The Autism Society Philippines (ASP) is a national, non-profit organization dedicated to the well-being of persons on the autism spectrum disorder. We envision a society where Filipinos on the spectrum become the best of their potentials -- self-reliant, independent, productive, socially-accepted citizens of an Autism-OK Philippines.

28 November 2011

Overcoming disability through recreation

By DANG U. KOE, ASP Chair Emeritus

MANILA, Philippines — The genius that was Albert Einstein did not learn to speak until he was three years old. He silently repeated words to himself until he was seven, and was bad in spelling that some thought he was a dullard. While Einstein had poor memory for things that did not interest him, he had tremendous ability to concentrate on things that interested him and could work for hours or days on the same problem.

Sounds like autistic?

Painter Vincent Van Gogh, as a child and a young man, had some autistic traits. Biographers described him as an aloof and odd child. He talked with tension and a nervous rasp in his voice. He talked with complete self-absorption and little thought for the comfort of and interests in his listeners. He threw many tantrums and liked to go to the fields alone. Van Gogh did not discover his talents until he was 27 years old.

“One of my biggest concerns today is that students who should be in gifted and talented programs get shunted off into the special education track where they do not belong,” expressed Dr. Temple Grandin, an American doctor of animal science and professor at Colorado State University, and a noted autism advocate.

Our Angel Talker this week is a pediatric occupational therapist who has been practicing for 10 years. Karen Navarro is a consultant at Able Center, Therapy Works Inc., and Therapy Works (TW) Community Enablers. She spearheaded the recreational program for children with special needs at TW in 2007. She is currently the coordinator of the leisure programs such as swimming, taekwondo, soccer and painting classes for children and adolescents with special needs.

*****

I can write about documented studies on recreation and enumerate dozens of reasons for engaging in leisure pursuits. I can cite statistics and bore readers with data. Instead, allow me to tell you the stories of real people with special needs who succeeded in their respective fields and in life by pursuing what they love to do.
TEMPLE Grandin's fixation with cattle led her to design the cattle squeeze chute

Temple Grandin

Temple Grandin never allowed her disability to cripple her; instead she used her autistic traits to her advantage. Her fixation with cattle, her highly visual mind, and persistence have been instrumental in her success in the highly competitive cattle industry.

Her fixation on her squeeze chute (a machine she designed based on a cattle chute which has a calming effect on her), and encounter with opposing people allowed for the opening of her scientific life. She wrote, “This drove me even more to prove that the relaxing effect the squeeze chute had on me might also have the same effect on other people…For the first time in my life I felt a purpose for learning - a real reason.” To prove her theory, her teacher Mr. Carlock advised her to study math, science, and do research. The chute is the first of her many of scientific studies.

“What lay beyond the door for me were several caring and understanding people. Without them I might have ended up in a school for the retarded…a second teacher was my salvation. Mr. Carlock didn’t see any labels, just the underlying talents. Even the principal had doubts about my getting through tech school. But Mr. Carlock believed in building what was within the student. He channeled my fixations into constructive projects. He didn’t try to draw me into his world but came instead into my world”, writes Temple Grandin in her book Emergence: Labeled Autistic.

Temple had difficulties but she capitalized on her strengths. “I have many dyslexic traits: difficulty with sequential memory and foreign language, mixing up words, and using visual strategies of recall. But visual thinking is an asset for an equipment designer. I am able to “see” how all parts of a project will fit together and also see their potential problems. Sometimes a sequential thinker makes a mistake in designing because he can’t see the whole.”
ARCHITECTURAL artist Stephen Wiltshire, who has autism, illustrates detailed pictures of buildings and cites by memory

Stephen Wiltshire

Stephen Wiltshire is also known as the “human camera”. He is an architectural artist who draws fabulous detailed pictures of buildings and panoramic views of cities in perfect scale and perspective — from memory. In 2005, he drew Tokyo on a 10-foot long canvass in seven days after a brief helicopter trip over the city. Since then, he also has drawn Rome, Hong Kong, Frankfurt, Madrid, Dubai, Jerusalem, London and New York. His pictures now sell for thousands of dollars.

He has been appointed a Member of the Order of the British Empire (MBE) for services to art and he has his own gallery in London.

Stephen’s bio, written by Geoffery Wansell, narrates, “As a little boy born to West Indian parents, he was all but mute and barely uttered a word until he was seven. He would just sit in a corner, rocking back and forth; screaming from time to time.The only things that seemed to pacify his tantrums were pencil and paper.”

But Stephen shared the moment that changed him forever. “It was when I was at Queens Mill School [in London]. I used to draw animals, and at the age of seven I suddenly found London landmarks very interesting. My teacher Chris Marris took me out for trips to discover them. By 14, I was commissioned to draw the developing Canary Wharf.”

When asked to describe his life in seven words, he said, “Keep doing what I do best, drawing.”

Loretta Claiborne

As a child, Loretta Claiborne was told that she should be institutionalized. Her mother refused, and opted to put her in a special class. Nothing remarkable happened until she started running competitively in Special Olympics in 1970. Now, she is recognized as a world-class runner. She has 26 marathons under her belt — finishing in the top 100 women runners in the Boston Marathon twice. She was inducted as member of The Women in Sports Hall of Fame and Special Olympics Pennsylvania Hall of Fame. She was named the Special Athlete of the Quarter Century by Runner’s World Magazine.

Loretta has intellectual disability but she communicates in four languages and holds honorary doctorate degrees.

In an interview she shared, “I was a little slow in learning but I kept on knocking at it, and knocking at it, and knocking at it. When they were resting, I was still working on it.”

Loretta’s first track coach, Bob Hollis has this to say, “I think running has meant a lot to Loretta because it’s given her a sense of self-accomplishment; and with that self-accomplishment the next hurdle isn’t as large, and it’s not a barrier that she can’t get through with it. She knows she’s already cleared one. So, what’s another? What’s another? What’s another? “

The Common Denominator nominator

What is common in these three highly accomplished people with special needs is a great mentor who saw past the eccentricities and merely focused on building their strengths. Temple has Mr. Carlock. Stephen’s teacher, Cris Marris, helped him appreciate landmarks. Loretta, on the other hand was motivated by a counselor.

In her autobiography, Temple Grandin relates, “The principle is to work with the animal’s behavior instead of against it. I think the same principle applies to autistic children — work with them instead of against them. Discover their hidden talents and develop them.”

Uploaded with permission Acknowledgment Manila Bulletin: Overcoming disability through recreation

25 November 2011

IMPORTANT ANNOUNCEMENT RE: ABA Seminar - Workshop

The ABA Seminar-Workshop this coming Saturday, November 26 is postponed due to the unexpected accident of the speaker. ASP will issue an advisory of the new schedule through FB, twitter, blogsite, multiply, text blast and email. We are so sorry for the inconvenience. Please call 7-903-5496 for details. Thank you so much for understanding.

24 November 2011

ASP Cavite Chapters Support 2011 Run4Spec

By: Hilda Dordas Fajardo, ASP Tanza Chapter

ASP Cavite Chapters dedicated their Sunday, November 20, 2011, to an awareness fun run for children with special needs called “Run4Spec 2011, I’m Aware, I Care, I Run” hosted by PVI Foundation Inc. at 15th Strike Wings MDAAB, Sangley Point, Cavite City. More than 100 Philippine Air Force Personnel joined 5K and 3K buddy run.

ASP Cavite Chapters were represented by Ms. Jan PeƱa (ASP Bacoor Chapter), Ms. Vicky Francisco (ASP Cavite-North Chapter), Ms. Lyn Ebuna (ASP Trece Martires Chapter) and yours truly, Ms Hilda Fajardo (ASP Tanza Chapter).

The successful event was held in secured, safe and child-friendly surroundings, with a beach on the right side, free from polluted air. While waiting for the program proper to start, organizers distributed a nutritious packed breakfast of boiled egg, pandesal, nilagang saba, and juice for the kids.

The event started with the lighting of torch as a symbol of unity, which was relayed by none other than our own superman, “Muneer”, who ran faster than a bullet train. Muneer, a teen with autism, is the son of ASP Cavite Chapters Governor, Jan PeƱa.

