching and learning process.” — Riza Cansanay from the Autism Resource Center of ASP Laguna, and mother of 28-year-old PWA Michael

“The new categories will help novice therapists pick appropriate therapy techniques because of clear guidelines and description of diagnosis. This will also help the doctors and speech therapists speak the same language and understand each other better in terms of diagnosis. However, I am concerned with the inclusion of PDD-NOS in the autism umbrella. Many researches state that children with PDD-NOS can have typical language development with the help of therapy, thus reversing some of the delays particularly in speech, language and social communication. This might confuse parents further and complicate the issue of autism as being reversible rather than a life-long disorder as claimed by most specialists.” —Kate Reyes, a speech pathologist of Independently Speech and OT Center in San Pascual, Batangas

“With the lowering of the criteria for diagnosing a number of disorders, therapists should use the DSM-5 with extreme caution. It still boils down to knowing my students well enough to identify the areas where they need support and come up with a suitable program/plan to address their needs.” — Josephine de Jesus, a speech therapist from Makati City

“I cannot say certainly that the new guidelines for DSM-5 should classify other disabilities like PDD-NOS under the autism spectrum disorder. The fact that children develop uniquely does not mean that they are conclusively presumed to have autism without further probing or analysis. For instance, a child who has developmental delays but does not manifest a lot of them does not imply autism.

I still believe that children who manifest any behavior pertaining to autism should still have access to health and educational services provided by appropriate professionals or government to the maximum extent possible.” —JR Tan, autism advocate

“The deletion of the diagnosis of Asperger’s and PDD-NOS seems to be causing a stir. I’ve heard so many parents say that their child just has PDD-NOS or Asperger’s - as if to console themselves that it isn’t as bad as the classic autism that people imagine. If the label of “autism” does not deter parents from seeking the most appropriate intervention they can find/afford, then ultimately it does not make a difference. But if the label stigmatizes them to despair and inaction, then it’s another matter. Ultimately it is the parental perception or understanding of the diagnosis that will make the difference and determine the course of action and outcome.” — Cecile Sicam, school directress of Bridges Foundation and mother of 32-year-old PWA Likas

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Dr. Alexis Reyes, one of the country’s top developmental pediatricians, will talk about “Autism Redefined: The Implications of Redefinition of ASD in DSM-5 on Diagnosis and Prevalence” at the 13th Philippine National Autism Conference. Themed “Hope for ‘A’ Nation,” the confab will tackle issues and experiences relevant to an autism community that is striving for acceptance and inclusion in Philippine mainstream society.

The event is designed to provide information on developments relevant to allied medical professionals, social servants and community workers who work with autism. Most importantly, the event was created for the growing community of parents, family members and individuals on the autism spectrum who are seeking answers, quality support and fellowship. For more details, visit http://bit.ly/philnac2013.

This article appeared on 12 August 2013 in the print and on-line versions of Manila Bulletin's "Angels Talk" under the by-line of Dang U. Koe, ASP Chair Emeritus.

 
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