"Shopping" for a special school?

By: Dang U. Koe, ASP Chair Emeritus

Our expert shares tips on how to look for regular schools that offer SpEd

MANILA, Philippines — Swimming lessons, art classes, cooking classes and all sorts of summer activities will be over by next week. It will be back to school once again. By this time, parents are done scouting schools for their children. Some will stay in their comfort zone by sticking with their old schools; while some would bravely scout for new schools that they think would best address their kids’ needs.

In a previous Angels Talk years ago, several mothers gave tips on how to select a good special school for their children with autism (CWA). Our Angel Talker this week is a teacher who shares tips on how to shop for regular schools that offer special education (SpEd) programs.

Kismette J. Cepe is a faculty of De La Salle Health Sciences Institute. She also serves as SpEd consultant of the Neurodeveopmental Center of De La Salle University Medical Center. Teacher Kismette is an active professional member of the Autism Society Philippines and a volunteer of the UST Psychotrauma Clinic.

***

School shopping is a big task most especially for parents with first time students. Add to that, each special school will offer different programs which can overwhelm a neophyte school shopper.

Shopping Special

Here are some practical pointers which parents need to know when school shopping.

1. PROGRAMS

Children with autism (CWA) are placed in special schools under the recommendation the developmental pediatrician, neurologist, clinical psychologist or SpEd diagnostician. These professionals administer assessment and recommend interventions for the CWA. At this point, parents should do their homework by knowing some terminologies used in SpEd.

It is best to ask the schools regarding their programs. Do not relay on brochures and other marketing paraphernalia.

SpEd programs differ in each school but they can be classified into:

a. MAINSTREAMING, which can be partial or full. For partial mainstreaming, the CWA is enrolled in SpEd class, but attends regular classes in one or more subjects, say art classes to have the opportunity to interact with neuro-typical children.

Full mainstreaming is for CWAs who meet admission requirements for placement in regular classes. It has provision for “pull-outs” for one-on-one instruction, or a shadow teacher in classes where the CWA finds it difficult to cope. To sum it up, partial or full mainstreaming means the school provides adjustments for the CWA’s special needs.

b. INCLUSION refers to the placement of a CWA in the regular class using his/her age as the sole criterion for placement, given he passes all admission requirements. There are no provisions for pull-out and shadow teaching.

c. SELF-CONTAINED classes focus on functional curriculum for CWA to learn necessary behaviors and skills that can help them either cope or deal with daily and lifelong activities. These are for students who may not yet be ready or may not be fit for mainstreaming.

All programs may include tutorials and/or therapists (physical, occupational, speech), counselors and psychologists employed inside or outside school.

2. PROFILE OF THE SCHOOL PERSONNEL

SpEd involves services of specially trained personnel — like teachers, administrators, and even paraprofessionals who possess additional competencies for serving exceptional students.

Ask about the background of the teachers in terms of their education, training and exceptional students handled. Ask who will handle your child? Have they handled a CWA (in class/school) before?

3. CURRICULAR OPTIONS FOR THE CWA

CWA have specific needs which can be addressed in modifying the contents of the curriculum. Pacing of the curriculum can be faster or slower compared to others depending on the capacity of the CWA. Functional reading, language and math should be emphasized for CWA. Provision for life skills (eating, dressing, cleaning-up, following directions, cooking, crossing the street, using money, etc) is also equally important to be included in their curriculum.

4. SPECIAL EDUCATION FACILITIES AND MATERIALS

What is the size of their classrooms? How many students can be accommodated inside the room? What materials are inside the Resource Room? Where are the rest rooms located? Where are the picture or words system (for procedures and task to be completed) located? What is the layout of the classroom? What are the different areas in the classroom? All these should be able to address the need of a CWA for a structured environment.

5. STUDENT-TEACHER RATIO

The smaller the student-teacher ratio is, the better. So ask: How many students in a class? How many teachers will handle a class? How many students with disabilities will be accommodated in a class?

6. ASSESSMENT ADAPTATIONS FOR CWA

What are the class requirements? What type of tests will be given? How will they be graded? Can your CWA handle these? Will there be adjustments for him?

7. SUPPORT SERVICES

Successful implementation of SpEd programs includes readily available services in the form of the following professionals: counselors, medical practitioners, therapists. Does the school have these support services?

8. LOCATION

How far is the school from your house? Traveling time is crucial for the child to be motivated to go to school. We do not want a child to wake up way too early to catch the school bus or to arrive very late in the afternoon.

A complete list schools for CWA sorted per geographical area can be found in the “Directory of Resources for Persons with Autism” produced and distributed by the Autism Society Philippines.

9. PARENT COMMUNICATION

How will you know your child’s progress?

What programs does the school offer for parents? Who will you contact in case you have concerns about your child’s education?

10. SCHOOL FEES

Would it suit your budget? This factor is very crucial especially if there are other siblings of the CWA who also go to school.

There are other factors to consider, but this list can be a quick guide for parents who are school shopping. It is best to take time off from work or other chores and to attend personally into checking the best school for your child. Exchange notes with other parents of CWA about their school experiences.

Enjoy with your child his/her first day in school…it can be very exciting!

Uploaded with permission

Acknowledgment to Manila Bulletin: "Shopping" for a special school?

Read more »

Basic Necessities and Prime Commodities Discounts for PWDs

ADMINISTRATIVE ORDER NO. 02

Series of 2008

Basic Necessities poster

SUBJECT: Implementing Rules and Regulations on the Grand of Special Discounts to Persons with Disability on the Purchase of Basic Necessities and Prime Commodities pursuant to Section 32 (j) of R.A. No. 9442, otherwise known as the Magna Carta for Disabled Persons and for Other Purposes.

--------------

WHEREAS, Republic Act (R.A.) No. 942 also known as the “Magna Carta for Disabled Persons and for Other Purposes” was signed into law on 30 April 2007 by President Gloria Macapagal-Arroyo amending R.A. No. 7277 and granting other privileges and incentives to persons with disability:

Prime Commodities poster

WHEREAS, Section 32 (j) of R.A. No. 9442 provides that “to the extent possible, the government may grant special discounts in special programs for persons with disability on purchase of basic commodities, subject to the guidelines to be issued for the purpose by the Department of Trade and Industry (DTI) and the Department of Agriculture (DA)”;

NOW, THEREFORE, WE, PETER B. FAVILA, Secretary of the Department of Trade and Industry (DTI) and ARTHUR C. YAP, Secretary of the Department of Agriculture (DA), in accordance with Section 32 (j) of R.A. No. 9442 and Section 6.9 of its implementing rules and regulations (IRR), otherwise known as the Magna Carta for Disabled Persons and for Other Purposes, do hereby issue this Order providing special discounts to persons with disability on the purchase of basic necessities and prime commodities under DTI and DA jurisdictions:

Section 1. Scope and Coverage – This Order shall apply to persons with disability who are Filipino citizens, and retailers as defined under Section 2 (c) hereof.

Section 2. Definition of Terms – For purposes of this Order, these terms as defined as follows:

(a) “Basic Necessities” – refers to rice, corn, bread, fresh, dried and canned fish and other marine products, fresh pork, beef and poultry meat, fresh eggs, fresh and processed milk, infant formulas, fresh vegetables, root crops, coffee, sugar, cooking oil, salt, laundry soap, detergents, firewood, charcoal, candles and other commodities as maybe classified by the DTI and the DA.

(b) “Price Commodities” – refers to fresh fruits, flour, dried, processed and canned pork, beef and poultry, meat, dairy products not falling under basic necessities, noodles, onions, garlic, diapers, herbicides, poultry, swine and cattle feeds, veterinary products for poultry, swine and cattle paper, school supplies, nipa shingle, plyboard, construction nails, batteries, electrical supplies, lightbulbs, steel wire and other commodities that may be classified by the Department of Trade and Industry (DTI) and the Department of Agriculture (DA).

