The Autism Society Philippines (ASP) is a national, non-profit organization dedicated to the well-being of persons on the autism spectrum disorder. We envision a society where Filipinos on the spectrum become the best of their potentials -- self-reliant, independent, productive, socially-accepted citizens of an Autism-OK Philippines.
Showing posts with label cebu. Show all posts
Showing posts with label cebu. Show all posts

28 December 2020

A Call for Kindness: The Cebu Coffee Shop Incident

The Autism Society Philippines is saddened by yet another viral incident in Cebu, involving a family with a non-verbal child on the spectrum and an angered father at a popular coffee outlet.

The image shows a green background.
A Call for Kindness Cebu poster

The child's inability to sit still was seen by the man as a lapse in health safety protocols. His aggressive response against the child with autism; however, was shameful and unwarranted. The action taken by the coffee shop was also wanting.

The law is clear on the rights of and protections for persons with disabilities. The ASP will work with the DOJ, CHR, local government, businesses and the public to ensure this is upheld.

Kindness goes beyond being civil. It means actively choosing to be generous with a part of ourselves -- whether it is time, knowledge, finances, patience, or emotions -- so that those with less or are vulnerable can live with dignity.

Choose to be kind.

A sad Sunday

The video of the event was released on Facebook by Christina Dabao, big sister to Regur has been seen by thousands. Emotions were visibly high. Audible was the threat to throw a chair at the child with disabilities.

Ate Christina went on to give more details in another Facebook post:

Today my brother, Regur was discriminated for being a special child.

Every Sunday, our family goes out and have lunch and coffee to ease up a week of stress from school and work. (Which, by the way, we practice social distancing and use face masks and face shields) But today, unlike any other Sundays, ended up quite disappointing.

We went to Coffee Bean Tea Leaf, Taft East branch in Cebu City, the usual place we go to. Since we are collecting stamps for the tumbler and the planner. Me and my family are happily drinking our drinks and chatting about the venue for an upcoming family event. Regur, unlike any other days when he has tantrums or not in the mood, was in a good mood. He was just sitting at the edge of the table near the wall, facing my other brother Christger, playing with himself and the towel he uses as a toy. On the other table was another family, when suddenly the father (a big man) told us to stop Regur from doing what he was doing. (Which is playing the towel and drinking his drink), my mom and dad quickly apologized if Regur caused disturbance to him and his family. Informing him that Regur is a special child, and cannot fully understand and does not even talk. But instead of accepting my family’s apologies, he got mad and told us to discipline my brother for not behaving normally. Again, we apologized. But he did not stop there, he stood up and got really mad at us and wanted to smash Regur with a chair. Imagine the scenario of a big adult/old enough man, to understand the situation, acting in that way. Wanting to hurt my brother for playing his towel. (Regur did not even touch him, he was just annoyed that Regur wasn’t sitting still in his chair)

My family immediately stood up to make him understand that his actions are not necessary and that he is discriminating my brother just because he cannot talk and cannot understand like normal kids do. But instead of understanding the situation, he went towards my dad and told him “f*ck you”, for not disciplining my brother well. My dad quickly responded that “it is not our fault that Regur is a special child, that’s why we apologized for the disturbance he may have caused”. He still did not stop and went towards my brother carrying a chair and is about to smash it against him.

What’s more disappointing is that the staff from Coffee Bean told me and my family to stop and move towards the other table so that the commotion will end. We did not even hear any apologies from the staff for blaming it on us for not changing seats. The man kept repeating and shouting that we should go out and leave immediately. If that was about me, or on any of my family members, i have nothing against him. And would just understand that maybe he was in a bad mood. But he did it to my brother, a loving, smiling and happy kid who does not know what he did wrong and how the situation worsen. My family moved to another table far away from them, to not cause another commotion. The man’s wife apologized and his daughter on his behalf. But the man stared at us like we are nothing but trash to the society for having a kid with special needs. There was no remorse, not even guilt and it was us who kept apologizing despite all the threats and harassment he did to us.

