The First Philippine Accessibility Summit

The Autism Society Philippines National President Mona Magno-Veluz was among the 200 participants of the First Philippine Accessibility Summit, spearheaded by the Presidential Human Right Committee. The event was a fitting end to the week-long celebration of the 41st National Disability Prevention and Rehabilitation Week; and congruent to our country's commitment to uphold the United Nations Convention to the Rights of Persons with Disabilities.

During Accessibility Summit

The full government support and international NGO engagement was evident in the presence of the DSWD Sec. Rolando Bautista, Senior Deputy Executive Secretary to the President Atty. Michael P. Ong, United Nations Human Rights Coordinator Mr. Mika Kanervavuori, Philippine Human Rights Committee Executive Director USec. Severo S. Catura, DSWD USec. Florita Villar and DoTr USec Artemio Tuazon Jr.

The institutionalization of a national disability-centric forum is an admirable development. We need a unified strategic platform to develop disability-inclusive policy frameworks, consistent with aspirations of international and local groups for genuine inclusion. Local programs for persons with disabilities must align to global/national plans and supported/monitored accordingly.

The United Nations found, in its recent compliance audit, how the Philippine policies are still geared towards charity and medical "solutions" to disability. The Philippine government looks to future disability laws and policies, anchored on social- and rights-based premises. The government is dedicated to shifting from simply giving “needs” to honoring human rights — using their regulatory mandate to break down environmental, communications, organizational and attitudinal barriers.

The summit called for the adoption of the PANTHER principle in rights-based disability advocacy — Participation, Accountability, Non-Discrimination, Transparency, Human Dignity, Empowerment, and Rule of Law.

To reinforce the commitment to uplifting the rights of persons with disabilities, the government further committed 1) to address challenges on resource availability; 2) to review and improve laws and policies to be responsive to the needs of persons with disabilities; 3) to care for persons with disabilities and their families, consistent with the Philippine culture; and 4) to pursue initiatives on health, education, housing, environment, consistent in the context of disability rights.

NCDA dove into the difference between, segregation (separating by disability), integration (grouping without supports) and inclusion (grouping with appropriate supports) — with inclusion being the aspiration.

Clear is the government’s call for transformation towards “Nothing about us, without us”. The ASP has heeded this call and in 2018, supported the creation of the ASP Self-Advocates Circle towards nurturing a new generation of leaders and facilitate their participation at the national and international stage.

The DSWD reported that the latest National Disability Survey resulted in a 12 percent population disability rate. We look forward to the clear data, showing the inclusion of persons with non-apparent disabilities in these numbers. The full dis-aggregated statistical report will be available later this year.

Ms. Mona Veluz with Sec. Rolando Joselito Bautista

This event is a laudable step towards holding government to account on implementing existing disability laws. Glaring was the lack of consideration for the needs of those with developmental disabilities. Noteworthy was the collaborative spirit of USec Nonoy Catura of the Presidential Human Rights Committee who encouraged the private sector to help government fill the gaps.

Autism-OK Philippines? Not yet; but we are getting there.

The Philippine Accessibility Summit ran from 24-25 July 2019 at the Heritage Hotel in Manila. Watch the summit as it unfolded here.

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Posted in: conference,disability

Searching for an outstanding young self-advocate with autism

The Council for the Welfare of Children (CWC) in partnership with UNICEF-Philippines will be conducting the 3rd Philippine National Children’s Conference (PNCC) on 17-20 May 2016 in Metro Manila. The PNCC is expected to be participated in by children aged 10-17 and serves as a venue for children to have an appreciation of current and emerging issues affecting them. The PNCC is also a platform for children’s consultation on how they can be actively engaged by government in addressing the issues identified. As in the past, CWC ensures that the PNCC is facilitated by CWC trained children facilitators.

In addition, the conduct of the 3rd PNCC is an in-country process for the Philippines’ participation to the Fourth ASEAN Children’s Forum (ACF) to be hosted by Vietnam on 19-24 June 2016. The Philippines’ children delegates to the ACF will be selected from among the participants of the PNCC.

All travel and accommodation costs for the child and the companion for both events will be shouldered by the Philippine government.

The Autism Society Philippines is in search of a bright young self-advocate with autism who is between 10-17 years old, visible and engaged in ASP or in other community groups, knowledgeable on children’s issues in the community & children with autism, and can articulate ideas and opinions. A parent or family member must be an ASP member in good standing.

Parents should send an email to autismphils@gmail.com with the subject "PHILIPPINE NATIONAL CHILDREN'S CONFERENCE | Name of Child" the following details BEFORE MAY 11:

1) child's name and birthday
2) parent's name and contact number
3) why the child would make a good representative for Filipino children with autism.

Photo credit: PETA

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Posted in: children,conference,government

Autism Society Philippines joins 1st Earthquake Resilience Conference

Persons with Disabilities (PWDs) and Senior Citizens, like everyone else in the affected populace, struggle through in times of natural disasters as earthquakes and typhoons. These two sectors are particularly vulnerable to the calamitous effects of the crises given the physical and/or mental limitations in their conditions, and the lack of plans and programs for PWDs and the elderly on how to best prepare for and deal with such calamities.

Participants attending 1st Earthquake Resilience Conference including PWDs and Senior Citizens

A symposium to present and discuss the issue was held last 29 June 2015 at the SMX Convention Center at the Mall of Asia Complex, Pasay City. Under the auspices of SM Cares in partnership with DOS-PHILVOLCS, NDRRMC and MMDA, the half-day event was called “Earthquake Resilience Conference – 1st Earthquake Conference for Persons with Disabilities” which featured subject matter experts and attendees from Senior Citizen and PWD groups from around Metro Manila. The ASP participants consisted of PWAs, chapter leaders, parents, siblings and service providers.

Resource speakers included PHIVOLCS Director Dr. Renato Solidum, Jr., Architect Jaime Silva of the United Architects of the Philippines, Mr. Mark Padil, a Behavioral Specialist from the Autism Society Philippines and Mr. Johnny Yu, Director of the Manila Disaster Risk Reduction and Management Council. Their highly informative presentations expounded on the nature and hazards/risks involved during earthquakes, as well as recommended course of actions our PWDs and senior citizens can do during such eventualities. Mark Padil for his part detailed on Persons with Autism (PWA) specific behaviors and practical response options for emergency assistance workers tending to PWAs.

The conference included an open forum session where a number of senior citizens and PWDs were able to ask questions. A small section in the venue displayed Personal Protective Equipment (PPEs) and paraphernalia recently acquired by the city of Manila for its Disaster Risk Reduction and Management Council unit. Towards the conference close, all participants received emergency preparedness tokens courtesy of SM Cares Foundation consisting of an information card, whistle and small flashlight.

One brief video presentation during the event, the March 2011 earthquake and tsunami that struck Japan, emphasized on the need for PWDs’ inclusion in the overall disaster risk management plan and program of every community. Bringing this forward by way of this earthquake resilience conference is one major positive step toward this end.

This article is a contribution from Mr. Al Peña -- the “First Gentleman” to ASP’s immediate past president Jan Peña.

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Posted in: conference,disaster,sm

Philippine Pediatric Society Simultaneous Symposium

During the third day of the Philippine Pediatric Society Annual Convention 2015 on April 22, the organizers reserved a slot for a topic on developmental pediatrics. I guess this is one way to keep participants come to the very last day and not go to a tempting R and R during convention. Much more exciting is a "makabagbag damdamin" presentation cum personal sharing of a mother. The mother added flavor and spice to the lectures of two reputable developmental pediatricians in the persons of Dr. Rita de Guzman and Dr. Mimi Avancena. Their topics were on optimizing developmental health focusing on importance of language. As an attendee of this symposium I got refreshed from their lectures. But hey, that's the cognitive part.

The Participants of the Philippine Pediatric Society Symposium

Let me go back to the mother. She expounded on her journey as a parent to a noncommunicative autistic adolescent child of hers. She was emotional. Of course who would not? Getting the best speech therapist in the country for her dream to let Gio, her son, talk. It takes an affect to be inspired, a heart to be rekindled, and a mind to have the will for pediatricians and colleagues to be A-Ok. This mother is Dang Uy-Koe, an avid advocate, a passionate leader for ASP, a dear classmate of my husband and now my precious kumare in both inaanak and advocacies.

