Teacher dad

By Angelo G. Garcia

A father gave up his dreams and his job and chose to be his daughter’s guiding light…

As the padre de familia, Evert Malapad has made the ultimate sacrifice by giving up his dreams and his job to become a full-time father for his daughter who has autism.

“My daughter’s doctor advised that it would help if one of us went full-time to help Mae-Mae focus on her intervention.

Mahirap but we had to decide that one of us should give up work to be with her. After a long talk, sabi ko, sige na, ako na,” Evert recalls.

He gave up his job as a supervisor of an automotive service center. It was not easy though. He left his job with a lump in his throat. “Naiyak ako kasi career ko ‘yun, parang nandito na ako sa stage na ‘to, natutupad na ang gusto ko, maganda na ‘yung takbo ng career ko, mabigat para sa akin,” the 42-year-old father admits.

There were no regrets though, he says, as he was able to focus on their daughter’s improvement.

Unwittingly, Evert had entered a career he never knew he would learn to love.

(From left) Evert Malapad with daughters Mae-Mae, 15; Ella, 11; and wife Apple

ACCEPTING THE UNKNOWN

Evert’s wife Apple noticed some unusual traits in their first-born who was then two years old.

“Napansin lang ng asawa ko na iba ang kilos ni Mae-Mae, hindi siya sumasagot ‘pag kinakausap, kinukutkot niya ‘yung foam sa crib niya, and medyo delayed. Two years old na siya nakapaglakad,” Evert says.

At that time, Evert was working in the Middle East. Eventually, he returned to the country and consulted close relatives and friends who advised them to enrol Mae-Mae in a playschool to alter her unusual behavior. However, their daughter’s teacher advised them to have her checked by a doctor.

The pediatrician confirmed Mae-Mae’s autism and the Malapads were later asked to seek guidance from Autism Society Philippines (ASP), an organization dedicated to speading awareness about autism. ASP may be able to answer the couple’s numerous questions about their daughter’s condition.

“After joining a support group, although naiintindihan na namin, doon na nagsimula ‘yung bigat na tanggapin ‘yung problema. Parang nawala lahat ng pangarap namin sa kanya, na maging doctor siya. Hindi namin alam kung ano ang magiging future niya,” he shares.

It took the couple about six months to recover, during which they even started questioning God. It was also during this time that they started helping their daughter, enrolling her in special schools and hiring therapists.

To support all of their financial needs, the couple needed to work, Apple as an accountant and Evert as an automotive shop supervisor in Cabanatuan.

RIGHT SACRIFICE

Did he do the right thing in giving up his job, Evert would often find himself questioning.

“Ano ang gagawin ko beside driving Mae-Mae to her school? Nahirapan ako. I cried at night kasi hindi ko alam kung ang ginagawa ko tama at kung magpoprogress ba talaga siya,” he confesses.

He started attending ASP seminars and practically became his daughter’s teacher for her home program. He had to train his daughter for 11 months just to teach her to go and hear Mass. This meant tons and tons of patience and persistence on his part.

Today, Evert can only look back, happy to be part of Mae-Mae’s development.

“Staying with her to help her progress was the best decision I’ve made. Kasi nobody would help Mae-Mae except us, hindi namin siyang puwedeng i-asa sa iba. Ginagawa namin ‘to para maging functional siya sa society and hindi maging burden sa iba, ‘yung ang gusto namin kaya kami persistent,” he says.

Now at 15 years old Mae-Mae, is close to fully functional. She now knows how to cook rice, wash the dishes and other basic chores. Although her communication skills are still visual-based, she communicates through pen and paper and understands instructions through visual aids.

“Happy na ako kasi dahil sa pagtitiyagako, kasi kung hindi kay Mae-Mae hindi rin ako mapupunta sa SpEd. Ang dream ko lang sa kanya eh is for her to take care of herself na hindi siya maging burden. Honestly, we’re not expecting na maging functional siya like a normal person pero ok na kami if she can take care of herself,” he shares.

SPED ADVOCATE

In 2003, Evert became institutionally active with ASP, becoming the president of ASP Metro-South Chapter, covering the cities of Parañaque, Las Piñas, and Muntinlupa. He became an active speaker, trainor, facilitator in ASP’s activities.

Upon realizing that he had to do more to help more, in 2008 this industrial technology graduate went back to school and took up a master’s degree in Special Education at the University of Perpetual Help Dalta System in Las Piñas, simultaneously taking a supplemental course on secondary education. He is due to finish this October.

“Inisip ko na mas papaniwalaan ako sa mga trainings and seminars kung meron akong napag-aralan. Kasi sa mga pinupuntahan ko, iba-ibang conditions and disabilities ang nae-encounter ko so I took up SpEd. Through ASP din kasi nakakapunta ko sa iba’t-ibang lugar para mag seminar at malay mo balang araw makapag turo din ako,” he shares.

He is currently teaching working and practical skills program at Candent Learning House, a SpEd school in BF Homes, Parañaque City. Evert dreams of putting up a technical school for adults with disabilities that can help them prepare for the workforce.

“My original dream is to have a motor shop but that all changed. Now, what my plan is, maybe, to teach college pero ‘yung pagtuturo sa special children, andito na ako, fulfilled na. Hopefully, ang gusto ko talaga magtayo ng skills center, hahasain mo lang ‘yung skills nila para ma-develop,” he says.
The one thing that Evert also hopes for today is for parents of children with autism or any other condition to be more involved with their children’s development.

“Some parents go to the schools of their children only thrice a year. More parent involvement is needed kasi hindi mo naman mae-explain ‘yung program sa mga yaya. I think ‘yung may successful stories nung mga bata na may most improvement may involvement ang parents, to support their child. Ang intervention ng bata hindi lang naman nasa kamay ng teacher ‘yan, kasama din ang parents,” he ends.

Source: Manila Bulletin
Uploaded with permission

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Posted in: 4parents,awareness

“What has Francis Kong Got to do with Autism?”

By Tiffany Tan, ASP Board Secretary

Last week, our office received this Facebook post “What has Francis Kong Got to do with Autism?” in reaction to ASP Diliman Chapter’s Special Parenting Seminar. In fairness to Francis Kong, we issued this article in response to post.

Francis Kong has been traveling around the nation, giving lectures and seminars to thousands of people, filling up his calendar.

Secondly, he is also a father to three grown children. He however admits he is no expert in parenting, but adheres to the Biblical principle of “Train up a child the way he should go, and when he is old, he will not turn from it,” which sounds practically like ASP’s Early Intervention Program.

Thirdly, Francis himself admitted he hated math and wouldn’t sit still in class. He flunked 2 years in high school. “But I earned a PHD in High School,” he boasts. In case you’re wondering what PHD means, it’s “Passing-High-School-with-Difficulty,” he said in jest.

In his blog, he said he is absolutely certain of having AD/HD (but was never official diagnosed). “I may have ADHD but I know that God has a plan for me. You should know that Scriptures say that you are wonderfully and beautifully made.”

So I guess, his sincerity in admitting he had some sort of “special needs,” more than qualifies him also to speak also for autism.

Crusade for Specials

Francis Kong and Malu Tiongson-Ortiz, speakers of the said Parenting Seminar

Francis was joined by mom, Malu Tiongson-Ortiz, Vice President of Down Syndrome Association of the Philippines. She is the author of Embracing God’s Purpose for my Special Child. She admits that persons with Down Syndrome have different challenges from those with autism.

Many parents come up to her to ask why she is carrying on this crusade of campaigning for “Embracing God’s Purpose”. “Ultimately, we can not, not speak of God, since he is our Creator. He is also the Creator of our children – both the regular and the special (meaning those with special needs).”

