[Poetry] Melisande’s hand

My good friend Melisande

Does strange things with her hand

She waves it like a wand

For giants in the land

My young friend Melisande
She leads a quiet band
She does this with her hand
For giants in the land

My good friend Melisande
Makes castles in the sand
Then dances to a band
A princess of the land

I don't quite understand
My good friend Melisande
The leader of the band
Who dances in the sand

But my friend Melisande
Was drawn up from the sand
By God's all-knowing hand
To live here in our land

All these things in her hand
Belong to Melisande
Who draws things with her wand
And makes them live on land

I hope to understand
My young friend Melisande
Who dances to a band
Her world, it must be grand!

This poem is a fun look at stimming, a self-stimulatory behavior associated with autism, from the point of view of a genuine friend. July 30 is the UN International Day of Friendship. If you have a poem about friendship with a person with autism, send it to dropbox4asp@gmail.com, with a brief bio and photo. We will publish selected poems on the ASP blog over the calendar year.

Gomez Family

About the poet: Patricia Marie Grace S. Gomez is a two-time Palanca Awardee for Poetry for Children "Poems from the Pantry and Prehistoric Times" and Short Story for Children "A Thousand Paper Cranes." She also has honorable mention from the Philippine Board on Books for Young People-Salanga Prize for her children's story "Pepe's Gift" about the childhood of Jose Rizal. She lives in Bacolod City with her husband Mark and their two boys Mark Jr. and Malachy.

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Posted in: friendship,poetry

ASP co-founder leads July 19 Family Support Group

The Autism Society Philippines (ASP) held its monthly Family Support Group (FSG) last Saturday, 19 July 2014 at the National Office. It was attended by parents, grandparents, siblings, and other relatives of children with autism.

Conchita Ragragio leads Family Support Group

Mrs. Conchita M. Ragragio, the facilitator of FSG,was among the founding members of ASP. Titta Ragragio shared the objective of the FSG is to support parents of newly diagnosed children with autism to as an introduction of the session: 1) deal with their initial feelings about having children with autism and 2) identify pressing concerns and options to address these.

Titta Ragragio also presented questions ("How did you feel when your child was diagnosed with autism?" and "What are your concerns?") that the attendees had to answer by writing short answers on pieces of paper some says they were shock, sad and stressed. Then they tried to group similar or related answers together and stuck them on the whiteboard in front of everyone. Afterwards, there were some personal sharing of ideas and feelings, and discussion by the group.

In sharing their feelings with having CWA, one of the feelings shared were that of regret or guilt where some asked themselves questions such as "Why me,?" "What's wrong with me,?" or "Did I do something wrong?" Mrs. Sicam, ASP Vice President and also a founding member of ASP, shared her insights in this matter by saying that guilt would only detract you from doing the right things and you just have to do what you can and do the best that you can.

Another key topic discussed in the FSG was the subject of acceptance. Mrs. Ragragio shared that as parents of CWA, they've all must have experienced denial of their situation; but it was very important that they eventually reached acceptance. Even Mr. Cabason, ASP trustees, shared that denial would only impede the opportunity to help their children. Most if not all shared that they felt they were blessed when they knew they had their children. Even if they faced many challenges, they still felt that what they were facing were "blessings in disguise".

About the Author: Felix-Margarito D. Tablac, one of four siblings, the youngest in the family with three older sisters. Currently enrol in Ateneo de Manila University, taking up BS Electronics and Communications Engineering and subjects in Developmental Science. A member of the Ateneo Special Education Society (SPEED) which conducts regular visits to SPED Schools and Centers to interact with persons with special needs and holds other projects that advocate for persons with special needs.

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Posted in: 4parents,fsg

ASP Joins 36th NDPR Week Opening

The 36th National Disability Prevention and Rehabilitation Week celebrations took off last 17 July 2014 at Department of Foreign Affairs. Despite the nation’s capital being battered by Typhoon Glend, the DFA, NCDA, and PWD Sectors came in full force, making the opening a success. With the theme, “Talino at Paninindigan: Pasaporte sa Kaunlaran,” the events which coincided with Apolinario Mabini’s 150th birthweek, highlighted the talents and achievements of Filipino PWDs.