I am mad and sad, on how these people can easily look down on kids with special needs. How easily for them to ask for convenience just because they were uncomfortable. How the staff reacted on the commotion and how little their knowledge on what these kids and their family goes through everyday. I am quite shock that there are still unkind people, people that would discriminate and belittle others just because they think they are right. Just because they are normal and others are not.

I just hope this does not happen to any other families. And if anyone sees a kid with special needs, they would not overreact but instead widen their perspective and understand that they are not the same as those who live normally.

Regur is okay, he still does not know what have happened. But the man’s loud voice scared him a bit. On the way home, he held my hand in the car, as if telling me he was sorry our Sunday did not end well because of him. And i want him to know, that it was never his fault. And no matter the situation is, we will protect him and we will always be on his side.

We love you, bhe ko Regur.


26 October 2010

ASP’s Cebu Regional Conference spelled solidarity and success

The ASP 2nd Regional Conference on Autism proved to be a huge success, with more than 300 delegates attending. The conference was sponsored by ASP-Cebu Chapter and was held at SM City Cebu Trade Center Hall from October 23 -24, 2010. ASP-Cebu Chapter is headed by President Sandra Espina.
ASP Cebu Chapter Representatives together with President Sandra Espina (seated-right)
More than 300 attending delegates of ASP Cebu
2nd Regional Autism Conference at SM City Cebu Trade Hall

To show solidarity with the conference, ASP National led by President Grace Adviento flew to Cebu with her entourage: VP- Peng So, Trustees Cris Estampador, Gina Bermudo and Fredes Javier. They were joined by Executive Director Ranil Sorongon. ASP Chair Emeritus, Dang Koe and ASP-Auditor, Evert Malapad, were also there as guest speakers of Day Two of the said conference. Other representatives from the following chapters also came in to give support: Carmona, Tanza, Lagro, Dipolog City, General Santos City, Iloilo, Tacloban City, Cagayan de Oro City and Davao City.
ASP Chapter Leaders and ASP Board of Trustees with Teacher Anthony (seated-2nd from left)
ASP Chair Emeritus Dang Koe as Keynote Speaker during the 2nd Regional Autism Conference

It was a privilege to have Mayor Michael Rama of Cebu City, who came to give the opening message. Mr. Van Aberia of SM Cebu City, testified on “The Heart of SM,” SM Supermall’s Corporate Social Responsibility for people with disabilities. Mayor Jonas Cortez through his representative, gave an inspirational message.

Day 1 of the conference topics and speakers were the following

Experts from Manila: Mr. Lauro Purcil Jr, Chairman of National Committee on UN-Conventions – KAMPI, talked about the Rights and Privileges of Persons with Disabilities on his topic, “Discounts and More… Claim it! UNCRPD and RA 9442”, Prof. Mercedes Adorio, SpEd Professor from Phil. Women’s University: discussed the education of CWA’s in “Mainstreaming or Inclusion”, Prof. Abelardo Apollo I. David,Jr, MOccThy,OTRP, Executive Director of Independent Living, Learning Center (ILLC), shared valuable information on on-the-job training and hiring PWAs in the workplace in “Wanted: Jobs for PWAs.”

From the Pride of Cebu: Dr. Jacqueline J. Espina, Developmental Pediatrician, CIM, CDU: discussed the “Fact and Fiction:” of Autism, Dr. Barbra Charina V. Cavan, Pediatrician/Geneticist: talked about genetics with her topic “Your Gene or Mine?”, Dr. Glenda Basubas, Cebu PSH; lectured on “Seize Those Seizures” and Ms. Christianne Marie Andigan, MHlthSc, OTRP; made things clearer in “Sensing your Child’s Senses.”

Day 2 Conference, topics and speakers

Focusing on the importance of the family’s role in the lives of persons with autism, Cebu participants were peppered with seasoned speakers, Ms. Erlinda “Dang” Koe, (ASP Chair Emeritus), who inspired parents with her talk on , “Living with Autism in the Family: Live, Love and Laugh”, Mr. Evert Malapad, (ASP National’s Auditor and ASP- Metro-South Chapter President) empowered daddies with his side of the story in “Daddy’s Power” and Ms. Rosalyn Marie G. Sorongon, MA Sped, ASP EDEIP Trainer; enlightened parents by showing the “Sibling’s Side of the Story”.