After leaving the symposium attendees didn't want to vacate their chairs. We were awed. We were struck. We were moved to do something. Why is there no clinic and hospital advocating for special children's privileges? The malls had their sensitivity trainings. The airlines had theirs as well. How about the hospital and clinic staff attending to our special children? Our patients have their own journey when they have their EEGs done or even a simple blood extraction when they get sick. Now is the time for our institutions to be A-Ok. Ask any Autism Society Philippines advocate. They will show us the way.

About the author: Edna Sarah Clemente-Morada, MD, FPPS, MHPEd. An ambulatory pediatrician practicing at The Medical City. She is Chair of the Medical Training Office, The Medical City."

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Posted in: conference,doctor,language,pediatrician,speech

An ASP Advocate at the Pre-Summit on Children

As an active self-advocate representing Autism Society Philippines and my home chapter of ASP-Laguna, I attended the Pre-Summit on Children last 25 October 2014 at the Council for the Welfare of Children office in Barangay Santa Teresita, Quezon City.

Ian Lopez speaking in Pre-Summit on Children

I participated in the said event, along with other children and youth coming from different parts of the country, as they tackle and discuss issues involving Filipino children in preparation for the Summit on Children, to be held sometime in the first quarter of 2015. I was accompanied by Ms. Catherine Lopez, mentor and ASP-Laguna Chapter president.

During the Pre-Summit, I talked about my experience in the first ASEAN Children's Forum (ACF), which was held in October 2010 at Fontana Leisure Park in Clark Freeport, Pampanga. Moreover, I represented the Philippines together with two other delegates in the presentation of the ACF report in the ASEAN Ministerial Meeting on Social Welfare and Development in Brunei Darussalam in November 2010.

Another participant talked about her experience as a delegate in the 2012 Philippine National Children's Conference, which was held at Lancaster Hotel in Mandaluyong City.

Some of the issues I raised in the pre-conference were:

* Family - The changing face of the family (single-parent households, OFW parents, same-sex couples having adopted children)

* Citizenship and governance - Freedom of information or full disclosure and the nanny state (the term he used for a large institution like the government, non-government sector, corporate sector dominating over policies involving personal choice).

* Media platforms - Doxing (a “practice of investigating and revealing one’s personally identifiable information without consent”), corruption in campus journalism and among youth bloggers.

* Climate change - A comprehensive landuse program for all Local Government Units to determine areas at risk (earthquakes, lava flow, typhoons, etc.)

* Other concerns - Malnutrition among children and the youth, children beggars/mendicants and children with disabilities and how they can cope with daily challenges plus their transition to adulthood.

The best part of the pre-conference is that the participants raised valid concerns that affect
children and the youth while simultaneously offering solutions for it. The participants are
confident that they can make an impact on Filipino children and the youth and they are hoping
that those issues will be raised in the third Summit for Children next year.

On my part, I am hoping that some, if not all, of the issues tackled will be raised among
critical decision-makers in the country: from school administrators to the barangay
leaders to city and municipal mayors to provincial governors to legislators to cabinet
heads to eventually the head of state. I am hoping that their decisions will positively affect
Filipino children and the youth, especially Filipino children and young persons with disabilities.

About the contributor: Ian Ferdinand Lopez is a scholar of the provincial government of Laguna, studying BA Sociology at the University of the Philippines Los Baños. Diagnosed with autism when he was three years old, he benefitted from the care of loving parents and early intervention professionals; and was successfully mainstreamed from pre-school up to high school. His started his advocacy as part of the Autism Resource Center and represented the PWD sector in the Philippine National Children’s Conference, the PWD Empowerment Seminar, the ASEAN Children’s Forum and the ASEAN Ministerial Meeting on Social Welfare and Development (AMMSWD).

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Posted in: children,conference

Development and Management of Comprehensive Programs for PWDs

The Autism Society Philippines was a participant at the “Training the Trainers on the Development and Management of Comprehensive Programs for PWDs in the ASEAN Region” conference held from 28 to 30 October 2014. The society was represented by Maria Joyla N. Ofrecia, M.A. SPED (President, ASP CSFP Chapter) and Anawi Tolentino, M.D. (President, ASP Hagonoy Chapter).

This event is Phase 2 of the project “ASEAN Conference on Program Evaluation for Persons with Disabilities” which was proposed and endorsed during the 5th ASEAN Senior Officials Meeting on Social Welfare and Development (SOMSWD) last December 2008 in Manila, Philippines and has a funding support from Japan ASEAN Integration Fund (JAIF). It has 3 Phases: Phase 1 was the ASEAN Planning Conference held last April 2014, and the third phase is the Terminal Impact Evaluation to be held on 2015.

ASEAN People with Ms. Joyla Ofrecia

The conference aimed to develop the capacity of the government to implement sufficient and quality comprehensive programs for PWDs through a technical cooperation among ASEAN Member States (AMS) on best practices on the implementation of comprehensive programs for PWDs on the following areas: Advocacy, Resource Mobilization, Institutional Development and Legislations and Policies.

The three-day conference was attended by 3 to 4 delegates from the 8 AMS namely Brunei Darussalam, Cambodia, Indonesia, Malaysia, Myanmar, Philippines, Thailand and Vietnam. The delegates represent the government agencies, Disabled People’s Organizations (DPOs), and NGOs. Each of the member states presented the existing programs and services for PWDs their country has developed and implemented. Included in their presentations are the identified issues and concerns pertaining to the quality and sufficiency of the programs and services for PWDs in their respective countries.

The Philippine Report was delivered by the acting Executive Director of the National Council on Disability Affairs (NCDA) Ms. Carmen Zubiaga. It is good to note that there is an increasing opportunities for PWDs in the Philippines to actively participate and advocate for themselves in the economic and social life. This happens through the formation and empowerment of the federations of PWDs; and with the adaptation of Community Based Rehabilitation as a strategy for rehabilitation, poverty reduction, and equal access to basic services and inclusion of PWDs and their families in rehabilitation.

All the 8 AMS have presented statistical data of PWDs according to different types of disability but were evaluated to have limited reliability and credibility and are not internationally comparable. One factor to the comparability of data is the absence of a standard definition of disability (i.e. country specific and ASEAN level). To address this issue it was advised that there must be a standard definition of disability and the different types of disability to ensure a common understanding of disability across the ASEAN Region.

The member states affirmed the presence of policies that protect the rights and welfare of PWDs and the existence of a variety of programs and services for PWDs in their country. All provides skills training for employment for PWDs. Each also implements Community-Based Rehabilitation Programs with different focus. The Philippines, Thailand and Cambodia have programs on organizational development and management of Disabled People’s Organization (DPOs). And the Philippines and Thailand strengthens these DPOs through leadership training.

For the Philippines, the ASP's Early Detection and Early Intervention Program of Autism was mentioned as one of the programs to achieve goal number 5 of the Incheon Strategy. DSWD spoke about EDPID (Early Detection, Prevention and Intervention of Disability), which according to Director Margarita Sampang (Bureau Director- Protective Services Bureau, DSWD) can include ASP's EDIP for Autism since their program is not addressing this particular condition.

Some of the issues raised were (a) limited understanding of government (especially local government officials) and other stakeholders on the social perspective in looking at PWDs (b) limited knowledge on legal frameworks that governs PWDs; (c) limited capacity of agencies and stakeholders in undertaking research on PWDs, managing and consolidating DPOs for advocacy work and resource mobilization (d) government’s limited fund support for PWD programs; (e) lack of a national government council to monitor and evaluate PWD programs as in the case of Indonesia; and (f) absence of monitoring and evaluation instrument to evaluate PWD programs.

Another concern raised is the limited, if not lack of, programs and services for children with disabilities (CWDs), more so for those with non-apparent conditions. This is true for almost all the AMS who are present in the conference. Among the delegates only Malaysia was able to present a significant number on children with disability under the category Learning Disability which has their highest number of PWDs - and all are in school since the government runs 98% of the school system and only 2% are privately owned.

Common hindrance to successful implementation of policies, programs and services among the different states is the lack of funds and the need to further educate the people about persons with disability.