Ms. Janette Peña, Mr. Rafael Torralba and DFA Secretary Albert Del Rosario on stage

The day’s celebration started with the ribbon cutting of the photo and painting exhibit, “Arts in Silence: International Abilympics Champions.” The exhibit showcases the work skills excellence of PWDs who competed in International Abilympics: Dennis Balan, Jose Dela Cruz, Jason delos Reyes and Raph Torralba. Vice President Jejomar Binay and DFA Secretary Albert Del Rosario led the ribbon cutting. The Vice President then led the Wreath Laying Ceremony in the bust of Mabini inside DFA. The Holy Mass proceeded with Fr. Alexander Tomas, the Minister of Archdiocese of Manila Ministry on PWDs, presiding.

DFA Secretary Albert Del Rosario, in his speech, highlighted Mabini’s life as “a shining example of overcoming disability to realize one’s full potential. He defied expectations, demonstrated an unwavering commitment to freedom, and helped shape Philippine foreign policy.” In his keynote speech, the Vice President emphasized that the country should move as one in raising the public awareness on PWDs and urge the Filipinos to work together towards the seamless inclusion of every Filipino in the ordinary life.
His Excellency, President Benigno Aquino, delivered his NDPR message through NCDA:

My warmest greetings to the National Council on Disability Affairs as you spearhead the 36th National Disability Prevention and Rehabilitation Week.

Our nation affirms that nothing can undermine the potential of a people committed to progress. Our differently-abled countrymen are taking the lead in harnessing this potential, imparting their gifts to promote fairness and equal opportunity in diverse spheres of society. May this week-long observance infuse vigour to our cause; may it allow us to synergize our undertakings and distinguish this decade as the period when every Filipino has extended his capacity to build an enabling environment for all.

Solidarity and indomitable spirit characterize our people’s narrative. Across generations, we come upon stalwarts of this legacy, including Gat Apolinario Mabini – an exceptional man of his time – a leader, reformist, and true patriot. By examining his story and of those who triumphed despite physical odds, we become cognizant of our strength; we recognize that no circumstance can hinder us from pursuing our goals or partaking in development. Let us strive to emulate the industry, optimism, and resolve of our forbearers, that we may further this era of resurgence and bring our vision of an empowered Philippines to fruition.

About the author: Raphael Torralba is the Program Coordinator of ASP and its resident photographer. He is a former media photojournalist and a graduate of Bachelor of Science in Business Administration Major in Computer-Based Information Systems. His advocacy to serve the PWD community has been recognized by the National Council on Disability Affairs. Raph's youngest brother, Patrick, is on the spectrum.

During the launching of Apolinario Mabini Awards 2015, ASP President Jan Pena received from PFRD President Manuel Agcaoili the plaques for ASP and Chair Emeritus, Dang Koe for winning the Best Disabled Group and Best Rehabilitation Volunteer respectively in the 2013 awards. The highlight of the event was the stage musical play on the life of Mabini. The cast were composed of PWDs and non-PWDs.

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Posted in: government,ndprw

“Tayo na sa kabukiran” -- an ASP wellness activity

ASP Sta. Rosa spearheaded health and wellness activities last 12 July 2014 at Sweet Spring Farm in Alfonso, Cavite, owned by Secretary Francis “Kiko’ Pangilinan and family -- in celebration of the National Health Month.

ASP Sta. Rosa PWAs and family holding a banner

The activities included a talk on natural farming, harvesting vegetables, feeding pigs with organic lettuce, yoga and preparing green smoothies. These activities were aimed to encourage PWA’s and their families develop a healthier lifestyle and create an awareness on the benefits of organic farming.

The farm tour was attended by twenty eight participants -- six PWA’s, eight teachers and family members. The participants did not only learn; but they were also able to enjoy the relaxing environment and the farm’s fresh air. They were also able to bring home the vegetables they picked from the farm, as well as received free potted herbs as souvenirs.