Malu is mother to Clarissa, who has Down Syndrome and other disabilities. Clarissa is also profoundly deaf in both ears, is mute and recently diagnosed to be bi-polar. “I just prayed to the Creator and surrendered Clarissa to Him,” she declared. “I prayed: ‘Teach me to be a special mom’. I sought God’s help.”

Questions need Answers
After the discussions, questions on parenting were addressed to both speakers. Francis received questions on how to cope with a philandering husband. While the facilitator was reading the question, he suddenly turned to the tarpaulin of ASP Diliman Chapter with a puzzled look. “Akala ko parenting seminar ito, hindi marriage encounter,” (I thought this is a parenting seminar and not a marriage encounter seminar.)

Francis goes on to give some tips and invited the audience to enroll in their church’s planned out-of-town seminar for couples. Malu also took the chance to plug “The Praying Wife” module, where she also offers counseling to wives.

ASP-Exec Director, Ranil Sorongon and ASP Trustee, Carmel Almendrala during the open forum

ASP Trustee, Carmel Almendrala commended Francis’ engaging rapport with the audience, but was eager to hear his answer to “What is the difference in parenting typical vs. atypical kids.”

One, the similarities are: they are still our kids. They are God’s gift to us. Two, the difference is - the ‘LOVE’ is not the same; the bonding between the parent and the special child is even stronger. Three, to the parents, remember also that God will not give us something we can not bear. Four, He has given a special dispensation of grace to special kids. Five, God however wants us to be like these children, ‘Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these.’

Postscript from Francis’ Facebook
“I spoke this morning (July 22) to the parents of special children and had a great time with them…Today is fruitful…looking forward to more talks and trainings to come. Thanks to all the positive encouragements. Sorry but no copy of the talk is available as I tend to speak outside a script. This is normal for extremely talkative people like me. God bless you.

========

ASP work very hard to keep families empowered. Parents of children with special needs are also special. So sign up now for the next Family Support Group. Call 7-903-5496 or email us at autismphils@gmail.com.

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Posted in: 4parents,4pros,4public,chapters

ASP Diliman Celebrates 3rd Yr with Fruitful Parenting Seminar

By: Tiffany Tan, ASP Board Secretary

A handful of mothers from the New Era University, found a common bond – their children with autism. They met occasionally for PSG. “The PSG does not stand for Presidential Security Group, but rather, Parent Support Group,” jokes Josephine Palomares, ASP Diliman Chapter President.

ASP Diliman Chapter headed by Jo Palomares (2nd from right) with

Malu Tiongson-Ortiz (5th from right) after the Parenting Seminar

After meeting for quite sometime, the mothers decided to form their own ASP Chapter in 2007, through the assistance of chapter “ninang” (godmother) ASP Trustee, Carmel Almendrala. From ten, they grew to thirty. The chapter is now celebrating their 3rd year in service.

“We went through a tempest,” said Aileen Valera, ASP Diliman Chapter Treasurer as she and another parent, Stella Echano, ASP Diliman Chapter Secretary, gave their personal stories. “We are now stronger,” continues Aileen.

A powerpoint presentation was shown to the more than 75 participants, documenting their activities, their joining the three Angels Walk, two Autism National Conferences, Colors of A Spectrum Photography Workshop and Exhibit.

Their children also looked to each other for peer support, through their Siblings Workshop and the Summer Basketball Clinic. “We plan to have it all year round,” smiled Aileen. Click here to read a previous thread.

The chapter also dreams of having an Autism Training Center someday to cater to the needs of families of children with autism, in Quezon City. So for its first offering, ASP Diliman Chapter embarked on their first Special Parenting Seminar-Workshop. Click here to see related post.

ASP Chapters work very hard to support their programs and activities. Be an Angel for Autism. Donate now! Visit our community website. You can call us at 7-903-5496 or email us at autismphils@gmail.com.

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Posted in: chapters,seminar

ASP Appeals for Compliance of Magna Carta for PWDs

Last July 19, 2010, ASP Chair Emeritus, Dang Koe, was joined by ASP National Representatives to file a formal complaint to the Commission on Human Rights on the PWD violations against the RA 9442, or the amended Magna Carta for Persons with Disabilities. Two persons with autism, Mike Almendrala, (48), government employee and JR Tan, (19), college student; participated in the political exercise.

PWAs JR Tan and Mike Almendrala during the

ASP appeal for Compliance at Commission on Human Rights

ASP appeal for Compliance at Commission on Human Rights

(from right to left) Autism Film Maker, Mirana Medina; Evelyn Go (Treasurer);

Carmel Almendrala (Trustee) with PWA son Mike; "Running Priest", Father Robert Reyes; Dang Koe (Chair Emeritus);PWA JR Tan with mom Tiffany (Secretary); Peng So (Vice President)

ASP joined other PWD Organizations: KAMPI-NCR, AKBAYAN Party, Life Haven IL Center, Crusader on Wheelchair, New Vois Association, Stac Quezon City, AD/HD Society of the Philippines, PAVIC, CPAP, Philippine Larimgeclomee Club Inc., Sinagtala Boys, KUBKMI, Filipino Deaf Women's Health Crisis Center during the Indignation Rally. Volunteers: Teacher My Sorongon, Jojie Magdael, Bernard Cabaddu and Mirana Medina.

The event was covered by TV5, GMA7, RPN9 and UNTV.

Click here and here to read previous threads.

ASP continues to keep members and supporters informed of the rights of persons with autism. Be informed. Be pro-active. Be an Angel for Autism. Donate to ASP programs and services. Log on to ASP Community Website or email us at autismphils@gmail.com or call 7-903-5496.

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Posted in: 4pwas,advocates

Echoes of Hope

By: Tiffany Tan, ASP Board Secretary

July 18, 2010, SM City Sta. Mesa was filled with mall goers, family members having their merienda and bonding time with kids, others busy buying their groceries just beside the food court.

the audience of the Echoes of Hope Concert

Before 3pm, people grabbed the empty chairs in anticipation of the much awaited ASP Divas. Those without seats were content to stand as trio belted out “Emotion,” popularized by Bee Gees. Each tried to out-sing each other during their solo parts to the delight of the audience.

“Mga autistic ba yung mga kumakanta?” (Do the singers have autism?) One grandmother approached the ASP booth with this question. Apparently, her sister has a grandchild suspected to have autism. Many are unaware of the tell-tale signs or red flags of autism. Click here to know the signs.

“Magiging katulad ba ng batang kumakanta ang anak ko?” (Will my child be as good in singing, as them?) Children with autism have splinter skills, are informed by Teacher Mae Lesondra of GS Option House, Laguna. These skills are foundations therapists or teachers can build on; such as in the case of seven year old Sean Benedict Espinili. He was a hit with the crowd when he sang “Changes in My Life” and “May Bukas Pa.”

According to T. Mae, Sean tended to “verbalize”, but after one year of Voice Lessons, his diction improved, and voice is more modulated. Sean is now mainstreamed in Good Shepherd Learning Center. Last year, he enrolled in the school’s Voice Lesson Class. Another boy, Gabriel Nazareth, also from the same school sang “Can This Be Love” and “Home”.

PWAs Gabriel Nazareth (left) and Sean Benedict Espinili (right)

“Wag po Tayong Mawalan ng Pag-asa.” Posible po silang mabigyan ng magandang kinabukasan – ang susi ay pagmamahal, pag-uunawa. (Let’s not lose hope,” said Peng So, ASP Vice President as she addressed the parents in the crowd. It is possible to give them a bright future – the key is love and acceptance.)