To achieve the full realization of the rights of PWDs and to implement the Incheon Strategy in the Asia and the Pacific Decade of PWDs (2013-2022) the United Nations Economic and Social Commission for Asia and the Pacific (UNESCAP-Secretariat) is promoting the ratification of the UNCRPD. Among all the AMS, it is only Brunei and Vietnam who are still in the process of ratifying the UNCRPD. ESCAP”s mandate is to foster cooperation among its 53 members and 9 associate members and it provides support towards an Inclusive, Barrier- free and Rights - based Society for Persons with Disability in Asia and the Pacific.

Have we not entered the door of this rare opportunity we would not be able to share these information. It was indeed an overwhelming privilege to represent the Autism Society Philippines and to be among the four delegates of the Philippines. Being young in this field of advocacy, this is a much welcome learning opportunity. And we certainly have learned and understood a lot of new things which enhanced our capacity to serve the disability sector.

About the contributors: Joy Ofrecia is a mother of two, her eldest Juris has autism & Patricia, and a wife to a government employee, Pablito. She has been a hands-on mother and has been implementing home intervention programs along with other school/center-based interventions for her own son since his diagnosis in 2001. She has earned her Master’s Degree in Special Education from Angeles University Foundation. She teaches children with autism and conducts training to parents and professionals and orientations to different organizations and institutions on autism. She serves as one of the National Trustees of Autism Society Philippines and Program Director of Noah Autism Resource Center. Teacher Joy finds her fulfillment in her role as an advocate of autism and an instrument to empower parents of children with disabilities. Her passion in what she does is fueled by the firm belief that it is a purpose that God planned for her life.

Dr. Anawi A. Tolentino is the Chapter President of ASP Hagonoy, a practicing physician in the field of internal medicine and a hands on Mom to her 18 year old son – Jandell. She is also the administrator of the Supportive Parents of Hagonoy Children with Disability (SPHC) Center whose programs are centered on parent empowerment and providing learning opportunities for CWD.

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Posted in: conference,edeip,international

The CBR Congress in the eyes of an ASP Leader

The three-day CBR Congress held on September 30 to October 2 of this year was very much anticipated on my part -- first because of the opportunities it brings in renewing and establishing networks with other advocates and volunteers working with the disability sector; and second, it is the best venue to fully comprehend what Community Based Rehabilitation is all about.

On Day 1, we heard Ms Carmen Zubiaga, the acting Executive Director of the National Council on Disability Affairs, welcoming the more than 300 participants from all over the country to the Second Philippine CBR Congress, whose theme is “CBR: Key to inclusive development in communities.” Proclamation 688 declared the Philippine Decade of Making Rights Real for PWDs – and the NCDA has led the formulation of the Decade Plan of Action in coordination with the national government agencies, the NGOs, and the DPOs.

The speakers emphasized the importance of CBR, which is also one of our legislative agenda in ASP. Clearly CBR is the practical strategy towards empowerment and inclusive development, where all people and every member of the community is respectful of the rights of our PWDs.

According to the World Health Organization, community-based rehabilitation (CBR) focuses on enhancing the quality of life for people with disabilities and their families; meeting basic needs; and ensuring inclusion and participation. It is a multi-sectoral strategy that empowers persons with disabilities to access and benefit from education, employment, health and social services. CBR is implemented through the combined efforts of people with disabilities, their families and communities, and relevant government and non-government health, education, vocational, social and other services.

• Relies on community resources
• Emphasizes direct participation of PWD in planning and implementation of actions affecting them
• Highlights the needs for increased collaboration of service providers and involvement of the local politicians
• Promotes identification and referral of people with disability to improve their access to services and participation
• Aims to promote greater participation of PWD in a given territory
• Originated from local development rather than rehabilitation
• Embedded in decentralization system and pays particular importance to the processes of good local governance and inclusive community management

From the keynote message of the Undersecretary of DSWD Ms. Patricia Paraji: the bottomline is to guarantee equitability; the rights of one apply to all, opportunities given to one is enjoyed by all. CBR is inclusive development and while numerous challenges lay ahead, we must work together to ensure inclusivity, where everyone is accepted. Each one has a role to play and a hand to make it work. The CBR Framework is a life changing structure for the growth and development of every member of the community and we must all contribute to its development. The World Disability Report states that people with disabilities are marginalized in many aspects of societies.

• They have generally poorer health, lower education achievement, fewer economic opportunities and higher rates of poverty than people without disability.
• They are more likely to experience greater social isolation and decreased participation in community life.
• They must overcome greater barriers to access services in low income countries.

The global situation now is that 15% of the world population experience disability which is approximately 1 in 7 people. An empowered sector is the foundation of any CBR program. It is implemented through combined efforts of PWDs, their families, their communities, the different organizations and relevant government agencies on health, education, social and livelihood services.

CBR as a strategy must be focused in enhancing the quality of life of PWDs and their families; it is about meeting the basic needs and ensuring inclusion in local communities and improving access to services. With CBR, the PWDs and their family members are leaders in decision making processes. This brings about change in culture and practices, removing the stigma and prejudices that would lead to a deeper understanding of how disability can affect human lives. If it does not empower, it is not CBR.

The last day of the congress was for the election and formation of the CBR Network AdHoc Committee – 13 members for the Interim Board who will work for the immediate future direction of the Philippine Community Based Disability Inclusive Development Network. Coming from the different DPOs and organizations to represent the different regions of our country, one of our very own – Ms Marivic Ramos of ASP Laguna Chapter was elected Board Member as the parent representative of Luzon; the other parent being Ms. Marjorie Gimeno of Parent Mobilization Action Group (PMAG) for the Visayas / Mindanao area.

ASP Officers in CBR Congress

The decade for the rights-based, barrier-free, inclusive society started in 2013 will end on 2022 - and the ASP has always been in the forefront and steadfast in advocating for the basic principle of equality for the autism community….. as the song goes – We are on the right track.

About the contributor: Dr. Anawi A. Tolentino is the Chapter President of ASP Hagonoy, a practicing physician in the field of internal medicine and a hands on Mom to her 18-year old son – Jandell. She is also the administrator of the Supportive Parents of Hagonoy Children with Disability (SPHC) Center whose programs are centered on parent empowerment and providing learning opportunities for CWD.

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Posted in: cbr,chapters,conference,government,leaders

Seminar on Access to Justice for PWAs held in Cebu

The Department of Justice and the National Council on Disability Affairs conducted a two-day seminar entitled, “Disability Awareness and Sensitivity Workshop on Access to Justice for Persons with Disabilities” on 4-5 September 2014 in Cebu City. The participants included prosecutors, lawyers from the Public Attorneys’ Office in Central Visayas, representatives from the different groups of Persons with disabilities and other government agencies.

Seminar on Access to Justice for PWAs group

The workshop was an orientation on the nature and characteristics of the different types of disabilities and how to assist PWAS, as discussed by experts. The Autism Society Philippines’ very own Chairman Emeritus, Ms. Dang Koe, engaged the participants on the topic, “Assisting persons with learning and cognitive impairment.”

As a mother attending this seminar, it made me realize that recognition of the rights of our special children and assurance for an effective access to justice on equal basis with others is possible for our children.

As an advocate participating in this seminar, we should support the Department of Justice in the conduct of seminars, trainings, orientation for both service providers in the government and private sector especially on the nature, sign and symptoms of Autism and its management. These orientations will be included as a subject in the Mandatory Continuing Legal Education (MCLE).

As an ASP Chapter member and leader attending this workshop, we should involve civil society organizations, Non-Government Organization and Local Government in our ASP Activities such as Autism Week, Angels Walk, Colors of a Spectrum, World Autism Day and seminars to increase Autism Advocacy and ensure provisions of support services.

For participants, it was two days of knowledge enrichment and attitude enhancement on the perceptions towards persons with disability. The main take-away is that “all persons have equal rights before and under the law and are entitled without discrimination to the equal protection and equal benefit of the law”.

About the Contributor: Sandra Espina served as the ASP Cebu Chapter President from 2009 to 2014 and is currently the chapter's adviser. She is the Managing Director of Ivory Properties. Sandra and her spouse Joseph, Rotary District 3860 Governor, are parents to three boys. Zach, their youngest, is on the spectrum.

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Posted in: conference,government,law,regional

The 3rd Good Autism Practice Conference

The Center for Autism and Related Disorders, Inc. – Professionals for Autism Foundation, Inc. -- a long-time ASP institutional member and supporter -- conducted a conference entitled “The 3rd Good Autism Practice Conference” last 29 June 2014 at Unilab Bayanihan Center in Mandaluyong City. This conference was attended by a multitude of professionals and parents -- including ASP members and leaders, led by Ms. Jan Peña, ASP National President.

