The Autism Society Philippines (ASP) is a national, non-profit organization dedicated to the well-being of persons on the autism spectrum disorder. We envision a society where Filipinos on the spectrum become the best of their potentials -- self-reliant, independent, productive, socially-accepted citizens of an Autism-OK Philippines.
Showing posts with label awareness. Show all posts
Showing posts with label awareness. Show all posts

11 September 2016

ASP Laguna drives autism awareness in provincial malls

ASP Laguna officers spoke as resource rersons in "Seminar on Caring for Customers with Special Needs" at SM City Calamba and SM City San Pablo last 23 August and 24 August 2016.

The image shows Ms. Catherine speaking during Sensitivity Program.
Ms. Catherine Lopez speaking in Sensitivity Program

Autism Society Philippines appreciates the continuing efforts of SM Supermalls nationwide through the SM Cares program which reaches out to people with disabilities, their families and other sectors of society.

About the contributor: Ms. Catherine L. Lopez obtained her Bachelor of Elementary Education, Major in Special Education at San Pablo Colleges and her Master of Arts in Education, Major in Special Education at Jose Rizal University. She is the Job Coach for the office and messenger services of Autism Resource Center. She also serves as the President of ASP Laguna Chapter and cluster head for ASP chapters in South Luzon. She is a mother of a young adult with autism who graduated from UP Los Baños in 2017.

25 April 2016

ASP Baguio advocates with the Department of Health

ASP Baguio’s Immediate Chapter Past President Jennifer M. Gundran and its current Chapter President Belette N. Vizcocho served as resource speakers at a Disability Sensitivity Training conducted by the Department of Health Cordillera Administrative Regional Office last 21 April 2016 at The Prince Plaza, Legarda Road, Baguio City. Participants of the training included City and Provincial PWD Coordinators, Health Promotion Officers and some DOH Representatives and Physicians.

Before starting with her presentation, “Understanding Autism,” Jenny Gundran briefly introduced Autism Society Philippines, its vision, mission and advocacies. She also made mention of ASP’s 1Pangako Campaign which aims to stop the use of the word “autistic” as a joke or an insult. Her presentation included a definition of autism, signs and symptoms, prevalence and the difficulties experienced by children/persons with autism. She also discussed Philippine myths about autism.

Jennifer Gundran presents DOH

Belette Vizcocho gave a short presentation on autism and the various potential comorbidities, describing briefly the difficulties associated with ADHD, Cerebral Palsy, Epilepsy, Dysgraphia, Dyspraxia, Dyscalculia, Dyslexia, Global Developmental Delay, in addition to the Autism Spectrum Disorder.

At the end of the presentation, a few questions were raised during the open forum regarding the availability of developmental pediatricians in the city and the different forms of therapy and programs needed by persons with autism. We informed the audience that we have two developmental pediatricians – Dr. Millicent Fronda De Vera who is based here in Baguio and Dr. Francis Xavier Dimalanta who is based in Manila but makes monthly visits to Baguio and runs A Child’s Dream Therapy Clinic. There are other private therapy centers in the city as well, catering to persons with special needs.

In closing, we mentioned ASP’s thrust at not only spreading a better awareness and understanding of autism but also working at promoting an inclusive society where persons with autism are socially accepted, independent and productive members of the community.

About the contributor. Isabelita Vizcocho is a graduate of architecture from UST, manages Jet Bookstore in Baguio City. She is married to Noli Vizcocho, a founding chapter president of ASP Baguio, who is currently the chapter president, have 4 grown up daughters and an only son, Josef, who is now 23 and was diagnosed with autism at the age of 4, a graduate of HRRM, presently a casual employee at the Baguio Country Club.

20 February 2015

A day to remember with St. Jude College

St. Jude Thaddeus, responded to the thrust of “Humanitatem” which meant service to humanity. The Psychology and Education Department of the School of Arts, Sciences and Education of St. Jude College Manila also answered the call to serve through a partnership with Autism Society Philippines called “A Day to Remember Persons with Disabilities” last 06 December 2014. Psychology and education of students from different schools and professionals from different organizations were in attendance. ASP UP-CAMP Chapter and Ms. Jan Peña orchestrated the execution of the event.

ASP Trustee with the organizer

Ms. Mona Magno-Veluz welcomed the participants to the event, and led the the group in a 1Pangako pledge. Ms. Erlinda “Dang” Uy Koe, ASP Chair Emeritus, spoke about her family’s journey and ASP’s advocacy. Mr. Evert L. Malapad, talked about care and intervention across the autism spectrum. National Council on Disability Affairs (NCDA) Chief of Information, Education and Communication Division Mr. Rizalino R. Sanchez shared the current trends in tertiary education, especially on the rights of students with disabililties.

About the contributor: Lloyd Ngo worked as an ASP intern when he attended Independent Living and Learning Center. He began working in 2012 as an encoder at the Ongkiko Manhit Custodio and Acorda Law Offices in Makati. He is currently ASP’s Program Assistant for Communications.

07 November 2014

Singapore Airlines embraces autism awareness

The Autism Society Philippines, represented by Evert Malapad conducted an autism awareness seminar for the Singapore Airlines Customer Relations Team and the Philand Security Agency Civilian Airport Personnel at the Singapore Airlines Terminal 3 Conference Room last 19 October 2014. The activity was opened by Col. Arma of Philand who shared what he had learned from a similar seminar he attended at Duty Free (organized by ASP Parañaque). Ms. Lejano of Singapore Airlines welcomed the presence of all participants and speaker and highlighted the importance of the topic in their work.

Singapore Airlines Staff with Mr. Evert Malapad

“The participants highly appreciates the effort of ASP thru Mr. Malapad, because even it is a Sunday, the ASP continue to hold such activity.”

“The seminar delivered is highly appreciated because it is informative and the meet the expectations of the participants. The language and content itself is easy to understand.”

“The seminar ended with John Maxwells quote ‘Coming together is the beginning; Working together produces victory’.”

About the contributor. Evert L. Malapad is former Trustee of ASP National Office and an ASP Lifetime Member. He is a proud father of daughters Ella and Mae-mae (who lives with autism). Evert is leads an adult program for individuals with special needs in Candent Learning Haus in BF Homes Las Piñas City. He earned a Masters Degree in Education and passed the Licensure Examination for Teachers-Secondary Level in 2011.

17 August 2010

Aspergers Syndrome on TV

By: Tiffany Tan, ASP Board Secretary

Solar Entertainment’s 2nd Avenue brings “Parenthood,” a TV-drama series about Adam Braveman (Peter Krause, Six Feet Under) and Kristina (Monica Potter, Boston Legal) are parents to Max (Max Burkholder), who is diagnosed with Asperger Syndrome.

Parenthood airs on August 20, Friday at 9PM on 2nd Avenue. 2nd Avenue is seen on UHF RJTV Channel 29, SkyCable Ch. 19, Global Destiny Ch. 29 and Cable Link Ch. 46.
Asperger Syndrome on TV poster

More than 50 years ago, Hans Asperger, an Austrian pediatrician observed 4 boys in his practice who had difficulty integrating socially. The boys lacked empathy, with little ability to form friendships, had one-sided conversations, had intense absorption in special interest and were physically clumsy. He called the boys “little professors” because of their ability to talk about their favorite subject in great detail.