Thara Marie Santiago attributes her singing talent to constant practice and avoiding cold drinks. She sang her favorites, “All By Myself” and “One Moment in Time”. Thara believes in the difference she makes and hopes to inspire other children with special needs to do better and be better.

Vell Barria, one of the girls is now 14, a sophomore at St. Mary’s Academy. She posted on her Facebook page about her singing gig told fans she will sign autographs after her performance. She dedicated the song “Hero,” to her family and “That’s the Way It Is” to her fans. Vell says her most important possessions are her admirers and she believes in working hard to achieve her goals.

Nica Escasiñas gave a versatile performance as she sang and strutted with Donna Summer’s “I Will Survive”. Aside from playing piano and guitar, her singing abilities have landed her to win several singing contests. On her second song “You Smile” she changed the last stanza to “SM Smile…I Smile”.

ASP Divas (from left) Thara, Nica and Vell

As the crowd dispersed after the performances, chairs were stacked, floors were mopped, tarpaulins folded and spotlights switched off, Autism Angels who work behind the scenes collected themselves for a simple mirienda by the food court. They chose to be here on a Sunday, to advocate for autism, to miss being with their own families; believing that Echoes of Hope will linger on.

ASP would like to thank SM Supermalls and SM Program on Disability Affairs for extending a barrier free environment to persons with autism – with understanding and acceptance.

Acknowledgments: Teacher Kismette Cepe – Master of Ceremonies, Teacher My Sorongon; Sponsors: Tokyo-Tokyo and Cyber Wigget; ASP Trustee, Ging Viado, Voice Coach Jenzen Turica.

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Posted in: 4pwas,advocates

Dear President Noynoy

As the nation awaits for President Noynoy Aquino’s State of the Nation Address, we blog the letter of a 12 year old girl, whose brother has autism. This article was written June 28, 2010, two days before the presidential inauguration and is reposted with permission from the author and her family.

Dear President-elect Noynoy Aquino,

Ako po ay 12 yrs. old kasalukuyang nag-aaral sa mababang paaralan ng Pasong Tamo Elementary School nasa ika-anim na baitang. Nais ko po sanang hilingin sa inyo na magkaroon ng maayos at mabigyan ng malaking benepisyo ang lahat ng mga batang may autism o autistic child. Sapagkat ako po ay may kapatid na autistic child mahirap para sa aming pamilya na harapin ang pag subok na ito lalong-lalo na kami po ay kapos din po sa kabuhayan.

Ang akin pong mga magulang ay malaki ang tiwala sa inyong kakayahan na mabibigyan ninyo ng pansin na ang aming kahilingan ay magkaroon ng kaganapan.

Sana din po ay mabigyan ng sapat na kaalaman ang mamayan tungkol po sa kanilang pag-uugali dahil wala pong nakakaunawa sa kanila kung hindi kami lang po ng pamilya namin. Kami po ng buong pamilya namin ay natutuwa sa ginawang pelikula ni Jet Li ang "Ocean Heaven" na maisa-publiko ang tunay na anyo ng autistic person at mapaunawa sa buong mundo na matanggap sila sa mundong ginalaw natin.

Jecrislie

(Dear President-elect Noynoy Aquino,

My name is Jecrislie Mendiola. I am 12 years old and a Grade Six student of Pasong Tamo Elementary School. I have an autistic brother. It’s very difficult for our family to face the challenges, most especially due to our difficulties in earning a living.

It is also the wish of my family for society to have more understanding about their behaviors, because no one can understand my brother, except our own family. I wish to ask a favor from you, to have better, if not, more benefits for all children with autism. My parents have put their hopes on you, believing you can listen to our plea.

We are elated at the Jet Li’s Ocean Heaven and await the screening of this movie on the correct portrayal of an autistic person, for the society to accept them in the world we are living.

Looking forward to hearing from you soon.

Jercrislie)

ASP National President, Grace Adviento has written formally to Jercrislie to personally invite her to Family Support Group. The National Office has also talked to her father regarding their concerns for the autistic brother and informed them of ASP programs and services. We also have contacted LGUs to assist them in their needs locally. The ASaP News Team will keep you posted on the latest news on the family.

Ms. Grace Adviento

ASP continues to work hard for a brighter tomorrow. We appeal to the Aquino government for the implementation of programs and services for people with autism and their families. And we eagerly await the signing of the eight autism bills into law. Be informed. Be Pro-active. Be an Angel for Autism. Sign up now to become a member. Log on to ASP Community Website or email us at autismphils@gmail.com or call 7-903-5496.

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Posted in: government

Let the Colors Glow

By Marivi and Amaris Cabason, ASP Marikina Valley Chapter

“THINK BIG!” motivated Certified Autism Angel John Chua as he presented the Colors of A Spectrum Project – a collaborative photography workshop-exhibit project with ASP. The “Colors” project has made its mark in various ASP Chapters around the Philippines for the past two years. John’s enthusiasm is infectious. He wanted everyone to be involved in “Colors”.

Last June 6, 2010, ASP Marikina Valley Chapter President, Alex Cabason and wife Marivi met with John Chua and The Sunday Shooters Club - a photography group spearheaded by Ryan Matignas in 2008, to join forces with the chapter for this project.

Three weeks later, the photographers and chapter officers met with the parents for an orientation and set July 11 as the target date. Manila Ocean Park and Manila Zoo-Kinder Zoo were identified as possible venues.

Manila Ocean Park
On July 11, the families, all wearing the green colors of ASP, assembled at 6:30 am in Marikina City Hall. Twenty-three (23) persons with autism (with ages ranging from 5 to 26) and fifty (57) parents and siblings plus four teachers exceeded the target numbers. All boarded one rented bus and a coaster from Marikina City. While traveling, Alex seized the opportunity to talk to parent members. He enjoined the cooperation of the members for the Colors Photography Exhibit this August.

As early as 7am, the Sunday Shooters Club volunteers were waiting for the ASP group at Manila Ocean Park. And by 8am, our group arrived to join the photographers for breakfast, courtesy of SM Committee on Disability Affairs. Afterwards, the photographers were then assigned to the kids to instruct and assist them in taking pictures.

The kids, and photographers as well, were all wide-eyed with excitement as they aimed their cameras at the huge aquariums which had a wide variety of fishes from different parts of the world - seawater creatures like sharks, stingrays and other deep sea fishes, as well as the common ones like lapu-lapu, dalagang-bukid, talakitok and pampano. We all gathered for a group photo under the glass tunnel. After the photo shoot, the kids were also treated to an art class.

participants at Manila Ocean Park

Art Class at Manila Ocean Park

Manila Zoo
Since it was already around noon, we decided to have a break at our next destination, Manila Zoo. It was a chance to have more bonding time with our family as well as with the photographers, as we shared lunch. Everyone had time to rest, recharge and freshen up.

Kinder Zoo, one of the main attractions of Manila Zoo, gave the children an interactive experience. The kids had an opportunity to handle and have their pictures taken with a big snake, a small crocodile, a wild boar and a huge turtle. They fed bird seeds to parrots, cockatoos and macaws, and some even had their pictures taken mounted on the ostrich. The kids also fed bananas to Ma’ali, a 34 year old resident Asian Elephant of Manila Zoo and took photographs with her. Click here to read a previous thread on Ma’ali.

the participants at Manila Zoo

Boat Race for Adults
Not only did the kids have fun during the photo workshop. Adults joined in a boat race where two teams of photographers were pitted against two teams of parents; and a younger group from SM Supermalls and Canon. The adults were very competitive, although there were no prizes. The photographers won by the skin of their teeth in a very tight race.