3rd Good Autism Practice Conference group

On-hand were respected speakers like Dr. Alexis Reyes, Lady Suarez, Mae Catherine Sadicon, Sunny Velasco, Juan Rapadas, Cecilia Sicam, Ma.Teresa Villanueva and Rita Grace Villadolid.

A participant shares, “It's nice to attend such seminar. It was like a family support group, especially if parents who have PWA kids share their experiences. It gives us hope, strength and will make us a better parents. The event gave us perspectives of autism which will help us understand and appreciate our child with autism.”

About the author: Imee Alviso is a full time housewife, sometimes a mother and father because my husband works abroad as a website designer for 15 years now but he comes home monthly. An operating room nurse at Saint Lukes before but resigned because of my children. Family is my priority. I drive, tutor and sometimes give therapy to my bunso, sing, dance, plays guitar, plays badminton & swim with my 3 kids. And now wearing green at ASP! Member of ASP for almost 12 yrs now. I used to be the treasurer of ASP Metrosouth and now my first time to be a President of Asp Paranaque. It’s hard to start but very challenging. One way of serving God. I can give a little of my time, talent & treasure to all my organizations! My favorite bible verse is Isaiah 41:10 Do not fear for I am with you!

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Posted in: CARD,chapters,community,conference

The Third Good Autism Practice Conference

The Center for Autism and Related Disorders, Inc. – Professionals for Autism Foundation, Inc. (CARD, Phils. PAFI) will be having a one-day enablement entitled “The 3rd Good Autism Practice (GAP 3) Conference” on 29 June 2014, Sunday, 8am to 5pm, at UNILAB Bayanihan Center, Pioneer Street, Mandaluyong City.

The speakers include Dr. Alexis Reyes (Developmental Pediatrician), Dr. Juan Rapadas (Clinical Psychologist), Ms. Mae Sadicon (Speech-Language Pathologist), Ms. Lady Suarez (Occupational Therapist), Ms. Sunny Escareal-Velasco (Academics and Programs Director, CARD, Phils-PAFI), Ms. Cecile Sicam (Directress, Bridges Foundation, Inc.) and Ms. Matec Villanueva (Chief Executive Officers, Publicis Manila)

REGISTRATION DETAILS:

Foreign Participants
Early Bird Fee - $ 100.00
(until June 10, 2014)

Regular Fee - $ 150.00

Local Participants
Early Bird Fee - Php 2,500
(until June 10, 2014)

Regular Fee - Php 3,000

Registration fees include conference kit, certificate of attendance and lunch. For more details please visit CARD, Phils. –PAFI.

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Posted in: conference,partners

ASP represents the Philippines in ISAM 2014

The Prime Minister of Malaysia, Honorable Dato Sri Mohammad Najib Tun Haji Abdul Razak, personally welcomed almost 1800 participants of the International Seminar on Autism, Malaysia 2014 in Putra Jaya International Convention Center (PICC) in Malaysia last 22-23 April 2014. The delegates comprised of six First Ladies, 200 international delegates from 35 nations, and more than 1,000 local delegates representing various sectors of society -- mainly parents, educators, professionals and advocates.

The Honorable Prime Minister shares his hope that the seminar raises awareness on autism and inspires citizens of the world to formulate action within their communities. By sharing Malaysia’s local expertise on autism with regional neighbors and global counterpart, he hopes the lives of children with autism and their families throughout the world will improve. He also believes that compassion and consideration alone are not enough to address the situation. Action is needed to tackle the issues faced by children with autism and their families.

Her Excellency Datin Sri Rosmah Mansour, wife of the Prime Minister and the patron of ISOM, collaborated with PERMATA, Autism Speaks, and University of Kebangsaan Malaysia to organize the conference with the support of the Ministry of Women, Family and Community Development and the Ministry of Education. She believes that the seminar is timely because the sheer magnitude of ignorance towards autism is alarming and failing to understand the disorder will result into tragic consequences. Failing to act on the disorder will bring about lingering effects not only to the children with autism but to their families and the community.

Gala Dinner hosted by the First Lady at the Official Residence of the Prime Minister. ASP delegates in their National costume -- (standing, L-R) standing, Rita Managbanag, Joy Ofrecia, Joy Capada, Trustee Cecil Sicam, Trustee Gina Bermudo, My Sorongon, (seated, L-R) Teena Derequito, Khun Samreng from Thailand, and Mayette Tan.

The two-day seminar was packed with topics that addressed the current concerns and issues surrounding Autism Spectrum Disorder. Invited speakers are leading authorities in their fields. The Diagnostic and Statistics Manual of Mental Disorders V (DSM V) was thoroughly discussed and integrated into the seminar for the participants to fully understand the changes, which affects the definition, diagnosis and intervention of autism.

After the welcome speeches, the seminar opened with Voices of the First Ladies; a special session where the First Ladies of Bangladesh, Morocco, Albania, Sudan, Sri Lanka and Kyrgyzstan presented a short report about the current situation of autism in their respective countries and the actions being taken to improve the existing condition. Arabic and Russian interpreters were present to aide the non-English speaking participants. The conference was divided into Plenary and Concurrent Sessions to give the participants the chance to choose a topic relevant to their needs or field of interest.

Part of the conference is a panel discussion with representatives from the Ministry of Education of five different Asian countries. Officials from Malaysia, Singapore, Thailand and Brunei discussed the Different Approaches to Schooling Practice for children with ASD in their respective countries.

The plenary topics included “Epidemiology of Autism Spectrum Disorders” by Associate Professor Dr. Young Shin Kim of Child Study Center, Yale University where she presented a study that showed the effects of different studies in determining the prevalence of Autism Spectrum Disorder and the effects of DSM V in diagnosing the disorder.

Dr. Andy Shih, VP of Scientific Affairs of Autism Speaks discussed an ongoing research that covers a whole genome sequencing advances in autism diagnosis and personalized care including a comprehensive characterization of the genetic architecture of autism in this talk entitled “State of Autism: From Laboratory to Community – Perspective on Recent Advances in Autism Research and Future Directions.” Dr. Shih emphasized that the research is not a diagnostic tool but aids in detecting a clinically relevant variants in ASD.

There were three concurrent sessions with vast array of equally interesting topics ranging from services, therapy and medical to hopefully enlighten the participants in understanding the disorder that will help them navigate the complex labyrinth of the disorder. The seminar was also used as a venue to announce the Malaysian government’s initiative to put up the first one-stop center called PERMATA Kurnia to address the issues on autism in Malaysia. PERMATA Kurnia would provide early intervention and early childhood special education to children ages 6 to 12 and will be operational in 2015.

Autism Society Philippines was represented by ASP Vice-President Cecil Sicam, Trustee Gina L. Bermudo, ASP Ormoc 1 Chapter President Henrietta Managbanag, ASP San Fernando Chapter President Joyla Ofrecia, ASP Lagro Chapter President Marieta Tan, ASP members My Sorongon (National), Joy Capada (Iloilo) and Teena Marie Derequito. They were joined by Ranil Sorongon of APCD.

The collaboration and partnership of the different Asian countries, bringing to realization that “Autism is not a tragedy, Ignorance is,” will help us understand better what autism is and together we will move forward and make Asia an autism-friendly place for children in the spectrum.

This article is a contribution of Gina Luna-Bermudo, ASP National Trustee.<

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Posted in: community,conference,government,international,leaders

My First ASP Chapter Leader Conference

The first time I got an invitation to attend Autism Society Philippines 2014 Chapter Leader Conference, I had mixed feelings. I felt excited with the idea of meeting and learning from other leaders; and at the same time nervous not knowing what to expect. Yet, I just knew that this is something that I have to attend for the benefit of ASP Sta. Rosa Chapter and our children with autism (CWAs).

The two-day conference last 8-9 March 2014 at Eurotel Pedro Gil was in-depth enough for me to appreciate the work that we do and learn more about how to become a better advocate for our CWA’s. The organizers made sure that there is a balance in activities where participants can interact, share and learn.