His first published definition of Asperger’s Syndrome in 1944 as a pattern of behavior and abilities that he called "autistic psychopathy", meaning autism (self) and psychopathy (personality disease). Only years after his death in 1980 were his journals and works published and internationally recognized. (Source: Wikipedia)

Asperger’s Syndrome is also described by some as “a dash of autism”. People with AS are also known as “Aspies”. Aspies have normal to high intelligence and language development but they find social situations and personal relationships challenging. Aspies are able to work successfully in mainstream jobs, although they may continue to need encouragement and moral support to maintain an independent life.

Click here for a comprehensive Asperger Syndrome Fact Sheet.

Who are Famous Filipinos with Asperger Syndrome?

• Thristan “Tum-Tum” Mendoza – world class marimbist, who Majors in Percussion at UP College of Music. Click here to watch Tum-Tum play the marimba and dance like Michael Jackson!

• Patrick Louie So – math wizard, sophomore student of BS Life Science at Ateneo de Manila. Click here to read how Patrick survives his first year in college

• Gabriel “Gabby” Atienza – cartoonist, author of “My Life as A Comic Book”. Click here to watch how Gabby came to terms with himself and his love for art.

Where do I seek support?

• Visit the ASP National Office Library to read books on Aspergers Syndrome.

• Register for a FREE Family Support Group on August 21, 2010 at the ASP National Office at Room 307, ML Building 47 Kamias Road, Quezon City. Call 7-903-5496 to register. Hurry only 15 slots available. Click here for more details.

• Become a member of Autism Society Philippines. Click here to sign up for membership

• Visit our community website and check out our resource directory for more information.

16 August 2010

Managing Autism Divas

By: Dang Koe, ASP Chair Emeritus

Vell Baria is 15 years old, a junior student at St Mary’s Academy. With a soulful voice, she hits high notes without effort. A “birit” queen during her stage performances and TV guestings, she also composes songs.

Thara Santiago is 15 and half years and is now a high school student of Holy Child of Jesus Academy in Biñan. She also has a powerful voice which enables her to render Beyonce’s “Listen” with brilliance.

Nica Escasinas is 16 years old, a high school student. She has the voice and the groove of a concert queen — from love songs to rock songs. Not only can she sing and dance, she also plays the guitar, drums and piano. And she looks and moves like a model.

Individually, they are incredible singers. Together, they are an unbelievable powerhouse of vocal prowess. The three girls not only share the same passion and talent in singing. They also belong in the same spectrum....autism.

I named them the ASP Dream Girls, a take-off from the tagline of Autism Society Philippines “Sharing hopes and building dreams”. Later on they were also being called the Autism Divas. Sometimes during their performances, it can feel like you are handling divas. Ask their “talent manager.” Noemi Viado, or Teacher Ging, who runs GS Option House for Autism in Binan, Laguna. Also a mother of a 24-year old young lady with autism, Teacher Ging is on her second term as board trustee of ASP.
How did you discover the talents of the ASP Dream Girls?

Thara is my student at GS Option House for Autism. When she started with us at 7 years old, she was hyperactive and had language delay. But she would always listen to children’s songs being played in the classroom. She had her first performance at UPLB when she was 10. Since then, I continue training her to be a singer, especially for her performances during different shows and programs of ASP.

I met Vell when she had her first major solo performance during the ASP National Conference in 2007. While working with Thara, I also reached out and helped Vell prepare for the show. And such voluntary coaching went on during succeeding ASP shows where the two girls were always invited.

Then two years later, ASP requested if the two girls can do a duet for ASP’s 2009 National Conference. I requested voice coach Jenzen Turica to help me with their songs, while I took care of managing their behaviors in public. Since I saw how talented they are, I already decided then to help them via Social Behavioral Therapy during their practices.

A month later, Thara and Vell were guest performers at “Echoes of Dreams” concert held in Araneta Coliseum with Lea Salonga. There was another singing talent with autism — Nica. ASP took notice of her and included her in its next event.

the ASP Divas: Vell, Thara and Nica

How and when did the three divas become a trio?

While they were singing last January, a friend asked me if they can perform in trio. I immediately gathered them backstage and told them to prepare a song. They were excited! Vell arranged their voices — she took the soprano, Nica alto, and melody for Thara. The outcome was amazing and wonderful! They were able to blend their voices in their own styles and timing. That was the beginning of the “ASP Dream Girls.” Vell, Thara and Nica are now even more applauded everywhere they perform solo and trio. And there is that usual question: “do they have autism?”

How do you spot true talent?

I have an eye to see the splinter skills and talents or intelligence of each person with autism (PWA) I am working with. I look through the children’s interests and obsession. I see the gifts of God through their actions.

Most of them have natural talents. I remember a student of mine who would hold a toy piano all day long. He is now a pianist. Another student, at age two, would just hum and hum without interaction. He became a singer. These are some signs that we can use to lead us in discovering PWA talents and abilities, and which we can develop in the future.

But the first thing to do is to work on their deficits in language, behavior and social skills. After that, whatever talents they have, I believe, will just come out. Nurturing the talents of PWAs needs a lot of motivational procedures. One of my students will work on his academic programs if he knows he can take his voice lesson after.

Sometimes a true talent can’t be easily seen. It requires rehearsals, practices, and encouragement from his environment. Most PWAs need a lot of appreciation (like applause from the audience) for them to achieve their fullest potentials in terms of skills and abilities that God has given them.

How does it feel being an educator and now a “talent manager” of performers with autism?

As an educator, it is my goal to bring out the maximum potentials of my students. A singing career is also an educational attainment, like for our three divas. For me, being an educator compliments my being a “talent manager.” Both undertaking can help me develop the needs of a special person. I love to teach, it is my passion to see kids learning. I consider my teaching skills as a gift from God, and that’s the reason why I’m here in this field.

As an educator and a “talent manager”, I realize my mission of fulfilling their dreams...” na maging sikat”, as Vell said.

What was the most challenging situation that has happened in managing your talents?

It was the “bathroom tantrums” at PICC where the ASP Dream Girls were to perform during the International Autism Conference last February.

Before the show, Vell told me she was tensed and feeling nervous to perform as a trio. She said it was hard for her to adjust with the other girls’ voices and could not do it in her own style. It turned out she was frustrated because there was only one production number for them. She wanted to have a solo performance and could not accept not having one!

So while we were preparing and changing clothes in the bathroom, Vell suddenly decided she was not joining the act, and Nica seconded! Then the three divas were shouting, crying and displaying resistant behaviors! The show’s director already told me to cancel the performance if the three girls would not behave and cooperate for their voice blending.

I started to panic and made behavioral modification strategies, such as reward system (using my own jacket as a reinforcer for Vell because she wanted it), motivational procedures (praises and promises for Nica), and even privilege lost (no computer for Thara). My prayer was answered and the girls started to comply. The three divas were already fine and calm when it was “show time”.

As the ASP Dream Girls were singing, I just sat and looked down, trembling. Then I looked up again when the conference delegates, including the foreign experts, started clapping loudly. I felt like a winner! I was so happy to see the girls being hugged and congratulated by the VIPs. I heard foreign guests’ comments: superb, fantastic, wonderful, talented girls, great style!

Recently I had a similar experience during the taping of 700 Club Asia. I came up with a contract between me and one of the girls which made the situation controllable, and the show successful.