(c) “Retailer” shall mean any natural or juridical person engaged in the business of selling consumer products directly to consumers, which shall include among others, supermarkets, grocery stores, convenience and mini-convenience stores and shops, excluding sari-sari stores with a capitalization of less that One Hundred Thousand Pesos (PhP100,000.00), public and private wet markets, “talipapa” and cooperative stores;

(d) “Persons with Disability” shall refer to any person suffering from restriction or different abilities, as a result of mental, physical or sensory impairment, to perform an activity in a manner or within the range considered normal for human being. Disability shall mean (1) a physical or mental impairment that substantially limits one or more psychological, physiological, or anatomical function of an individual or activities of such individual; (2) a record of such impairment; or (3) being regarded as having such impairment.

Section 3. Discount - Every person with disability shall enjoy a special discount of five percent (5%) of the regular retail price of basic necessities and prime commodities listed under Section 2 (a) and (b) of this Order. The total amount of said purchase shall not exceed the amount of One Thousand Three Hundred Pesos (PhP1,300.00) per calendar week without carry over of the unused amount. Provided, that said amount shall be spend on items listed under Section 2 (a) and (b) of this Order commensurate to his/her personal and exclusive consumption and/or enjoyment within the calendar week.

Section 4. Valid Identification Documents – To avail of the discount, a person with disability must present his/her identification card issued by the National Council on Disability Affairs (NCDA) or by the authorized office of Local Government Units (LGUs) where he/she resides. The procedure for the issuance of identification cards shall be in accordance with NCDA Administrative Order No. 001, Series of 2008, issued on 23 April 2008, and other relevant issuances.

In the event that the retailer has reasonable doubt as to the identity of a person with disability availing of such special discount, the retailer may request the former to present any other government identification document, whether nationally or locally issued.

Section 5. Purchase Booklet – A purchase booklet shall be presented to the retailer every time a purchase of basic necessities and prime commodities is made. The purchase booklet shall conform to the attached template (Annex “A”) jointly prescribed by DTI and DA. The LGUs shall procure and distribute the purchase booklets to the persons with disability residing within their respective territorial jurisdiction.

The purchase booklet shall contain the name of the person with disability, the list of basic necessities and prime commodities under Section 2 (a) and (b) of this Order. In addition, it shall also provide columns for the name of retail establishment and its address, date of purchase and the amount spent for the purchase thereof.

Section 6. Special Lane – Retailers shall provide a special express lane for persons with disability; in the absence thereof, priority shall be given to them.

Section 7. Prohibition on Availment of Double Discounts – The privilege herein granted shall not be claimed if the person with disability claims a higher discount as my be granted by the retail establishment and/or under other existing laws or in combination with other discount programs such as those extended to senior citizens.

Section 8. Authorized Representative – A person with disability who cannot personally purchase basic necessities and prime commodities under Section 2 (a) and (b) of this Order may, by written authority, appoint a representative to transact with the retailer on his/her behalf. The authorized representative shall be required to present a valid government issued identification document together with the LGU-issued identification document of the concerned person with disability and an authorization letter.

However, for those who can impossibly purchase basic necessities and prime commodities under Section 2 (a) and (b) of this Order because of his/her disability, the permanent representative/s within the immediate family or the legal guardian, as the case maybe, shall automatically be considered even without the aforesaid written authorization; Provided that the name of the authorized person/s shall be indicated in the purchase booklet or in the identification card that will be issued to the person with disability.

Section 9. Penal and Administrative Sanctions - Penal and administrative sanctions are those which are provided under R.A. No. 9442.

Section 10. Efectivity – This Order shall take effect fifteen (15) days after its publication in a national newspaper of general circulation.

Issued this 15 day of December, 2008 in Makati City, Philippines.

PETER B. FAVILA ARTHUR C. YAP
Secretary, DTI Secretary, DA

RAQUEL M. CLEMENTE
Head, Records Section, Certified

1. Click here on how to apply for PWD ID

2. RA 9442

3. IRR 9442 Useful Telephone Numbers:

ASP Office: 7-903-5496
NCDA Office: 952-2809, 951-6033 or 951-6401
DTI: 751-3330

Read more »

Autistic Presidential Appointee to speak at ARM UK Conference

The Autistic Rights government UK (ARM UK) will have America’s first ever autistic presidential appointee as their key-note speaker when they hold their next meeting on Saturday, 4th of June.

On the 4th of June at Islington Resource Centre, Holloway Road, Ari Ne’man will speak about himself, the importance of self advocacy and the importance of autistic-led organizations.

Ari Ne’eman is probably the most famous man with autism in the world at the moment.

His appointment to the National Council on disability, a federal agency charged with advising Congress and the president on disability policy issues by President Barak Obama is still being talked about on both sides of the Atlantic.

Ari is the Founding president of the Autistic Self Advocacy Network, where he directs efforts to increase the representation of autistic individuals in public policy discussions. He is an adult on the autism spectrum and a leading advocate in the neurodiversity movement, frequently briefing policymakers and speaking publicly on disability and autism policy issues.

In 2009, President Obama nominated Ari to the National Council on Disability, a federal agency charged with advising Congress and the President on disability policy issues. He was confirmed by the US Senate in July 2010. In April 2010, he was appointed by Secretary Sebelius as a public member to the US’s Interagency Autism Coordinating Committee, a Federal advisory committee that coordinates all efforts within the Department of Health and Human Services concerning autism.

The Event begins at 1.30 p.m. – doors open at 1.00 p.m. and ends at 5.30 p.m.

The AGM open to the public

Entry to the Conference:

Non-members £15.00
Members £5.00 (£1.50 if on benefit / low income) (Membership fee £1.00)

Membership form available at: www.autisticrightsmovementuk.org/pages/membershipform.doc

Venue: Islington Resource Centre, 356 Holloway Road N7 6PA Directions at; http://www.theresourcecentre.org.uk/map.php

We anticipate a lot of interest: reserve a place by calling 07742-347384 or 0191-259-6384 or by sending an e mail to info.armuk@googlemail.com

________________

This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies).

Enquiries about list administration should be sent to disability-research-request@jiscmail.ac.uk

Archives and tools are located at: www.jiscmail.ac.uk/lists/disability-research.html

You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.

Read more »

Alyana at De La Salle Araneta University

By: Cathy Genovia, ASP Volunteer

The Autism Society Philippines (ASP) office in Kamias received an invitation from Malabon. Ms. Luisa Marie Arriola, Chair of the Special Education Unit at the De La Salle Araneta University and an ASP Member, wrote to ASP requesting that the Alyana film be shown at their university.

Ms. Mirana Medina went personally to meet the 80 participants, along with Cathy Genovia, ASP Volunteer and Aldrin Gabriel, a deaf actor who portrays Rizal in Miranamedina’s upcoming film. After focusing her first documentary film on autism, Medina was inspired to make films featuring different disabilities; she believes that film is a very potent and effective medium that can help change some of the society’s misconceptions about these disabilities.

The film maker Ms. Mirana Medina

In her speech before the film viewing, Mirana Medina said (in jest, but from the heart): “sana after niyo mapanood eh, mag shift na din kayo sa SPED, dahil marami ang nangangailangan senyo…”

We have learned from the emcee, Marinel Prepotente, a SpEd teacher in the same university, that most of the viewers were teachers of the regular classes. She also mentioned that students with autism had doubled in population at the school, which is why they thought of showing Alyana: they believed that it would make it easier for them to explain autism to their regular teachers.

Participants of Alyana Film Showing

De La Salle Araneta University is also accepting PWAs in their regular classrooms. Watching the documentary can give teachers a deeper understanding of the children with autism they accept. When the film was over, four teachers shared their reflections.

A teacher who handled a child with autism shared her experience of what it was like inside the classroom. At first she asked herself why the administration always gave her children with special needs. After some time spent with children with special needs, she realized her mission in life, and was grateful to learn more about autism after watching the film.

A parent of a child with AD/HD paid her gratitude and respect to all the teachers who helped and accepted her child. Another parent also shared her experience of life with her special child, who is now in heaven.

One father raised his hand and said: “…sa ngayon wala na ako pakialam sa sasabihin ng iba. Only few of my friends here knew that I have a son in the spectrum. Now I can say that I am a proud father of a 5 year old boy with autism…” With that, his superior and co-teachers understood why he needed to absent himself every Saturday: it was because of his child’s schedule for therapy.

