The Autism Society Philippines (ASP) is a national, non-profit organization dedicated to the well-being of persons on the autism spectrum disorder. We envision a society where Filipinos on the spectrum become the best of their potentials -- self-reliant, independent, productive, socially-accepted citizens of an Autism-OK Philippines.

27 January 2019

Why Filipinos should say "No" to the "Boyet Challenge"

The Autism Society Philippines condemned the latest social media experiment called "The Boyet Challenge" (where participants mimic the title character from the soap opera "My Special Tatay") as thinly-veiled instruments of ridicule of those who live with autism and intellectual disabilities, just as the Philippines began to the commemorate the National Autism Consciousness Week on the third week of January.

The image shows a man showing his face, neck and collar.
The #NO2BOYETCHALLENGE digital poster
This is in response to the increase of posted videos of Filipinos doing their versions of this fictional character with a developmental disability, which began in December 2018.

In January 2019, the ASP called out YouTube influencer Benedict Cua on Twitter for posting a "72-hour Boyet Challenge" video. The ASP appreciates how Mr. Cua apologized in writing and via video; and has since taken down the original post.

Since our Facebook and Twitter posts, this story was covered by GMA News Philippine Daily Inquirer, Manila Bulletin, Abante TNT, Abante VisMin Remate, Yahoo News Philippines, PEP.ph, Coconuts.co, Kami.com, among others.

Our call for kindness has spurred questions and conversations via comments and direct messages worth sharing here.

I like Ken Chan and his portrayal. Why are you against "My Special Tatay"?

The Autism Society Philippines respects the rights to creative expression of performance artists, writers and producers of TV and film in the interpretation of fictional characters who have autism and intellectual disabilities.

We condemn the "Boyet Challenge" social media trend involving the imitation of a popular fictional character named Boyet, because it uses traits of persons with disabilities for the purpose of comedic entertainment and social media notoriety. Sadly, this includes Mr. Chan (who joined and supported the Angels Walk for Autism years ago) who often slips into his Boyet character outside the context of his soap opera.

Ganun naman talaga magsalita ang mga may autism. Uma-acting lang naman kami, kasi fans kami ng show.

"My Special Tatay" is an undeniably popular show with a wide audience base. When the show launched in August 2018, Ken Chan articulated his aspiration to be a "voice of people with autism". This made us hopeful that his portrayal of a man on the spectrum will inspire compassion and respect for persons with autism and intellectual disabilities as human beings, who do not deserve being spoofed in the name of comedic amusement.

We would like to share a list of honest and nuanced portrayals of characters with autism and/or intellectual disability worth emulating: Alden Richards in Eat Bulaga's Lenten Special "Kapatid" (2017), John Lloyd Cruz in "The Trial" (2014), Gerald Anderson in "Budoy" (2012), Terence Baylon in "Ipagpatawad Mo" (1991), among others. We are keen on watching how Arjo Atayde's character with autism in "The General's Daughter" (2019) will be developed. The Autism Society Philippines serves in an advisory capacity on film and television projects that will further the understanding of autism through media.

We especially commend actor Gerald Anderson for starting a foundation which trains dogs to serve in rescue missions and to act as service dogs to children with autism -- after his show ended and without the intention to promote his television project. He also partnered with Kiehl's Philippines to raise funds that will provide free therapy for children with autism from indigent families.

Wala pong masamang intention ang mga gumagawa ng challenge. Pampa-good vibes lang po ito.

Ginagawa po ang challenge para magpatawa. Bakit po naging nakakatawa ang mga taong may kapansanan na nahihirapan magsalita o parang musmos magisip? Hindi po makatao na gamitin ang hirap nila na pampatawa! Hindi po makatao na gawing katatawanan ang kanilang kaibahan! Para po sa mga milyong-milyong pamilyang Pilipino na may minamahal na may kapansanan, hindi po ito nagbibigay ng "good vibes".

This is a harmless social media gag. It has no effect in real life.

Here's an effect which can be measured by empirical data. With the popularity of the Boyet Challenge and its variations like the "Kapag lumingon ka ..." and the "This is my voice after watching #myspecialtatay ...", measured in post volume, likes, comments, reposts and number of compilations, it appears that it is now acceptable to mimic persons with communication challenges in the name of entertainment and social media virality. The term "Boyet" is now an emerging euphemistic insult for anyone likened to persons with autism and intellectual disability -- just search #boyet on Twitter.