The actual run took us one hour, with frequent rest along the way. I came in last in the 3K run, as I wouldn’t want to miss taking pictures of the memorable event. The crowd was cheering and shouting encouragement to the special children. All the children who participated received a medal, awarding of winners followed immediately after the run.
Captured mkoments during the Run4Spec 2011

After the run, a thanksgiving mass followed inside the PAF Gym. Sangley Point Elementary School showed their wonderful skills during their Drum and Lyre Exhibition as part of the 38th Founding Anniversary celebration of 15thStrikewing of Philippine Air Force (PAF).

Brigadier General Rene Samonte, Wing Commander of the 15th Strike Wing, gave an inspirational message thanking all the participants and sponsors of the said event. The children were treated to their never-ending favorites: burgers and chicken for lunch; and a dance number from the Jollibee Mascot.

All kids were full of excitement and a joyous smile as they all went home with loot bags as an early Christmas Gifts from Mrs. Malou Samonte and Sangley Philippine Air Force Ladies Club and t-shirts from 15th strike wing.

The Run4Spec 2011, I’m Aware, I Care, I Run event was a fundraising project of PVI Foundation Inc., in partnership of the ASP Cavite Chapters, for their upcoming summer camp next year. The participants are from the men and women of the Philippine Air Force, PAF Ladies Club, PVI Volunteers, Virlanie Foundation Inc., Nayon ng Kabataan, Haven for Children, Elsie Gaches Village, PWDs from Cavite City, Hopewell Integrated Bacoor, Heart of Peace Noveletta and their families, friends and advocates.
Participants of the Run4Spec 2011

ASP Cavite Chapters would like to thank Brig. Gen. Rene Samonte and his lovely wife, Mrs. Malou Samonte for their never ending support for the advocate of rights and welfare of PWDs. We salute the Philippine Air Force for advocating PWD rights! Maraming Salamat po!

POSTSCRIPT: I remember the time when Mr. Ranil Sorongon, ASP Executive Director, visited our school and took the time to brief us about Autism Society Philippines and its advocacy programs and services. I bombarded him a lot of questions and he answered them straightforwardly and excellently.

After that powerful and convincing conversation, I had no second thoughts in signing up to become a member of ASP Cavite Chapters. Since then I have become a strong advocate of our chapter in Tanza in the last four years.

Ms Alma Torero, my co-parent in Tanza, and I underwent tough times in putting up our chapter. But thanks be to God, He provided us with more graces and assistance. Here in Cavite, we continuously support our sister chapters’ activities; and not just for our chapters, but for our communities as well.

Let’s continue to work together to Share Hopes and Build Dreams!

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Check the ASP Cavite Chapters near you:

ASP Bacoor - Jan Pena (0915) 985-7828 / (0920) 824-7636
ASP Carmona- Rosalyn Daso (0916) 132-1708
ASP Cavite North - Victoria Francisco (0918) 851-7379
ASP Dasmarinas - Ma. Luisa Cagingin (046) 416-1292
ASP Gen. Trias - Alice Buendia (0917) 871-6801
ASP Molino - Jacqueline Garcia (0929) 762-3178
ASP Tanza - Alma Torero (0921) 561-3613
ASP Trece Martirez - Lyn Ebuna (0928) 425-6909
ASP Imus - Lynette Gan (046) 489-1035

Be an Angel for Autism. Donate generously to ASP Programs and Services. Donate to Autism Society Philippines Metrobank Kamias Branch 047-3-04751874-2. Email us at autismphils@gmail.com or call 7-903-5496.

23 November 2011

“A Special Symphony” in Cavite and Las PiƱas

A Special Symphony of Christian Bautista

WHAT: Special Screening of "A Special Symphony"
WHEN: November 26 (Sat. 9AM) and 27 (Sun 10AM)
WHERE: SM City Molino and SM Southmall
CONTACT: ASP Bacoor Chapter President, Ms. Jan PeƱa, (0915) 985-7828; (0920) 824-7636 for tickets reservation.

ASP Consulted on Child Protection Workshop

By Cricel B. Elises, ASP Administrative Assistant

ASP was invited to attend in the Consultation Workshop on the Draft Policies and Guidelines on Protecting Children in School from Abuse, Violence, Exploitation and Discrimination headed by Atty. Alberto T. Muyot, Undersecretary of Department of Education last November 18, 2011 at the Bulwagan ng Karunungan, Department of Education Complex.
Atty. Alberto T. Muyot, Undersecretary of the Department of Education during his talk

The workshop aims to scrutinize, dissect the policies and guidelines so that will come up with agreement that will addresses all the concerns of the following 129 participants Teacher’s Organizations, Parents, Students, Administrators, Supervisors, Superintendents, Regional Directors, Central Office Official, CWC, Local Government Units, NGO’s and Religious Organizations.

In the morning Dr. Bernadette Madrid discussed the “Developmental Risk and Protective Factors in Child Abuse and Neglect and the Role of Educators.” She discussed Different Stages of Child’s Development, Nature work with Nurture and Toxic Stress Damages Brain Structure.

Dr. Madrid emphasized the importance of taking care of our child from the time they conceived inside our body up to their birth. It already affects the child developments and later will manifest when they are growing up, for instance a mother who smoke and drink while she’s pregnant it already affects the development of a child inside her womb. She said that from ages 1 – 5 years old is the crucial stage for a child development. In this stages we already foresee what he will may became reasons why we have to correct them whenever they showed inappropriate behaviors.

“The experience of childhood is not like a footprint in the sand it is a foot print in cement – long lasting.”

Dr. Violeta Bautista talked about “Bullying”– is a destructive pattern of interaction in school. She cited different situations teenagers experienced when someone bullying them. She also discussed things that parents, teacher’s needs to do to help them cope up.

Ms. Wilma BaƱaga discussed “Positive and Non-violent Discipline” is an approach seeking to immediately correct the behavior of a child, to teach a lesson, to give tools that build self-discipline and emotional control, and to build a good relationship with the child by understanding the child’s needs and capabilities at various age and the behavior that is usual for a child at each stage of development.
Participants during workshops.

In the afternoon participants are divided into four groups. Each group has given 2 hours to scrutinize the “Policies and Guidelines on Protecting Children in School from Abuse, Violence, Exploitation and Discrimination”. Each group are tasked to analyze, gather feedback's, recommendations and inputs from the all education stakeholders on the draft Department Policies and Guidelines on the Protection of Children in School from Abuse, Violence, Exploitation and Discrimination,” before the same are promulgated and implemented. Outputs, findings, conclusions and actions plans resulting from the workshop will be part of the Policies and Guidelines.

*****

Do your Christmas Shopping early. Order your "Mga Awiting Alay Sa Autismo ©" CD now. CD contains the song "Why God ©" click here to listen to sample. Call 7-903-5496. Proceeds will go to ASP Programs and Services.

Bonding Time with Bro

By: Allen Legarto, ASP Project 4, Cubao Chapter

Having a brother with autism is both hard and very enjoyable at the same time. Hard, because I can’t fully treat my brother like any normal individual; and I have to always understand and keep in mind that he has a disability. It’s very enjoyable at the same time to be around my brother, because he is kind; has a sweet and adorable personality, replied Allen Legarto during an e-mail interview by ASaP News Team.

Last November 6, 2011, Allen and his brother JV joined ASP Family for a fieldtrip to Philip’s Sanctuary in Antipolo together with other members of their chapter. Click here to read about the trip. Our team observed that JV was visibly upset when the weather was rainy. Brother Allen just sat quietly at the dining area of Jollibee Commonwealth, as we waited for others to join the convoy. JV was assured that the trip will push through and he was all smiles later.

“I expected to have quality time with my brother JV, just have fun and relax,” continued Allen during the interview. “The unique experience I had with JV was in the swimming pool. I tried to go to the deeper side of the pool, while he clung on to me. That was a good opportunity to teach him how to swim. Another unique and funny moment was when we explored the hanging bridge. My brother kept on shouting “Emergency!”