After these four shared their personal experiences, Cathy Genovia was given the chance to inform the viewers about Autism Society Philippines. This also enabled her to invite the father who has a child with autism to join the May 21 Family Support Group Meeting, and she informed him about the Person with Disability (PWD) ID for his CWA.

Genovia also took the opportunity to invite the teachers to attend ASP’s back-to-back seminars on May 28. As they are accepting CWAs in the regular classroom, too, the seminar topics will be of benefit: “Inclusion of Children with Autism in the Regular Classroom” and “Differentiated Instruction”.

On behalf of ASP, Genovia thanked the people behind the invitation: Luisa Marie Arriola, Chair of the Special Education Unit; Allison Parpan, Principal; and Marinel Prepotente and Celine Anne Mallari, both SpEd teachers. In return, Peprotente provided ASP with a donation in an envelope.

Read more »

My Kuya has Autism and I am his Hero

By: Cathy Genovia, ASP Volunteer

There are many stories available in the bookstores and even on the Internet. Some are fictional while others are true, and in my opinion, true stories often sell like hotcakes.

During my personal journey with families with autism, I have heard so many stories of parents and their ups and downs with autism: stories of older siblings taking full responsibility for the care of their sibling in the spectrum; other stories of siblings who felt unloved by their family and were jealous of their siblings with autism, who seemed to receive more love and care from family members.

One day, a particular story touched my heart. Then, another story unfolded which I personally witnessed.

1st story

After the celebration of the 15th National Autism Consciousness Week, some members of the National Working Committee, ASP staff, officers and trustees together with their family members had some rest and leisure time in Tagaytay Highlands. We were at a restaurant but were not yet dining; we were busy outside viewing the wonderful sight of Tagaytay with the famous Taal Lake and Taal Volcano.

Excited and taking pictures, we – adults – forgot about the time. Our Executive Director, Ranil Sorongon and his wife T. My planned on taking our lunch to another restaurant, so we were asked to get ready to change restaurants.

Suddenly, to our astonishment, we heard Gelo cry. Gelo is the son of ASP Treasurer, Evelyn Go who has autism. He is non-verbal and known to us as the “Gentle Giant”, for he is big like a giant but as gentle as a baby. Because it was almost lunch-time, perhaps he couldn’t understand why we had to leave the restaurant, instead of sitting down and ordering our food.

As expected, you could see pairs of eyes staring at us. Mouths were open and chatting, and although we couldn’t hear what they said, I know for sure what it was.

Some of the group had already left, so Mommmy Evelyn, younger brother Andrew, Yaya Helen and T. My took charge of convincing Gelo to leave the restaurant, using different strategies.

All of a sudden, Gelo joined a table with a large family at it and sat down as if he was part of the family. Younger brother Andrew said: “pasensya na po kayo, my autism ang kuya ko”. When she heard this, the lady at the table started to ask Gelo what he wanted.

Andrew with brother Gelo

The Go family then transferred to the other table and decided not to join with our group anymore, taking their lunch in that restaurant after all.

2nd story

For the second time around, 15-year-old Muneer, son of ASP Bacoor Chapter President Jan Peña, joined the 33rd Summer Camp of PVI’s Kamp Pagkakaisa. This time, he was not with Ate Thea but with his younger brother Millie who is now 11 years old, and who followed Muneer to Iriga City all the way from Cavite.

Ate Thea and Millie both had other schedules this time. It was their sibling workshop as well, so Muneer was endorsed to me by his mom Jan. On our 6th day in Iriga, the Peña family visited Muneer with plans of leaving Millie with his kuya to join the last days of the summer camp.

And as it was already the 6th day, the camp staff decided not to include Millie in the group as participant, so he became our junior staff member instead. Millie enjoyed walking around the camp site, wearing a PVI vest and helping the camp staff.

One night while we were in the middle of an activity, the electricity went off. All the staff were shouting: “volunteers ang mga alaga niyo hawakan”. Because volunteers were equipped with emergency kits inside the pockets of their vest, the area was lit up by many flashlights.

I was so touched when I saw how Millie hugged his brother as if to say: “don’t worry kuya, I’m here”. I immediately got out my digital camera and shot the heartwarming scene. It was one of the many moments that I will never, ever forget from my 8 years at PVI Foundation’s Kamp Pagkakaisa.

Millie hugged his brother Muneer

Indeed, true stories which contain unconditional love melt everyone’s heart. This is one story that will surely sell like hotcakes in all bookstores and leave a mark on everyone’s hearts and minds.

Read more »

ASP Joins Philippine Coalition on the UNCRPD

True to its commitment to advocate for the rights and welfare of persons with disabilities (PWD) and not just for persons with autism (PWA), ASP signified to become part of the Philippines Coalition on the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD).

ASP was represented by its Executive Director Ranil Sorongon in the core group that met last May 20 and 21 at the Richville Hotel, Mandaluyong City. The meeting was the continuation of Training-Workshop on Monitoring the convention on the Rights of PWD sponsored by the International Disability Alliance (IDA) last February 24-27 at the Great Eastern Hotel, Quezon City, Philippines.

ASP Executive Director Ranil Sorongon (in green) with other PWD Organizations

In the recent meeting, the group listened to the sharing of Mr. Lauro Purcil, the group’s lead convenor, Dr. Liza Martinez, Ms. Carmen Zubiaga and Ms. Celia Garcia about their experiences when they attended the CRPD Committee Hearing in Geneva, Switzerland last April sponsored by the International Disability Alliance.

The Geneva delegates also gave a lecture on

**** The Guideline for Parallel Reporting
**** Parallel Report Development
**** Framework of Philippine Parallel Report

After the lectures, Ms. Zubiaga facilitated the identification and formation of the different committees of the core group and how these committees will implement their respective tasks to ensure the submission of Philippine Parallel Report on UNCRPD.

ASP volunteered to join the Resource Mobilization Committee with Mr. Lauro Purcil, in charge of the consultation of stakeholders in Cluster 3 composed of Regions 6, 7 and 8 with Capt Oscar J. Taleon of AKAP Pinoy and also the Cluster of Parents of Children with Disabilities with Ms. Celia Garcia of the Parents Advocate of Visually Impaired Children (PAVIC). ASP will also spearhead undertakings towards the realization of the Rights of Children with Disabilities as provided for in Article 7 of the UNCRPD.

A third seminar-workshop will be conducted on July 12-14 that will tackle on how to gather data leading to the development of programs and projects to implement and monitor permanently the implementation of the UNCRPD. This activity will be participated by selected leaders and volunteers from the different regions of the country.

The group would like to thank IDA, Australian Aid and the Christopher Blinden Mission supporting the event. Together with the PWD Sector, we can make the UNCRPD Philippine Parallel report a reality.

Read more »

ASP UP CAMP Manila Chapter Conducts 2 FSG

By: Jennette F. Rodriguez, ASP UP-CAMP Chapter Secretary

To maximize the vacation, Autism Society UP CAMP Manila chapter conducted 2 Family Support Group (FSG) Meetings within the month of May.

The first was on May 6, 2011, facilitated by Ms. Jacqueline Garcia, President of ASP Molino, Bacoor Chapter. 9 parents, 1 grand mother, 2 children with special needs (CSN), 2 siblings of CWAs, 2 nurses and a research assistant attended the FSG.

Ms. Jac shared about their journey through autism and how early intervention really helped her child’s progress. She reminded the participants that autism is not a disease but is a disorder. It isn’t treatable either but it is manageable that is why each parent must do continuous research and seek help from professionals to learn more about their child’s condition. This is a way for them to immediately address the behavioral concerns of their kids. She advised the parents to also treat the CWAs as normal children but understand that there are some delays in their development. Parents must be the direct caregivers of their child; they must be keen observers, must be creative and resourceful in teaching their kids. She reiterated the importance of our belief in God and continuous faith in Him amidst all the problems we are encountering.