Thankful for Miracles
By 3:30 pm, the activities drew to a close, with an exchange of tokens between ASP Marikina Valley Chapter and the volunteer photographers from Sunday Shooters Club. The children were also given loot bags courtesy of SM Supermalls.

ASP Marikina Valley Chapter President, Alex Cabason with wife Marivi

distributed gifts from Sunday Shooters Club

(4th from left, top row) Certified angel John Chua with The Sunday Shooters

Club

Everyday miracles do happen, as what transpired in the ASP Marikina Valley Photo Workshop, as things were being planned, and activities fell into place. We are thankful for the Angels who touched our lives and for the glowing colors that we experienced. And we look forward to more miracles for our chapter, soon.

Acknowledgments: John Chua, Photography with a Difference, Canon, SM Supermalls, SM Program on Disability Affairs, SM Marikina City, Sunday Shooters Club, Marikina City Government, Manila Ocean Park, Manila Zoo, ASP Marikina Chapter parents, siblings, volunteers and children with autism.

ASP Marikina Valley Chapter will have a Photography Exhibit on August 13-22 in SM Marikina. Are you an Angel for Autism? Help ASP Chapters with their programs and activities. Donate to ASP. Log on to ASP Community Website or call 7-903-5496. To request for a Colors of A Spectrum Photography and Exhibit Project in you area, write to autismphils@gmail.com.

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Posted in: advocates,chapters,colors

ASP Marikina Valley Chapter Photography Workshop

ASP Marikina Valley Chapter embarked on the first Colors of A Spectrum photography workshop at Manila Ocean Park and Manila Zoo last July 11, 2010. About 131 participants joined the event. The activity was in partnership with Certified Autism Angel, John Chua; the Sunday Shooters Club and SM Supermalls, SM Marikina City, SM Program on Disability Affairs; Canon and the City of Marikina.

Here are the testimonials:

“Thank you very much for organizing the photo workshop and for having our family to be part of this wonderful experience. Please extend also our gratitude to the Sunday Shooter Club photographers and sponsors. Our family really enjoyed every moment. More power and God bless!” – Mon Icasiano, parent

“Thank you. You made us all very happy. We really had a wonderful time. It was a wonderful day to remember.” Maya Ignacio, parent

“Congratulations on the success of our Photo Workshop! The kids and their families had a great time! God bless you and the ASP Marikina Valley Chapter” – Teacher Maan Alvaran

Families participated in the Photography Workshop

“Spending time with the kids yesterday was very fulfilling! Hope we can all meet again!” – Kaye Saga, photographer

“Thank you very much for your warm welcome. I enjoyed your company and had fun, too!” – Shale Albao, photographer

PWAs with their instructors from the Sunday Shooters

Click here to read the full story of the Colors of ‘A’ Spectrum ASP Marikina Valley Chapter- Let the Colors Glow.

Acknowledgment: John Chua, Photography with a Difference, Canon, SM Supermalls, SM Program on Disability Affairs, SM Marikina City, Sunday Shooters Club, Marikina City Government, Manila Ocean Park, Manila Zoo, ASP Marikina Chapter parents, siblings, volunteers and children with autism.

ASP works hard to keep members informed about programs, activities and projects. There are 44 ASP Chapters around the country. Be an Angel for Autism. Help fund ASP Chapters around the country. Log on to ASP Community Website or email us at autismphils@gmail.com or call 7-903-5496.

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Posted in: chapters,colors

ASP Gen. Trias Chapter Seminar on Understanding CWDs

By: Ms. Tess Castillo, ASP Gen. Trias Chapter

ASP Gen. Trias Chapter, with the collaboration of its officers and parents held its pilot activity last July 03, 2010 entitled “Understanding the Child-- An inspirational Talk and Early Detection Seminar”. The seminar was also in line with the 32nd NDPR Week celebration, which aims to educate the public on the rehabilitation of persons with disabilities.

ASP Cavite Chapter's "Gobernadora" Jan Peña

They said event was supported by 33 participants, most of whom were parents of children enrolled at the Early Wings Behavior & Therapy Center in Gen. Trias, Cavite. ASP Cavite Chapters “Gobernadora”, Jan Peňa, who also heads the ASP National’s Membership Committee, was the guest speaker.

Participants and our speaker Ms Jan Peña

the participants on said seminar

Jan is a Bachelor of Arts, Major in Psychology graduate of the University of the Philippines, with Masteral Units in Educational Management at the De La Salle University, Manila. She discussed the manifestations for Early Detection of a Child with Disabilities. Furthermore, she openly shared the clippings of her own child’s activities to encourage the parents to support their children’s talents and skills.

The seminar opens the door for greater awareness on persons with disabilities. Feedback from parents who attended the seminar resulted to having a more sense of understanding, patience and true acceptance of their own children.

ASP continues to work hard to educate the public on autism awareness. To request for an Early Detection and Early Intervention Seminar in your area, write us at autismphils@gmail.com or call 7-903-5496.

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Posted in: chapters,orientation,seminar

Senator Osmeña Donates Books to Public Special Schools

By: Tiffany Tan, ASP Board Secretary

“I am inspired by all your stories and I congratulate all of you, who volunteer to care for Filipino special children,” said Mrs. Bettina Mejia Lopez-Osmeña during her visit to the Public Forum on Disabilities, last July 21 at the Sky Dome, SM North EDSA, Quezon City.

Mrs. Bettina Mejia Lopez-Osmeña is the wife of Senator Serg Osmena III. The senator believes that Filipino children need to be properly trained to meet the challenges of life. Through his many advocacies, he has championed the needs of indigent children with his medical assistance programs. He has also funded a total of 935 school buildings nationwide, the most by any senator.

The senator also believes in educating the public about autism awareness. Through ASP’s Advocacy Committee member, Trustee Mariter Macapagal, the Senator donates “Our Andrei” books to the libraries of Public Special Schools and Centers in the National Capital Region (NCR or Metro Manila) The donations were turned over to Dr. Elvira Rocal, Education Supervisor II of DepEd-NCR.

(left-right) ASP Trustee Mariter Macapagal, Mrs. Bettina Mejia Lopez-Osmeña,

wife of Senator Serg Osmena III and Dr. Elvira Rocal, Education Supervisor II of DepEd-NCR

Our Andrei: Living with Autism is a poignant story of the Macapagal Family’s struggle with autism, at a time when it was little known in the country. Click here to know more about the book.

Mrs. Osmeña is equally passionate about education, and left the crowd cheering when she said, “I will be your “special abogado!” (lawyer/defender), addressing the PWD organizations present.

ASP joined the whole nation in celebration of the 32nd NDPR Week with a Public Fora on Disabilities on July 21, 2010 at the SM Skydome, North EDSA, Quezon City. The fora is sponsored by the RCDA-NCR or Regional Council on Disability Affairs, National Capital Region and SM Program on Disability Affairs. Click here to read more about the fora.

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Posted in: 4parents,advocates

ASP’s 2nd Autism Orientation at Festival Supermall

ASP Board of Trustee, Gina L. Bermudo conducted the Autism Awareness Campaign Seminar to 75 employees of Festival Supermall. The event last July 21, was held at the Pixie Forest Multipurpose Room with attendees from the Mall’s Amusement Center and the Cinemas along with a few janitorial staff and some security guards.