About the Author: Olive Medina is mom to CWA Enzo and his baby sister Lizzie. Aside from fulfilling her duties as a wife and mother, she works as General Manager for a logistics company, a part time college lecturer and part time yoga instructor. She is also the president of ASP Sta. Rosa Chapter.

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Posted in: chapters,farming

The 3rd Good Autism Practice Conference

The Center for Autism and Related Disorders, Inc. – Professionals for Autism Foundation, Inc. -- a long-time ASP institutional member and supporter -- conducted a conference entitled “The 3rd Good Autism Practice Conference” last 29 June 2014 at Unilab Bayanihan Center in Mandaluyong City. This conference was attended by a multitude of professionals and parents -- including ASP members and leaders, led by Ms. Jan Peña, ASP National President.

3rd Good Autism Practice Conference group

On-hand were respected speakers like Dr. Alexis Reyes, Lady Suarez, Mae Catherine Sadicon, Sunny Velasco, Juan Rapadas, Cecilia Sicam, Ma.Teresa Villanueva and Rita Grace Villadolid.

A participant shares, “It's nice to attend such seminar. It was like a family support group, especially if parents who have PWA kids share their experiences. It gives us hope, strength and will make us a better parents. The event gave us perspectives of autism which will help us understand and appreciate our child with autism.”

About the author: Imee Alviso is a full time housewife, sometimes a mother and father because my husband works abroad as a website designer for 15 years now but he comes home monthly. An operating room nurse at Saint Lukes before but resigned because of my children. Family is my priority. I drive, tutor and sometimes give therapy to my bunso, sing, dance, plays guitar, plays badminton & swim with my 3 kids. And now wearing green at ASP! Member of ASP for almost 12 yrs now. I used to be the treasurer of ASP Metrosouth and now my first time to be a President of Asp Paranaque. It’s hard to start but very challenging. One way of serving God. I can give a little of my time, talent & treasure to all my organizations! My favorite bible verse is Isaiah 41:10 Do not fear for I am with you!

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Posted in: CARD,chapters,community,conference

August 2 Saturday Back to Back Seminars

The Miller Method Autism Intervention Program: Possibilities put into Practice
9:30am – 12:00pm

The Miller Method is a cognitive-developmental approach and incorporates developing capacity for using language. It uses the child’s behavioral repertoire and transforms these, even if they don’t seem to serve any purpose, into something functional, instead of extinguishing them. This session will highlight key aspects of the methodology, intervention strategies, assessment and evaluation and comparisons to other methods such as ABA. In addition, Dr. Mastrangelo will present some of the latest research findings on the importance of self-regulation and sensory integration.

Dr. Sonia Mastrangelo

Dr. Sonia Mastrangelo completed her PhD in Education at York University, Toronto, Canada. She is currently an Assistant Professor at Lakehead University (Orillia Campus) in the Faculty of Education and Dept. of Interdisciplinary Studies. Concurrently she is an International Early Intervention Consultant who provides weekly consultations to schools and clinics worldwide for the purpose of program development, assessment, intervention and family support in the area of ASD. She is working on a large scale study on the impact of early intervention on family outcomes in collaboration with Prof. Shanker and Dr. Casenhiser. She had worked as a special education resource teacher for several years since 1997.

All you need to know about Autism
1:30 – 3:30pm

Autism is a lifelong developmental disability that affects a child's ability to communicate and interact with others. 1 in 68 (CDC) children are now diagnosed to be within the Autism Spectrum. Our speaker this month is Dr. Rita Villadolid MD, FPPS, FPSDBP who will expound on the facts about autism that every parent should know and explain the different interventions and what can and should be done at home. This is also ideal for parents of children newly diagnosed with ASD.

Dr. Rita Grace Villadolid

Dr. Rita Grace R. Villadolid, MD FPPS, FPSDBP is a Developmental Pediatrician at Child Neurosciences Center, Manila Doctors Hospital and Consultant at St. Victoria Hospital in Marikina City. She is also a Clinical Associate Professor in Pediatrics, University of the Philippines College of Medicine – Philippine General Hospital. Dr. Villadolid is a diplomat at the Philippine Pediatric Society.