As an ethnographic observation, the thousands of people who have posted this challenge expose a dark layer of society who think persons with disabilities are different, therefore less than them and are laughable. This perpetuates the culture of bullying that Filipino children and adults with autism and intellectual disabilities have to live with everyday.

This may be just a TV show or a way to rack up social media likes for some; but this is real life for persons with autism and their families.

We are free to express ourselves. We are protected by freedom of expression by law.

The freedoms we enjoy as citizens carry obligations. We should not abuse these freedoms by infringing on the rights of others to exist with dignity. Persons with disabilities are protected by the Magna Carta of PWDs. Republic Act No. 9442 (the ammendment to RA 7277) protects PWDs (which include those with autism and intellectual disabilities) against ridicule and vilification. Violation of this law carries fines and prison time. Pursuit of legal action is an option the Autism Society Philippines is ready to take as a last resort.

What can I do to help the #no2boyetchallenge campaign?

Send this FAQs to anyone in your sphere of influence who has posted a #boyetchallenge video. If you have made a #boyetchallenge video, delete it now. If you are a parent, please talk to your kids. If you are a teacher, please discuss this in class. If you are part of a student group, please create a campaign on campus. Take a stand! And read more about the Autism Society Philippines' 1Pangako campaign at http://bit.ly/1pangako.

There is no need to pick fights. Many who have participated in this challenge quickly recognize the disability slur once it is pointed out. Think of this as an opportunity to teach and inspire change. Peace to all!

About the contributor. Mona Magno-Veluz serves as the National President of the Autism Society Philippines. She engineered many of ASP's widely successful national programs and campaigns, such as Autism Works, 1Pangako, Project ChocolatA, Project GourmA, among others. She writes about parenting, family history and disability inclusion. She is a mom to three kids and a grandma to 12 cats. Find her on Twitter @mightymagulang.

14 January 2019

National Autism Consciousness Week 2019

The image shows many participants attending Angels Walk 2016 in Mall of Asia Arena.
Angels Walk for Autism 2016, MOA Arena

Autism is a lifelong developmental exceptionality, which may challenge an individual’s ability to communicate, socialize and adapt to the world around him. One in 100 Filipinos are on the autism spectrum, translating to approximately 1.2 million of our countrymen living with autism today.

The Autism Society Philippines is one with the nation in celebrating the Philippine National Autism Consciousness Week (NACW) to be held from 20 to 26 January 2019. This annual observance was made possible by President Fidel Ramos' Proclamation 711 of 1996 – in inspiring acceptance, accommodation and appreciation of persons with autism (PWAs) in society. The activities of the week promote action by the public and private sectors towards enabling PWAs to live with dignity, enjoy equal rights and access, function independently and contribute productively. We would like society to strive beyond “awareness” and to inspire genuine inclusion -- through acceptance, accommodation and appreciation!

"Pagtuon: Tugon sa mga Pilipinong May 'K' dulot ng Autismo" celebrates PWAs #Kakayahan #Kagalingan #Kakanyahan #Katalinuhan #Kapansanan. We hope to inspire awareness, acceptance, accommodation and appreciation of autism in all sectors of society. Public and private institutions are encouraged to spearhead creative activities, events and programs, towards building opportunities for our neurodiverse population. We recognize that to effect the changes we need, we must work together.

Calendar of Activities

Template for the National Autism Consciousness Week Banner — http://bit.ly/2sobYIm

Calendar of Activites -- http://bit.ly/2QQpgXZ or see below.

09 January 2019

AUmbitious: PWA Empowerment Forum

The Autism Society Philippines Self-Advocacy Circle was formed in 2018 to bring the voices of persons with autism together, as a positive force of change in Philippine society. The group is composed of autism self-advocate members of the ASP and is led by:

Mr. Ian Lopez - President
Mr. Carl Veluz - Vice President, External
Mr. Paul Matthew Somera - Vice President, Internal
Ms. Pia CabaƱero - Vice President, Communications

The image shows differnt kinds of color green background with a collage of PWAs.
AUmbitious PWA Empowerment Forum digital poster

In commemoration of the National Autism Consciousness Week, the group is holding it's maiden event, AUmbitious PWA Empowerment Forum -- one where ASP autism self-advocates share their journeys and their needs, for themselves and for those who do not have a voice. This is the first of a series of fora, designed to inspire sharing of experiences, thoughtful exchange and PWA-led recommendations that will impact public policy for the improvement of the lives of persons with autism.