Equally important are the roles of professionals. Dr. Renato Delos Santos a Neuro-Psychiatrist who flew in from Chicago, USA to discuss “Managing Severe Behavior/ Puberty – Adolescent Issues,” through medications. Dr. Myra Altonaga, Developmental Pediatrician; “Management of Autism,” Ms. Mae Sadicon, PASP; gave a lecture on “Language and Autism: A Spectrum of Possibilities and Choices,” Mr. Anthony Grecia, OTRP, MA Psychology, Program Director of Center for GOALS; demystified Autism through “Friends, Puppets, Shades and Games: Developing Social Inclusion and Mutual Friendship Between Children with ASD & Their Peers, Siblings and Classmates”.

ASP would like to thank ASP members, parents, professionals, volunteers, the hardworking staff, donors and supporters for the success of ASP’s 2nd Regional Autism Conference. Keep checking the blog for more updates and stories.

Take this opportunity to Be an Angel for Autism. Donate to ASP Programs and Services. Deposit in Banco de Oro Anonas-Kamias Branch- Savings Account No. 3980002955. Email us at autismphils@gmail.com or call 7-903-5496.

31 August 2010

ASP Cebu Chapter 2nd Regional Autism Conference

"The Spinning Truth Behind the Spectrum"
Teaming Up with Families, Professionals and Society



Conference Proper
October 23-24, 2010, 8:00 am - 6:00 pm
SM City Cebu Trade Hall


Discounts and More... Claim it! UNCRPD and RA 9442
By Mr. Lauro Purcil Jr.

The UN Convention on the Rights of Persons with Disabilities (UNCRPD) is the latest UN Human Rights Instrument. It was the fastest human rights instrument approved by the UN General Assembly on December 13, 2006. Signed by the Philippine Government on Sept 25, 2007 and ratified on April 15, 2008. The lecture will tackle the salient principles of the convention and will focus more on the provisions that involve the rights of children with disabilities and the role of parents as representatives of their children. The second part will deal with the basics of RA 9442, the updates and the challenges it pose for persons with disabilities and parents of children with disability to truly claim the rights and privileges as provided by the said law. The speaker will also share his recent participation in the Conference of State Parties and some side events with the International Disability Alliance (IDA) during his latest representation in UN.

Mr. Lauro L. Purcil, Jr. is a person with multiple disabilities. He is blind with hearing and speech impairment. Mr. Purcil has a bachelor degree in English and a masters degree in Public Administration both from the University of the Philippines, Diliman, Quezon City. A living proof, that disability is not a hindrance to pursue higher education. He is currently connected with the Department of Education, Special Education Division as Special Education Program Specialist I. He is the Chairman of the National Committee on the UN Conventions of the Katipunan ng May Kapansanan sa Pilipinas (KAMPI). He was the official delegate of the Philippines to the Conference of State Parties and the Philippine candidate to the “International Committee of Experts” on the Convention on the Rights of Persons with Disabilities held on September 1-3, 2010 at the UN Headquarters, New York City, USA.

Ms. Jacqueline Jabonera - Espina, MD is a developmental pediatrician. She is also the current head of the Pediatrics Department at Chong Hua Hospital. Her professional career spans both academia and medical area. At present, she is an associate professor of the Pediatrics Department at Cebu Institute of Medicine and Cebu Doctors’ University. She was awarded the Fellow of the Philippine Society for Developmental Behavioral Pediatrics (2000) and the Fellow of the Philippine Pediatric Society (2002) from the University of the Philippines.

Ms. Barbra Charina V. Cavan, MD is a pediatrician and a geneticist. Currently, she is the assistant secretary of the Philippine Pediatric Society Cebu and Central Eastern Visayas Chapter and the Regional Coordinator of the Philippine Birth Defects Registry and Campaign for the Reduction of Deaths or Complications of Preterm Births Project, Institute of Human Genetics, UP-Manila. In 1999, she was the chief resident physician at Cebu Doctor’s Hospital. She is also a full time faculty of Cebu Doctors’ Hospital and Cebu Institute of Medicine. She has been affiliated with several hospitals both as an active and as a visiting staff in the pediatrics department. Dr. Cavan obtained her medical degree at UP Manila. Moreover, she was trained in genetics at Sydney Australia.