But in spite of these challenges, I am so proud of these three girls with autism. They give inspiration to the whole world. It’s really amazing to be part of the changes in their lives.

What other teaching strategies do you use to manage your talents with autism before, during and after shows?

In the past two decades of my hands-on teaching PWAs, I strongly believe that their talents are gifts from God. So I start preparing the girls with a prayer, which they usually request themselves before a show starts. Praying has actually become a “routine” for the four of us.

A prompt using visuals or written cues are needed to make them feel comfortable while waiting for the show to start. Constant reminders or warnings on what to do on stage are also needed.

I am not really concerned about their voices and songs since I know they can really sing well. I focus more on correcting odd behaviors, managing frustrations and other changes during events. Since these behaviors can occur anytime, depending on their moods and their understanding of the environment, I need to prepare for the situation. Social manners and social interactions are also being monitored every time the three girls are in public places.

My educational background as a special teacher and as a behavioral therapist gives me the confidence to handle them when non-compliant and manipulative behaviors occur. I have learned that social stories, what-to-do stories, role modeling, rewards and positive reinforcements are effective strategies to control their social deficits and odd behaviors. The use of negotiation and a contract between me and the girls help them cope with stress.

Knowing the deficits of autism, my role for the three girls is very challenging. And I am always rewarded with their outstanding performances.

What advice can you give to aspiring singers, dancers with autism? To their parents?

There are always big opportunities for talented PWAs. I have seen lots of them developed from simple abilities to admirable talents. I had a 2-year-old student playing a toy drum every time he was inside the classroom, and now he is a band member. I have a student who will not talk nor say mama and papa but can sing a lot of nursery songs. Isn’t it wonderful and amazing to know that through their obsessions they can become talented performing artists?

To the parents, like me, please nurture whatever simple skill or interest that your child is displaying in front of you. It might lead to what the ASP Dream Girls are enjoying now. Patience, perseverance and enduring challenges are the keys to achieve your dreams for your child. Consider adopting multiple intelligence and skills while teaching them. They might excel in music, arts, dance, musical instruments and drama.

Taking care of our children with autism develops our own skills and godly character traits necessary in our everyday life. To serve and build a community for them is a life-long commitment for us, but doing so also brings us so much joy. With the help of the Divine Providence, the government, the families affected, ASP and schools like ours, let us collaborate to achieve our dreams for our children with autism.

ASP monthly seminar features one of the country’s leading speech pathologists, Mae Sadicon, to talk about “Speech, Language and Communication” on Aug. 28, 9am to 12 noon, at the Asian Social Institute in Malate, Manila. For more details, call 7-903-5496 or log on to autismsocietyphilippines.org or you can email autismphils@gmail.com.

*** Watch the interview of ASP Divas on 700 Club Asia on August 19, Thursday QTV Channel 11 from 11-pm to 12 midnight.

12 August 2010

Looking In… from the outside

By: Von Kaizer

I may not be the most suitable guy to write this down and everything, but over the years, I had several encounters with people blessed by God, with what people call AUTISM. No, I don’t have autism. I‘m just your “run-off-the-mill”, graduating high school student; who also happens to be an aspiring medical practitioner.

My school is just a small triangle, squeezed between three buildings. On a daily basis, I am lucky enough to be in a position where I could meet students from every level, including those with special needs. In our school, the teachers of “normal” and “special” students are just the same. Special needs students are gradually integrated into the regular curriculum, upon appropriate recommendation of a practicing psychologist.

The students with autism overcome occasional tantrums and learning deficiencies with sheer patience and understanding. It just turns out, more often than not, their academic performances, are plain indistinguishable. I’ve always wondered how they do it.

Now let’s get to the point before I draw circles.

Actually, I’ve always wondered what sets them apart. Is it the lack of communication? Or is it the isolated social life? Or the over-simplified thought processes? Either way, they don’t seem to have a problem.

It’s actually us, the “regular townspeople,” that have a problem. Why? Because we, cannot communicate with them or put them in our own “controllable” state. So, in order for them to be productive members of society, we let them undergo intensive psychological and drug therapies.

What if, we just take a moment and put ourselves in their shoes, what would we learn? I’m guessing they’re looking at us just like the way we look at them. It’s not that I’m against treating autism, but we should start treating and integrating them into our “normal” society and stop treating them as people who need extra-support to survive in this fast paced world.

In a medical sense, most medical researchers focus on how to prevent autism in pregnancy or how to treat autism’s symptoms at an early age and let them be “normal” later on. How about we start taking a different approach? How about we start recognizing and developing the things they capable of doing and achieving? In plain English, how about we help them use their autism as a tool, as an asset, not a liability?

People say they cannot think properly because they lack common sense or the other thought processes that we possess, I don’t know. Maybe our instinct to traditional schools of thought processes, logical reasoning and common sense blocks us from achieving something than their liberated minds could. For me, they are just crates of potential that only requires a key to open and be something- that in our terms: “be useful”.

Fine, I know you’re getting tired of my opinions and everything, but we should try this: What do we have that they have? Many people would say, the number doesn’t even surpass the fingers. I’ve also thought about that.

Prototype poster of Signs and Symptoms of Autism donated by Manila Jaycees

One Sunday morning, I saw a poster in a local church that happily accepts people with special needs. A poster near the library says: “Signs of Autism”. There are at least 10-15 signs written there, and I agreed to around 8 or 9. I just thought, Am I autistic? No, I’m not. But we do have a lot in common with them. Most people can’t accept it easily because we’d like to maintain the belief that we were made defect-free and they are just not up to par with our standards. Try reflecting on it and you’ll get what I mean.

The last 600 words or so is just a small fragment of what’s in my mind about the blessed people, especially when I learned and I saw with my own four eyes what they are capable of. Translation: This is just an opinion, it may conflict with other people’s views and I will respect them, just as they respect mine. Remember, I’m just a 15 year-old student, I still have a whole lot to learn but I’ll always believe that they are bound for something higher than the therapist’s office.

Von Kaizer is a pen name used by the author. He is currently a graduating student of Philadelphia High School. The author sent this article via email as a result of his exposure to students with autism and his personal encounters with them. It is our hope that young minds will help us change our own perceptions of what autism is.

Are you an Angel for Autism? Send us your stories. Email us at autismphils@gmail.com or call us at 7-903-5496. Visit our community site at autismsocietyphilippines.org

05 August 2010

The Curious Incident of Living with a PWA

By: Amaris Grace M. Cabason, ASP Marikina Valley Chapter

It’s been almost nine years since my brother Vinz was diagnosed with autism. But until now, the process of coping with his condition continues. I guess “normal” people like us can never really fine-tune our brains to make it in sync with the way he perceives the world.

Amaris, the author (left) with PWA brother Vinz (right)

This disparity will remain for years to come, and that is one bitter pill to swallow. His condition is permanent, and so are the frustration, the misunderstandings, and the coping. Our relationship with my brother is a gruelling, drawn-out process.

The book “The Curious Incident of the Dog in the Nighttime” by Mark Haddon provides us (the so-called “normal” people) with a view of how a person with autism sees the world. I concentrate so much on how my brother can’t see things the way I do, that I don’t even bother to think about how he perceives our world. And that’s what the book gave me, a peek at how a person with autism’s mind operates.