This event is warmly supported by the Autism Society Philippines, King’s Court and the Leonard Cheshire Disability Foundation.

The event program can be found at http://bit.ly/2VQfmJH.
Registration form can be found below or via https://aumbitious-jan2019.eventbrite.ca.

- - - - - -

We still need volunteers to write about their journeys as persons with autism, maximum 500 words, answering the questions:

1) What were your earlier challenges? What and who helped you improve?
2) What do you want to accomplish for your future?
3) What do you want the society to do to help you?

Speak from the heart. Be genuine. Do not brag. Tagalog or English is okay.

The top contributions will be invited to read their entry at the AUmbitious event. Please email in a Word document to carlveluz92@gmail.com on or before 19 January 2019. All contributions will be published in the ASP blog, all througout 2019.

07 January 2019

ASP Family Support Group for January 2019

ASPs monthly family support group sessions bring together parents, siblings and other family members to talk about their journey in living with autism. Participants share their experiences and draw enlightenment and strength from others going through the same challenges. We welcome members and non-members to this intimate gathering. New ASP members are encouraged to join.

The image shows Ms. Carmel Almendrala wearing a light green Filipiniana with flower designs and necklace with beads. Her son Michael wears a Barong Tagalog.
Ms. Carmel Almendrala with son Mike

Our facilitator for this month is Ms. Carmel Almendrala. A retired ambassador’s wife and an Ulirang Ina Awardee of 2010, Carmel personifies diplomacy as she faces the world with poise, grace and intelligence. Over the years and in the many countries where their family has had to relocate because of her husband's work, she laboured tirelessly to advocate for her son Michael, now in his 40’s, and for the rest of persons with autism. Serving as Trustee for more than seven terms, she reminds young mothers of children with autism: Grab every opportunity and don’t take no for an answer. This is evident in her son Mike, who is a Special Olympian Gold Medalist (who competed in 2003 in powerlifting in Dublin, Ireland and in 2013 in bowling in Australia where he won 2 bronze medals), a 2005 Apolinario Mabini Candidate, and an independent member of the community working as an administrative staff of the Philippine Information Agency. Michael is believe to be the very 1st Person with Autism in the Philippines to earn a Civil Service Eligibility. Michael's most recent achievement is when he was chosen to represent the Philippines in the "International Conference on Disability Rights in South Korea last march 7 to 10, 2018, where 400 participants from different countries attended.

ASP Family Support Group
19 January, Saturday, 1:00 pm - 4:00 pm
Autism Society Philippines National Headquarters
#9 11th Jamboree Street cor. Sct. Fuentebella, Brgy. Sacred Heart, Quezon City
Map: http://bit.ly/1LwgklB

Sign up for the Family Support Group via the on-line form below or call +632 903.5496. Only 15 seats are available.


05 January 2019

ASP Autism Angel Achievement Awards 2019

The image shows an A5 Sculpture designed trophy.
The A5 Trophy
The ASP Autism Angel Achievement Awards, nicknamed A5, is an annual recognition of the impact of persons with autism in the community and of their skills and talent that makes them stand out beyond their exceptionality.

The honorees for the A5 every year are selected based on the following criteria:

Must have been formally diagnosed with autism; Must have won a competition at a national or international level during the previous calendar year; and Must possess good moral character.

List of past winners

2018
  • Charlene Danica Escasinas (performing arts) - Nica first joined and won a singing contest at the age 7; and started modelling at the age of 12. Danica were given the opportunity to represent the Philippines to the 1st ASEAN Autism Youth Camp in April 2013 at Brunei Darussalam and in Autism Talent Gala 2017 in Hong Kong.
2017
  • Vell Baria (performing arts) - Velle has been performing at autism advocacy events for years; and performs regularly at amateur and professional productions. Velle is working towards a degree in Music Performance, with a major in Voice, and a minor in Piano, at St. Scholastica's College Manila. She won the INAP Award for Performing Arts at the ANCA World Autism Festival in Vancouver, Canada.
2016
  • Vico Cham (visual arts) - Considered a product of ASP showcases of PWA talents in his younger years -- joining on-the-spot painting contests, drawing for the centerfold of a national conference's souvenir programme, and being featured during an ASP art exhibit -- Vico received in 2015 a special award from the Apolinario Mabini Award for PWDs. He works as PWA employee #1 of Unilab Foundation.
  • Raymond Macasaet (athletics) - Raymond is a Special Olympics veteran, having earned medals in Aquatics in competitions in Greece 2011 and Singapore 2013. During the 2015 Special Olympics in Los Angeles, he won gold in the 50 meter and 25 meter dash in the track and field category.
  • Thara Marie Santiago (performing arts) - From 79 candidates, Thara Marie became one of the 19 finalists who received "Excellent Performance Award" during the Autistic Talent Gala held last December 2015 in Hongkong, which was organized by the AnAn International Education Foundation. Her rendition of "All by Myself" earned her one of the 4 major awards in the individual category - "Most Touching Voice."
Nomination Form