I liked the workshops where I was grouped with seasoned leaders and relatively new chapters officers like me. It made me feel comfortable knowing that my current concerns such as finding funds, how to grow members and how to make meaningful activities are shared by other chapters too. I got lots of tips from my group members. The discussion on ASP’s policy agenda was very lively and the facilitator made sure that real life examples were given on how to better push for them given the opportunities as chapter leaders. The topics on communication and project management were focused on our needs as an organization. The very credible speakers made sure that such topics usually only found on corporate seminars were tailored to our needs; and I saw a lot of benefits in using these tools to professionalize our organization. I particularly enjoyed the role playing on communication where the organizers allowed the participants to apply what they have learned given real life scenarios. It was not only a learning experience but a fun-filled activity that showed real talents in acting among the Board of Trustees (BOT’s) and the participants as well!

Dr. Olive Medina, ASP Sta. Rosa President, preparing with her group for the role-playing exercise.

During our small breaks in the conference, I appreciated that the trustees are going around the table to make the effort to interact with the participants and made us feel comfortable. Suddenly, I do not feel like a “newbie” anymore. ASP is certainly more of a family where the support and camaraderie is strong.

As the conference is loaded with activities and information, there is a tendency for us to forget some of the details, but the organizers made sure that we went home fully armed not only by their promise to send all presentation materials but by giving us the ASP primer. In this way, we can easily share to the rest of the officers in our chapters. The primer is a very useful tool to make sure that the sixty eight (68) chapters are aligned and have one voice in making our advocacy real and clear to all stakeholders.

The 2014 Chapter Leaders Conference was a success for me -- not only because I became equipped with the tools needed to lead better -- but it made my heart burn with more passion to reach and help our CWA’s and their families. I am grateful to the Board of Trustees and ASP National officers and organizers for their perseverance in gathering the officers together. I still have a long way to go and much more to learn; but I am glad I took that first step in growing as a leader by attending the Chapter Leader Conference.
(This article is the contribution of Dr. Olive Medina, President of the ASP Sta. Rosa Chapter)

Here are other comments from other chapter leaders:

• “I learned a lot today. I've got something to share again with other people especially to the parents / educators who are very well concerned of what Autism is all about.”
• “The chance to be with the leaders and the trustees of ASP gives me clearer perspective on how to better influence our members to improve the chapter and the chapter’s activity.”
• “It is really amazing hearing all the information that will be on our chapter. Talagang brainy ang lahat ng speaker. In all the CLC is a fruitful event.”

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Posted in: clc,conference,leaders

ASP 3rd Regional Conference on Autism a success!

By Ranilo Sorongon, ASP Executive Director

The 3rd Regional Conference on Autism, with the theme “Making Sense of Autism, A Path to Hope, Possibilities and Solutions,” was a resounding success! Hosted by ASP Cagayan de Oro Chapter, the confab was attended by more than 200 participants, coming from the different parts of Visayas and Mindanao. The event took place at Maisie Van Vactor Auditorium, Pilgrim Christian College, Cagayan de Oro City, last 28-29 October 2011.

The participants of the 3rd Regional Conference on Autism

According to ASP Cagayan de Oro President, Angie Abellanosa, the conference recognizes the need to address the range of issues affecting families who have children with autism in the CDO region. The main focus of the conference, aims to make a real difference in the quality of life of each member of the family of the CWA; bringing together the expertise of doctors and interventionists, experiences of parents and even an individual on the spectrum.

In full support were the delegation from the National Office, headed the President Mary Grace Adviento, who was joined by Peng So (Vice President), Tiffany Tan (Secretary) with her husband and family, Evelyn Go (Treasurer), Gina Bermudo (Trustee) and Dang Koe (Chair Emeritus). Executive Director, Ranil Sorongon, came a day ahead to assist the chapter with the last minute preparations.

ASP National President Mary Grace Adviento during her inspirational message

Chapter representatives from as far as Rosales, Pangasinan; was represented by Teachers Fatima, Thea and Rhona; through the generosity of Mayor Ricardo Revita. Other representatives were Sandra Espina (Cebu-Chapter President), Beth Birondo (Davao City Chapter), Teacher Galda Galera (Dipolog City Chapter), Ms. Nida Wu (Dumaguete City Chapter), and Ini Vina Solizar- Otani (Gen. Santos City Chapter- President).

The conference opened with an instrumental rendition of the “The Prayer” led by members of the Pilgrim Christian College Band, Ms. Issay Abellanosa on flute and Orwille Mercado on violin. It was followed by a native rendition of the National Anthem, courtesy of the Rondalla Group of the same college.

Ms. Issay Abellanosa on flute and Orwille Mercado on violin in the instrumental rendition of the “The Prayer”

ASP Cagayan de Oro Chapter President, Ms. Angie Abellanosa, welcomed the participants followed by an inspirational message from ASP National President, Mary Grace Adviento. Former Congressman and current Misamis Oriental Governor Oscar Moreno gave the key note address. Gov. Moreno assured the chapter of his support to the chapter especially the “Early Detection and Intervention on Autism Project” of ASP.

Misamis Oriental Governor Oscar Moreno gave a inspirational message

The two day conference was an excellent opportunity for the participants to update their knowledge on autism and listen to parents of persons with autism; like Dang Koe (Chair Emeritus) on “Living with Autism in the Family: Live, Love and Laugh” and Ms. Riza Cansanay (Laguna Chapter President) on “Home Management Program.”

Persons with autism were also highlights of the event. JR Tan, a person with autism and self-advocate, also shared his personal journey having this condition. He is currently a 4th year college student taking up Bachelor of Science in Accounting. Another is a teen-age girl with autism, Hannah Estañol, who entertained the audience with wonderful song numbers in between lectures.

PWA Hannah Estañol

CDP home-grown speakers and developmental pediatricians, Dr. Cindy Llego and Annah Rebecca Doroja, and lectured on “Understanding Autism” and “Updates on Autism,” respectively. They were joined by their mentor, Dr. Stella Manalo, who spoke on “Sexuality and Autism” on the second day. Prior to her was Atty. Jerefe T. Bacang of the Commission on Human Rights-Region IX, who spoke on “Our Rights….Let’s Claim It! She focused on the UN Convention on the Rights of Persons with Disabilities and local laws like the RA 9442 and how it was being implemented in the region.

The other speakers coming from Manila, were led by Prof. Mercedes Adorio on “Inclusion of Students with Autism”, her former students from the University of the Philippines, Diliman Quezon City, Giselle Principe on “Social Skills”, Yolanda Bautista in “Jobs for Persons with Autism” and Rosalyn Sorongon on “Siblings’ Side of the Story”. They were joined by two professionals who are experts in their own field, Kathy Reyes, a speech therapist on “Speech, Language and Communication” and Lady Suarez, an occupational therapist on “Sensing Your Child Senses”.

The 200 participants composed of parents of persons with autism, professionals and students of special education and psychology; were especially elated to a 2-day jam-packed lecture series from speaker-experts. With a very affordable registration fee, inclusive of food and hand-outs, ASP is thankful to all the family, friends, volunteers, and sponsors, who made this event possible.

Congratulations to the ASP Cagayan de Oro Chapter, headed by Ms. Angie Abellanosa, and supporter-members, Ms. Elsa Lim, Ms. Evalyn Layug and Teacher Ellen. Special thanks to Pilgrim Christian College for hosting the event; and to Mr. Cris Abellanosa, and children, Issay, Carlo and Bogart for their wonderful patience, support and hospitality.

The conference in Cagayan de Oro completed the first round of ASP’s regional conferences started by Cavite Chapters in January 2010, followed by Cebu Chapter in October 2010. See you all in Baguio City for the 4th Regional Conference on Autism!

You can call or text ASP Cagayan de Oro City Chapter President Angie Abellanosa at 0906-126-0630 or 0932-157-5966.

Be an Angel for Autism. Donate generously to ASP Programs and Services. Donate to Autism Society Philippines Metrobank Kamias Branch 047-3-04751874-2. Email us at autismphils@gmail.com or call 7-903-5496.

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Posted in: 4parents,4public,cdo,chapters,conference

ASP’s Cebu Regional Conference spelled solidarity and success

The ASP 2nd Regional Conference on Autism proved to be a huge success, with more than 300 delegates attending. The conference was sponsored by ASP-Cebu Chapter and was held at SM City Cebu Trade Center Hall from October 23 -24, 2010. ASP-Cebu Chapter is headed by President Sandra Espina.