“My brother’s weakness is he can’t understand most of the Tagalog words. His strength is – he is an amazing pianist! When he listens to a song on the radio, after two to three times of listening to it, he plays it on the piano.”

Allen related that one of the challenges he deals with is people not being fully aware of his brother’s autism. “People tend to misunderstand the way my brother acts. They usually assume that he is crazy. I can be an advocate for JV by giving people more information about my brother’s condition and sharing to them my experiences on how to handle a person with autism.”

ED: This article acknowledges ASP Program Assistant, Cathy Genovia for this interview.

Get in touch with ASP Project 4, Cubao at 0920-640-1462

ASP works hard towards an autism friendly society. If you have stories about your loved one with autism, write to us at autismphils@gmail.com or call us at 7-903-5496. Be an Angel for Autism. Donate generously to ASP Programs and Services. Donate to Autism Society Philippines Metrobank Kamias Branch 047-3-04751874-2. Email us at autismphils@gmail.com or call 7-903-5496.

Filipinos to Celebrate the International Day of PWDs

By: Ranilo Sorongon, ASP Executive Director

The World Health Organization (WHO) reported that persons with disabilities account for 15% of the world’s total population (2010 global population estimates). Recognizing the needs of this sector, the United Nations declared December 3 of each year as the International Day of Persons with Disabilities, aiming to promote the rights and welfare of this marginalized, and often neglected members of society.
Wheelchair logo

For this year’s celebration, the theme “Together for a Better World for All: Including Persons with Disabilities in Development” was adopted to push for the inclusion of persons with disabilities in all development initiatives.

Part of the series of activities of the celebration is a Walk for the Rights of Persons with Disabilities with a specific theme, “Make the Right Real Together for a Better Asia and the Pacific for All” scheduled on December 2 Friday, 7:30AM at the Music Hall, SM Mall of Asia, Pasay City.

A Working Committee, headed by the Department of Interior and Local Government (DILG), Department of Social Welfare and Development (DSWD), National Council on Disability Affairs (NCDA), United Nations Economic and Social Commission in Asia and the Pacific (UNESCAP), Japanese International Cooperation Agency (JICA), SM Supermalls, Philippine Information Agency (PIA) and Autism Society Philippines (ASP) was tasked to ensure the success of this event.

More than 3,000 participants coming from organizations, persons with disabilities, children with disabilities, parents, advocates, representatives of the Local Government Units and special guests are expected to attend. Delegates from other countries who will be attending the 2nd Asia Pacific CBR Congress and guests from UN Agencies like the WHO, UNESCAP and UNICEF are also joining.

Everyone is invited to join this momentous event. Free registration and complimentary t-shirts and simple snacks will be given on a first come first served basis to the first 3,000 participants; courtesy of the organizers and sponsors of the event.

Bring a banner of your institution for identification! Let’s celebrate and be counted!

22 November 2011

Angara Lends Support to Special Education Bill

Sen. Edgado Angara

Senator Edgardo J. Angara, Chair of the Senate Committee on Education, Arts and Culture, is set to sponsor the Special Education (SPED) Bill.

Senate Bill No. 3002, also filed as Committee Report no. 75, seeks to promote inclusive education in all public and private elementary and secondary schools in the Philippines.

The said bill was filed in substitution of Senate Bill Nos. 660, 907, 1155, 1157, 1161, 1816, 1912, 2198, 2234, 2510 and 2538, taking into consideration Senate Bill Nos. 40, 235, 390, 619, 810, 922, 965, 1273, 1427, 1889, 1979, and 2081, filed by Senators Ejercito-Estrada, Villar, Defensor-Santiago, Lapid, Revilla, Legarda, Recto, Trillanes, and Cayetano, P

Senators Drilon and Marcos also join Angara as co-authors.

The SPED bill aims to provide quality and accessible education to children with special needs. It will offer holistic support in terms of financial, social, and medical assistance.

The bill covers children with intellectual disability; visual, orthopedic, hearing, or physical impairment; learning disabilities; speech defects; behavior problems; autism; and other health problems.

If passed, the bill will mandate the creation of one SPED Center in each school division, and at least three in large school divisions. Each center will then be equipped with the necessary resources and manpower to ensure support for students integrated in regular schools.

SBN. 3002 will also create a Bureau of Special Education, under the Department of Education. It will be supervised by the Secretary and tasked to formulate and administer appropriate curriculum and developmentally-suited programs to help children and youth with special needs achieve functional literacy.

According to the Department of Education (DepEd), there were 156,270 children with special needs enrolled in schools around the country in 2005, with only 2,149 schools offering special education programs.

Angara, former UP President and author of landmark education laws, will sponsor the bill on the floor once the Senate resumes session this November.

Source: Philippine Senate Website ANGARA LENDS SUPPORT TO SPECIAL EDUCATION BILL

House Passes Early Years Act of 2011

Writer: Lorelei V. Castillo, MRS-PRIB
19 October 2011

The House of Representatives has recently approved on third reading a bill recognizing the early years from zero to six as the first crucial stage of development

House Bill 5246 authored by Rep. Salvador Escudero III (1st District, Sorsogon) and Chairman of the House Committee on Basic Education and Culture seeks to expand and improve the comprehensive early childhood care and education program especially for the most vulnerable and disadvantaged children
Rep. Salvador
Escudero III

"The measure aims to promote the rights of children to survival, development and special protection as well as support parents in their roles as primary caregivers and as their children's first teachers," Escudero said.

Escudero said the government shall institutionalize a National System for Early Childhood Care and Development (ECCD) that is comprehensive, integrative and sustainable that involves multi-sectoral and inter-agency collaboration at the national and local levels.

"Government should collaborate with service providers, families and communities, public and private sectors, non-government organizations, professional associations and academic institutions to implement social development programs that provide for the basic holistic needs of young children from zero to age six and promote their optimum growth and development," Escudero stressed.

Escudero said the System shall promote the inclusion of children with special needs and advocate respect for cultural and linguistic diversity. It shall be anchored on complementary strategies for ECCD that include service delivery for children below zero to age six, educating parents and caregivers, encouraging the active involvement of parents and communities in ECCD programs, raising awareness about the important efforts that improve the quality of life for young children and families.

Escudero said the bill also mandates the ECCD Council to provide the full range of health, nutrition, early education and social services programs for the child's holistic development.

The measure seeks to amend Republic Act 8980 otherwise known as "An Act Promulgating a Comprehensive Policy and a National System for Early Childhood Care and Development (ECCD), Providing Funds Therefor and for Other Purposes.

Source: Philippine Congress Website HOUSE PASSES EARLY YEARS ACT OF 2011

November 20 to be Declared National Children's Day

Senator Edgado J. Angara is sponsoring Senate Bill No. 3006, based on Committee Report No. 77, which seeks to declare November 20 of each year as "National Children's Day."
National Children's Day poster

"We see street children so often that we risk being desensitized to their plight," said Angara, chair of the Senate Committee on Education, Arts and Culture. "We fail to recognize the violation of rights when we see it. We need to increase awareness about the urgency of protecting the rights of Filipino children."

This declaration is in commemoration of the United Nations General Assembly Ratification of the Convention on the Rights of the Child, and in recognition of the U.N.'s celebration of Universal Children's Day.

The National Children's Day celebration will include an annual program of activities to be prepared and implemented by the Department of Education (DepEd), the Department of Social Welfare and Development (DSWD), the National Youth Commission (NYC) and the Council for the Welfare of Children (CWC).

SBN 3006 is based on SBN 372 introduced by Senator Antonio Trillanes IV, and SEBN 2455 introduced by Senator Manny Villar. The measure is currently pending Second Reading.

Source: Philippine Senate Website
NOVEMBER 20 TO BE DECLARED NATIONAL CHILDREN'S DAY

21 November 2011

ASP Fieldtrip to Sanctuary for Children with Autism

By Cathy Genovia, ASP Program Assistant

ASP Trustees, staff and other families as well as ASP leaders from ASP Lagro and ASP Project 4 Cubao and their families had a wonderful adventure field trip to Philip’s Sanctuary, last November 6, 2011.