Gina Bermudo with the 75 employees of Festival Mall during the 2nd Autism Orientation

We would like to thank the management of Festival Mall, Ms. Rose Nuqui - Commercial Center And Operations Retail Head and Ms. Mica Porlahe - Marketing Assistant.

To request for an Autism Orientation in your establishments, email us at autismphils@gmail.com or call us at 7-903-5496

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Posted in: awareness,orientation

ASP Join Public Fora on Disabilities

By: Tiffany Tan, ASP Board Secretary

ASP joined the whole nation in celebration of the 32nd NDPR Week with a Public Fora on Disabilities on July 21, 2010 at the SM Skydome, North EDSA, Quezon City. The fora is sponsored by the RCDA-NCR or Regional Council on Disability Affairs, National Capital Region and SM Program on Disability Affairs.

The Fora sponsored by RCDA-NCR and SM Program on Disability Affairs

ASP Executive Director, Ranil Sorongon, said the whole day fora aims to network other disability organizations and allied medical professionals with supports, parents, college students and Local Government Agencies, towards the prevention and rehabilitation of persons with disabilities.

Almost a total of more than 200 participants were composed of students taking up special education and psychology and other organizations, public and private schools and barangays day care centers from Mandaluyong and Quezon City.

the participants of the said Fora at SM Skydome

ASP National was represented by Vice President, Peng So; Treasure, Evelyn Go; Trustee, Carmel Almendrala and this writer; and from ASP Marikina Valley Chapter President, Alex Cabason and ASP Mandaluyong Chapter officer, Jean Gonzales.

The morning’s forum, Family Support Organizations: Partners in the Journey, offered opportunity for everyone to know the roles, programs and services of the support group organizations with the following presenters Philippine AD/HD Society, Down Syndrome Association of the Philippines; Parents Advocate for Visually Impaired Children; The Centers for Possibilities; Philippine Society for Orphan Disorders and Department of Education, National Capital Region.

Having been in the disability community for more than two decades, ASP has been patterned as one of the model parent support organizations in the country. Ranil presented ASP’s Vision–Mission, programs and services, projects and activities. Click here to know more about ASP.

The afternoon’s forum, The Roles of Professionals clarified the different roles of professionals in managing the different disabilities, with the following presenters, Dr. Jackielyn Navarro, Developmental Pediatrician; Mr. Jaypee Mallari, OTPR; Speech and Language Pathologist, Dr. Ferdeliza Garcia; Special Education Teacher, Ms. Genevieve Rivadelo; Social Worker, Ms. Charito Paran, Supervising Social Worker, DSWD-NCR.

Acknowledgments: Eng. Edilberto Tayo, Director, DPWH-NCR and 2010 NDPR Week Chair ; Mrs. Thelsa Biolena, RCDA Regional Direactor and Chairperson; Eng. Bien Mateo, Director of SM Program on Disability Affairs; Mr. Foilan Maglaya, Program Specialist, OP/PWD DSWD-NCR, Ms. Flerida Labanon, Regional Program Coordinator of NCDA; Mrs. Jcel Paguio, Division Chief, DSWD-NCR, Ms. Flordeliza Magday, Director, DepEd-NCR, Chair on Education Committee.

ASP believes that capacity building of communities is only possible through networking and collaboration with supporters, different institutions, local government agencies and allied medical professionals. Be informed. Be pro-active. Be an Angel for Autism. Sign up now to become a member. Log on to ASP Community Website or email us at autismphils@gmail.com or call 7-903-5496.

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Posted in: awareness,chapters

Need We Say More?

By: Tiffany Tan, ASP Board Secretary

Carmel and her son Mike rose early to join the Indignation Walk. She brought her own baon of pan de sal with ham tucked in with her other belongings in her shoulder bag. “I’m not used to having an early breakfast,” said Carmel.

Other people from the disability sector were already seated inside Jollibee, (a fast food chain) Philcoa Branch, having their coffee and updating one another with current events. Others are out in the parking lot, getting ready with their placards that read “Ipatupad ang karapatan ng may kapansanan.” (Implement the rights of people with disabilities).

“With limited resources, we have to be militant to fight for our own share in the pot,” reminded Tita Carmel. “Kung sino ang makulit, siya ang mapapansin (whoever is insistent, will be given attention). And with the work of the advocates, people will develop the courage to fight,” Tita Carmel said this with all conviction.

Tita Carmel Almendrala is head of ASP’s Advocacy Committee. Her son Mike, a regular employee of Philippine Information Agency, absented himself to join the walk. Both mother and son are no strangers to “walking for autism,” they have been doing it since the early ‘90s.

Father Robert Reyes, the “Running Priest” also came to support the PWD Sector. (Reyes is a Catholic priest known for his social and political activism.) He gave a short prayer for all the PWDs and supporters present, thanking God for the good weather and asking for everyone’s protection.

After assembling, marshals were assigned to assist the crowd walking along the wide stretch of the Commonwealth highway to the Commission on Human Rights. Other autism advocates, Mirana Medina, aimed her video cam at the participants. Her film Alyana, the first Filipino documentary on autism, opened many doors for her to make other films for other disabilities as well.

After less then half an hour, the group approached the CHR building. The PWD Sector submitted a formal complaint to the Commission on Human Rights (CHR) prior to taking the issue to the court. The group was welcomed by Commissioner Cecilia Rachel “Coco” Quisumbing, and three other commissioners, who listened patiently to the impromptu forum while PWD representatives aired their grievances.

PWA Mike (in green shirt) during the Indignation Rally

As the forum was about to end, Mike raised his hand and was handed the microphone. “To the commissioners, please help us fight for our rights!” Need we say more?

ASP continues to advocate for the rights of persons with autism. Keep posted for more updates on ASP programs, services and activities. Watch the news tonight for the coverage of the Indignation Walk at TV 5, GMA 7 and RPN 9.

Acknowledgements: Father Robert Reyes, Life Haven IL Center, Crusader on Wheelchair, New Vois Association, Stac Quezon City, AD/HD Society of the Philippines, PAVIC, CPAP, Philippine Larimgeclomee Club Inc., Sinagtala Boys, KUBKMI, Filipino Deaf Women's Health Crisis Center, KAMPI-NCR, AKBAYAN Party, Volunteers: Teacher My Sorongon, Jojie Magdael, Bernard Cabaddu and Mirana Medina and media TV5, GMA7, RPN9 and UNTV.

Join the NDPR Week celebrations. Register now for July 22 “Special Parenting” Seminar-Workshop by inspirational guru, Francis Kong and Malou Ortiz, author of “Embracing God’s Purpose for My Special Child,”” Click here for more details.

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Posted in: advocates,awareness

The Autism Ramp of Accessibility

By Dang U. Koe, ASP Chair Emeritus

Sa Istrukturang Accessible, Lahat ay Able (Structural Accessibility is Ability for All).

This is the theme for this year’s celebration of the National Disability Prevention and Rehabilitation (NDPR) Week. Said theme is aligned with the mandate of Department of Public Works and Highways in the implementation and promotion of the accessibility programs of persons with disabilities for a barrier-free environment. It is also in pursuant of Batas Pambansa 344, otherwise known as the Accessibility Law.

A barrier-free environment for PWDs is synonymous to parking spaces, sidewalks, ramps, railings, elevators, and other architectural facilities or structural features that reasonably enhance the mobility of physically disabled persons.

What about persons with autism (PWA)?

In general, PWAs do not need structural accessibility. But yes, they need other “infrastructures” for their effective integration into mainstream society.

Angels Talk had the privilege of interviewing Valerie Paradiz, PhD, on this matter. Valerie speaks internationally on topics relating to Asperger’s syndrome and autism, including strengthening advocacy skills in parents, professionals and individuals on the autism spectrum.