Some autistic people have a hard time understanding idiomatic expressions and would interpret them as literal. For example, when you say “I’m so hungry I could eat an elephant,” they’d probably expect an elephant to be your next meal! It’s easier for us to dismiss this as a stupid interpretation of an idiom and laugh at it.

But the book explains how they have a difficulty seeing this as just a figure of speech - since eating an elephant is impossible, and there are a million other things you can eat besides an elephant and they wonder why you can’t just eat those. What we dismiss as a dim-witted understanding actually makes sense to them, and that it is not just a one-dimensional statement but something that actually involves analysis—even if this analysis is not the way we do it.

Some autistic children bang their heads on the wall or hug their legs and rock back and forth. While we may see this as a reflex or something they do involuntarily, Christopher, the main character, says that he does things like these to cope with the heavy feeling in his chest that he can’t understand.

Some autistic children have difficulty reading emotions, including their own. They can’t detect sarcasm, lying, double entendres, or other figurative speech because again, they view the world literally. The diagram of emoticons that Christopher always carries with him shows this. He consults his diagram to know what the facial expression of the person he is talking to means, and he associates only a single meaning to an emoticon. When he sees a smile, he thinks it means, "I am happy," and never "I wish you could just drop dead right now."

The Curious Incident of the Dog in the Nighttime is an enlightening read for anyone, especially for those who live with a person with autism. It provides us with a different perceptive about various life experiences that are both funny and endearing and occasionally, liberating, that if we only see the world for what it truly is, then we’ll realize what life could really be—simple and carefree.

Amaris Grace M. Cabason is an AB Social Science 2008 at the Ateneo de Manila University. She is the daughter of Alex and Marivi Cabason, President and First Lady of ASP Marikina Chapter. Be an Angel for Autism. Donate now and help ASP Chapters with their programs and services. Log on to ASP Community Website. Call us at 7-903-5496 or write to alexcabason@yahoo.com

02 August 2010

The AdvoKOEcy KOEntinues

By: Cathy Genovia

“mga ka-chap, salamat, salamat ... really touched with your messages. for those who were able to go to my KOEpitan's wake...maraming salamat. i know it was not easy for you coming all the way from your far-flung areas. sabi ni Ranil, para daw KOEncert ang wake ni Joe, with PWAs singing :) he would have applauded. so, now let's KOEntinue the advoKOEcy :)”

ASP Chair Emeritus, Dang Koe, posted this message to Chapter Leaders just after the burial of her late husband, Joe, who succumbed to cancer. Staying true to her message (so let’s now KOEntinue the advoKOEcy), Dang traveled one and a half hour to St. Therese of the Child Jesus Special Learning and Development Center, Batangas City for her first mission last July 17. Together with her are Gio, her 16 year-old son with autism and his caregiver.

> Sixty-Five (65) participants composed of parents, Special Education and Regular Teachers from public and private schools and college students from local universities attended the seminar entitled “Embracing Special Differences (An Awareness Seminar on Children with Special Needs)”. Click here to read related news.

ASP Chair Emeritus Dang Koe (4th from left) with son Gio (5th from left)
with the participants of the said seminar at
St Therese of the Child Jesus Special Learning and Development Center, Batangas City

KOEping with Autism
Dang was asked to talk about “Understanding Autism: A Parent’s Success Story in Managing a Child with Autism”. But she changed the title to “KOEping with Autism”. (Dang is fond fusing her surname “KOE” into verbs and adjectives, which she said, is her way of connecting with the audience.)

Dang emphasized that children with autism learn in different ways, since autism after all is a spectrum disorder. She also reminded parents to provide different opportunities, such as therapy or developing their skills fullest potential. Although Gio has limited speech, cannot read or write, he however, is functional at home. He helps out with daily household chores and occasionally makes arts and crafts projects, like decorated picture frames during his spare time. Gio has been a constant inspiration that propels Dang to be a passionate advocate for autism and their families.

KOEmendable Tribute
During the entire talk, ASP-Batangas Vice President, Ms. Raceli de Castro and I remained teary eyed, as many people in the said seminar were unaware of her husband’s passing. We knew how difficult she might have felt as she mentioned her husband Joe and paused in between her talk. But she just kept going. She remains the effective, great speaker that I know. People still were all very attentive as she shared their family’s journey with autism.

She finally revealed to the participants at the end of her talk that she is now a “biyuda” (widow). As a tribute to Joe, “A Special Papa,” AVP was presented to audience. Joe was seen flapping his hands, when Gio flapped his; he pretended to cry, when Gio cried; and he embraced his autism with all the love a father can give. There wasn’t a dry eye in the crowd.

Supposedly, an open forum was scheduled at 2PM. But because of NDPR Week Celebrations, Dang Koe requested to have the open forum right after her talk. The audience didn’t ask her any questions, as her family’s journey spoke volumes. Instead, those who stood up to speak offered kind words of encouragement for her.

The Batangas trip was indeed KOEping with Autism. Families go through a lot of challenges and obstacles, but ultimately, bravery and perseverance are reminders for us, that the autism advoKOEcy must KOEntinue.

ASP works harder to keep the flame of advocacy alive. If you are blessed by this article, don’t stop there. Tell others.Be pro-active. Be an Angel for autism. Donate to ASP and help continue the advocacy. Log on to ASP Community Website or email us at autismphils@gmail.com or call 7-903-5496.

30 July 2010

Teacher dad

By Angelo G. Garcia

A father gave up his dreams and his job and chose to be his daughter’s guiding light…

As the padre de familia, Evert Malapad has made the ultimate sacrifice by giving up his dreams and his job to become a full-time father for his daughter who has autism.

“My daughter’s doctor advised that it would help if one of us went full-time to help Mae-Mae focus on her intervention.

Mahirap but we had to decide that one of us should give up work to be with her. After a long talk, sabi ko, sige na, ako na,” Evert recalls.

He gave up his job as a supervisor of an automotive service center. It was not easy though. He left his job with a lump in his throat. “Naiyak ako kasi career ko ‘yun, parang nandito na ako sa stage na ‘to, natutupad na ang gusto ko, maganda na ‘yung takbo ng career ko, mabigat para sa akin,” the 42-year-old father admits.

There were no regrets though, he says, as he was able to focus on their daughter’s improvement.

Unwittingly, Evert had entered a career he never knew he would learn to love.

(From left) Evert Malapad with daughters Mae-Mae, 15; Ella, 11; and wife Apple

ACCEPTING THE UNKNOWN

Evert’s wife Apple noticed some unusual traits in their first-born who was then two years old.

“Napansin lang ng asawa ko na iba ang kilos ni Mae-Mae, hindi siya sumasagot ‘pag kinakausap, kinukutkot niya ‘yung foam sa crib niya, and medyo delayed. Two years old na siya nakapaglakad,” Evert says.

At that time, Evert was working in the Middle East. Eventually, he returned to the country and consulted close relatives and friends who advised them to enrol Mae-Mae in a playschool to alter her unusual behavior. However, their daughter’s teacher advised them to have her checked by a doctor.

The pediatrician confirmed Mae-Mae’s autism and the Malapads were later asked to seek guidance from Autism Society Philippines (ASP), an organization dedicated to speading awareness about autism. ASP may be able to answer the couple’s numerous questions about their daughter’s condition.