Single Seminar	Double Seminar
Pre-reg. *until July 31 ASP Member - P500.00 Non - Member - P600.00	Pre-reg. *until July 31 ASP Member - P800.00 Non - Member - P1, 000.00
On-Site Registration ASP Member - P600.00 Non - Member - P700.00	On-Site Registration ASP Member - P1, 000.00 Non - Member - P1, 200.00

Venue: Auditorium, 4th Floor Philippine Information Agency, Visayas Avenue, Quezon City.
Map: http://bit.ly/1o9dJ4F
Seminar Fee is inclusive of certificate, handouts and snacks.

Pre-registered participants may pay to Autism Society Philippines, Metro Bank, Kamias Branch Account Number 047-3-04751874-2. Please fax the deposit slip with the name/s of participant/s to ASP office and bring it on the day of the seminar. On-site registrants will be accepted depending on the availability of slots. There will only be 70 slots available. No refund will be given to participants who do not show up on the date of the seminar. For more details, please call ASP at 7-903-5496.

The ASP Education and Empowerment Program serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are their own and may not necessarily reflect the views of the organization.

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Posted in: 4parents,4pros,4public,seminar

A Seminar on "How Language Develops"

ASP Tacloban Chapter conducted a seminar on How Language Develops last 21 June 2014 at the Executive House of the Eastern Visayas State University. The seminar was facilitated by Speech Pathologist Suselyn Pascual and assisted by Maria Lourdes Vallesteros. Parents of CWAs and a number of SpEd teachers were in attendance.

How Language Develops seminar group discussion

Ms. Suselyn Pascual opened the seminar by enlightening the audience about the difference between speech, language, and communication. She made it clear that the process of formulating words, word combinations, or word meaning in the mind is still a function of language and the only part that is considered speech is the actual production of the sounds or words. Communication, on the other hand, focuses on the meaningful interchange of information. This is a very important point to note as it is challenging for people outside the field to identify these basic differences. Also, with this information, it is easier for parents and teachers to understand the development of speech, language, and communication of persons with autism and to identify specific priorities.

The discussion continued with the details on how language develops giving emphasis on the importance of exposing children with autism to the concepts in their environment.

Ms. Susy also shared basic tips on how to help non-verbal or low verbal children with autism develop speech. The parents and teachers were encouraged to observe their children’s imitation skills. For instance, it was pointed out that children who have difficulty imitating gross motor movements will definitely experience difficulty in imitating oro-motor movements, which is a requirement in developing speech.

The activity concluded with a group discussion, the participants were divided into two groups depending on the language level of their children, to help the parents and teachers deal with their specific difficulties.

About the author: Kris Garcia is one of the pioneer teachers of the Tacloban Center for Autism and other Developmental Disabilities which was closed after typhoon Yolanda. Teachers and parents from TCADD regrouped and opened the Eastern Visayas Center for Autism and other Developmental Disabilities last February 2014 reaching out to the whole Eastern Visayas, not just Tacloban City. Teacher Kris graduated at UP Tacloban in BS Psychology last 2009, took up teaching units in Leyte Normal University and became a licensed teacher last 2013.

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Posted in: 4parents,4pros,chapters,community,seminar

Autism Advocacy through Cooperatives

A cooperative is an autonomous association of persons, united voluntarily to meet their common economic social and cultural needs and aspirations through jointly owned and democratically controlled enterprise. Cooperatives exist in nearly all sectors of economic and social activities and are found in almost all countries of the world.

Autism Advocacy through Cooperatives group discussion

In the Philippines, the Autism Society Philippines has supported communities in the creation of independent economic ventures. And the many who advocate for autism acceptance and inclusion have contributed to the creation and growth of the cooperative movement.

Happy Homes Housing Cooperative was conceived by OneLife Foundation Inc. and ChildFind Therapy Center. It is being spearheaded by Special Education professor Dr. Edilberto Dizon, with the objective of providing adults with special needs and retirees a special community that gives lifelong care, supervision, and guidance, together with their families; work in sheltered employment; and involvement in leisure activities. It also seeks to provide families a continuous supply of providers for their children with special needs. Read more at http://www.happyhomeshousingcoop.org.