Sensing Your Child’s Senses
By Ms. Christianne Marie C. Andigan, MHlthSc, OTRP

A child eats pancit canton and only pancit canton for breakfast, lunch, and dinner. A grade schooler seems to be like a tornado—spinning, running around, and toppling down everything that gets in his way. A toddler throws a tantrum when having her teeth brushed, her nails cut, and her hair cut.

Do these behaviors seem familiar? They may point to a sensory processing disorder (SPD), which is the brain putting together sensations such as touch, sound, sight, smell, taste, body position, and movement in a different way. As a result, children with autism (and even typically developing children) affected with it may experience typical daily activities such as eating, dressing, playing, and handwriting as struggles rather than successes.

Family members, caregivers, and teachers are often at a loss as to where such behaviors are coming from. This talk will help you sense your child’s senses—understand how important sensations are in our daily lives and what happens when the brain does not process them well. More specifically, it will describe different types of SPD’s and how these interfere with children’s participation in the home, school, and community settings. It will also explain some behaviors in children with autism from a sensory processing perspective. Finally, participants will be given principles and practical strategies that they can employ at home and/or in school to help their children cope with the challenges of SPD’s.

Ms. Christianne Marie C. Andigan, MHlthSc, OTRP is currently the Program Coordinator and occupational therapist of Emmanuel Foundation for Children with Special Needs, Inc. in Iloilo City. Prior to moving there, she was assistant professor and chairperson of the Department of Occupational Therapy, College of Allied Medical Professions, University of the Philippines Manila. She also engages in private practice where she works with mostly children with developmental disabilities and their families. She has been a resource person for seminars related to the application of sensory integration and behavior management principles at home and in school. She completed her post - professional master’s degree in OT in the University of Sydney in 2004 and her bachelor’s degree in OT from UP Manila in 2000.

Dr. Mercedes Adorio obtained her Ph.D. in Educational Psychology & Educational Sociology in UP and has served as College Secretary (1992-1995) and as Faculty-in-Charge of the Special Education area of the Division of Curriculum and Instruction. She is often invited as resource person in national and regional school divisions and has presented papers in international conferences. She is the author of Special Education in the Philippines: Trends and Issues. Dr. Adorio was a former professor of Special Education of UP, Diliman. She is currently teaching SPED at the Philippine Women’s University.

Wanted: Jobs for PWA
By Prof. Abelardo Apollo I. David, Jr.

Essential principles and components of transition education and work training programs for youth with special needs will be discussed. Practical insights on how these programs can be implemented in educational settings will be provided. The work settings commonly considered for the differently-abled persons will be explained with emphasis on corresponding work placement procedures. Actual cases will be presented to illustrate the local applications of the theories discussed.

Prof. Abelardo Apollo I. David, Jr., MOccThy, OTRP is the Executive Director and founder of the Independent Living Learning Centre (ILLC) in Manila, Cebu and Davao. ILLC is recognized for its pioneering programs in transition education and work training of youth with special needs. Prof. David is a lecturer at the UP College of Allied Medical Professions. He obtained his Masters degree in Occupational Therapy from the University of Queensland, Australia, where he also served as a lecturer. Prof. David is the founder and President of the Rehabilitation and Empowerment of Adults and Children (REACH) Foundation, Inc., a non-government organization that aims to empower persons with disabilities residing in depressed communities. For his extension activities, Prof. David received the prestigious Apolinario Mabini Presidential Award in 2008. His consultancy projects with government and non-organizations earned recognitions such as the 2008 Grand Prize winner for the World Bank: Panibangong Paraan, a Competition for Innovative Ideas; and the Top 3 most innovative health programs given by the Department of Health in 2009.

Dr. Myra Altonaga is a Neurodevelopmental Pediatrician. A graduate in medicine at Cebu Institute of Medicine; had her pediatric residency at Cebu Doctors' University Hospital (CDUH); fellowship training in neurodevelopmental pediatri cs at PHILIPPINE CHILDREN'S MEDICAL CENTER (PCMC) in Quezon City, Manila. She is currently an associate staff of Cebu Doctors' University Hospital and practicing her specialty at JC Borromeo Bldg. (back of CDUH).