ASP Molino Chapter President with the participants of May 6 Family Support Group

Some thoughts given by the parents: “I’m not alone and I learned that there are people/groups that are concerned and willing to help. Through the sharing, I got ideas that will help with the improvement of my child.”, “I should give more time to my daughter with autism”, “Parent-child activities must be strengthened.”

The second FSG was held last May 20, 2011, facilitated by Mr. Evert Malapad, President of ASP Metro South chapter and Trustee of ASP National. This time, 8 parents, 1 grandmother, 2 CWAs, 3 professionals and 1 relative of a CWA attended.

Because of the behavioral problems that the parents in the 1st FSG cited, the 2nd FSG was done to give the parents an overview of how to start a home program plan for their kids. After Mommy Jeng Rodriguez presented a run through of the importance of implementing a home program plan and some guidelines in planning (lessons learned from a recent ASP seminar she attended with Mommy Beth). Click here to read the report on the "Developing a Home Program Plan".

Sir Evert shared about how he and his whole family implemented and is still continuously doing the home program for Mae-Mae, their CWA. He gave tips and strategies on how to address the concerns of the parents who attended, and showed the sample task analysis and schedule board done by parent and chapter president Beth Udquin. Common issues mentioned were toileting, waiting, sitting, grabbing, tantrums, head banging, puberty problems and picky eating. Mr. Malapad mentioned that important details in doing the home program is consistency in implementing the rules to the child, cooperation and teamwork between the members of the family, resourcefulness, patience and dedication of the parents, proper monitoring and planning for the home program to be effective.

Issues and concerns was discussed during the Family Support Group

Parents would know how to best teach their children and they are the ones who are with them most of the time, so time must be used wisely and productively in teaching the children. The family must be the lead in taking care of a child’s well-being and home intervention is a way to give early intervention to a CWA. Basic problem behaviors in children like sitting, waiting and attention span must first be addressed because these are requirements before the child can be taught other secondary skills like personal hygiene and more complex skills when they grow up. Toileting and bathing must be addressed early in life for a CWA to be independent and self-reliant and so as to avoid embarrassing situations when they get older. But again parents were advised to teach skills which the child needs and not what the parents wants and parents must consider their child’s abilities to decide which lessons to prioritize.

With these two FSGs, parents of CWAs discovered that intervention really begins and ends at home with the family. Family support groups meetings are really an effective way to reach out to other parents and learn from each other’s experiences.

Contact ASP UP CAMP Manila chapter through email: asp_upcamp_manila@yahoo.com. Or contact President Beth Udquin 0929-514-6801 / Secretary Jeng Rodriguez 0922-896-9612. Join our group page at facebook, just search for Autism Society Philippines (ASP) UP CAMP Manila chapter.

Read more »

Softening the Wall

By Diane Manzano, Sibling of a CWA and ASP Volunteer

Autism, from a very startling point of view, seems to be a daunting cemented wall that divides a home. Defining space and creating gaps. Recently, Autism Society Philippines held a seminar about “Developing a Home Program Plan” which can be used by parents and professionals alike to teach young children with Autism Spectrum Disorder (ASD). Concerned families and citizen may not be able to tear down the wall completely but they can soften and weather it until it breaks down, little by little.

Participants of the said seminar

The said seminar was held in NORFIL Foundation’s building in Quezon City last Saturday, May 14. About 30 people attended and among them are SPED teachers, parents and Community Based Rehabilitation (CBR) workers. It started with the introduction of the participants proceeded by lectures given by Mrs. Rizalinda Cansanay and Ms. Rosalyn Marie Sorongon.

Mrs. Cansanay, President of ASP Laguna chapter, showed and discussed video clips of five cases of children with autism (CWA). The videos documented the process on how the 5 mothers are trying to teach their children the basic skills like sitting, waiting, requesting, turn-taking and coming when called. She showed two videos, 1st day and 5th day of the home program, for each set of children and there clearly were significant difference in the behavior of each of the children on the first day and on the fifth day after the continuous intervention in the home setting as shown in the videos.

On the other hand, Ms. Sorongon, an ASP trainer, talked about the theoretical part of the home program. She explained the characteristics of home programs, issues to consider and most especially how to make a plan and execute it. All participants were then given the time to group together and come up with a home program plan. The participants were given the time to share their output and speakers critiqued it and gave some suggestions on how to improve their plan.

ASP Laguna Chapter President Rizalinda Cansanay (left) ASP Trainer My Sorongon (right)

“As a Liliane Mediator, I will recommend that other mediators will attend this seminar-workshop to help them understand and implement a home program plan” said Maris Madrilejos, a participant.

At the end of the day, participants did not just acquired knowledge but brought a concrete plan on what to do and how to make use of that knowledge.

Interested parties can request ASP to conduct this seminar-workshop by contacting them at telephone 7-903-5496 or email at autismphils@gmail.com.

Read more »

Quezon City, Home of ASP

By Ranilo Sorongon, ASP Executive Director

Autism Society Philippines (ASP) has been in the forefront of advocating for the rights and welfare of persons with autism and their families since its establishment 22 years ago. ASP has now 50 chapters nation wide providing services for persons with autism and their families.

Six (6) of the 50 chapters together with the National Office are located in Quezon City, a progressive city with nearly 2 million population. Our chapters are Commonwealth, Cubao Project 4, Diliman, Lagro, Muñoz and Novaliches. Four (4) of the six (6) chapters are based in the public schools of Quezon City.

To introduce the chapters leaders to each other, Executive Director Ranil Sorongon called for a meeting of the chapter leaders last Friday, May 13 at the ASP Office in Kamias, Quezon City. The representatives are Ms. Marieta Tan of Lagro, Ms. Aileen Valera of Diliman, Ms. Linda Legarto and Mr. Ton Rarela of Cubao Project 4, Ms. Norimyl Perocho of Muñoz, Teachers Lorna and Ada of Commonwealth and Ms. Maricel Agustin and Teacher Marjorie Rodas of Novaliches.

Participants during Chapter Leaders' meeting

ASP Executive Director Ranil Sorongon (right) with the ASP Chapter Leaders

Director Sorongon welcomed the group, explained the objectives why the meeting was called and the agenda. Before the formal discussion of the agenda, he shared to the group the updates of Republic Act (RA) 9442 specifically the discounts for PWD through a power point presentation. He emphasized the important role of the leaders of ASP in disseminating and monitoring the said law as member of the Monitoring Committee under the National Council on Disability Affairs (NCDA).

To address the need to empower parents, family members and professionals in Quezon City, the group agreed to conduct a regular seminar on autism. Director Sorongon will partner with the Central Office of the Department of Environment and Natural Resources (DENR) Special Concerns Division represented by Mr. Prime Bonife as possible sponsor of this program. Aside from autism, topics on environment will also be incorporated to educate the members of ASP.

The group also decided to conduct two (2) fund raising activities to help sustain the financial needs of the chapters. As Quezon City chapters, they will have a film showing on “Alyana-A Study of Autism in the Philippines” on August and “Fun Run for Autism” on October.

The leaders also agreed to consolidate themselves to represent not just their children with autism but also other children with disabilities in Quezon by joining the PWD Federation of QC and by actively participating in the activities of the federation.

They committed to do their best to be of service to those who need them in Quezon City, our Home!

Read more »

Posted in: chapters,leaders

When Learning is Special

By: Michelle Velete

Philippine Daily Inquirer Page II "Back to School Essentials" When School's about to start, most parents worry about tuition fees, school uniform, daily allowances and back to school supplies. So they plan ahead to avoid cramming on budget and to skip having to deal with huge crowds in supermalls.

But if you have a child with special needs, the pressure is greater than simply saving enough for things that money can buy.

Peng So, a mother of four, had far serious things to worry about. For her third son Patrick, most especially, budget is the least of her worries.

Some mother's feel anxious about their children's first day of school because they might not fit in with the rest of the kids. For so, she worries more if people notice her son is different. And thus, treat him differently.

When Patrick was about three, So noticed he couldn't talk yet. Her mother-in-law told her it was nothing, that he was just "delayed" as most male babies are. She didn't feel worried too, since he was still very young, he ate right, and had no apparent health problems anyway. However, her sisters felt that there was something different about her son. To cast all doubts, she decided to consult a developmental physician.