“After joining a support group, although naiintindihan na namin, doon na nagsimula ‘yung bigat na tanggapin ‘yung problema. Parang nawala lahat ng pangarap namin sa kanya, na maging doctor siya. Hindi namin alam kung ano ang magiging future niya,” he shares.

It took the couple about six months to recover, during which they even started questioning God. It was also during this time that they started helping their daughter, enrolling her in special schools and hiring therapists.

To support all of their financial needs, the couple needed to work, Apple as an accountant and Evert as an automotive shop supervisor in Cabanatuan.

RIGHT SACRIFICE

Did he do the right thing in giving up his job, Evert would often find himself questioning.

“Ano ang gagawin ko beside driving Mae-Mae to her school? Nahirapan ako. I cried at night kasi hindi ko alam kung ang ginagawa ko tama at kung magpoprogress ba talaga siya,” he confesses.

He started attending ASP seminars and practically became his daughter’s teacher for her home program. He had to train his daughter for 11 months just to teach her to go and hear Mass. This meant tons and tons of patience and persistence on his part.

Today, Evert can only look back, happy to be part of Mae-Mae’s development.

“Staying with her to help her progress was the best decision I’ve made. Kasi nobody would help Mae-Mae except us, hindi namin siyang puwedeng i-asa sa iba. Ginagawa namin ‘to para maging functional siya sa society and hindi maging burden sa iba, ‘yung ang gusto namin kaya kami persistent,” he says.

Now at 15 years old Mae-Mae, is close to fully functional. She now knows how to cook rice, wash the dishes and other basic chores. Although her communication skills are still visual-based, she communicates through pen and paper and understands instructions through visual aids.

“Happy na ako kasi dahil sa pagtitiyagako, kasi kung hindi kay Mae-Mae hindi rin ako mapupunta sa SpEd. Ang dream ko lang sa kanya eh is for her to take care of herself na hindi siya maging burden. Honestly, we’re not expecting na maging functional siya like a normal person pero ok na kami if she can take care of herself,” he shares.

SPED ADVOCATE

In 2003, Evert became institutionally active with ASP, becoming the president of ASP Metro-South Chapter, covering the cities of Parañaque, Las Piñas, and Muntinlupa. He became an active speaker, trainor, facilitator in ASP’s activities.

Upon realizing that he had to do more to help more, in 2008 this industrial technology graduate went back to school and took up a master’s degree in Special Education at the University of Perpetual Help Dalta System in Las Piñas, simultaneously taking a supplemental course on secondary education. He is due to finish this October.

“Inisip ko na mas papaniwalaan ako sa mga trainings and seminars kung meron akong napag-aralan. Kasi sa mga pinupuntahan ko, iba-ibang conditions and disabilities ang nae-encounter ko so I took up SpEd. Through ASP din kasi nakakapunta ko sa iba’t-ibang lugar para mag seminar at malay mo balang araw makapag turo din ako,” he shares.

He is currently teaching working and practical skills program at Candent Learning House, a SpEd school in BF Homes, Parañaque City. Evert dreams of putting up a technical school for adults with disabilities that can help them prepare for the workforce.

“My original dream is to have a motor shop but that all changed. Now, what my plan is, maybe, to teach college pero ‘yung pagtuturo sa special children, andito na ako, fulfilled na. Hopefully, ang gusto ko talaga magtayo ng skills center, hahasain mo lang ‘yung skills nila para ma-develop,” he says.
The one thing that Evert also hopes for today is for parents of children with autism or any other condition to be more involved with their children’s development.

“Some parents go to the schools of their children only thrice a year. More parent involvement is needed kasi hindi mo naman mae-explain ‘yung program sa mga yaya. I think ‘yung may successful stories nung mga bata na may most improvement may involvement ang parents, to support their child. Ang intervention ng bata hindi lang naman nasa kamay ng teacher ‘yan, kasama din ang parents,” he ends.

Source: Manila Bulletin
Uploaded with permission

23 July 2010

ASP’s 2nd Autism Orientation at Festival Supermall

ASP Board of Trustee, Gina L. Bermudo conducted the Autism Awareness Campaign Seminar to 75 employees of Festival Supermall. The event last July 21, was held at the Pixie Forest Multipurpose Room with attendees from the Mall’s Amusement Center and the Cinemas along with a few janitorial staff and some security guards.

Gina Bermudo with the 75 employees of Festival Mall during the 2nd Autism Orientation

We would like to thank the management of Festival Mall, Ms. Rose Nuqui - Commercial Center And Operations Retail Head and Ms. Mica Porlahe - Marketing Assistant.

To request for an Autism Orientation in your establishments, email us at autismphils@gmail.com or call us at 7-903-5496

ASP Join Public Fora on Disabilities

By: Tiffany Tan, ASP Board Secretary

ASP joined the whole nation in celebration of the 32nd NDPR Week with a Public Fora on Disabilities on July 21, 2010 at the SM Skydome, North EDSA, Quezon City. The fora is sponsored by the RCDA-NCR or Regional Council on Disability Affairs, National Capital Region and SM Program on Disability Affairs.

The Fora sponsored by RCDA-NCR and SM Program on Disability Affairs

ASP Executive Director, Ranil Sorongon, said the whole day fora aims to network other disability organizations and allied medical professionals with supports, parents, college students and Local Government Agencies, towards the prevention and rehabilitation of persons with disabilities.

Almost a total of more than 200 participants were composed of students taking up special education and psychology and other organizations, public and private schools and barangays day care centers from Mandaluyong and Quezon City.

the participants of the said Fora at SM Skydome

ASP National was represented by Vice President, Peng So; Treasure, Evelyn Go; Trustee, Carmel Almendrala and this writer; and from ASP Marikina Valley Chapter President, Alex Cabason and ASP Mandaluyong Chapter officer, Jean Gonzales.

The morning’s forum, Family Support Organizations: Partners in the Journey, offered opportunity for everyone to know the roles, programs and services of the support group organizations with the following presenters Philippine AD/HD Society, Down Syndrome Association of the Philippines; Parents Advocate for Visually Impaired Children; The Centers for Possibilities; Philippine Society for Orphan Disorders and Department of Education, National Capital Region.

Having been in the disability community for more than two decades, ASP has been patterned as one of the model parent support organizations in the country. Ranil presented ASP’s Vision–Mission, programs and services, projects and activities. Click here to know more about ASP.

The afternoon’s forum, The Roles of Professionals clarified the different roles of professionals in managing the different disabilities, with the following presenters, Dr. Jackielyn Navarro, Developmental Pediatrician; Mr. Jaypee Mallari, OTPR; Speech and Language Pathologist, Dr. Ferdeliza Garcia; Special Education Teacher, Ms. Genevieve Rivadelo; Social Worker, Ms. Charito Paran, Supervising Social Worker, DSWD-NCR.

Acknowledgments: Eng. Edilberto Tayo, Director, DPWH-NCR and 2010 NDPR Week Chair ; Mrs. Thelsa Biolena, RCDA Regional Direactor and Chairperson; Eng. Bien Mateo, Director of SM Program on Disability Affairs; Mr. Foilan Maglaya, Program Specialist, OP/PWD DSWD-NCR, Ms. Flerida Labanon, Regional Program Coordinator of NCDA; Mrs. Jcel Paguio, Division Chief, DSWD-NCR, Ms. Flordeliza Magday, Director, DepEd-NCR, Chair on Education Committee.