Mr. Pepe PestaƱo, owner of Philip’s Sanctuary and his friendly staff, welcomed the ASP Family to their outdoor eco-recreation park, located in PestaƱo Farm Road, Antipolo City. The 13-hectare property was created this eco-sanctuary in honor of Pepe and Nene PestaƱo’s son, the late Ens. Phillip A. Pestano, PN

The trip was almost cancelled due to the heavy rains the previous night, but ASP National President, Grace Adviento, decided to push through with the event. Thankfully, the weather cooperated with the excited children and their family members during the day.
PWA JR Tan led the prayer

ASP National President Mary Grace Adviento welcome the participants

Everyone enjoyed the morning games like the three-legged race prepared by the ASP Staff and the recreational facilities like the hanging bridge, monkey bars, balancing logs, tire-bridge and other exciting team building courses, prepared by the Philip Sanctuary Staff. After the potluck lunch, the group went around the facilities to enjoy the different plant life and cottages. Others swam in the pool and tried the zipline.
The ASP Families enjoyed the facilities of the Philip's Sanctuary

The said field trip is one of the most enjoyable field trips of ASP. The PestaƱo’s even prepared a sumptuous merienda of spaghetti and puto. Sir Pepe also spent time talking to the parents and other children. Sir Pepe said, when Philip was alive, he planted some of the indigenous Philippine fruits like mangostene around the sanctuary. He was also fond of children, thus the child-friendly facilities of the park.
ASP National President Mary Grace Adviento with Sir Pepe PestaƱo during the awarding of certificate

The ASP Family with Sir Pepe PestaƱo (seated - 6th from right)

Our sincerest thanks to the PestaƱo Family and the Philip’s Sanctuary staff for a very fruitful event!

ASP Dream Girls Wowed Good Samaritans

By: Cathy Genovia, ASP Program Assistant

ASP Dream Girls were highlights of the benefit concert entitled “We Rock for Autism … Are You Ready to Listen?” last Oct. 27, 2011 at the Elbow Room bar and restaurant, Metrowalk Commercial Complex on Ortigas Avenue, Pasig City. Thara Marie Santiago and Danica Escasinas amazed and wowed the audience with their singing prowess. Dream Girl, Vell Barria wasn’t able to make it due to class schedule.
Thara Marie Santiago and Nica Escasinas

ASP Trustee, Naomi “Ging” Viado gave an inspirational message to the supporters of the event. She personally thanked the organizers for the opportunity to highlight the talents of children with autism. The ASP Dreams Girls are under the tutelage of Ms. Viado and Voice Coach Jenzen Turica. Other children with special needs were also special guest performers at the event. Our special thanks to Mr. Ben Tulfo, who came in behalf of his brother and The Ramon Tulfo Good Samaritan Foundation for their continued support to children with autism.

November 26 Seminar - Workshop on Applied Behavioral Analysis

Seminar - Workshop on Applied Behavior Analysis
9:30 AM - 3:30 PM

The seminar - workshop will tackle the principles and theories of Applied Behavioral Analysis (ABA), one of the most widely used method in managing persons within the autism spectrum disorder. A workshop will also be conducted to further understand ABA.

Unwanted behavior is more often than not difficult to address. Fortunately, the science of Behavior Analysis has provided us insight on how to scientifically address different behaviors by performing a Functional Behavioral Assessment (FBA). Performing the procedures of FBA assists in determining the underlying causes of a specific behavior by identifying the functions and choices of behavior displayed by an individual with autism.
Ms. Maria Joaquin

Ms. Maria Rosario G. Joaquin, MAEd, PhD (Cand.) earned her BS Psychology degree from Assumption College, Makati. She has a Master’s Degree in Education major in Special Education and currently, a candidate for the Doctoral Degree in Psychology major in Developmental Psychology at the University of the Philippines, Diliman, Quezon City. She is the present Secretary of the Board of the Philippine Association for the Behavior Analysis (PABA). Ms. Joaquin has attended various trainings and conferences abroad. Shine Intervention, a center that she founded is an accredited practitioner of ABA..



Venue: Asian Social Institute #1518 Leon Guinto Corner Escoda Sts., Malate, Manila

SEMINAR FEE is inclusive of certificate, handouts and snacks

Pre-Reg until Nov. 24
ASP Member - P 600
Non-Member - 800

On Site
ASP Member - P 800
Non-Member - 1,000

Pre-registered participants may pay to Autism Society Philippines, Metro Bank, Kamias Branch Account # 047-3-04751874-2. Please fax the deposit slip with the name/s of participant/s to ASP office and bring it on the day of the seminar. On-site registrants will be accepted depending on the availability of slots. There will only be 40 slots available. No refund will be given to participants who did not show up on the date of the seminar. For more details, please call ASP at 7-903-5496.

The ASP Seminar Series serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are of their own and don’t necessarily reflect that of the views of the organization. Sharing HOPES.... Building DREAMS...

Filipinos with Disabilities Organized a Coalition on the UNCRPD

By: Ranilo Sorongon, ASP Executive Director

The UNCRPD or the United Nations Convention on the Rights of Persons with Disabilities is a vital document providing the foundation for PWDs to claim their rights on an equal basis with other citizens of the world.

The ratification of the UNCRPD by the Philippine Government in April 15, 2008, brought a renewed hope to the most marginalized sector of Philippine society. This hope propels the PWD sector to connect to wider horizons outside their physical domain to find allies and supporters to claim for rights from the duty bearers. It also became a unifying factor for the PWD sector to work as a movement to monitor how our government implements the convention.

On December 2010, the International Disability Alliance (IDA) consulted known leaders of the PWD sector to introduce Parallel Reporting as a tool to gauge the implementation of the UNCRPD. PWD leaders who attended the five-day training last February 2011, agreed that the Parallel Reporting is the best way to monitor the implementation of UNCRPD. A core group, composed of 18-member organization was organized. This group is formally known as the Philippine Coalition on the UNCRPD.

The following are the members of the coalition:

*** ALYANSA NG MAY KAPANSANANG PINOY

*** AUTISM SOCIETY PHILIPPINES

*** GOVERNMENT UNION FOR THE INTEGRATION OF DIFFERENTLY-ABLED EMPLOYEES

*** KATIPUNAN NG MGA MAYKAPANSANAN SA PILIPINAS

*** LAS PIƑAS FEDERATION OF PERSONS WITH DISABILITIES

*** LEONARD CHESHIRE DISABILITIY PHILIPPINES

*** LIFE HAVEN

*** NEW VOIS ASSOCIATION

*** NOVA FOUNDATION

*** PARENTS ASSOCIATION OF VISUALLY IMPAIRED CHILDREN

*** PHILIPPINE ASSOCIATION FOR CITIZENS WITH DEVELOPMENTAL AND LEARNING DISABILITIES

*** PHILIPPINE CHAMBER FOR MASSAGE INDUSTRY FOR VISUALLY IMPAIRED

*** PHILIPPINE DEAF RESOURCE CENTER

*** PHILIPPINE FEDERATION OF THE DEAF

*** PUNLAKA

*** QUEZON CITY FEDERATION OF PERSONS WITH DISABILITIES

*** TAHANANG WALANG HAGDANAN

*** WOMEN WITH DISABILITIES LEAP TO SOCIAL AND ECONOMIC PROGRESS

The Philippine Coalition on the UNCRPD’s goal is come up come up with a comprehensive report on the status of the implementation of the UN Convention on the Rights of Persons With Disabilities in the Philippines, to complement the State’s Report that will be submitted to the UN CRPD Committee.

Autism Society Philippines will dedicate a section in its e-newsletter on the UNCRPD to update the readers about the coalition and its activities starting with this issue.

18 November 2011

ASP 3rd Regional Conference on Autism a success!