The first diagnosis was her son had Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS). It's just a mild personality disorder, the doctor said. He would eventually get it over with. But after a few more observations, Patrick showed other manifestations of autism.

Patrick and Mom Peng So

According to the Autism Society Philippines (ASP), some of the signs and symptoms of autism include "difficulty in mixing with other children; no fear of real dangers, resisting change in routine, indicating needs by gesture, standoffish manner, spinning objects, resisting learning, acting as deaf, no eye contact, among others".

This checklist however however, is only "one diagnostic tool when considering a possible cause of autism". Every patient should still undergo "medical developmental and intelligence tests" for confirmation.

It was finally revealed that he has autism and Attention Deficit Hyperactivity Disorder (ADHD).

"I was in denial at first. I thought that there will be a magic cure someday and everything will be all right. But i realized that it's not the way to do it. So I took upon myself the responsibility to do the best I can in taking care of him".

It was hard to break the news to his son while he was growing up. However, when he was 8 or 9, he asked: "Mom, am I autistic?"

She didn't answer. Instead, she let her kid discover the truth on his own.

TRUTH AND MEANING Explaining autism to a child is one of the hardest things to do, especially when your child lives with it. Hence, So decided to explain using the most traditional means --- the dictionary.

"However, I thought the definition sucked. It actually leaned more towards schizophrenia," she shared. She told her son that he wasn't as the good old dictionary described. She decided to just bring him to certain activities that would expose him to kids like him.

"Autism is like a spectrum, where every kid has their unique characteristics. Patrick saw how some kids behave and how they are similar and yet different from each other," So shared. According to So, there are high and low functioning levels among autistic kids. While others excel intellectually than most, some have more developed social skills than others. Once, Patrick pointed to one of the kids who was rocking and crying, and asked, "Mom, is he crazy?" To which So replied lovingly: "No, he has autism."

Slowly, Patrick became used to what he sees, which slowly defined what he is. Eventually it was easy for him to accept and understand, So said. It became, ironically, a normal thing for him.

STRUGGLES AND SUCCESS He has a dry sense of humor. He takes random pictures of people, even strangers. He likes to touch people in uncomfortable places. He ignores you when you try to talk to him. He talks and talks and never listens.

These are some of Patrick's unique personalities. So knew that "even if he wasn't talking, it doesn't mean he wasn't learning." So she really taught him how to read, using props like big flash cards to enhance his kid's intelligence. She would also leave books scattered on the floor because Patrick would eventually get curious and start looking at them. He finally learned to read and became really good in Math. To date, he loves going to a book sale club, and reads car magazines, Popular Science, Time and Discovery. He also loves to play video games, like Civilization and Cityville.

So knew she had to raise him like a normal kid. With the advice of doctors and friends, she sent him to a regular school. The process was painstaking. It was not a walk in the park, but found it hard to erase the unfortunate stigma.

"two schools rejected him. One of them said he did not qualify (academically), to my disbelief. I asked if I could see the results but the school said they have the right to keep the scores confidential," she shared disappointingly.

"Another one told me that they just didn't have the right equipment for him" she said. "I told them they can treat him like any normal kid and I can help assist with anything else, but they declined".

She became used to the rejections and used to cry about it. But she didn't lose hope.

Finally, Paref-Northfield School for Boys welcomed him with an open heart. In high school, his teachers were constantly awed when he won several Math competitions.

On his junior year, however, Patrick requested to transfer schools. He told her that he wanted to learn how to deal with girls. "How can I understand them if I went to an all-boys high school?" he asked.

Her fear for another series of rejection weighed her down. One time, Patrick saw a rejection letter. Crying, he asked, "Mom, am I not good enough?" That broke her heart.

Fortunately, a co-ed school in Manila believed in Patrick's talent and readily accepted him. Patrick excelled in Science this time, even winning regional and national competitions. However, he went back to Paref on his senior year because he wanted to graduate with his old classmates.

To date, he's an incoming third year at the Ateneo De Manila University, taking up BS Life Science. He also plans to take up a Masters and PhD degree after graduation.

Little by little, So knew that the heartbreaks brought by the past made Patrick triumphs today much, much sweeter.

THE SPECIAL CHALLENGE Still, being a mother to children with autism is daunting. "He doesn't really have friends," So shared sadly. "He has difficulty putting himself in other people's shoes and building a relationship with anyone". Being a friend, according to her, means empathizing with people. That is something Patrick finds hard to understand. Patrick himself admitted that at 21, communicating and socializing is still a challenge.

"I realized that he'll only be friends with people exactly like him. I wish someday he'll be able to find somebody who will love him as he is," So said. "I just want him to be happy".

So believed that mothers like her who have special children should invest a lot of hard work, patience and unconditional love. They also need to be exposed in the real world. "Be hands on. Learn as much as you can about autism. Give him all the therapy he needs. Look at their strengths and see how we can use these to train or teach them," she shared.

"More importantly, set realistic goals for them," So added.

"Moreover, work on the environment. I've been working hard to raise awareness on autism here in the Philippines because I want the society to learn to accept my son and others like him," added So. So is currently the Vice President of Autism Society Philippines, who advocates for the well-being of persons with autism spectrum disorder. ASP envisions an environment that empowers persons with autism spectrum disorder to become the best that they can be, and be self-reliant, productive and socially accepted members of the community. It works to establish institutional mechanisms to support persons with autism and their families.

Ultimately, So believes parents need to teach their kids "how and why to do certain things," and not to do things for them all the time. Sometimes, you let them grow by letting them go. It also works for the rest of us.

Uploaded with permission

Acknowledgments to Supplements Head Mr. Jong Arcano and Philippine Daily Inquirer Supplements Section

Read more »

Quezon City execs start dialogue with PWDs

MANILA, Philippines — Quezon City authorities held a dialogue Thursday with persons with disability (PWDs) to help raise the level of awareness on national laws and local ordinances regarding the rights of the handicapped especially those covered by the Accessibility Law.

Councilor Allan Benedict Reyes of the city’s third district said that a first batch of about 100 PWDs from his area attended the consultative meeting which was organized in partnership with office of Vice Mayor Joy Belmonte.

Reyes said the meeting is a continuing effort of the city government to improve the living conditions of the physically handicapped.

“The goal is to provide assistance to the city’s PWD in the long run not only in the form of financial aid but also in giving them sources of livelihood which will tide them for longer periods of time,’’ he said. (Chito A. Chavez)

Acknowledgment to Manila Bulletin: Quezon City execs start dialogue with PWDs

Read more »

Tricycle fare discount for elders, students, PWDs pushed

By CHITO A. CHAVEZ

MANILA, Philippines – Quezon City authorities asked the city’s tricycle drivers and operators to voluntarily accord senior citizens, students, and persons with disabilities (PWDs) with a 20 percent fare discount to ease their financial woes.

Department of Public Order and Safety (DPOS) chief Elmo San Diego said the city government is keen on enforcing the tricycle fare discount as city hall personnel are discretely deployed near terminals to ensure that the concerned parties are provided with the privilege.

Acting on orders of Mayor Herbert M. Bautista, San Diego earlier issued a memorandum warning all tricycle drivers and operators associations that the city government will not tolerate violations of the fare discount privilege of senior citizens, students and PWDs.

San Diego said that Republic Act (RA) 9994, or the Expanded Senior Citizens Act, which clearly grants the 20 percent discount on fares must be strictly followed.

He also said that the discount privilege under Quezon City Ordinance SP-1885, Series of 2008, is still in force and must be complied with.

The DPOS chief reminded the tricycle drivers and operators in the city that the official tricycle fare rates, or discounted fares, for senior citizens, students and PWDs are: for regular trips – P5.60 per passenger for the 1st kilometer plus 40 centavos for every kilometer in excess thereof; and for special trips – P11.20 for single passenger for the 1st kilometer plus 80 centavos for every kilometer in excess thereof.

San Diego also reminded them that penalties for violations include a P5,000 fines or six months imprisonment, or both.