ASP believes that capacity building of communities is only possible through networking and collaboration with supporters, different institutions, local government agencies and allied medical professionals. Be informed. Be pro-active. Be an Angel for Autism. Sign up now to become a member. Log on to ASP Community Website or email us at autismphils@gmail.com or call 7-903-5496.

19 July 2010

Need We Say More?

By: Tiffany Tan, ASP Board Secretary

Carmel and her son Mike rose early to join the Indignation Walk. She brought her own baon of pan de sal with ham tucked in with her other belongings in her shoulder bag. “I’m not used to having an early breakfast,” said Carmel.

Other people from the disability sector were already seated inside Jollibee, (a fast food chain) Philcoa Branch, having their coffee and updating one another with current events. Others are out in the parking lot, getting ready with their placards that read “Ipatupad ang karapatan ng may kapansanan.” (Implement the rights of people with disabilities).

“With limited resources, we have to be militant to fight for our own share in the pot,” reminded Tita Carmel. “Kung sino ang makulit, siya ang mapapansin (whoever is insistent, will be given attention). And with the work of the advocates, people will develop the courage to fight,” Tita Carmel said this with all conviction.

Tita Carmel Almendrala is head of ASP’s Advocacy Committee. Her son Mike, a regular employee of Philippine Information Agency, absented himself to join the walk. Both mother and son are no strangers to “walking for autism,” they have been doing it since the early ‘90s.

Father Robert Reyes, the “Running Priest” also came to support the PWD Sector. (Reyes is a Catholic priest known for his social and political activism.) He gave a short prayer for all the PWDs and supporters present, thanking God for the good weather and asking for everyone’s protection.

After assembling, marshals were assigned to assist the crowd walking along the wide stretch of the Commonwealth highway to the Commission on Human Rights. Other autism advocates, Mirana Medina, aimed her video cam at the participants. Her film Alyana, the first Filipino documentary on autism, opened many doors for her to make other films for other disabilities as well.

After less then half an hour, the group approached the CHR building. The PWD Sector submitted a formal complaint to the Commission on Human Rights (CHR) prior to taking the issue to the court. The group was welcomed by Commissioner Cecilia Rachel “Coco” Quisumbing, and three other commissioners, who listened patiently to the impromptu forum while PWD representatives aired their grievances.

PWA Mike (in green shirt) during the Indignation Rally

As the forum was about to end, Mike raised his hand and was handed the microphone. “To the commissioners, please help us fight for our rights!” Need we say more?

ASP continues to advocate for the rights of persons with autism. Keep posted for more updates on ASP programs, services and activities. Watch the news tonight for the coverage of the Indignation Walk at TV 5, GMA 7 and RPN 9.

Acknowledgements: Father Robert Reyes, Life Haven IL Center, Crusader on Wheelchair, New Vois Association, Stac Quezon City, AD/HD Society of the Philippines, PAVIC, CPAP, Philippine Larimgeclomee Club Inc., Sinagtala Boys, KUBKMI, Filipino Deaf Women's Health Crisis Center, KAMPI-NCR, AKBAYAN Party, Volunteers: Teacher My Sorongon, Jojie Magdael, Bernard Cabaddu and Mirana Medina and media TV5, GMA7, RPN9 and UNTV.

Join the NDPR Week celebrations. Register now for July 22 “Special Parenting” Seminar-Workshop by inspirational guru, Francis Kong and Malou Ortiz, author of “Embracing God’s Purpose for My Special Child,”” Click here for more details.

The Autism Ramp of Accessibility

By Dang U. Koe, ASP Chair Emeritus

Sa Istrukturang Accessible, Lahat ay Able (Structural Accessibility is Ability for All).

This is the theme for this year’s celebration of the National Disability Prevention and Rehabilitation (NDPR) Week. Said theme is aligned with the mandate of Department of Public Works and Highways in the implementation and promotion of the accessibility programs of persons with disabilities for a barrier-free environment. It is also in pursuant of Batas Pambansa 344, otherwise known as the Accessibility Law.

A barrier-free environment for PWDs is synonymous to parking spaces, sidewalks, ramps, railings, elevators, and other architectural facilities or structural features that reasonably enhance the mobility of physically disabled persons.

What about persons with autism (PWA)?

In general, PWAs do not need structural accessibility. But yes, they need other “infrastructures” for their effective integration into mainstream society.

Angels Talk had the privilege of interviewing Valerie Paradiz, PhD, on this matter. Valerie speaks internationally on topics relating to Asperger’s syndrome and autism, including strengthening advocacy skills in parents, professionals and individuals on the autism spectrum.

Ms. Valerie Paradiz during the Autism Beyond Border Conference

A former member of the board of directors of the Autism Society of America, Valerie co-chairs the Autism Society of America’s Panel of Individuals on the Spectrum and serves as an advisory board member to the US Autism & Asperger Association. Her new book “The Integrated Self Advocacy (ISA) Curriculum”, published by Autism Asperger Publishing, relates to building strong educational programs and advocacy skills for students with ASDs in public and private school settings.

Valerie speaks from experience — she is a parent of a young man with autism, and was diagnosed herself with autism at age 40.

Why did you say that autism is “invisibility” during your World Autism AwAwareness Day speech in the UN?

I said that for two reasons. First, it is sometimes difficult for others to “see” autism in those of us who are diagnosed with it. This is because — particularly for those of us on the spectrum who are verbal — we don’t have obvious signs of the condition, until perhaps, you have a longer conversation with us.

Second, autism (and by this I mean the entire spectrum) was a latecomer to the disability advocacy movement. We are still working hard to raise awareness in mainstream culture about what autism is, what autistic people are like, and what we need to be more integrated participants in society.

Describe the Autism Awareness Movement. What does it mean?

To me, the movement means that the world still needs to know more about autism. Particularly, there is a need for more infrastructures for individuals with autism across the life span. Until we have achieved that, the “movement” will be necessary.

How do parents and self-advocates protect the civil rights of persons with autism?

We must collaborate to ensure that we are there for one another as organizations and as individuals.

We must work toward having more legal supports for individuals with autism whose civil rights are violated at work or in the community.

We must also educate others how to support individuals with autism and what they should do as citizens to assist us in preserving our civil rights.

How do we make the government listen and take us seriously?

One good way to make the government listen and take us seriously is to include individuals with autism in your visits to representatives. When politicians hear the direct voice of people with autism, they get an immediate and real sense of their needs and of this way of life.

Families’ voices are also crucial. When families and individuals on the spectrum can work together to develop advocacy agendas, this can be very powerful. We have witnessed this at the Autism Society of America, where there are three people with autism on our national board of directors. ASA has also established an advisory board called the Panel of People on the Spectrum of Autism (PSA) which advises the national board of directors. The PSA is comprised entirely of people with autism.

Describe the culture of autism

Oh my goodness! That is a BIG topic! I guess the best way to describe a culture of any kind is that is represents a group of people who have a shared history and language.

For autistic people, our language might be unheard of or not evident. Yet, when we are together, we do have a feeling of being among kindred spirits or “at home.” Culture also means having a sense of belonging. It is a very powerful moment when someone on the spectrum meets others on the spectrum for the first time. We learn so much from one another!