Ms. Valerie Paradiz during the Autism Beyond Border Conference

A former member of the board of directors of the Autism Society of America, Valerie co-chairs the Autism Society of America’s Panel of Individuals on the Spectrum and serves as an advisory board member to the US Autism & Asperger Association. Her new book “The Integrated Self Advocacy (ISA) Curriculum”, published by Autism Asperger Publishing, relates to building strong educational programs and advocacy skills for students with ASDs in public and private school settings.

Valerie speaks from experience — she is a parent of a young man with autism, and was diagnosed herself with autism at age 40.

Why did you say that autism is “invisibility” during your World Autism AwAwareness Day speech in the UN?

I said that for two reasons. First, it is sometimes difficult for others to “see” autism in those of us who are diagnosed with it. This is because — particularly for those of us on the spectrum who are verbal — we don’t have obvious signs of the condition, until perhaps, you have a longer conversation with us.

Second, autism (and by this I mean the entire spectrum) was a latecomer to the disability advocacy movement. We are still working hard to raise awareness in mainstream culture about what autism is, what autistic people are like, and what we need to be more integrated participants in society.

Describe the Autism Awareness Movement. What does it mean?

To me, the movement means that the world still needs to know more about autism. Particularly, there is a need for more infrastructures for individuals with autism across the life span. Until we have achieved that, the “movement” will be necessary.

How do parents and self-advocates protect the civil rights of persons with autism?

We must collaborate to ensure that we are there for one another as organizations and as individuals.

We must work toward having more legal supports for individuals with autism whose civil rights are violated at work or in the community.

We must also educate others how to support individuals with autism and what they should do as citizens to assist us in preserving our civil rights.

How do we make the government listen and take us seriously?

One good way to make the government listen and take us seriously is to include individuals with autism in your visits to representatives. When politicians hear the direct voice of people with autism, they get an immediate and real sense of their needs and of this way of life.

Families’ voices are also crucial. When families and individuals on the spectrum can work together to develop advocacy agendas, this can be very powerful. We have witnessed this at the Autism Society of America, where there are three people with autism on our national board of directors. ASA has also established an advisory board called the Panel of People on the Spectrum of Autism (PSA) which advises the national board of directors. The PSA is comprised entirely of people with autism.

Describe the culture of autism

Oh my goodness! That is a BIG topic! I guess the best way to describe a culture of any kind is that is represents a group of people who have a shared history and language.

For autistic people, our language might be unheard of or not evident. Yet, when we are together, we do have a feeling of being among kindred spirits or “at home.” Culture also means having a sense of belonging. It is a very powerful moment when someone on the spectrum meets others on the spectrum for the first time. We learn so much from one another!

Describe the future of autism

In the future, I see more of us on the spectrum integrated into our communities more seamlessly and with tremendous understanding from those around us. We are still seeking for that “invisible ramp.” It is already a federal mandate in my country to provide access to individuals using wheelchairs in most public spaces and buildings. For autism, we are also attempting to educate others about our “ramps,” most of which have to do with sensory and social sensitivities
and challenges.

As society begins to provide that ramp (or accommodations), it in turn will become more humanized and sensitive to the autism culture. This is very exciting for me to think about.

I also see more of us, across the spectrum, working in fulfilling jobs. This to me is the next frontier in autism advocacy! The time has come!

How do we encourage others to come up and address the issues of Autism Rights? Please give practical tips.

The most powerful thing one can do is share a story. Sometimes these stories are difficult for others to hear because they reflect back to the culture at large, how much more it has to grow in order to treat individuals with autism and other disabilities with respect. Thus, it’s also good to intersperse stories of hardship or injustice with stories of hope and accomplishment. Whenever I share my employment story, for example, I like to also share how that event inspired me to push harder for all of us on the spectrum who want meaningful work.

There are eight pending autism bills in the Philippine Senate. How do we make the legislators take us seriously? Some practical tips please, and share your experiences in the US.

Develop relationships with those legislators and tend to them carefully and well. Expect that it will take time to foster these relationships, but stick to it.

Find out if any of your legislators have family members or close friends affected by autism. Will they work with you to advocate for these bills?

As much as possible, include individuals on the spectrum when you correspond or have meetings with your representatives, even if it’s by way of video, or a work of art that someone on the spectrum has created.

Finally, invite them to your advocacy events and conferences; ask them to be keynote speakers or to be present for a Town Hall meeting where families and professionals may ask questions and share their stories.

How do we, as parents, rally others to advocate? Can you give us practical tips on your experiences in the US on how to go about this?

I have recently found out that rallying the younger generation can be extremely powerful. I discovered two (non-autistic) girls in our local high school who created an autism awareness club.

The unusual thing about their club was that not only did they offer friendship to fellow students on the spectrum attending their school, but they also wanted to model for their neuro-typical peers how to treat students in special education with respect and kindness.

They even managed to get the school’s code of conduct amended, so that any student who said derogatory things about a person with cognitive differences would undergo the same disciplinary action that the code stipulated for racial or other discriminatory remarks or actions.

Today, we are celebrating these young women as future leaders, inviting them to present workshops in schools and even train teachers! It is very hopeful and very powerful!

ASP joins the nation in celebrating the National Disability Prevention and Rehabilitation Week. Visit autismsocietyphilippines.blogspot.com for schedule of NDPR Week events.

ASP July 31 seminar features Teacher Landa Bautista on “Vocational Training for Persons with Autism” and “ABC’s of Job Coaching”. Francis Kong and Malu Tiongson-Ortiz speak on “Parenting” for ASP Diliman Chapter. For those interested to attend these seminars, please call ASP Office at 7-903-5496

Source: Manila Bulletin

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Posted in: angels-talk,awareness

ASP Joins PWD Groups to Air Grievance vs. Drugstores

By: Tiffany Tan, ASP Board Secretary

Wheelchair Logo

The 32nd National Disability Prevention and Rehabilitation (NDPR) Week (July 17-23) with the theme, “Sa Istrukturang Accessible, Lahat ay Able” would be the beginning of the series of mass actions of the PWD sector to claim their rights as embodied in the United Nations Convention on the Rights of Persons with Disabilities. The Philippines ratified the UNCRPD on April 15, 2008.

Yesterday, ASP Executive Director, Ranil Sorongon joined other heads of national organizations of persons with disabilities (PWD) for a press conference at the National Council for Disability Affairs (NCDA) in Quezon City.

The PWD groups warned of planning to file class suits against private corporations as well as government institutions for violation of the mandate stated in Republic Act 7277 or the Magna Carta for Persons with Disabilities.

It has been more than a year since the Department of Health issued Administrative Order No. 2009 – 0011 that mandates the full implementation of this law Click here to read a previous thread.

Among the guidelines stated in the DOH Administrative Order, all drug stores and pharmacies must provide twenty (20%) discounts for PWDs in their medicine purchases, which is similar to what is given to Senior Citizens. However to this date, a group of drug stores continuously violate the aforementioned law.

Rival Networks Cover Violations against PWDs
Last night, during an interview with the ABS-CBN’s Bandila news crew, Dang Koe, ASP Chair Emeritus, was assisted to purchase medicines for her son, Gio at a drugstore nearby her home.

Gio, who has autism, needs his daily medication. Aside from the medicines, Dang also spends for his therapy and frequent follow-up visits to the doctor. She bought with her Gio’s doctor’s prescription, PWD Medicines Booklet, and PWD ID. However, she was not given the discount. Click here to watch the video.