Note:

PWD need to show valid PWD ID in order to get discount

Violations - penalty of P5,000 and jail time 6 months or both

For more information contact

TRICYCLE REGULATORY UNIT (TRU)

City Hall Compound near Gate 6 924-1425 / 924-1493 tru@quezoncity.gov.ph
Acknowledgments to Mr. Chito Chavez and Manila Bulletin: Tricycle fare discount for elders, students, PWDs pushed

Read more »

Quezon City Council Approved PDAO Ordinance on Second Reading

By: Ranil Sorongon, ASP Executive Director

The Quezon City Council headed by Vice Mayor Joy Belmonte approved on second reading the ordinance sponsored by Hon. Alfred Vargas establishing a Persons with Disabilities Affairs Office (PDAO) that will take care of the programs and services of persons with disabilities (PWD) of the said city.

The ordinance was co-sponsored by Councilman and Majority Floor Leader Bong Suntay, PWD Advocate Hon. Allan Reyes and Hon. Pinggoy Lagumbay.

Hon. Vargas, a neophyte councilor of Quezon City made the PWD concerns as one of his advocacies during his election campaign. The ordinance on PDAO is one of his priorities upon assuming his position as councilor. Autism Society Philippines (ASP) is one of the PWD organizations in Quezon City that showed its support by attending the first and second sessions of the council where the proposed ordinance was deliberated.

Other PWD organizations who attended the second sessions are the Philippine Blind Union, Philippine Blind Masseurs, Cerebral Palsied Association of the Philippines, Deaf Ministry Foundation, the Philippine Association of Parents of Children with Developmental and Learning Disabilities and the Federation of PWD of Quezon City headed by Mr. Renato Cada, the president.

The office of Councilor Vargas will coordinate with the different PWD organizations on the date of the third and final reading of the ordinance for them to attend.

The QC PDAO ordinance will fast track the creation of an office for PWD as mandated by Republic Act10070 otherwise known as the AN ACT ESTABLISHING AN INSTITTUTIONAL MECHANISM TO ENSURE THE IMPLEMENTATION OF PROGRAMS AND SERVICES FOR PERSONS WITH DISABILITIES IN EVERY PROVINCE, CITY AND MUNICIPALITY, AMENDING REPUBLIC ACT NO. 7277, OTHERWISE KNOWN AS THE “MAGNA CARTA FOR DISABLED PERSONS”, AS AMENDED, AND FOR OTHER PURPOSES.

Read more »

ASP Molino Chapter, May 24 Family Support Group

Share your HOPES and DREAMS with us. We will listen.

Dang Koe fondly known as Mama Dang, she has been an indefatigable autism advocate. Served as ASP National President for an unprecedented 3 consecutive terms and continues the advocacy as the 1st appointed Chair Emeritus of the society. Her eldest son, Gio, is now 16 y/o, and she extends her advocacy throughout her entire family in all ASP activities.

Dang Koe with son Gio

Sign up now and learn practical tips and how to advocate for your child with autism.

Venue: Crest View Academy of Cavite 184 Queenview St. Queensrow Subdivision Bacoor, Cavite Time: 1 - 4PM
Contact Person: ASP Molino Chapter President Jacqueline Garcia 0929-762-3178

Read more »

A Message of Hope

By: Cathy Genovia, ASP Volunteer

There’s no questions asked on how a parent feels once they saw their child step up the stage and received his diploma. It is also a parent’s pride to tell the world that their child finally finished one chapter in his life in school… even in special school.

ASP Chair Emeritus, Dang Koe was invited to give an inspirational speech during the Recognition Day of Neurodevelopmental Center in Cavite and Children’s Developmental and Intervention Center of Lipa in Batangas.

Chair Emeritus Dang Koe giving messages

“Ako po ay isang stage mother. So when I became a mother, kasama po sa mga in-expect kong big events para sa aking mga anak ay ang recognition day, like what we are having today. Of course, I never imagined na ang unang recognition day na a-attend-an ko for my panganay will be in a special school, like your school. Yes, my Gio Danniel is in the autism spectrum disorder”. Dang Koe’s opening salvo.

Gio Danniel Koe, 17, is the eldest son of Dang Koe. After Gio was diagnosed with autism, She started to value the support given to her by other parents who are also in the spectrum, that’s why she like to give back the support to parents of batch 2011 who were present during the two Recognition Day celebration.

Just like in Autism Society Philippines (ASP), wherein Dang Koe served as the National President for three consecutive terms and now was appointed as the Chair Emeritus for her dedication to the society. ASP holds its regular monthly Family Support Group (FSG) meetings.

Since the graduates were all young and in their first step in reaching for their dreams, she unselfishly shared her journey and even her friend’s journey with autism and how they were able to cope with autism and proudly closed her speech with, “…And I know, just like us, you parents present today will also find the best in you because of the children we are recognizing today. Let us celebrate their victories, big or small. Let us love them, mainstreamed or not”.

---------------

Families who have kids in the spectrum need someone who will understand them the most and will support them for they know they will and they will always be in the same boat. Autism Society Philippines will hold its monthly Family Support Group meeting on May 21. Click here for details.

Special thanks to Dr. Madeleine Sosa, the faculty and staff of Neurodevelopmental Center and Ms. Meanne Panganiban, Head of Children’s Developmental and Intervention Center of Lipa.

Read more »

ASP Brings Back Top OT

By: Abegail Mendoza, Program Assistant

To respond to the demand of members for another seminar on Sensory Integration (SI) and a seminar to understand the feeding issues of individuals with autism, ASP brought back T. Lady Suarez, OTRP last March 26 for a back to back seminar on “Sensory Integration (SI)” and “Understanding the Picky Eater”.

Teacher Lady Suarez with the participants

Teacher Lady is a sought after speaker on SI and Feeding Issues. She has a certification for Wilbarger Protocol and also a certification for the Sequential Oral Sensory (SOS) Feeding Approach.

Sensory Integration (SI)

Although the topic was sort of technical in nature, the speaker was able to explain it in a laymen’s term for the audience to understand it. She even translated English technical terms in Tagalog.

Foremost was the definition of Sensory Integration which is a neurological process that organizes sensation from one’s own body and the environment, thus making it possible to use the body effectively within the environment.

She also discussed the Three Powerful Systems: the Tactile which one of the functions is to recognize or identify touch inputs; the Vestibular which one of the functions is provides information about where our body is in space; and the Proprioceptive that tells the brain where body parts are in space and in relation to each other.

Understanding the Picky Eater

As a feeding specialist, Teacher Lady was greatly appreciated by the participants. She is really an expert in this field. She did not just explained the contents of the seminar but provided an experiential learning by letting the participants tastes, smell, eat and swallow the different foods that she brought along with her.

She also showed the audience her different eating tools and materials that she uses to assess the feeding issues and develop the feeding program of her patients. T. Lady also discussed the Sequential Oral Sensory (SOS) feeding approach that she is using. SOS Feeding Approach is an effective way to address problematic feeding behaviors in a variety of settings and populations.

Participants were also given opportunities to learn some simple techniques to help address the feeing concerns of children with autism (CWA).

Ninety six (96) attendees were so satisfied of what they got from the two seminars. A participant recommended that “the seminars must be promoted in a large scale market or a group so that lot of people can learn more.”

Yes, the seminars of T. Lady will be brought to other ASP chapters. She will speak in San Fernando City, Pampanga and Cebu City this coming July.

Read more »

We All Need Friends!

By: Cricel Elises, Administrative Staff

Who doesn’t want to have friends? Of course all of us want to have friends and enjoy the feeling of being with friends.

To provide an opportunity to reach this goal, ASP National conducted a Back to Back Seminar on “Social Skills and Developing Social Skills through Effective Communication” last April 30, 2011 at Asian Social Institute, Malate Manila.

The first speaker, Ms. Giselle Bayhon-Principe, founder of the Outdoor Play Group Philippines and Administrator of Mind Matters Christian Academy talked about the basics of social skills. She also shared some tips how individual in the autism spectrum can have friends and how adults can help them.