By Ranilo Sorongon, ASP Executive Director

The 3rd Regional Conference on Autism, with the theme “Making Sense of Autism, A Path to Hope, Possibilities and Solutions,” was a resounding success! Hosted by ASP Cagayan de Oro Chapter, the confab was attended by more than 200 participants, coming from the different parts of Visayas and Mindanao. The event took place at Maisie Van Vactor Auditorium, Pilgrim Christian College, Cagayan de Oro City, last 28-29 October 2011.
The participants of the 3rd Regional Conference on Autism

According to ASP Cagayan de Oro President, Angie Abellanosa, the conference recognizes the need to address the range of issues affecting families who have children with autism in the CDO region. The main focus of the conference, aims to make a real difference in the quality of life of each member of the family of the CWA; bringing together the expertise of doctors and interventionists, experiences of parents and even an individual on the spectrum.

In full support were the delegation from the National Office, headed the President Mary Grace Adviento, who was joined by Peng So (Vice President), Tiffany Tan (Secretary) with her husband and family, Evelyn Go (Treasurer), Gina Bermudo (Trustee) and Dang Koe (Chair Emeritus). Executive Director, Ranil Sorongon, came a day ahead to assist the chapter with the last minute preparations.
ASP National President Mary Grace Adviento during her inspirational message

Chapter representatives from as far as Rosales, Pangasinan; was represented by Teachers Fatima, Thea and Rhona; through the generosity of Mayor Ricardo Revita. Other representatives were Sandra Espina (Cebu-Chapter President), Beth Birondo (Davao City Chapter), Teacher Galda Galera (Dipolog City Chapter), Ms. Nida Wu (Dumaguete City Chapter), and Ini Vina Solizar- Otani (Gen. Santos City Chapter- President).

The conference opened with an instrumental rendition of the “The Prayer” led by members of the Pilgrim Christian College Band, Ms. Issay Abellanosa on flute and Orwille Mercado on violin. It was followed by a native rendition of the National Anthem, courtesy of the Rondalla Group of the same college.
Ms. Issay Abellanosa on flute and Orwille Mercado on violin in the instrumental rendition of the “The Prayer”

ASP Cagayan de Oro Chapter President, Ms. Angie Abellanosa, welcomed the participants followed by an inspirational message from ASP National President, Mary Grace Adviento. Former Congressman and current Misamis Oriental Governor Oscar Moreno gave the key note address. Gov. Moreno assured the chapter of his support to the chapter especially the “Early Detection and Intervention on Autism Project” of ASP.
Misamis Oriental Governor Oscar Moreno gave a inspirational message

The two day conference was an excellent opportunity for the participants to update their knowledge on autism and listen to parents of persons with autism; like Dang Koe (Chair Emeritus) on “Living with Autism in the Family: Live, Love and Laugh” and Ms. Riza Cansanay (Laguna Chapter President) on “Home Management Program.”

Persons with autism were also highlights of the event. JR Tan, a person with autism and self-advocate, also shared his personal journey having this condition. He is currently a 4th year college student taking up Bachelor of Science in Accounting. Another is a teen-age girl with autism, Hannah EstaƱol, who entertained the audience with wonderful song numbers in between lectures.
PWA Hannah EstaƱol

CDP home-grown speakers and developmental pediatricians, Dr. Cindy Llego and Annah Rebecca Doroja, and lectured on “Understanding Autism” and “Updates on Autism,” respectively. They were joined by their mentor, Dr. Stella Manalo, who spoke on “Sexuality and Autism” on the second day. Prior to her was Atty. Jerefe T. Bacang of the Commission on Human Rights-Region IX, who spoke on “Our Rights….Let’s Claim It! She focused on the UN Convention on the Rights of Persons with Disabilities and local laws like the RA 9442 and how it was being implemented in the region.

The other speakers coming from Manila, were led by Prof. Mercedes Adorio on “Inclusion of Students with Autism”, her former students from the University of the Philippines, Diliman Quezon City, Giselle Principe on “Social Skills”, Yolanda Bautista in “Jobs for Persons with Autism” and Rosalyn Sorongon on “Siblings’ Side of the Story”. They were joined by two professionals who are experts in their own field, Kathy Reyes, a speech therapist on “Speech, Language and Communication” and Lady Suarez, an occupational therapist on “Sensing Your Child Senses”.

The 200 participants composed of parents of persons with autism, professionals and students of special education and psychology; were especially elated to a 2-day jam-packed lecture series from speaker-experts. With a very affordable registration fee, inclusive of food and hand-outs, ASP is thankful to all the family, friends, volunteers, and sponsors, who made this event possible.

Congratulations to the ASP Cagayan de Oro Chapter, headed by Ms. Angie Abellanosa, and supporter-members, Ms. Elsa Lim, Ms. Evalyn Layug and Teacher Ellen. Special thanks to Pilgrim Christian College for hosting the event; and to Mr. Cris Abellanosa, and children, Issay, Carlo and Bogart for their wonderful patience, support and hospitality.

The conference in Cagayan de Oro completed the first round of ASP’s regional conferences started by Cavite Chapters in January 2010, followed by Cebu Chapter in October 2010. See you all in Baguio City for the 4th Regional Conference on Autism!

You can call or text ASP Cagayan de Oro City Chapter President Angie Abellanosa at 0906-126-0630 or 0932-157-5966.

Be an Angel for Autism. Donate generously to ASP Programs and Services. Donate to Autism Society Philippines Metrobank Kamias Branch 047-3-04751874-2. Email us at autismphils@gmail.com or call 7-903-5496.

15 November 2011

ASP Reaches to the Bangus Capital of the Philippines

True to its mission of empowering more parents of children with autism and their families around the Philippines, ASP spreads its angel wings to reach Dagupan City, Bangus Capital of the country.

Last November 12, 2011, ASP Executive Director Ranil Sorongon and Vice President Peng So traveled to Dagupan City to meet the chapter’s members and officers. The representatives from Manila were welcomed and treated for lunch at DagupeƱa Restaurant by Dr. Broncano and Mrs. Cindy Calimlim.

After a sumptuous lunch of bangus (milk fish) and native menu, the group proceeded to Oakridge International School, where some members and children with autism were waiting. The program then started with a welcome message from the president of the chapter, Dr. Christina T. Broncano.

Director Sorongon was called to give the orientation about ASP, its programs and services and the rights, benefits and responsibilities of the chapter as well as the members. He also gave a lecture on Republic Act 9442 focusing on the 20% percent discounts of persons with disabilities (PWD).The members were happy to share that most of their children have their PWD IDs and are enjoying the discounts.

A notable information was bought up by a parent working in a dialysis clinic, on how PhilHeath members are being subsidized when they undergo treatment. She suggested the possibility of enacting a policy for PhilHealth members to include diagnostic evaluation and therapy service benefits for children with autism/other disabilities.

The induction of chapter officers was officiated by ASP National Vice-President, Peng So. She led the group in reciting their Oath of Office, which serves as their unwavering commitment to their constituents. Ms. So reiterated in her message the importance of sustaining the passion of the members. She said it is easy to organize a chapter, but the bigger challenge is how to continue burning the fire that was started during the organization.
ASP Vice President Peng So

The New set of Officers headed by Dr. Christina T. Broncano

Ms. Josie de Vera, National President of the Katipunang May Kapansanan sa Pilipinas (KAMPI) and Regional President of the Women with Disabilities, also gave an inspirational message and assured the group of her support. Ms. De Vera is from Dagupan City.

One vital ingredient of the new chapter was the presence of three fathers, a grandmother and some siblings who in one way or the other signified their support to the chapter.

ASP National Office would like to congratulate ASP Dagupan City chapter. With your presence, our goal of sharing hopes and building dreams will be slowly realized.

ASP Dagupan City chapter and ASP National Office would like to thank the management of Oakridge International School, Dagupan City for hosting the event. Thank so much!

You can contact the ASP Dagupan Chapter President Dr. Christina T. Broncano at 0905-330-9194.

14 November 2011

Community-based rehabilitation

By DANG U. KOE, ASP Chair Emeritus

MANILA, Philippines — Four years ago, this author joined an exposure trip organized by Autism Society Philippines (ASP) and saw how community-based rehabilitation (CBR) worked for a family in a remote barrio in Batangas.