ASP Cebu Chapter Representatives together with President Sandra Espina (seated-right)

More than 300 attending delegates of ASP Cebu
2nd Regional Autism Conference at SM City Cebu Trade Hall

To show solidarity with the conference, ASP National led by President Grace Adviento flew to Cebu with her entourage: VP- Peng So, Trustees Cris Estampador, Gina Bermudo and Fredes Javier. They were joined by Executive Director Ranil Sorongon. ASP Chair Emeritus, Dang Koe and ASP-Auditor, Evert Malapad, were also there as guest speakers of Day Two of the said conference. Other representatives from the following chapters also came in to give support: Carmona, Tanza, Lagro, Dipolog City, General Santos City, Iloilo, Tacloban City, Cagayan de Oro City and Davao City.

ASP Chapter Leaders and ASP Board of Trustees with Teacher Anthony (seated-2nd from left)

ASP Chair Emeritus Dang Koe as Keynote Speaker during the 2nd Regional Autism Conference

It was a privilege to have Mayor Michael Rama of Cebu City, who came to give the opening message. Mr. Van Aberia of SM Cebu City, testified on “The Heart of SM,” SM Supermall’s Corporate Social Responsibility for people with disabilities. Mayor Jonas Cortez through his representative, gave an inspirational message.

Day 1 of the conference topics and speakers were the following

Experts from Manila: Mr. Lauro Purcil Jr, Chairman of National Committee on UN-Conventions – KAMPI, talked about the Rights and Privileges of Persons with Disabilities on his topic, “Discounts and More… Claim it! UNCRPD and RA 9442”, Prof. Mercedes Adorio, SpEd Professor from Phil. Women’s University: discussed the education of CWA’s in “Mainstreaming or Inclusion”, Prof. Abelardo Apollo I. David,Jr, MOccThy,OTRP, Executive Director of Independent Living, Learning Center (ILLC), shared valuable information on on-the-job training and hiring PWAs in the workplace in “Wanted: Jobs for PWAs.”

From the Pride of Cebu: Dr. Jacqueline J. Espina, Developmental Pediatrician, CIM, CDU: discussed the “Fact and Fiction:” of Autism, Dr. Barbra Charina V. Cavan, Pediatrician/Geneticist: talked about genetics with her topic “Your Gene or Mine?”, Dr. Glenda Basubas, Cebu PSH; lectured on “Seize Those Seizures” and Ms. Christianne Marie Andigan, MHlthSc, OTRP; made things clearer in “Sensing your Child’s Senses.”

Day 2 Conference, topics and speakers

Focusing on the importance of the family’s role in the lives of persons with autism, Cebu participants were peppered with seasoned speakers, Ms. Erlinda “Dang” Koe, (ASP Chair Emeritus), who inspired parents with her talk on , “Living with Autism in the Family: Live, Love and Laugh”, Mr. Evert Malapad, (ASP National’s Auditor and ASP- Metro-South Chapter President) empowered daddies with his side of the story in “Daddy’s Power” and Ms. Rosalyn Marie G. Sorongon, MA Sped, ASP EDEIP Trainer; enlightened parents by showing the “Sibling’s Side of the Story”.

Equally important are the roles of professionals. Dr. Renato Delos Santos a Neuro-Psychiatrist who flew in from Chicago, USA to discuss “Managing Severe Behavior/ Puberty – Adolescent Issues,” through medications. Dr. Myra Altonaga, Developmental Pediatrician; “Management of Autism,” Ms. Mae Sadicon, PASP; gave a lecture on “Language and Autism: A Spectrum of Possibilities and Choices,” Mr. Anthony Grecia, OTRP, MA Psychology, Program Director of Center for GOALS; demystified Autism through “Friends, Puppets, Shades and Games: Developing Social Inclusion and Mutual Friendship Between Children with ASD & Their Peers, Siblings and Classmates”.

ASP would like to thank ASP members, parents, professionals, volunteers, the hardworking staff, donors and supporters for the success of ASP’s 2nd Regional Autism Conference. Keep checking the blog for more updates and stories.

Take this opportunity to Be an Angel for Autism. Donate to ASP Programs and Services. Deposit in Banco de Oro Anonas-Kamias Branch- Savings Account No. 3980002955. Email us at autismphils@gmail.com or call 7-903-5496.

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Posted in: 4parents,4pros,cebu,conference

ASP Cebu Chapter 2nd Regional Autism Conference

"The Spinning Truth Behind the Spectrum"

Teaming Up with Families, Professionals and Society

Conference Proper

October 23-24, 2010, 8:00 am - 6:00 pm

SM City Cebu Trade Hall

Discounts and More... Claim it! UNCRPD and RA 9442
By Mr. Lauro Purcil Jr.

The UN Convention on the Rights of Persons with Disabilities (UNCRPD) is the latest UN Human Rights Instrument. It was the fastest human rights instrument approved by the UN General Assembly on December 13, 2006. Signed by the Philippine Government on Sept 25, 2007 and ratified on April 15, 2008. The lecture will tackle the salient principles of the convention and will focus more on the provisions that involve the rights of children with disabilities and the role of parents as representatives of their children. The second part will deal with the basics of RA 9442, the updates and the challenges it pose for persons with disabilities and parents of children with disability to truly claim the rights and privileges as provided by the said law. The speaker will also share his recent participation in the Conference of State Parties and some side events with the International Disability Alliance (IDA) during his latest representation in UN.

Mr. Lauro L. Purcil, Jr. is a person with multiple disabilities. He is blind with hearing and speech impairment. Mr. Purcil has a bachelor degree in English and a masters degree in Public Administration both from the University of the Philippines, Diliman, Quezon City. A living proof, that disability is not a hindrance to pursue higher education. He is currently connected with the Department of Education, Special Education Division as Special Education Program Specialist I. He is the Chairman of the National Committee on the UN Conventions of the Katipunan ng May Kapansanan sa Pilipinas (KAMPI). He was the official delegate of the Philippines to the Conference of State Parties and the Philippine candidate to the “International Committee of Experts” on the Convention on the Rights of Persons with Disabilities held on September 1-3, 2010 at the UN Headquarters, New York City, USA.

Ms. Jacqueline Jabonera - Espina, MD is a developmental pediatrician. She is also the current head of the Pediatrics Department at Chong Hua Hospital. Her professional career spans both academia and medical area. At present, she is an associate professor of the Pediatrics Department at Cebu Institute of Medicine and Cebu Doctors’ University. She was awarded the Fellow of the Philippine Society for Developmental Behavioral Pediatrics (2000) and the Fellow of the Philippine Pediatric Society (2002) from the University of the Philippines.

Ms. Barbra Charina V. Cavan, MD is a pediatrician and a geneticist. Currently, she is the assistant secretary of the Philippine Pediatric Society Cebu and Central Eastern Visayas Chapter and the Regional Coordinator of the Philippine Birth Defects Registry and Campaign for the Reduction of Deaths or Complications of Preterm Births Project, Institute of Human Genetics, UP-Manila. In 1999, she was the chief resident physician at Cebu Doctor’s Hospital. She is also a full time faculty of Cebu Doctors’ Hospital and Cebu Institute of Medicine. She has been affiliated with several hospitals both as an active and as a visiting staff in the pediatrics department. Dr. Cavan obtained her medical degree at UP Manila. Moreover, she was trained in genetics at Sydney Australia.

Sensing Your Child’s Senses
By Ms. Christianne Marie C. Andigan, MHlthSc, OTRP

A child eats pancit canton and only pancit canton for breakfast, lunch, and dinner. A grade schooler seems to be like a tornado—spinning, running around, and toppling down everything that gets in his way. A toddler throws a tantrum when having her teeth brushed, her nails cut, and her hair cut.

Do these behaviors seem familiar? They may point to a sensory processing disorder (SPD), which is the brain putting together sensations such as touch, sound, sight, smell, taste, body position, and movement in a different way. As a result, children with autism (and even typically developing children) affected with it may experience typical daily activities such as eating, dressing, playing, and handwriting as struggles rather than successes.

Family members, caregivers, and teachers are often at a loss as to where such behaviors are coming from. This talk will help you sense your child’s senses—understand how important sensations are in our daily lives and what happens when the brain does not process them well. More specifically, it will describe different types of SPD’s and how these interfere with children’s participation in the home, school, and community settings. It will also explain some behaviors in children with autism from a sensory processing perspective. Finally, participants will be given principles and practical strategies that they can employ at home and/or in school to help their children cope with the challenges of SPD’s.