Describe the future of autism

In the future, I see more of us on the spectrum integrated into our communities more seamlessly and with tremendous understanding from those around us. We are still seeking for that “invisible ramp.” It is already a federal mandate in my country to provide access to individuals using wheelchairs in most public spaces and buildings. For autism, we are also attempting to educate others about our “ramps,” most of which have to do with sensory and social sensitivities
and challenges.

As society begins to provide that ramp (or accommodations), it in turn will become more humanized and sensitive to the autism culture. This is very exciting for me to think about.

I also see more of us, across the spectrum, working in fulfilling jobs. This to me is the next frontier in autism advocacy! The time has come!

How do we encourage others to come up and address the issues of Autism Rights? Please give practical tips.

The most powerful thing one can do is share a story. Sometimes these stories are difficult for others to hear because they reflect back to the culture at large, how much more it has to grow in order to treat individuals with autism and other disabilities with respect. Thus, it’s also good to intersperse stories of hardship or injustice with stories of hope and accomplishment. Whenever I share my employment story, for example, I like to also share how that event inspired me to push harder for all of us on the spectrum who want meaningful work.

There are eight pending autism bills in the Philippine Senate. How do we make the legislators take us seriously? Some practical tips please, and share your experiences in the US.

Develop relationships with those legislators and tend to them carefully and well. Expect that it will take time to foster these relationships, but stick to it.

Find out if any of your legislators have family members or close friends affected by autism. Will they work with you to advocate for these bills?

As much as possible, include individuals on the spectrum when you correspond or have meetings with your representatives, even if it’s by way of video, or a work of art that someone on the spectrum has created.

Finally, invite them to your advocacy events and conferences; ask them to be keynote speakers or to be present for a Town Hall meeting where families and professionals may ask questions and share their stories.

How do we, as parents, rally others to advocate? Can you give us practical tips on your experiences in the US on how to go about this?

I have recently found out that rallying the younger generation can be extremely powerful. I discovered two (non-autistic) girls in our local high school who created an autism awareness club.

The unusual thing about their club was that not only did they offer friendship to fellow students on the spectrum attending their school, but they also wanted to model for their neuro-typical peers how to treat students in special education with respect and kindness.

They even managed to get the school’s code of conduct amended, so that any student who said derogatory things about a person with cognitive differences would undergo the same disciplinary action that the code stipulated for racial or other discriminatory remarks or actions.

Today, we are celebrating these young women as future leaders, inviting them to present workshops in schools and even train teachers! It is very hopeful and very powerful!

ASP joins the nation in celebrating the National Disability Prevention and Rehabilitation Week. Visit autismsocietyphilippines.blogspot.com for schedule of NDPR Week events.

ASP July 31 seminar features Teacher Landa Bautista on “Vocational Training for Persons with Autism” and “ABC’s of Job Coaching”. Francis Kong and Malu Tiongson-Ortiz speak on “Parenting” for ASP Diliman Chapter. For those interested to attend these seminars, please call ASP Office at 7-903-5496

Source: Manila Bulletin

16 July 2010

ASP Joins PWD Groups to Air Grievance vs. Drugstores

By: Tiffany Tan, ASP Board Secretary

Wheelchair Logo
The 32nd National Disability Prevention and Rehabilitation (NDPR) Week (July 17-23) with the theme, “Sa Istrukturang Accessible, Lahat ay Able” would be the beginning of the series of mass actions of the PWD sector to claim their rights as embodied in the United Nations Convention on the Rights of Persons with Disabilities. The Philippines ratified the UNCRPD on April 15, 2008.

Yesterday, ASP Executive Director, Ranil Sorongon joined other heads of national organizations of persons with disabilities (PWD) for a press conference at the National Council for Disability Affairs (NCDA) in Quezon City.

The PWD groups warned of planning to file class suits against private corporations as well as government institutions for violation of the mandate stated in Republic Act 7277 or the Magna Carta for Persons with Disabilities.

It has been more than a year since the Department of Health issued Administrative Order No. 2009 – 0011 that mandates the full implementation of this law Click here to read a previous thread.

Among the guidelines stated in the DOH Administrative Order, all drug stores and pharmacies must provide twenty (20%) discounts for PWDs in their medicine purchases, which is similar to what is given to Senior Citizens. However to this date, a group of drug stores continuously violate the aforementioned law.

Rival Networks Cover Violations against PWDs
Last night, during an interview with the ABS-CBN’s Bandila news crew, Dang Koe, ASP Chair Emeritus, was assisted to purchase medicines for her son, Gio at a drugstore nearby her home.

Gio, who has autism, needs his daily medication. Aside from the medicines, Dang also spends for his therapy and frequent follow-up visits to the doctor. She bought with her Gio’s doctor’s prescription, PWD Medicines Booklet, and PWD ID. However, she was not given the discount. Click here to watch the video.

Medicines are vital to the day to day existence of some children and adults with autism, who rely on their medication to stabilize their condition. (Some PWAs suffer from seizures).

Another network, GMA7’s 24 Oras, also posted a father’s frustration over the refusal of a certain drugstore of his autistic son’s PWD ID. He is unable to get the discounts for his son’s medicines, which is a daily struggle. “What about the poorest of the poor?” he said. He then appealed to President Aquino, for PWDs be treated fairly in accordance with RA 9442, or the amended Magna Carta for PWDs.

Click here to watch video

Several broadsheets also posted the press conference.
Philippine Daily Inquirer
Philippine Star
Manila Times
GMA News

PWD Frustration + Denial =Indignation
Persons with Disabilities from Metro Manila and nearby regions plan to have an indignation mass action to bring this matter to public attention. They also plan to file a formal complaint to the Commission on Human Rights (CHR) prior to taking the issue to the court.

ASP continues to work hard keeping members and supporters informed about PWD rights and privileges. Sign up now to be a member of Autism Society Philippines. Be informed. Be pro-active. Be an Advocate. Be an Angel for Autism. Email us at autismphils@gmail.com or call 7-903-5496. Log on to ASP Community Website.

Disabled persons' discount not honored by drugstores?

Bandila Logo
ASP Chair Emeritus, Dang Koe's son, Gio, who has autism, was denied the 20% discount for PWDs during her purchase of medicine at drugstore. Click here to watch footage c/o Kapamilya Network, ABS-CBN's Bandila.

Join the Indignation Rally July 19, 2010. Assembly time 8am at Philcoa Jollibee parking lot.

12 July 2010

Drugstore refuses to accept discount card of autistic child

Exclusive 24 Oras
Drugstore refuses to accept discount card of autistic child

Click here to watch video c/o GMA 7 Kapuso Network

Join the PWD Indignation Rally July 19, 2010
Click here for more details

08 July 2010

Understanding Myself

By: Eric Chen, Person with Autism

My special condition provided me with a different perspective of how things worked on Planet Earth. From TV dramas, I understood that love was something that caused people to do irrational things like jumping from bridges for the sake of another person. However, free will eluded me because I could not understand how anyone could choose something other than the optimal logical solution to a problem.

Mr. Eric Chen

Over the past few years, I began to perceive the hidden dimensions of social communications. Once, I was about to cross a road and encountered a speeding car. I spontaneously signaled to the driver that I am giving him the right of way by moving one of my feet half a step backwards. That led me to understand that communication is not about exchanging data, but expressing and reading intent.
In mid May 2010, I quit my day job and launched my third book, Star Child on Earth, in Hong Kong. I then went to Taiwan to help film an autism documentary. I enjoyed my first experience of Taiwan - living in a Taiwanese household, tasting smelly tofu, meeting many interesting people, getting a fashion makeover and sharing about my experience with autism.