Language and Autism: A Spectrum of Possibilities and Choices
By Ms. Mae Sadicon

With the numerous and overwhelming concerns of individuals with Autism, it is imperative that key areas such as management, both short-term and long-term, be put into their proper perspectives. In "LANGUAGE AND AUTISM: A Spectrum of Possibilities and Choices", points of discussion will center on the language and communication problems that are common to people with Autism and how these affect virtually all aspects of their lives. Equal attention will likewise be placed on identifying good, realistic and effective autism practice in the Philippine setting.

Ms. Mae Sadicon is a BS Speech Pathology graduate of the UP Manila College of Allied Medical Professions (CAMP). Teacher Mae sees children with language and communication concerns for evaluation and therapy. She holds sessions at the SPEECH Clinic and also works at St. Luke’s Medical Center - Neurodevelopmental Center in Quezon City. She is also head of the Technical Panel for Speech Pathology Education in CHED.

Dr. Renato delos Santos received his BS in Biology from the University of San Carlos, Philippines where he graduated Cum Laude in addition to holding a degree in Medicine from the Cebu Institute of Medicine. He is currently serving as President of the medical staff at Alexian Brothers Behavioral Health Hospitals in Hoffman Estates, Illinois. Dr. De los Santos resides in Chicago and spends part of his time in the Philippines doing lectures and seminars to raise awareness of mental health.

Living with Autism in the Family: Live, Love and Laugh
By Ms. Erlinda U. Koe

It takes a KOEmmunity to raise a child with autism. It takes wisdom out of experience to learn from living with a child with autism.It takes love to embrace children with autism. It takes laughter to enjoy the ride and come out of it sane! Here’s a family’s journey of KOEping with autism. Learn, love and laugh with Mama Dang!

Ms. Erlinda U. Koe fondly known as Mama Dang, has been an indefatigable autism advocate. She served as ASP National President for an unprecedented 3 consecutive terms and continues the advocacy as the first appointed Chair Emeritus of the society. Her more than a decade of service to ASP is decorated with numerous accomplishments, including being accorded in 2009, The Outstanding Thomasian Alumni (TOTAL) Award for Humanitarian Service for her competence, commitment and compassion in leading Autism Society Philippines to share hopes & build dreams with at least half a million Filipino families dealing with autism. She juggles her time between her family, corporate training, and ASP–including provincial trips as a much sought-after seminar and conference speaker on autism; and writing Angels Talk in Manila Bulletin. In spite of which, she can still keep it together with humor, fair judgment and that rare mix of leadership qualities needed to hold a non-profit organization. Her eldest son, Gio, is now 16 years old, and she extends her advocacy throughout her entire family as they actively participate in ASP activities.

Friends, Puppets, Shades and Games: Developing Social Inclusion and Mutual Friendship Between Children with ASD and their Peers, Siblings and Classmates
By Mr. Anthony Grecia

This lecture will discuss and help participants understand the importance of peer play and friendships. It will also talk about the key features of the Friend to Friend model. Participants will also get to experience Autism Demystification (developed by F2F Social Learning Society and Heather McCracken) through a puppet show video. It will also discuss other activities (simulation game and story-telling) that can be done as part of demystification programs in school or community.

Mr. Anthony S. Grecia obtained his undergraduate degree in Occupational Therapy at UP-Manila. He is currently pursuing his doctorate in Clinical Psychology at Ateneo De Manila University. He is the Program Director of the branches of GOALS Inc. (Alabang, Caloocan, & Bonifacio Global City,). He has been U.S.- NBCOT certified (2006) and had training in Autism Demystification (at Vancouver, Canada). His 10 years of practice focused on program development (vocational, staff evaluation, social skills training, home/school visit) and clinical assessment & management of children, adolescents, and adults with Autism, Asperger, AD/HD, ODD, Learning Disabilities, Giftedness, Intellectual Disabilities, personality disorders, & Bipolar Disorder. He is also a lecturer at UP-CAMP, Manila. He was the former Chairman, Committee on Membership of OT Assoc. of the Philippines.