Ms. Christianne Marie C. Andigan, MHlthSc, OTRP is currently the Program Coordinator and occupational therapist of Emmanuel Foundation for Children with Special Needs, Inc. in Iloilo City. Prior to moving there, she was assistant professor and chairperson of the Department of Occupational Therapy, College of Allied Medical Professions, University of the Philippines Manila. She also engages in private practice where she works with mostly children with developmental disabilities and their families. She has been a resource person for seminars related to the application of sensory integration and behavior management principles at home and in school. She completed her post - professional master’s degree in OT in the University of Sydney in 2004 and her bachelor’s degree in OT from UP Manila in 2000.

Dr. Mercedes Adorio obtained her Ph.D. in Educational Psychology & Educational Sociology in UP and has served as College Secretary (1992-1995) and as Faculty-in-Charge of the Special Education area of the Division of Curriculum and Instruction. She is often invited as resource person in national and regional school divisions and has presented papers in international conferences. She is the author of Special Education in the Philippines: Trends and Issues. Dr. Adorio was a former professor of Special Education of UP, Diliman. She is currently teaching SPED at the Philippine Women’s University.

Wanted: Jobs for PWA
By Prof. Abelardo Apollo I. David, Jr.

Essential principles and components of transition education and work training programs for youth with special needs will be discussed. Practical insights on how these programs can be implemented in educational settings will be provided. The work settings commonly considered for the differently-abled persons will be explained with emphasis on corresponding work placement procedures. Actual cases will be presented to illustrate the local applications of the theories discussed.

Prof. Abelardo Apollo I. David, Jr., MOccThy, OTRP is the Executive Director and founder of the Independent Living Learning Centre (ILLC) in Manila, Cebu and Davao. ILLC is recognized for its pioneering programs in transition education and work training of youth with special needs. Prof. David is a lecturer at the UP College of Allied Medical Professions. He obtained his Masters degree in Occupational Therapy from the University of Queensland, Australia, where he also served as a lecturer. Prof. David is the founder and President of the Rehabilitation and Empowerment of Adults and Children (REACH) Foundation, Inc., a non-government organization that aims to empower persons with disabilities residing in depressed communities. For his extension activities, Prof. David received the prestigious Apolinario Mabini Presidential Award in 2008. His consultancy projects with government and non-organizations earned recognitions such as the 2008 Grand Prize winner for the World Bank: Panibangong Paraan, a Competition for Innovative Ideas; and the Top 3 most innovative health programs given by the Department of Health in 2009.

Dr. Myra Altonaga is a Neurodevelopmental Pediatrician. A graduate in medicine at Cebu Institute of Medicine; had her pediatric residency at Cebu Doctors' University Hospital (CDUH); fellowship training in neurodevelopmental pediatri cs at PHILIPPINE CHILDREN'S MEDICAL CENTER (PCMC) in Quezon City, Manila. She is currently an associate staff of Cebu Doctors' University Hospital and practicing her specialty at JC Borromeo Bldg. (back of CDUH).

Language and Autism: A Spectrum of Possibilities and Choices
By Ms. Mae Sadicon

With the numerous and overwhelming concerns of individuals with Autism, it is imperative that key areas such as management, both short-term and long-term, be put into their proper perspectives. In "LANGUAGE AND AUTISM: A Spectrum of Possibilities and Choices", points of discussion will center on the language and communication problems that are common to people with Autism and how these affect virtually all aspects of their lives. Equal attention will likewise be placed on identifying good, realistic and effective autism practice in the Philippine setting.

Ms. Mae Sadicon is a BS Speech Pathology graduate of the UP Manila College of Allied Medical Professions (CAMP). Teacher Mae sees children with language and communication concerns for evaluation and therapy. She holds sessions at the SPEECH Clinic and also works at St. Luke’s Medical Center - Neurodevelopmental Center in Quezon City. She is also head of the Technical Panel for Speech Pathology Education in CHED.

Dr. Renato delos Santos received his BS in Biology from the University of San Carlos, Philippines where he graduated Cum Laude in addition to holding a degree in Medicine from the Cebu Institute of Medicine. He is currently serving as President of the medical staff at Alexian Brothers Behavioral Health Hospitals in Hoffman Estates, Illinois. Dr. De los Santos resides in Chicago and spends part of his time in the Philippines doing lectures and seminars to raise awareness of mental health.

Living with Autism in the Family: Live, Love and Laugh
By Ms. Erlinda U. Koe

It takes a KOEmmunity to raise a child with autism. It takes wisdom out of experience to learn from living with a child with autism.It takes love to embrace children with autism. It takes laughter to enjoy the ride and come out of it sane! Here’s a family’s journey of KOEping with autism. Learn, love and laugh with Mama Dang!

Ms. Erlinda U. Koe fondly known as Mama Dang, has been an indefatigable autism advocate. She served as ASP National President for an unprecedented 3 consecutive terms and continues the advocacy as the first appointed Chair Emeritus of the society. Her more than a decade of service to ASP is decorated with numerous accomplishments, including being accorded in 2009, The Outstanding Thomasian Alumni (TOTAL) Award for Humanitarian Service for her competence, commitment and compassion in leading Autism Society Philippines to share hopes & build dreams with at least half a million Filipino families dealing with autism. She juggles her time between her family, corporate training, and ASP–including provincial trips as a much sought-after seminar and conference speaker on autism; and writing Angels Talk in Manila Bulletin. In spite of which, she can still keep it together with humor, fair judgment and that rare mix of leadership qualities needed to hold a non-profit organization. Her eldest son, Gio, is now 16 years old, and she extends her advocacy throughout her entire family as they actively participate in ASP activities.

Friends, Puppets, Shades and Games: Developing Social Inclusion and Mutual Friendship Between Children with ASD and their Peers, Siblings and Classmates
By Mr. Anthony Grecia

This lecture will discuss and help participants understand the importance of peer play and friendships. It will also talk about the key features of the Friend to Friend model. Participants will also get to experience Autism Demystification (developed by F2F Social Learning Society and Heather McCracken) through a puppet show video. It will also discuss other activities (simulation game and story-telling) that can be done as part of demystification programs in school or community.

Mr. Anthony S. Grecia obtained his undergraduate degree in Occupational Therapy at UP-Manila. He is currently pursuing his doctorate in Clinical Psychology at Ateneo De Manila University. He is the Program Director of the branches of GOALS Inc. (Alabang, Caloocan, & Bonifacio Global City,). He has been U.S.- NBCOT certified (2006) and had training in Autism Demystification (at Vancouver, Canada). His 10 years of practice focused on program development (vocational, staff evaluation, social skills training, home/school visit) and clinical assessment & management of children, adolescents, and adults with Autism, Asperger, AD/HD, ODD, Learning Disabilities, Giftedness, Intellectual Disabilities, personality disorders, & Bipolar Disorder. He is also a lecturer at UP-CAMP, Manila. He was the former Chairman, Committee on Membership of OT Assoc. of the Philippines.

Sibling’s Side of the Story
By Ms. Rosalyn Marie Gison Sorongon

Parents often receive an outpouring of different forms of support upon the diagnosis of their child in order to help them accept, understand and deal with autism in their lives. Therefore, they also become, aside from their child with autism, the focal point of programs and services to address the varying needs brought about by autism. Unfortunately, there are other family members whose seem to be often left out. These are the other children or the siblings of the persons with autism (PWA). Much has been studied, read, seen and heard about the plight of the parent of PWA but little yet has been learned, discussed and dealt with the siblings. Unraveling the situation of the siblings of PWA conveys a message that they are seen as equally important as that of their parent in the world of autism. Knowing their issues and/or concern, needs and desires, and their aspirations in life in relation to their brother or sister with autism encourages widening of perspective in viewing and understanding the unique circumstances they are in. This knowledge can pave the way for creating a gamut of support services in addressing the needs of the siblings. As a result, this will invite, encourage and inspire them to heed the call of the Autism challenge within and hopefully, beyond their families.