Medicines are vital to the day to day existence of some children and adults with autism, who rely on their medication to stabilize their condition. (Some PWAs suffer from seizures).

Another network, GMA7’s 24 Oras, also posted a father’s frustration over the refusal of a certain drugstore of his autistic son’s PWD ID. He is unable to get the discounts for his son’s medicines, which is a daily struggle. “What about the poorest of the poor?” he said. He then appealed to President Aquino, for PWDs be treated fairly in accordance with RA 9442, or the amended Magna Carta for PWDs.

Click here to watch video

Several broadsheets also posted the press conference.
Philippine Daily Inquirer
Philippine Star
Manila Times
GMA News

PWD Frustration + Denial =Indignation
Persons with Disabilities from Metro Manila and nearby regions plan to have an indignation mass action to bring this matter to public attention. They also plan to file a formal complaint to the Commission on Human Rights (CHR) prior to taking the issue to the court.

ASP continues to work hard keeping members and supporters informed about PWD rights and privileges. Sign up now to be a member of Autism Society Philippines. Be informed. Be pro-active. Be an Advocate. Be an Angel for Autism. Email us at autismphils@gmail.com or call 7-903-5496. Log on to ASP Community Website.

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Posted in: 4pwas,awareness

What are the PWD Medical Privileges?

Medical Logo

The Department of Health signed the provisions of medical and related discounts and special privileges for persons with disabilities or DOH Administrative Order#2009-0011 last May 20, 2009.

This is in line with the RA 9442 or the Magna Carta for Persons with Disabilities, providing for the rehabilitation, self-development and self-reliance of PWDs in their integration into the mainstream society.

This specifically required the DOH to institute a national health program for PWDs among others, adopt an integrated and comprehensive approach to the health and development of PWDs which shall make essential health services available to them at affordable cost.

Persons with disabilities, with valid PWD IDs and Medicine Purchase Slip Booklet can now avail of the privileges. Click here to view the complete list of cities and municipalities issuing PWD cards around the Philippines.

PWDs shall be entitled to the following:
1. At least 20% discount for the purchase of medicines (branded or unbranded generic) in all drugstores/establishments dispensing medicines for the exclusive use or enjoyment of PWD

2. At least 20% discount on medical and dental services including diagnostic and laboratory fees such as, but not limited to x-rays, CT scans and blood tests, in all government facilities, professional fees of attending doctors in all private hospitals and medical facilities

3. All PWDs are granted the privilege of 20% discount in all private hospitals and medical facilities for the costs of medical, dental, rehabilitation, occupational and physical and speech therapies or services

Among the provisions for the Penalty and Sanctions are also mentioned in the said Administrative Order. National Council for Disability Affairs is the government agency responsible for the oversight of the law.

For further Information contact the National Council on Disability Affairs at Telephone numbers (632) 952-2809, (632) 951-5013, (632) 951-5925 (NCDA) email address: http://www.ncda.gov.ph

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Posted in: 4pwas

Disabled persons' discount not honored by drugstores?

Bandila Logo

ASP Chair Emeritus, Dang Koe's son, Gio, who has autism, was denied the 20% discount for PWDs during her purchase of medicine at drugstore. Click here to watch footage c/o Kapamilya Network, ABS-CBN's Bandila.

Join the Indignation Rally July 19, 2010. Assembly time 8am at Philcoa Jollibee parking lot.

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Posted in: awareness

July 31 Back to Back Seminars

Vocational Training for Persons with Autism

9am-12nn

The seminar will revolve on TLC’s (The Learning Center, Inc.) unique program for adolescents and adults with special needs focusing on its Vocational Skills Training and Life Skills Training Programs. It will highlight how the school has been successful in this endeavor. It will likewise focus on the use of the Structured Teaching principle based on the acclaimed TEACCH approach and its role in the programs’ implementation.

ABCs of Job Coaching

1:30pm-4:30pm

The seminar will revolve on TLC’s (The Learning Center, Inc.) On-the-Job Training Program as part of its work transition training in school-based and community-based settings. It will highlight the steps the school took to initiate a pioneering OJT Program in 2002 and include tips on how the school successfully established its continuing community-based OJT programs. The talk will likewise share the basic roles of a Job Coach in the Philippine setting as seen through the TLC Experience.

Ms Maria Yolanda Bautista

Ms. Maria Yolanda Michelle A. Bautista or Teacher Landa is a BA Social Science (Major in Behavioral Studies) graduate of UP Manila. She finished her master’s degree in Special Education at UP Diliman, Quezon City. Shortly after, she finished a Social Entrepreneurship Training Program for Professionals at Ateneo de Manila University’s School of Government. Ms. Bautista is the Curriculum Director of The Learning Center, Inc. (TLC). She administers the schools internal and external affairs and develops the school's special education curriculum. She likewise develops TLC’s vocational skills training curriculum, which focuses on work transition training programs in sheltered social enterprise, school-based and community-based settings. Her thesis, “Factors Related to Work Transition for Persons with Special Needs” has recently been published in the Research Journal in Special Education & Independent Living. She is a staunch advocate of individuals with special needs.

Single Seminar: (Pre-reg until July 28)
Member: 400.00
Non-Member: 500.00

Onsite Registration:
Member: 500.00
Non-Member: 600.00

Double Seminar: (Pre-reg until July 28)
Member: 700.00
Non-Member: 800.00

Onsite Registration:
Member: 800.00
Non-Member: 1,000.00

Venue: Asian Social Institute (ASI),
#1518 L. Guinto cor. Escoda Streets, Malate, Manila

SEMINAR FEE is inclusive of certificate, handouts and snacks

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Posted in: 4parents,4pros,seminar

Drugstore refuses to accept discount card of autistic child

Exclusive 24 Oras

Drugstore refuses to accept discount card of autistic child

Click here to watch video c/o GMA 7 Kapuso Network

Join the PWD Indignation Rally July 19, 2010
Click here for more details

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Posted in: 4parents,4pwas,awareness

July 21 Back to Back Forum

9AM - Forum on Family Support Organizations: Partners in The Journey
This forum offers opportunity for everyone to know the roles, programs and services of the following support group organizations:

The following are the speakers:

Mr. Ranilo Sorongon

RANILO SORONGON
Current Executive Director of Autism Society Philippines

Mr. Tony Pasia

ANTONIO (Tony) PASIA
Current Chairman of the Board and a Founding Member of the Down Syndrome Association of the Philippines, Inc. (DSAPI)

Ms. Marie Alonzo

MARIE ALONZO
Current President of the Parent's Advocate for Visually Impaired Children (PAVIC)

Ms. Dolores Cheng

DOLORES F. CHENG
Current President and Founder of the Center for Possibilities

RAUL MANALIGOD
Current President of the Attention Deficit Hyperactivity Disorder (AD/HD) Society of the Philippines.