This family, dealing with autism, was empowered by NGO therapists to implement home program for the special needs of their child. After all, the nearest special school, if the family could afford it, was two hours away.

CBR builds communities that include even persons with autism and other disabilities. CBR’s strategy seeks to ensure that rights of PWDs are respected and included in development programs and services, not merely as beneficiaries but as key participants.

On April 15, 2008, the Philippines ratified the UNCRPD (United Nations Convention on the Rights of Persons with Disabilities). CBR is a key strategy in ensuring the implementation of the UNCRPD in the villages and cities across the country, region and the globe.

The international community looks to the Philippines as one of the key leaders in the field of CBR, as we host the 2nd Asia-Pacific CBR Congress, with theme “CBR: Building Communities for Everyone”, from Nov. 29 to Dec. 1, at the Sofitel Hotel in Pasay City. The CBR Congress takes place every four years, and about 600 delegates from 47 countries across Asia-Pacific, Latin America, Africa and Europe are participating.

ASP, one of the leading parent support group organizations in the country, has been influential in the newly established ASEAN Autism Network ASP has been invited to discuss “Enriching the Practice of CBR-The ASP Experience.”

Our Angel Talker this week is Barney McGlade, head of the South East Asia and Pacific Region CBR coordination office. He is originally from Ireland and has been working for the Philippines’ Christoffen Blinden Mission (CBM) since 2004.
Persons with autism are trained to be productive individuals here at the Carmona SpEd Center and ASP Laguna's Autism Resource Center.

CBR for Persons with Disabilities

Fifteen out of every 100 people, or 15 percent of the world’s population, have a disability (World Health Organization Report on Disability 2011).

How can nations then achieve the United Nations’ Millennium Development Goals (MDG) if 15 percent of the populations are not included in its programmes? CBR is a key strategy in helping countries achieve the MDGs.

The late President Corazon Aquino said that “People Power is about finding and unleashing the leader in each of us. Each one of us is called to do our share. It is about building little bridges to people who can make a difference in their lives and the lives of others.” This is the heart of CBR and the 2nd Asia-Pacific CBR Congress.

Ninety percent of community-based interventions are done locally or in the village level. This builds on existing resources and services and enables communities to empower themselves and form partnerships.

Partnerships enable communities and provide information, so that when people plan and do it for themselves, another 20 percent of the population will be contributing. Persons with disabilities are also partners in development.

Capacity Building for Families

A factor to consider in CBR is health services. Examples are immunizations and neonatal or post natal screening that help improve maternal and child health. Community mental health programs also promote well-being, and reduction of ill-health that could lead to disability. Such may include therapy services like speech or occupational therapy for persons with autism, seminars to help equip parents of children with autism, or even programs for disaster preparedness.

Programs for education will empower students (both PWD and typical students), and teacher training will lead to better quality education.

Community development may also include backyard industries such as charcoal making, virgin coconut oil making, packaging and selling, cooking meals or running a canteen, like the experience of ASP Laguna Chapter’s Enabling Community under the funding of UPS (United Parcel Service Philippines).

Training of adolescents and adults to help them become self-sufficient and self-reliant will lead them to live a quality life. This will also lessen the burden on family members for their future. More people, including persons with autism, will be contributing to development, getting jobs, and enlivening the economy.

CBR benefits everyone in the community: a ramp is not just for wheelchair users — it is for senior citizens, pregnant women, for strollers and delivery trolleys and anyone who hates steps! When a child with autism or disability joins non-disabled children in school, the teacher is challenged to become a better teacher – every student benefits.

* * *

Why attend the CBR Congress

The congress is an event of the Asia-Pacific CBR Network (established by the World Health Organization and the Asia-Pacific Centre for Development). The Philippines’ National Council on Disability Affairs of DSWD is chairing the National Organizing Committee. The committee is made up of government agencies, disabled peoples’ organizations, non-government organizations and international NGOs.

The congress will also focus on how CBR help transform countries that include everyone-embracing differences as an asset in any community. The congress will look at ways to change attitude in the community and change prejudice: social issues, gender and access to justice. There will be sessions on research, working with media puppet shows.

Most important, children and adults with autism/disabilities and their families, from rural and urban communities, will also participate.

To know more about the 2nd CBR Congress, log on to http://www.cbrcongress.com/programme.html.

Uploaded with permission Acknowledgment Manila Bulletin: Community-based rehabilitation

10 November 2011

Alyana Screened at ASP Tacloban Chapter

By: Firie Esperas, ASP Tacloban Chapter

Autism Society Philippines Tacloban Chapter screened "Alyana, a study of autism in the Philippines". The audience was composed of parents of children with autism and other disabilities, students, health workers, teachers, and ordinary citizens. The movie illustrated the various facets of autism across the spectrum, and gave the audience a deeper appreciation of the disability.
Participants of the said seminar

It also served as a culmination of to the seminar held in the morning of the same day, with Miss Erlinda “Dang” Koe, ASP Chair Emeritus as the Resource Speaker. It reinforced the lessons of the morning's lecture.

In attendance was the producer-director of the documentary, Mirana Medina, herself a grand-aunt to Alyana, an adolescent with autism, from whom the film was named after.

The screening was followed by an open forum where the audience could field questions regarding the film. Mirana Medina, producer-director of " Alyana", Dang Koe, Resource Speaker of the Seminar; and ASP Tacloban Chapter President, Dr. Geraldine Abuyabor, composed the panel who answered the queries from the audience.
Mirana Medina (3rd from left), Dang Koe (2nd from right) with Tacloban Chapter headed by President Geraldine Abuyabor (4th from left)

The screening last September 17, 2011, was made possible by the support of the City Government of Tacloban, and the Leyte Normal University. Proceeds from the screening will be used for the Free Assessment and Evaluation of Children with Special Needs in Tacloban City by a team of Occupational Therapist and Speech Pathologist on November 20- 21, 2011.

You can contact the ASP Tacloban President Geraldine Abuyabor at 0917-306-3539. To request for Alyana Film Showing and ASP Orientation on your chapter, you can email us at autismphils@gmail.com or call 7-903-5496.

09 November 2011

ASP Welcomes 8 New Chapters

For the past 21 years, Autism Society Philippines (ASP) continues to grow in equipping parents and professionals in empowering the lives of persons with autism. With the increasing demand for support services for parents and PWAs in other areas around the country, the organization is proud to present new chapter additions.
The new ASP Chapters during the induction

As of the third quarter of 2011, ASP has organized eight new chapters in the different parts of the country. Below are our new chapters, their respective president and contact information.
  1. Ms. Norimyl D. Perocho | ASP MuƱoz, Quezon City | (02) 361 9957, (0939) 655 7518 | norimyldp@yahoo.com
  2. Ms. Linda Legarto | ASP Project 4 Cubao, Quezon City | (0920) 640 1462
  3. Dr. Arsenio M. Angeles, Jr. | ASP Daet, Camarines Norte | (0908) 238 3388
  4. Ms. Maricel F. Agustin | ASP Novaliches, Quezon City | (0922) 853 5187 | marizelle2002@yahoo.com
  5. Engr. Generoso P. Managbanag | ASP Ormoc City | (0920) 960 5791, (0920) 567 313 | gpmcable@yahoo.com
  6. Ms. Susana A. Reyes | ASP San Jose Del Monte, Bulacan | (0917) 785 0469 | susanreyes889@yahoo.com
  7. Ms. Luzviminda Pana | ASP Ormoc City
  8. Ms. Lynette Gan | ASP Imus Cavite
With strong faith in the Lord, together, we will continue to work hard in sharing hopes and building dreams for all Filipinos with autism. To all our new chapter officers and members, congratulations and welcome to the ASP Family!



Towards a Safer Metro Manila for PWDs

By: Ranil Sorongon, ASP Executive Director

Would residents of Metro Manila, and the Filipinos in general, believe the metropolis is still safe to live? A very provocative question which I’m sure will be a good subject for debate.