Ms. Rosalyn Marie Gison Sorongon earned her BS Psychology degree from the Assumption College, Makati and Master’s Degree in Education Major in Special Education from the University of the Philippines, Diliman. Equipped with 15 years of experience in teaching students with autism and helping their families cope with and manage this condition, she regularly conducts orientations and lectures, and gives trainings to parents, caregivers, teachers and other professionals on autism. Ms. Sorongon or Teacher My, as she is more popularly known, also develops and oversees home and employment programs for persons with autism. A former School Director of the Center for Autism and Related Disorders (CARD) in Las Piñas City, Teacher My finds fulfillment in her new role as a regular facilitator of workshops for siblings of persons with autism as a result of her post graduate research entitled “The Concerns of Adult Siblings of Persons with Autism”.

Daddy’s Power
By Mr. Evert Malapad

Traditionally, mothers are the ones responsible for their children with disabilities while the fathers take on the role as breadwinners. But Ever Malapad and his wife Apple chose the road less travelled. Evert has taken upon himself the responsibility of taking care of Mae Mae, their daughter with autism for the past eight years. It has never been that easy yet the rewards have been immeasurable.

This talk shares Daddy Evert's journey from the moment his daughter was diagnosed with autism, his decision to forego his rising career as an Overseas Filipino Worker (OFW), his struggles and triumphs as a "daddy-teacher" and his advocacies in championing the cause of persons with autism and other disabilities.

Be inspired and encouraged as you listen to his unique story!

Mr. Evert L. Malapad is the current president of Autism Society Philippines - Metro South Chapter and a Trustee of ASP National Office. He earned a Bachelor of Science Degree in Industrial Technology. He is presently teaching adult program for individuals with special needs at Candent Learning Hauz in BF Homes Las Piñas City. Mr. Malapad is currently completing his Masters Degree Program in SPED and B S Secondary Education at the University of Perpetual Help – Las Piñas City. Evert is a father of a 16 year-old girl with autism.

Conference Registration Fees

Pre- Registration - until 30 Sept 2010
ASP Member - P 2, 000.00
Non-member - P 2,000.00
Students - P 1,000.00

On- Site Registration
ASP Member - P 2,500.00
Non-member - P 2,500.00
Students - P 1,500.00

Payment
Check or Cash Deposit
Account Name: Autism Society Philippines Inc.- Cebu Chapter
Bank: Banco de Oro
Branch: Gorodo Lahug Branch
SA Account No.: 609-0101-043

For any inquiries, please call the contact details below:
312 Juana Osmeña Ext. Cebu City
Tel # (032) 416-5505
Fax# (032) 416-5572
Email: socorro_deligero@yahoo.com

Autism Society Philippines and ASP Chapters work very hard for the future of children with autism and their families. We need your support. Take this opportunity to support and donate to ASP Cebu Chapter 2nd Regional Autism Conference.

The ASP Regional Conference Series serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are of their own and don’t necessarily reflect that of the views of the organization.

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Posted in: 4parents,4pros,cebu,conference

Autism Rights Angel, Atty. Leila De Lima, heads DOJ

Autism Rights Angel, Atty. Leila de Lima, former Commission on Human Rights (CHR) Chief, accepted last June 22, 2010, the new post assigned to her by President Benigno “Noynoy” Aquino III; to head the Department of Justice (DOJ).

During her stint at CHR Chief, De Lima was known for her determination to defend human rights. She joined thousands of thousands of angels during the Angels Walk for Autism. Click here to read related story.

She was also the Keynote Speaker during the Autism Beyond Borders Conference. Click here to read an excerpt of her speech.

Atty. Leila De Lima during the Autism Beyond Borders Conference

According to President Aquino, the justice secretary will be the face of the prosecution. And during his inaugural speech, he instructs the Secretary of Justice “You have your marching orders. Begin the process of providing true and complete justice for all.”

With our Autism Rights Angel heading the Department of Justice, violators have to start thinking twice about denying PWD rights.

ASP celebrates with the whole nation the NDPR week from July 17 to 23. Click here to read on the line-up of activities. Be informed. Be pro-active. Be an Angel for Autism. Tell others. Share Hope and Build Dreams. Log on to ASP Community Website or email us at autismphils@gmail.com or call 7-903-5496.

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Posted in: conference,ndprw

First PWA to attend National Conference on the UNCRPD

By: Tiffany Tan, ASP Board Secretary

ASP was invited to the KAMPI National Conference United Nations Convention on the Rights of Persons with Disabilities held at Great Eastern Hotel, Quezon City, on May 31 - June 1, 2010.

KAMPI People sharing messages regarding disabilities

The 2-day Conference was organized by Katipunan ng May Kapansanan sa Pilipinas, Inc. (KAMPI), a network of cross-disability organizations of self-help grassroots organizations of PWDs. KAMPI is a member of Disabled Peoples’ International.

The conference was attended by approximately 100 participant KAMPI members, PWD grass root organizations and other important stakeholders from private and national agencies; through the support of the World Bank group.

Participants during KAMPI National Conference

ASP was represented by Ranil Sorongon, ASP Executive Director, Tiffany Tan, ASP National Board Secretary, Ms. Jean Gonzales of ASP Mandaluyong Chapter, and JR Tan, person with autism. Click here to read his report.

The two day conference aimed to 1) Promote equal rights of persons with disabilities, and 2) Develop partnership between duty bearers and right claimers in the local setting.

Day 1 UNCRPD Articles Topics

Mr. Briccio Aguilar, KAMPI President gave the welcome remarks to the participants and introduced each Regional Representatives.

Ms. Venus M. Ilagan, Secretary General of Rehabilitation International gave the Keynote Address. She reported a very comprehensive over-view of UNCRPD. The UNCRPD is an international treaty that identifies the rights of persons with disabilities as well as the obligations on States parties to the Convention to promote, protect and ensure those rights.

The Philippines is a signatory to the UNCPD. Click here to know more of the UNCRPD.

Other speakers: Ms. Jocelyn Ignacio of the Department of Foreign Affairs spoke on the role of DPOs (acronym) and NGOs in the Implementation of UNCRPD (What and how can we contribute?); Dr. Renante Basas, Director Comission on Human Rights talked on the initiative of CHR in support of monitoring the implementation of UN CRPD in the Philippines.

In the afternoon, Mr. Rheybie Nipas, Deputy Program Director on Program on Disability Affairs of SM Supermalls spoke on SM Practices as Model for PWD Friendly Establishment. How we get there? And KAMPI representative spoke on the NHRAP (National Human Rights Action Plan) and the PWDS.

In between talks, there was an open forum to answer personal and regional concerns.

Day 2 Half-Day Workshop on PDAO Law

The workshop served as the network for PWDs, to give voice in pushing for the implementation of relevant programs and policies for the sector. It focused on the newly signed PDAO Law or the RA 1000-70.

On April 6, 2010, President Gloria Macapagal-Arroyo has signed into law establishing the institutional mechanism to ensure the implementation of programs and services for persons with disabilities.

Republic Act (RA) No. 10070, which is the consolidated version of Senate Bill No. 3560 and House Bill No. 1387, amended RA 7277 or the Magna Carta for Disabled Persons.

The law mandates the creation of Persons with Disability Affairs Office [PDAO] in every province, city and municipality with the local chief executive appointing a PWD affairs officer to manage and oversee the operations of the office.

The participants were grouped into NCR, Northern Luzon, Visayas, Mindanao. ASP and the Deaf Organizations had separate groups. After the workshop, each group was given the chance to report on their goals and how they intended to implement the PDAO in their own cities and municipalities.

Challenge to Leaders

Interim KAPMI officers and Regional Representatives took their oaths and signified to support one another for the PWD sector. Ms Ilagan, who facilitated the oath taking, reminded the KAMPI officers to be instrumental in achieving better lives for PWDs and to include younger PWD members.

“The children are our future,” said Ilagan. She also proposed the KAMPI officers to plan a Summer Camp for the PWDs for March next year, to train new PWD Youth Leaders for the future.

Acknowledgments: KAMPI, Sonia Rina Figueroa, KAMPI National Coordinator, ASP Volunteers Bing David and Teacher My Sorongon

ASP actively participates in policy making and advocacy programs that advance the welfare and rights of PWAs. We continue to work hard for the future of our children. Donate to ASP programs and services. How? Click here. You can also email us at autismphils@gmail.com or call us at 7-903-5496.

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Posted in: conference,self-advocates