Ms. Cynthia Magdaraog

CYNTHIA K. MAGDARAOG
Current President of the Philippine Society for Orphan Disorders

Dra. Elvira Rocal

DRA. ELVIRA ROCAL
Education Supervisor II, DepEd-NCR

1PM - "The Roles of Professionals in the Management of Disability"

ProfessionalsKnow and understand the roles of professionals in the management of disability in this special forum. Listen to the following speakers:

Dr. Jacqueline Navarro

DR. JACQUELINE NAVARRO
Developmental Pediatrician

MR. JOHN PAUL MALLARI OTRP

Dr. Ferdiliza Garcia

DR. FERDILIZA GARCIA
Speech Pathologist

MS. ELEONOR LOPEZ
PTRP

MS. GENEVIEVE RIVADELO
Ph D. Cand. SpEd

MS. CHARITO PARAN
Social Worker

FREE Registration with certificate and lights snacks
*Sponsored by RCDA-NCR

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Posted in: 4parents,seminar

PWD Indignation Rally

WHAT: PWD Indignation Rally Against Violators of RA 9442 and BP 344

WHEN: July 19, Monday, 7:30AM Assembly Time

WHERE: PHILCOA, Jollibee

WHO: ALL PWDs, families of PWDs and supporters are welcome to join

Contingent will walk from PHILCOA going to the Commission on Human Rights (CHR)

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Posted in: disability

ASP Cavite Chapters Join Forces for Special Mini-Olympics

ASP Bacoor, Dasmariñas, Carmona, Gen. Trias, Molino, Tanza, Trece Martirez, and Cavite-North Chapters join forces for the NDPR Week Celebrations with the yearly Special Mini-Olympics.

Muneer Peña during the past Special Mini-Olympics

2010 Cavite Special Mini-Olympics

Program Schedule

Mon., July 19, 2010, 1-4pm – Kick-Off of NDPR Week Celebration
Poster-Making Contest – SM City Dasmariñas

Fri., July 23, 2010 – 1-4pm – Group Hiphop Dance Contest
SM Supercenter. Molino, Bacoor

Sat., July 24, 2010, 8-4pm – Motorcade and Sports Events
Venue to be announced later

Wed., July 28, 2010, 1-4pm – Solo Singing Contest
SM City Rosario

Fri., July 30, 2010, 1-4 pm – Awarding Ceremonies
SM City Bacoor

The activities are open to ASP CAVITE CHAPTERS MEMBERS ONLY. For interested parties who wish to become members of the chapters, kindly call ASP Cavite Chapters “Governadora” Jan Peña at 0915-985-7828 and/or 0920-824-7636.

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Posted in: chapters,sports

ASP Reps Interviewed at 702 DZAS Radio

ASP’s long time media partner in autism advocacy, 702 DZAS, conducted a radio interview with Carmel Almendrala, ASP Trustee and Head of Advocacy Committee, and Ranil Sorongon, ASP Executive Director. The interview last June 24 was featured on their program “ACCESS Radio,” which airs every Saturday from 10:00 to 11:00AM.

(L-R) Pastor Eric Maliwat, Ranil Sorongon and Carmel Almendrala

Hoping to reach other kababayans who still have no access to internet, TV or cable, ASP also made radio a tool to inform others about autism. Through the DZAS radio ministry, Pastor Eric Maliwat, DZAS Station Manager, conducts regular interviews of persons with disabilities (PWDs) and representatives of family support organizations to heighten the awareness of their listeners on disability. Click here to read a previous thread.

During the interview conducted, Carmel discussed the tell-tale signs and symptoms to watch out for in children. Click here to know more about the signs. She shared her family’s own journey with Michael and their struggles to overcome the challenges hurdled to them.

From a child who did not speak a word until he was 8 or 9, Mike is now a faint shadow of how he was many years ago. But it didn’t happen overnight, according to Carmel. She attributes Mike’s success to prayers and the autism angels who surrounded him- people who accepted him and showered him with kindness. Mike, (42) now works as a permanent employee of the Philippines Information Agency (PIA) and Special Olympian gold medalist.

Ranil spoke on the programs and services of ASP like monthly seminars to latest seminar data, family support group meetings to Early Detection and Early Intervention on Autism Program and the Siblings’ Workshop, among others.

He also informed the listeners of the 44 ASP Chapters nationwide, who also do regular activities to serve persons with autism and their families. And encouraged others who live far from Metro Manila, to seek help from Chapters.

ASP thanks media partners like DZAS, who believe in our causes for autism awareness and advocacy. For more information on ASP programs and activities this July 17-23 for the NDPR Week Celebrations, click here Visit our community site, Call us at 7-903-5496 or you can email us.

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Posted in: 4parents,advocates

ASP Marikina Valley Chapter Colors of A Spectrum Photography Workshop

Camera Mascot Character

WHO: ASP Marikina Valley Chapter
WHAT: Colors of A Spectrum Photography Workshop
WHEN: July 11, 2010
WHERE: Manila Ocean Park and Manila and Kinder Zoo in cooperation with Sunday Shooters Club.

The workshop registration is now closed. Note: To request for a photo workshop is your area write us at autismphils@gmail.com or call us at 7-903-5496

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Posted in: chapters,colors

Understanding Myself

By: Eric Chen, Person with Autism

My special condition provided me with a different perspective of how things worked on Planet Earth. From TV dramas, I understood that love was something that caused people to do irrational things like jumping from bridges for the sake of another person. However, free will eluded me because I could not understand how anyone could choose something other than the optimal logical solution to a problem.

Mr. Eric Chen

Over the past few years, I began to perceive the hidden dimensions of social communications. Once, I was about to cross a road and encountered a speeding car. I spontaneously signaled to the driver that I am giving him the right of way by moving one of my feet half a step backwards. That led me to understand that communication is not about exchanging data, but expressing and reading intent.
In mid May 2010, I quit my day job and launched my third book, Star Child on Earth, in Hong Kong. I then went to Taiwan to help film an autism documentary. I enjoyed my first experience of Taiwan - living in a Taiwanese household, tasting smelly tofu, meeting many interesting people, getting a fashion makeover and sharing about my experience with autism.

Dressing up as a high school student and sitting in a real high school class was the fulfillment of my dream of re-experiencing my teenage school life, but with my present level of social skills and self-confidence. As I sat in my chair following the film crew's instructions, I imagined how it might be like to hang out with and date my new classmates. Too bad it only lasted for less than 2 hours.

I also met a Waldorf teacher who guided me through a few Waldorf exercises. As I drew lines on a piece of paper, I experienced the universe opening up to me. I felt great awe for God's creations as I grasped some of the previously abstract scientific principles I learnt from the textbooks.

Visiting a mother of two PWAs (Person With Autism) brought back memories of my past. In particular, one of her sons spilled some water in front of me. When his mother told him to clean the table with a towel, he started robotically mopping his side of the table, inching slowly towards the spill on the opposite side. I told his mother that this was due to her son not realizing that cleaning up the spill (rather than cleaning the table thoroughly) was the top priority - a mistake I often made due to my inability to read intent from situations.

Both the production crew and this parent brought up many issues and gave me feedback that I was previously unaware of. I realized that I was not really an autism expert, but an expert on "Eric Chen" (a.k.a. myself) since my situation is rather unique. I also realized that my autism work lacked love, as I did not connect with the parents, social workers and PWAs while sharing with them.

My greatest gain from this visit was to feel the love from my mother for the first time. As I touched a bun from a dear Taiwanese friend, I felt the love she conveyed to me. With this, I realized that her gifts are a medium for the expression of love. I remembered what my mother did for me in the past as an expression of her love and almost cried.

I then went to Hong Kong to speak at a conference and then to Macau for a vacation. I had a good time meeting friends, giving a few autism sharings and doing some emotional healing work.

Arriving in Singapore, I was pleasantly surprised that the students who have previously interviewed me did not mention me in their special feature on autism. Their theme was "who will take care of the PWAs when they grow up?" I was glad to answer that I could not only take care of myself, but support my family and make a positive contribution to society too.

Perhaps the time will soon come when I find out how to cross my final frontier. Until then, what I can do is to serve my responsibilities without betraying myself by taking on a second job that I can accept.

More about Eric's Autism Work
http://iautistic.com

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