03 January 2019

ASP PweDay for the months of January and February 2019

“The most interesting people you’ll find are ones that don’t fit into your average cardboard box. They’ll make what they need, they’ll make their own boxes,” --- Dr. Temple Grandin

The Autism Society Philippines Wednesday "PweDay" aims to provide enrichment for teens and adults on the autism spectrum who are not currently enrolled in schools. ASP PweDays will offer opportunities to learn new skills, to socialize with non-family members and to have fun. This will be every Wednesday, from 2pm to 4pm at ASP Headquarters. This is open to all Persons on the autism spectrum members, 16 years old and above.

The image shows Pweymates having a group photo after their dance sessions.
Our Pweymates during the dance session

On January 9 - Adults on the autism spectrum will be having Qigong for the first time. Qigong, qi gong, chi kung, or chi gung is a holistic system of coordinated body posture and movement, breathing, and meditation used for the purposes of health, spirituality, and martial arts training.

On January 16 - we will prepare a Fruit Cocktail Gelatin. Gelatin is a popular dessert among Filipinos. This sweet treat will satisfy your taste buds as it is made delectable using ingredients gelatin, sugar, condensed milk, evaporated milk and fruit cocktail. Perfect dessert to pair in any meals, or have this for snack. This will teach our Persons on the autism spectrum on proper food hygiene, simple food preparation, and presentation. Participants must bring their own hair net, apron, and closed shoes (no slippers or sandals please). Prepare a P200 donation when you get on-site.

On January 23 - Adults on the autism spectrum will have Sensory Friendly Movie. To provide a more accepting and comfortable setting for our special audience, ASP will allow bringing up the lights, turning down sound volume, allowing families/Persons on the autism spectrum to bring in their own snacks and welcoming audience members to get up, dance, walk, shout, sing, go in and out of the room.

On January 30 - we will have MixxedFit Dance Fitness - MixxedFit is a people-inspired dance fitness program that is a mix of explosive dancing and bootcamp training techniques. Certified MixxedFit Instructor Miss Donna Lim will lead this innovative dance-fitness incorporates different elements, all of which are designed to tone, strengthen, and increase endurance. MixxedFit will feel you energized, combining fun-loving dance moves with interval training and cardio workouts, individuals will enjoy an inspirational full body workout.

On February 6 - there will be a session on Art. Persons on the autism spectrum will make DIY Crepe Paper Flowers. This activity will require attentive focus and calmness to enhance the creativity of our Persons on the autism spectrum and develop their natural artistic abilities. This flowers are extra special, because they never wilt. Participants will bring their own scissors.

On February 13 - in time for Valentine' s Day. Persons on the autism spectrum will make Chocolate Covered Oreo Pops. Everyone loves Oreos and chocolates! These Oreo Pops came out so cute and easy to prepare. They're the perfect Valentine's Day treat for a party, family-friendly activity, or snacks. This will teach our Persons on the autism spectrum on proper food hygiene, simple food preparation, and presentation. Participants must bring their own hair net, apron, and closed shoes (no slippers or sandals please). Prepare a P200 donation when you get on-site.

On February 20 and 27 - we will make a Flaglets that we will use in our Angels Walk for Autism 2019 in Mall of Asia Arena. This will help to develop fine motor skills and creativity. There will be a simple contest, more flaglets you make, more surprise prizes you get.

"Persons on the autism spectrum who are no longer in school end up in the fringes of society." Mona Magno-Veluz, ASP National President shares, "ASP is deeply invested in building a society where a individuals with autism be the best of their potentials -- self-reliant, independent, productive and socially-accepted members of the community -- no matter where they are on the spectrum. By keeping our Persons on the autism spectrum active and engaged outside the home, we are also training the society to be more aware of what autism is, to be more appreciative of their gifts and to be more accommodating of their deficits."


 
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