Ms. Gieselle Bayhon-Principe

Bullying, the perennial problem of students with autism was also included in her lecture with the following tips on how to handle bullies:

1. Act brave, walk away, and ignore the bully. Firmly and clearly tell the bully to stop, and then walk away.
   
   
2. Tell an adult. Teachers, principals, parents, and lunchroom personnel at school can all help stop bullying.

Below are some of the feedbacks of the attendees

“Ms. Giselle was effective in delivering subject matter”

“The said topic is very helpful to me since I am teaching a high-functioning kid”

“It helped me to be equipped in helping my son”.

The second speaker was Kate Reyes, a speech and language pathologist and co-owner of Independently, a family centered clinic in San Pascual, Batangas. Teacher Kate discussed the different ways or strategies on how to develop social skills through effective communication. She focused her discussion on the importance of communication in the development of social skills of children with autism.

Ms. Kate Reyes

To clearly emphasize her points, Teacher Kate showed pictures of her students in their social skills classes such as riding in a jeepney, cooking, going to supermarket, swimming, visiting museum, libraries and the fire department of Makati City. The natural environments where children with autism can practice and enhance the skills they learned in school.

One of the participants said that “the speaker has a sense of humor that entices the audience to react and participates.” “She’s so funny. I love her!

Another said “No further elaboration needed because it was explained well already”.

As we all know, no man is an island. The two seminars attended by 37 participants composed of parents and professionals coming from different schools and institutions were of great help not only to individuals with autism but also to people around them who can guide and teach them how to be a friend and develop a true and lasting friendship.

The participants of the said back to back seminars

Read more »

PAF Conducts Disability Awareness

“I was so surprised when an officer of the Philippine Air Force (PAF) gave me a call to seek assistance to conduct an awareness campaign for their personnel” shared Autism Society Philippines (ASP) Executive Director Ranilo Sorongon. The call came from a dad, Major Paulo Teodoro, the husband of a member of ASP Baguio City chapter and a father of a child with autism working at Villamor Air Base, Pasay City.

The first call was followed by more calls and meetings to discuss the concept and finalize the details of the activity. Director Sorongon visited Villamor Air Base and met with Col. Joseph Acosta, the Commanding Officer of the PAF General Hospital and Col. Normando Sta. Ana, Jr. , Chief Surgeon, PAF to orient them about ASP and the possible support that ASP will provide. Major Teodoro also met with Dr. Tippy Tanchanco, a Developmental Pediatrician at The Medical City to formalize her invitation as speaker. Director Sorongon gave brochures of AD/HD, Cerebral Palsy, Down Syndrome and Autism to Maj. Teodoro to be distributed to the AFP personnel as part of the preparation of the activity.

Last April 13, 2011, the first Disability Awareness Campaign was conducted at Villamor Air Base, Pasay City sponsored by the 250th Presidential Airlift Wing of the PAF with the support of the PAF General Hospital in partnership with ASP. More than 170 personnel of the PAF and civilian employees attended the said activity. Dr. Tippy Tanchanco gave a lecture on the different developmental disabilities while Ms. Dang Koe, Chair Emeritus of ASP shared her family’s journey with autism and how she become an advocate not just for autism but for all persons with disabilities. Director Sorongon gave a lecture on Republic Act 9442 specifically on the discounts that Persons with Disabilities (PWD) are entitled. Of the 170 participants 55 signified their desire to have therapy clinic inside the PAF General Hospital to cater to the needs of the children with disabilities of its personnel and may be later on extend its services to the families residing at the vicinity of the base.

(from left) ASP Executive Director Ranil Sorongon, ASP Chair Emeritus Dang Koe and PAF Presidential Airlift Wing Major Paulo Teodoro

With the support of the Commanders of Villamor Air Base and the PAF hierarchy, Non Government Organizations, Parents Support Organization like ASP, the dream of Major Teodoro and other air force families affected with disabilities will soon become a reality.

ASP would like to commend Major Paulo Teodoro of the PAF Presidential Airlift Wing, Col. Alexander P. Bote, Wing Commander, PAW, Col. Joseph Acosta of the PAFGH and all the personnel of the PAF for the success of the trail blazing event. We hope that the other branches of the Arm Forces of the Philippines will follow the lead of the PAF.

With the PAF, children with disabilities will someday reach the sky!

Read more »

Disaster preparedness for persons with autism

By: DANG U. KOE, ASP Chair Emeritus

Disaster Planning for Special Needs poster

MANILA, Philippines — Last March 11, Japan was hit by a magnitude 9 earthquakes and giant tsunami displacing thousands of lives, homes, and communities.

Stephen M. Shore, an adult on the autistic spectrum disorder (ASD), an international advocate and speaker on ASD, published author, and assistant professor of Special Needs Education at Adelphi University in New York, did a research on helping people with ASD during disasters.

Our Angel Talker this week, Lani David, is an accredited Philippine DAISY Network trainer who gives lectures on DAISY (Digital Accessible Information System). DAISY training includes disaster preparedness for persons with disability. Lani represented Autism Society Philippines (ASP) in the Symposium on Community-based Inclusive Information Support for Persons with Disabilities in Kyoto, Japan.

* * *

Based on the background research of Stephen M. Shore, the Autism Research Institute website noted that many of the ideas relevant to disaster preparedness for the autism spectrum disorder (ASD) population are already being used and materials already exist that can push education and awareness.

The Digital Accessible Information System (DAISY) compliant multimedia materials will probably be the best example of the universal design concept of information dissemination, which is accessible by everybody. DAISY is currently used as the alternative reading format for print-disabled individuals. (see sample DAISY books on http://www.daisy.org/sample-content).

Shore identified two major components of a comprehensive disaster preparedness program for people with autism:

1) The use of visual materials to alert on-the-spot responders that autism is present and that offer practical advice for helping these individuals; and

2) Advance preparedness in training for the child or adult on the spectrum in the event of a natural disaster, and education and awareness of first responders.

Ideas for on-the-spot assistance during a natural disaster

Shore stressed it is important to prepare the environment (home, room, etc) in which the child or adult may be found with visual materials aimed at identifying a person with autism and educating a potential first responder. To be effective, these materials must be understood immediately or take no more than five to ten seconds to read.

Identification and education

Sticker. The Autism Society of America (ASA) has created an easy to comprehend sticker for an almost instantaneous recognition that a person with autism is present. The universal warning symbol plus potential reactions of someone with autism are described in the sticker (find it online at www.Autism-Society.org).

Two-sided business card can share additional information about a PWA. One side of the card shows major characteristics of autism, such as “may not understand what you say”, “may engage in repetitive behaviors”, may act upset for no apparent reason”, and “may be unable to speak or speaks with difficulty.” It also includes a special caveat to the first responder: “For law enforcement or medical emergency personnel: This individual may not understand the law, know right from wrong, or know the consequences of his or her actions.”

The other side of this card includes helpful hints for interacting with a PWA, such as: use concrete terms, allow time for responses, etc.

Visual schedules that depict the actions a PWA should take in the event of emergency can be posted in the home or the PWA's room. These visual instructions serve a two-fold purpose: they can help the PWA stay calm and know what to do, and alert first-responders that the child or adult may need extra time and/or assistance in order to comprehend instructions.

Picture symbols. A wide range of picture symbols to create these visual instructions are now available. “Board maker” contains a database of over 3,000 pictures. A variety of free symbols are available on the Internet.

Before disasters strike

A truly effective disaster preparedness program will be proactive in providing education, awareness and preparedness of PWA and their supporters BEFORE disasters strike.

Dennis Debbaudt (author of the book, Autism, Advocates, and Law Enforcement Professionals: Recognizing and Reducing Risk Situations for People with autism Spectrum Disorders) likens disaster preparation to wearing a seat belt in an automobile.

A complete disaster preparedness program will follow a two-pronged path:

1. Education of the PWAs and their immediate family or caregivers, and

2. Education of first responders, such as policemen, firefighters, emergency medical providers, and other community members.

In conjunction with Debbaudt, ASA has produced a handy tip sheet, “Disaster Preparedness Tips for Our Families,” that is a good starting point for disaster preparedness for both PWAs and their families (find additional helpful materials at the ASA website, www.autism-society.org.)