Like all the others, the members of the Regional Council on Disability Affairs of the National Capital Region (RCDA-NRC) were a bit surprised when Police Senior Superintendent PSSupt. Franklin Moises Mabanag of the National Capital Region Police Office (NCRPO) gave them a briefing on the Peace and Order Situation of Metro Manila. He said Metro Manila (MM) is safer, compared to other cities in the world; even if their own report says that the crime incidence in MM is rising.

Metro Manila is composed of 16 cities and 1 municipality with a total population of 17.3 million people. There are 5 police districts, with a total police force of 17,493 - 16,816 uniformed and 677 non-uniformed personnel. At present the ratio of our policemen vis-a-vis the population of MM is 1 is to 705, while the ideal ratio should be 1 is to 500.

According to both PSSupt. Mabanag and Dep. Police Regional Dir. Laurel, the new method of crime reporting called “Unit Crime Periodic Evaluation Report” records data collated from every police precinct in the metropolis; including blotter and amicably settled cases, to give the real picture of the metropolis.
(left) Dep. Police Regional Dir. Laurel and (right) PSSupt. Franklin Moises Mabanag of the National Capital Region Police Office (NCRPO)

As members of RCDA, the group asked whether a “Sensitivity Training on Disability” was included in the training module for would-be policemen and policewomen. Regional Dir. Laurel responded that as of the moment, it is not yet included. As recommended by the group, he will take this into consideration for the next batch.
Members of RCDA having a meeting

Another issue is no data is collated on Crime Committed By or Against Persons with Disabilities (PWD), since most of the time the data is included in Non-Index or Crime against Special Laws.

To mitigate the commission of crime in the onset of the Christmas season, both speakers said that police visibility will be increased, and Special Reaction Units will be deployed and additional police personnel will be recruited to reach the ideal ratio of 1 policeman to 500 individuals.

As for the PWD Sector, the group is hopeful that the policemen, especially in MM, will become aware, knowledgeable and be protectors of the rights of PWD. If Metro Manila will be safe for PWDs, indeed it will be a safe place for all.

Special thanks to Police Director Alan DM Purisima, the officers and members of NCRPO for hosting the meeting of the RCDA-NCR last October 11, 2011.

08 November 2011

Conquering Our Fears

By: Gina Bermudo, ASP Trustee

I am fortunate to spend a few days with JR during ASP's 3rd Regional Conference on Autism in Cagayan de Oro, last Oct 28-29, 2011. As one of the guest speaker of the conference, he shared his personal journey with autism from childhood to present.
PWA JR Tan

In one of our side trips to Dahilayan, Manolo Fortich, Bukidnon; one of our agenda in this trip is to try the Longest Zip Line in Asia. Being elevated a few meters from the ground, without being enclosed, is a great challenge for me. I've had this phobia since early childhood, but I never bothered to address this issue until the day I went with JR and my ASP family. JR inspired me to conquer my fear of heights.
ASP Trustee Gina Bermudo and PWA JR Tan in the longest Zip Line in Asia

As we reached our destination, our excitement began to build up. I couldn't make up my mind whether to be adventurous or not. But with a lot of prodding from my ASP family, I finally agreed and purchased my ticket. Arriving at the disembarkation point, I kept on looking at JR. He had mixed emotions for the ride, but he was full of confidence, believing that he could make it. For so many years I hoped that I could conquer my fear of heights, but I was not doing anything about it. But that day, JR taught me that believing and doing something about it can make all the difference. As I was being pushed for take-off, I stretched out my arms to decrease my speed. Then my adrenalin suddenly kicked in and fueled me up that instant. Wanting for more, I aligned my arms to my body to increase speed. I was enjoying the ride of my life! After I reached the end of the zip line and was taken off from all the attached protective gears, it was JR's turn. I enjoyed the luxury of watching JR descend and see pure joy and satisfaction on his face. After his ride, I immediately went to him to ask how his ride was. In all honesty, he said he was scared and hesitated to let go of the rail at first. But with much encouragement from the other riders and technicians, he let go and enjoyed the ride.

We proceeded to get our Ziprider's Certificate as proof that we have successfully conquered the 840 MTR. (2,755.90 feet) Longest Dual Zip Line in Asia on the 28th Day of October, 2011 at 1,370 MTR. (4,500 feet) level of the Mt. Kitanglad Range, Bukidnon Province; having experienced extreme adrenaline at a cloudy weather, with a temperature of 71 degrees Fahrenheit and wind speed of 2 KPH. JR and I can now officially say that we earned our bragging rights!

During the October 29 seminar, while JR was sharing his life story, I learned to admire him more. With his persistence and hard work, he conquered not only his fear of heights, but also his fight with autism. He serves as an inspiration to others, including me. After his talk, I could not resist to give him a standing ovation that he truly deserves.

============

About the author: Ms. Gina Luna Bermudo is a former international flight attendant and is one of resource persons for Cebu Pacific Air in its effort to improve its services for passengers with disabilities. Gina is also a producer and composer of the CD entitled, “Mga Awiting Alay sa Autismo ©" a compilation of heartfelt compositions inspired by her two boys with autism, Niko (16) and Xandi (13). Gina currently serves as a member of Board of Trustees of Autism Society Philippines.

Do your Christmas Shopping early. Order your "Mga Awiting Alay Sa Autismo ©" CD now. CD contains the song "Why God ©" click here to listen to sample. Call 7-903-5496. Proceeds will go to ASP Programs and Services.

03 November 2011

Postage Stamps To Feature Artists With Autism

The United Nations will honor autism awareness next year with a series of postage stamps designed by individuals with the developmental disability.

The stamps are part of an annual effort to highlight causes that are important to the international body, according to David Failor, director of the United Nations Postal Administration, which will issue the first-ever autism awareness stamps in early April.
Autistic Super Hero Stamp

The U.N. is currently accepting submissions through Friday from artists with autism who would like their work featured on a stamp. Failor says the organization will select at least three designs to put into circulation.

“It could be a great portrait, a still life of flowers or somebody’s view of the world,” Failor said. “There are a lot of great artists with autism out there and we’ll use that as a vehicle to show the talents that they have and the challenges they have to overcome.”

About 1 million autism awareness stamps are expected to be made available at U.N. offices in New York, Geneva and Vienna. The postage is valid for mailing letters from U.N. locations and it’s also popular with stamp collectors.

Each year the U.N. issues stamps to honor seven causes of importance to member nations. In addition to autism, the agency plans to focus on endangered species, indigenous people and the environment, among other issues in 2012, Failor said.

To be considered, artists can submit their work by e-mail along with a brief bio.

Acknowledgements: Disability Scoop and michelle Diament

Postage Stamps To Feature Artists With Autism

ASP Family Support Group for November 2011

Share your HOPES and DREAMS with us. We will listen.
Ms. Ma. Therese Macapagal with son Andrei

Ms. Ma. Therese Jalandoni- Macapagal, better known as Mariter. She is married to Arturo, second child of the late President Diosdado Macapagal. Mrs. Macapagal is the current Executive Directress of St. Joseph Cupertino School for Special Children, one of the oldest schools for children with special needs in the Philippines.

A senior professor at Miriam College with a Master’s Degree in Special Education and a Doctorate Degree in Educational Administration from the University of the Philippines, Diliman. She is also the present president of Special Olympics Philippine and a Trustee of ASP; Mariter dedicates all her achievements to her family and to Andrei.

“The most important thing that I have learned in my life so far is to thank God for giving me Andrei. Through him I have learned how to love without expecting anything in return.”

Andrei, now 45, is a prolific artist with autism. His private collections have been exhibited in ASP’s World Autism Awareness Day Celebrations and other ASP events. Andrei’s colorful biography is now featured in the book “Our Andrei: Living with Autism”. The book is available at the ASP office.

Sign up now and learn practical tips and how to advocate for your child with autism.

FREE REGISTRATION
Date: November 19, 2011, Saturday
Time: 1:00-5:00PM
Venue: ASP Office, Room 307,
ML Bldg, # 47 Kamias Road, Quezon City

Hurry! Call now at 7-903-5496
Only 15 seats available!