Sibling’s Side of the Story
By Ms. Rosalyn Marie Gison Sorongon

Parents often receive an outpouring of different forms of support upon the diagnosis of their child in order to help them accept, understand and deal with autism in their lives. Therefore, they also become, aside from their child with autism, the focal point of programs and services to address the varying needs brought about by autism. Unfortunately, there are other family members whose seem to be often left out. These are the other children or the siblings of the persons with autism (PWA). Much has been studied, read, seen and heard about the plight of the parent of PWA but little yet has been learned, discussed and dealt with the siblings. Unraveling the situation of the siblings of PWA conveys a message that they are seen as equally important as that of their parent in the world of autism. Knowing their issues and/or concern, needs and desires, and their aspirations in life in relation to their brother or sister with autism encourages widening of perspective in viewing and understanding the unique circumstances they are in. This knowledge can pave the way for creating a gamut of support services in addressing the needs of the siblings. As a result, this will invite, encourage and inspire them to heed the call of the Autism challenge within and hopefully, beyond their families.

Ms. Rosalyn Marie Gison Sorongon earned her BS Psychology degree from the Assumption College, Makati and Master’s Degree in Education Major in Special Education from the University of the Philippines, Diliman. Equipped with 15 years of experience in teaching students with autism and helping their families cope with and manage this condition, she regularly conducts orientations and lectures, and gives trainings to parents, caregivers, teachers and other professionals on autism. Ms. Sorongon or Teacher My, as she is more popularly known, also develops and oversees home and employment programs for persons with autism. A former School Director of the Center for Autism and Related Disorders (CARD) in Las Piñas City, Teacher My finds fulfillment in her new role as a regular facilitator of workshops for siblings of persons with autism as a result of her post graduate research entitled “The Concerns of Adult Siblings of Persons with Autism”.

Daddy’s Power
By Mr. Evert Malapad

Traditionally, mothers are the ones responsible for their children with disabilities while the fathers take on the role as breadwinners. But Ever Malapad and his wife Apple chose the road less travelled. Evert has taken upon himself the responsibility of taking care of Mae Mae, their daughter with autism for the past eight years. It has never been that easy yet the rewards have been immeasurable.

This talk shares Daddy Evert's journey from the moment his daughter was diagnosed with autism, his decision to forego his rising career as an Overseas Filipino Worker (OFW), his struggles and triumphs as a "daddy-teacher" and his advocacies in championing the cause of persons with autism and other disabilities.

Be inspired and encouraged as you listen to his unique story!

Mr. Evert L. Malapad is the current president of Autism Society Philippines - Metro South Chapter and a Trustee of ASP National Office. He earned a Bachelor of Science Degree in Industrial Technology. He is presently teaching adult program for individuals with special needs at Candent Learning Hauz in BF Homes Las Piñas City. Mr. Malapad is currently completing his Masters Degree Program in SPED and B S Secondary Education at the University of Perpetual Help – Las Piñas City. Evert is a father of a 16 year-old girl with autism.

Conference Registration Fees

Pre- Registration - until 30 Sept 2010
ASP Member - P 2, 000.00
Non-member - P 2,000.00
Students - P 1,000.00

On- Site Registration
ASP Member - P 2,500.00
Non-member - P 2,500.00
Students - P 1,500.00

Payment
Check or Cash Deposit
Account Name: Autism Society Philippines Inc.- Cebu Chapter
Bank: Banco de Oro
Branch: Gorodo Lahug Branch
SA Account No.: 609-0101-043

For any inquiries, please call the contact details below:
312 Juana Osmeña Ext. Cebu City
Tel # (032) 416-5505
Fax# (032) 416-5572
Email: socorro_deligero@yahoo.com

Autism Society Philippines and ASP Chapters work very hard for the future of children with autism and their families. We need your support. Take this opportunity to support and donate to ASP Cebu Chapter 2nd Regional Autism Conference.

The ASP Regional Conference Series serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are of their own and don’t necessarily reflect that of the views of the organization.

 
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