For PWAs who have more advanced verbal and reasoning ability, there is PowerCards developed by Elisa Gagnon. PowerCards are useful for working with people with Asperger's Syndrome and high-functioning autism.

For example, suppose a child with Asperger Syndrome has a special interest in flying and wants to become a pilot. Gagnon suggests to develop a power card that incorporates a picture of a pilot the child knows and/or admires, coupled with recommendations from this pilot on what to do in the case of a severe weather alarm.

Disaster preparedness education needs to become a priority in our homes and our schools. These materials are only effective if they are used in educating PWAs, their families, and community responders. This involves everyone assuming responsibility for teaching and educating others about PWA. Even a little effort, a little education, a little awareness can easily be the difference between a life and death outcome during a disaster. Don't wait for 'someone else' to educate your child, your family, or your community. Be proactive.

Uploaded with Permission

Acknowledgment to Manila Bulletin : Disaster preparedness for persons with autism

Read more »

Revised implementing guidelines for CHED Student Financial Assistance Programs (StuFAPs) in higher education

The CMO 29,s 2009 revised implementing guidelines for CHED Student Financial Assistance Programs (StuFAPs) in higher education. It is an educational opportunities for all qualified beneficiaries who are entering freshman college or tertiary students wherein students with disabilities are also included.

To read the complete guidelines, click here.

For further details, please contact the Office of Student Services, 3rd Floor, HEDC Bldg. CP Gracia Avenue Diliman Quezon City. Tel No. 441-1220 / 385-4388.

Read more »

Rescued Chained Autistic Girl Gets Help

By: Tiffany Tan, ASP Board Secretary May 16, 2011 Manila, Philippines.

Chained Autistic Girl “Angel” (not her real name) remains in the custody of the DSWD Manila's Reception and Action Center (RAC). Angel has been receiving care and therapy services since her ordeal. Apparently, Angel has been confined to their home and chained to her bed for the last three years. A team of social workers from DSWD Manila in coordination with the Local Barangay authorities and Media, led to her eventful rescue.

"Angel" with her Occupational Therapist Teacher Louise Erika Del Rosario

According to ASP Executive Director, Ranil Sorongon, after Angel was rescued, she was evaluated by a Developmental Pediatrician from Philippine General Hospital Child Protection Unit (PGH-CPU) and was diagnosed to have autism and profound mental retardation (intellectual disability).

ASP UP CAMP Manila Chapter President, Beth Udquin, mother to two boys with autism and a psychology graduate volunteered to partner with Chapter Secretary, Jeng Rodriguez, also a parent of a CWA, to give immediate assistance to Angel.

Both volunteered, because of their experience in handling their own children with autism (CWAs) and the trainings they received from the many seminars conducted by the ASP National Office, they might be able to help educate Angel's family on how to properly manage the girl's situation. Also through their referral, Angel was able to get a slot at PGH's Ward 7 and DSWD approved to pay for her first 10 sessions of Occupational Therapy Services.

No case yet was filed for the mother and brother, who allegedly chained Angel for three years and confined her in a small room at their home. But currently, the mother has been receiving counseling services from the chapter in coordination with DSWD Manila. The mother is also encouraged to attend support group meetings of ASP and continuous parent education sessions from the chapter.

Click here to watch the video courtesy of GMA7.

Ignorance continues to be the tragedy behind autism. Many Filipino families are still in the dark on how to give the appropriate care and intervention for families dealing with autism. Presently, there are approximately a million Filipinos with autism around the country (Based on the UN estimates, 1% in every population affected with autism). Only 5% of children with autism are diagnosed and only 2% of the 5% diagnosed are receiving appropriate care and services.

ASP UP CAMP Manila chapter email address: asp_upcamp_manila@yahoo.com. President Beth Udquin 0929-514-6801 / Secretary Jeng Rodriguez 0922-896-9612.

-----------

Autism Society Philippines envision an environment that empowers persons with autism spectrum disorder to become, to the best of their potentials, self-reliant, productive and socially accepted members of the community. For this, we commit ourselves to the establishment of institutional mechanisms to support persons with autism and their families. Donate generously to ASP Programs and Services. Deposit to Autism Society Philippines Metrobank, Kamias Branch, Savings Account number 047-3-04751874-2. Email us at autismphils@gmail.com or call 7-903-5496.

Sign up now for our May 21 Family Support Group Meeting and May 28 Back to Back Seminars

Read more »

Multi-awarded Journalist, Karen Davila talks about Autism

Ms. Karen Davila

Karen Davila is a TV Host and News Anchor from ABS-CBN. She is one of the news anchors of Bandila and Headstart with Karen Davila on ANC. She graduated from the University of the Philippines Diliman with a degree of Bachelor of Arts major in Mass Communication. She was a former host of Wonder Mom, The Correspondents, XXX: Exklusibong, Explosibong, Exposé, Y Speak, and Barangay Dos. She was a former news anchor of ABS-CBN Headlines, ABS-CBN Insider, TV Patrol and TV Patrol World. Karen Davila has won numerous awards locally and internationally in her 16-year career, including 2 from the prestigious New York Festivals and the 2008 Ten Outstanding Young Men Award for Broadcast Journalism. The Young Global Leader 2010, World Economic Forum and Ambassador WORLD VISION.

Below is an excerpt interview with Wilson Lee Flores of Philippine Star

What is the worst crisis in your life and how did you overcome it?

When my eldest son David, who is now nine years old, was diagnosed as being in the autism spectrum. He was four years old then. I thought my world was going to crumble, I was devastated, I cried endlessly, it was so painful and I blamed myself. But my inner resolve got the better of me; instead of being defeated, I researched heavily, coordinated with many parents and opened myself to many treatments for my son. He’s been undergoing the case in a gluten-free diet and biomedicine for six years now, and he’s high functioning, some people often ask me if he really has autism. He looks like a regular kid now, and says “I love you, Mommy” all the time.

To read the rest of the article, click here.

Uploaded with Permission by Mr. Wilson Lee Flores of Philippine Star

Read more »

How to apply PWD ID in San Juan City

How to apply for a PWD ID poster

1. Visit the San Juan DSWD Office located at the ground floor of Manpower Bldg., N.Domingo St., San Juan City

2. Bring the following documents:

***Bgy. Clearance

****Voter's ID (head of family and spouse)

****2 pcs. 1x1 ID Picture of PWD

****Medical certificate/extract of PWD Applicant

3. PWD ID will be issued together with the Medicine/Grocery Purchase Booklet

4. Call 725-3829 or 727-5306 for more information

Read more »

A Special Mother’s Day Picnic

By: Mom Resy Benoza, ASP Diliman Chapter

A typical Thursday morning at the UP Sunken Garden is a setting of joggers and soccer players. Joggers flexed their legs as they huff and puff around the area, shaded by mimosa trees. Inside the open grassy area, soccer players bravely faced the morning sun while they practice their soccer positions, especially making goals. Among the sports enthusiasts this summer are the boys of ASP Diliman Chapter, learning how to play soccer under the guidance of Coach Jerome. The parents of ASP Diliman hover nearby, doing some jogging and some calisthenics.

The ASP Diliman Chapter boys, playing soccer with their coaches

On Thursday, May 6, at 9 a.m. the ASP Diliman parents decided to have a picnic at the UP Sunken Garden. What better way to entice more members than a picnic after a hot, perspiring game of soccer! With the instigation of Mom Jo, the Chapter president, moms gamely prepared a healthy fare—spaghetti, “maruyang saging”, buko sherbet, sandwiches, orange slices, and many bottles of cold water. (Following the advise of Coach Jerome, the moms wisely avoided caffeinated and sugar laden drinks and sweets for the boys.) Tired but happy boys, their siblings and their parents enjoyed the healthy food. The boys did not forget their “Happy Mother’s Day” greetings and hugs to their loving moms, plus flash their smiles in front of the camera.

Proud Parents

This is Happy Mother’s Day celebration --- ASP Diliman style.

Read more »