02 November 2011

SM Cares presents PWD programs to UN

MANILA, Philippines - SM Prime Holdings was recently invited by the United Nations to present its programs for persons with disabilities (PWDs) in the recent 4th Convention of State Parties to the Convention on the Rights of Persons with Disabilities held at the United Nations headquarters in New York City.

SM Supermalls president Annie Garcia and vice president for operations Bien Mateo presented the company’s initiatives through its SM Cares program to over 500 delegates from various countries.

SM was the only private corporation invited to attend the event.
SM Supermalls President Ms. Annie Garcia

Garcia’s speech, “Realizing the Right to Work and Employment,” centered on the efforts of the SM Supermalls to help PWDs to get gainfully employed.

She noted that SM Malls offers business opportunities for PWDs through shops that offer therapeutic massages owned and operated by persons with visual impairments, as well as through one of its merchant’s Kultura Filipino’s Crafts for a Cause program.

There are also employment opportunities for PWDs in the malls as attendants in elevators, comfort rooms, ticket booths, and sales personnel of tenants.

She added that since SM malls have facilities that are accessible and barrier-free, its 15,000 locators have a chance of considering employment for PWDs.

Other PWD initiatives mentioned were livelihood programs for PWD farmers who can sell their produce to mall customers through a pick-and-pay method, as well as facilities for bowling and ice skating and its Photography with a Difference program.

All these initiatives “have transformed our business environment into a community of opportunities open to PWDs, to enjoy bonding moments with their families, to be independent and free, to show their abilities above their disabilities, and an environment friendly to entrepreneurial and employment opportunities,” Garcia said.

Department of Social Welfare and Development Undersecretary Alicia Bala represented the Philippine government and delivered its message of support to the convention on the rights of PWDs.

Other speakers included Barbara Murray, senior disability specialist of the International Labor Organization in Geneva; Jared Abidi of the National Center for the Promotion of Employment for Disabled People in India; Francisco Rivero of Mexico; Jin Ang, vice chair and member of the CRPD Committee; and Stig Langvad, member of the CRPD Committee.

Acknowledgment: The Philippine Star SM Cares presents PWD programs to UN

Autism angels fly!

By DANG U. KOE, ASP Chair Emeritus MANILA, Philippines — If you will notice before we get inside this plane, this aircraft is smiling and we are all smiling because we want everybody to be happy while inside the aircraft”.

Thirty-two students with autism from GS Option House for Autism and Learning Center recently enjoyed a virtual plane ride inside Cebu Pacific Air’s newly delivered A-320.

Cebu Pacific Air, one of the country’s leading domestic carriers, partnered with Autism Society Philippines (ASP) to launch project “Dream on Flight” as part of the airline’s advocacy program.

Most of the invited students with autism have not yet experienced riding in a plane. It was essential to prepare them a week before the fieldtrip. A thorough assessment of the students’ deficits during travel to a new place was done.

Concerns like adaptability, sensory issues, difficult behavior, dysfunctions or limitations, non-compliance, inappropriate behavior, and resistance to change were considered. The planned activity was also incorporated in the students’ Individualized programs and simulated in school.
(L-R) Michael Shau, Ging Viado, Candice Iyog, Michelle Eve De Guzman

Our Angel Talker this week is Noemi “Ging” Viado, founder of GS Option House for Autism and Learning Center in BiƱan, Laguna. As a special educator for the past two decades, she has been conducting lectures to parents and professionals.

Her center offers special education and inclusive program for persons with autism. Teacher Ging also serves her second third term as board trustee of ASP. Angels Talk also acknowledges the help of Autism Angels Tiffany Tan and Catherine Espenilla Genovia on this issue.

*****

1. How did GS Option House prepare the children for the fieldtrip?

The following approaches and strategies were applied to address students’ challenging or inappropriate behaviors:

a) Warning and prediction of events (including rules) by using “what to do chart” in the airplane and airport; giving social stories and contract agreement among able and high functioning children with autism.

b) Familiarization of the place through visual presentations and written cues.

c) Simulation or desensitization for those children who have auditory and space problem;

d) Repetitive rehearsals of falling in line, sitting, waiting and being quiet in public places;

e) Relaxation techniques such as massage, breathing exercises and holding the children’s hands when they get afraid;

f) Reward system (using tangible and non-tangible items that are interesting to the child) for compliance.

2. Is it important to have a companion travel with them in the virtual plane ride?

A companion is necessary to help a student with autism fit in better and cope in a new situation. To be an effective companion, one should be educated about autism since he serves as model (e.g. teacher, prompter, assistant or guide).

The companion should also be confident to implement and connect strategies in handling inappropriate behaviors. The most important role of a companion is to encourage and be non-threatening to the student with autism. This will make it easier for the students to learn how to cope in new public places.

The school trained, oriented, and collaborated with all the companions on what to do during the special trip. For this trip, the 32 students each had a companion, and were supported by six trained special educators.
A TOTAL of 32 students with autism from GS Option House for Autism and Learning Center enjoy a virtual plane ride through Autism Society Philippines’ Dream on Flight project in partnership with Cebu Pacific.

3. Were the rules on plane discussed with the children?

Before the planned field trip, a discussion between the organizer and our GS Option team was conducted, together with Cebu Pacific coordinators, facilitators and crew. The purpose of the trip, the expectation of each group and the trip guidelines were discussed. Cebu Pacific provided us with clear procedures which we discussed with teachers, students and their companions upon arrival and before boarding the aircraft.

The friendly and accommodating aircraft staff transformed themselves into “teachers” as they assist our students to follow the rules. “For this day, I will be your teacher,” said cabin crew supervisor Melody Mercado. Flight attendants Gelyn Tensuan, Paula Pacres and Jay Malinis served as “Teacher Melody’s co-teachers”. The procedures and orientation were structured and precise for us to feel comfortable and manageable.

The crew did actual demonstration of what to do inside the aircraft. It included using the seatbelt, mask and vest in case of emergency. Other aircraft personnel participated in the familiarization and discussion of the parts of the aircraft and its uses.

“Sana lilipad kami!” or “Can we fly?” were the comments from the companions as well as the students. “Birds use their wings to fly in the sky. Though airplanes have wings, the wings don’t flap like birds do,” said Captain Raffy Locson. He also explained to the children how pilots fly planes.

After the lectures, Capt. Locson joined the cabin crew in a short talent show — six children with autism and care givers rendered a song and dance number. But the most exciting part of the show is the dancing pilot and cabin crew!

The talent show motivated the children; the crew and companions appreciated their numbers which boosted their morale. Opportunities to show off their talents add to their self-worth knowing they have somehow created an impact to others. This activity also sustained their focus; their sitting and waiting time were more tolerable, as they were themselves entertained.

4. What made this fieldtrip a success?

The 2.5 hour journey for Dream a Flight was very successful. The evidence was shown clearly through their good behavior throughout the entire program; with one exception — one boy cried and covered his ears, but this was managed immediately.

I truly believe that it was because of the concerted effort of ASP, the Cebu Pacific management, staff and crew, as well as the GS Option Staff, companions and the children themselves who were all prepared for the activity.

The staff of Cebu Pacific Air was committed to achieve our goals for the students. We arrived an hour earlier for the event, but knowing that children with autism have difficulty waiting, the staff started the program right away!

It’s wonderful to know that the crew that assisted us were all volunteers. Instead of taking their off-duty time, they volunteered to support us.

I remembered during one of my Cebu Pacific flights with my daughter Gigi, we were privileged to choose our seats on the plane. We were even escorted to the VIP room and were first to be boarded on the plane.

I have high hopes that all other airlines will extend the same courtesy to persons with autism and other disabilities. As mandated in Republic Act 9442, PWDs are given priorities during boarding and deplaning, and their special needs should be accommodated. Not to mention of course the 20 percent discount. Just don’t forget to bring valid IDs.

We want to commend Cebu Pacific Air and other airlines that will offer opportunities for simulation activities for children with autism prior to their actual flights. It will really help them experience a wonderful Dream on Flight.

Uploaded with permission Acknowledgment Manila Bulletin: Autism angels fly!

 
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