Dressing up as a high school student and sitting in a real high school class was the fulfillment of my dream of re-experiencing my teenage school life, but with my present level of social skills and self-confidence. As I sat in my chair following the film crew's instructions, I imagined how it might be like to hang out with and date my new classmates. Too bad it only lasted for less than 2 hours.

I also met a Waldorf teacher who guided me through a few Waldorf exercises. As I drew lines on a piece of paper, I experienced the universe opening up to me. I felt great awe for God's creations as I grasped some of the previously abstract scientific principles I learnt from the textbooks.

Visiting a mother of two PWAs (Person With Autism) brought back memories of my past. In particular, one of her sons spilled some water in front of me. When his mother told him to clean the table with a towel, he started robotically mopping his side of the table, inching slowly towards the spill on the opposite side. I told his mother that this was due to her son not realizing that cleaning up the spill (rather than cleaning the table thoroughly) was the top priority - a mistake I often made due to my inability to read intent from situations.

Both the production crew and this parent brought up many issues and gave me feedback that I was previously unaware of. I realized that I was not really an autism expert, but an expert on "Eric Chen" (a.k.a. myself) since my situation is rather unique. I also realized that my autism work lacked love, as I did not connect with the parents, social workers and PWAs while sharing with them.

My greatest gain from this visit was to feel the love from my mother for the first time. As I touched a bun from a dear Taiwanese friend, I felt the love she conveyed to me. With this, I realized that her gifts are a medium for the expression of love. I remembered what my mother did for me in the past as an expression of her love and almost cried.

I then went to Hong Kong to speak at a conference and then to Macau for a vacation. I had a good time meeting friends, giving a few autism sharings and doing some emotional healing work.

Arriving in Singapore, I was pleasantly surprised that the students who have previously interviewed me did not mention me in their special feature on autism. Their theme was "who will take care of the PWAs when they grow up?" I was glad to answer that I could not only take care of myself, but support my family and make a positive contribution to society too.

Perhaps the time will soon come when I find out how to cross my final frontier. Until then, what I can do is to serve my responsibilities without betraying myself by taking on a second job that I can accept.

More about Eric's Autism Work
http://iautistic.com

ASP Laguna’s Autism Resource Center in TV 5’s Ako Mismo

By: David Michael “Kitt” C. Lopez, Person with Autism

The recent feature of ASP Laguna Chapter’s Autism Resource Center (ARC) in “Ako Mismo” TV5 last June 24 brought fruitful results. “Ako Mismo” is a documentary program which features the extraordinary feats ofordinary Filipinos who contribute a great part to society.

Ms. Riza and Ms. Cathy Lopez with the staff of Ako Mismo

ASP Laguna Chapter President, Ms. Rizalinda Cansanay, our Autism Heroine, helped establish ARC as well as several institutions which are based in Laguna province. Among those included are the HOPE Intervention Center and Love & Hope Intervention Center, which are located respectively in Calamba City and Liliw. Riza is mother of Michael Cansanay, a 25-year old ARC trainee with autism.

ARC trainees and apprentices together with the Ako Mismo Staff and Laguna Board Member Angelica Jones

ASP Laguna’s ARC is located at Intan Street, Santa Fe Subdivision, Barangay Batong Malake, Los Baños, Laguna. The documentary featured footages of trainees who actively participate in work-related activities such as paper briquetting, packing of rice, and preparing meals at the kitchen.

Ate Minda Rimas, mother to Dana and Philip, both with autism, was interviewed in the program. She brings both the children to the ARC and at the University of the Philippines Los Baños (UPLB) Grounds for their scheduled work-related and recreational tasks.

In addition to work-related activities, ARC also featured apprentices and trainees who take an active part in the sport of kickball. In kickball, we learned the principles of discipline and teamwork. We all had meals of pancit bihon and orange juice after the activities.

At the end of the segment, singer actress, Angelica Jones, who is also a Board Member, representing the 3rd district of Laguna paid tribute to Ms. Riza Cansanay in appreciation for the fruitful results of her labors. She was surprised with a brand-new cellular phone and a bouquet of flowers from the Ako Mismo Team.

The boys of ARC (standing) Mico, EJ, Ian Lopez, (seated) Michael and Philip with Angelica Jones

We at ASP Laguna Chapter will keep on helping parents and their children with autism. It is our wish that the work in ASP Laguna’s Autism Resource Center will serve as a role model in the workplace for people with autism.

David Michael “Kitt” Lopez is a graduate of Bachelor of Arts in Communications at Lyceum Institue of Technology, Makiling, Calamba City. Currently he works as a trainee at ASP Laguna’s Autism Resource Center. Be an Angel for Autism. Help ASP Chapters expand their programs and services. Log on to ASP Community Website or email us at autismphils@gmail.com or call 7-903-5496.

Autism is not a Tragedy

By: Anthea Carmeli I. Peña, ASP Bacoor Chapter

Normally, teenagers like me would blithely spend most of their weekends doing their own things, as carefree as their easy lives would allow them to be. But how would it be, if they have a sibling with autism? I’m sure it would be a lot different.

It’s a fun adventure, with lots of lessons and experiences far different from the average stuff. Why do I say this? I myself have a brother with autism, and I’d love to share a portion of how it’s like.

Since I was young, I have been exposed to different programs and seminars my mother attended. At first, it was nothing to me, until eventually I realized that all those seminars would do so much for me as well. I also joined sibling support groups and met people who understood me, because in the first place, it is never close to easy. It involves a lot of sacrifices on my part.

With my brother Muneer, I have to be patient at all times. I have to learn to forget myself sometimes, just to take care of him. There was an instance wherein I actually spent my birthday accompanying him to his school’s sport’s fest.

Thea with brother Muneer

It is also hard to endure simple things like having to be in the picture- when he starts to go hyper in public places; when he grabs food; when he does things that would catch other’s attention. But, I promised myself that I would defend him when someone would make fun of him or say something negative about him.

I believe that because of Muneer, I became a stronger person. And not just that, I feel that he contributed to a sense of direction in my life. I have decided that as soon as I graduate high school, I’ll be taking up Special Education as my college course. Then, I could dedicate my full time to my brother and also to other persons with disabilities.

I am positive that God has given Muneer to me and my family for the better. To others it may seem unfortunate, but for us and for me this is the “ideal family”. I am blessed to have him with us, because for me, Muneer is all a part of the fight that we will soon be winning together; with those who care a lot for people like my brother and were never discouraged by the different faces of hardships.

Thea with brothers Muneer (left) and Millie (right) and
mom Jan Peña, ASP Bacoor Chapter President

To other people like me who are blessed to have PWD’s as siblings, my advice is to never look at autism as a tragedy or misfortune. But instead, focus on how autism can turn you into a better, caring person. Autism can serve as an inspiration for you to enlighten others.

Anthea Carmeli I. Peña is 16 yrs-old, and a 4th year high school student at Divine Light Academy, Molino 3, Bacoor, Cavite. She is the older sister of Muneer Peña, 14-yr. old boy with autism. Anthea is also a passionate artist.

 
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