Kaakibat ng ASP Quezon City Credit Cooperative was organized by ASP Quezon City members with the purpose of helping its members and their children with autism. The cooperative aims to conduct activities that will support the cost of the children’s therapy and education and the cost of skills training and behavior therapeutic support of those facing adult life. With the guidance and supervision of the ASP parents, they provide opportunities for adults with autism to become productive, ordinary and useful citizens in our country. For more information, you may contact Josephine Palomares via josephinepalomares[at]yahoo.com.

Kaakibat ng ASP Laguna Credit Cooperative provides loans to its members for productive or provident purposes and to create actual work opportunities for young adults with autism and related disorders. This cooperative aims to help Person with Disabilities (PWD) to experience equality among the others, to give their special needs from the cooperative where they are belonging and soon to have an employment opportunity. They are based out of the Autism Resource Center in Los Baños, Laguna. Read more at http://asplagunachapter98.wordpress.com.

The United Nations’ International Day of Cooperatives is observed every first Saturday of July. One of its goals is to increase awareness on cooperatives, as well as strengthen and extend partnerships between the international cooperative movement and other supporting organizations including governments.

About the Author: Marylyn V. Catig is currently the Program Assistant for Communication of ASP. She graduated with a Bachelor of Science degree in Psychology in 2013 at New Era University in Quezon City.

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Posted in: community,cooperative

Disability: A Rights Based Approach Seminar

A joint project of ASP UP CAMP and Pasay Chapter, this human rights based seminar conducted last 05 July 2014 at Pasay SPED Center, was well-attended with various participants ranging from ASP members, students of medical allied courses, SPED teachers and even students with autism including Ian Lopez from UP Los Baños with mom Catherine Lopez, ASP Laguna Chapter President.

Mr. Ranilo Sorongon leads seminar on A Rights Based Approach Seminar

The set-up of the venue allows the speaker, Mr. Ranilo Sorongon, to easily approach each participant and individually asked their opinions on certain topics and situations being discussed which makes for very lively discussions. It keeps the exchanging of ideas free-flowing making the topics easily understood and not boring. Overall, the seminar was a success and a learning experience for us as a member of the working committee and we are looking forward as we prepare for an upcoming collaboration with UP Camp Manila for another seminar this August.

About the Author: Hilda Cristobal is blessed with four children and one grandson. Her youngest son Jared Kevin, now 19 years old, lives with autism. This BS Criminology graduate serves many non-profit organizations. Since 2008, she is the treasurer of Ladies Circle 185, which aims to establish camaraderie and to empower women in the communities in Pasay. Hilda serves as ASP Pasay Chapter President.

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Posted in: 4parents,4public,4pwas,chapters,community

The Carol Kisner Project with ASP Laguna Chapter

The ASP Laguna Chapter is the recipient of a one-year grant entitled “The Carolyn Kisner Project: Training of Mothers to Become Para-Teachers of Their Young Children with Autism and Related Disability” from the International Centre for Disability and Rehabilitation (IDCR).

Carolyn Kisner project

The IDCR has members that span around the globe including the Philippines, Canada, Australia and the United States. Its global partners include individuals and groups from the disability community, academia and professional organizations.

ICDR Philippines’ mission is to promote the equalization of opportunities for Filipinos with disabilities. Its many endeavours are guided by the core values of partnership, respect, and mutual cooperation. It firmly believes that disability is a human rights issue and therefore a critical component to social development. The organization's motto is "Concordia Res Parvae Crescent' -- Working together to accomplish more.

This project with ASP Laguna was named after the lecturer, Ms. Carolyn Kisner, MS, PT who specializes in sensory-motor therapy and is the co-author of “Therapeutic Exercise: Foundations And Techniques.”

Under the Carol Kisner project, ASP Laguna will conduct workshops and train ten mothers of young children diagnosed with autism and other developmental disorders and help them equip and implement early home programs. They will be coached in implementing sensory-motor activities to a group of children with disabilities, including their own children.

This one-year program will opened with the selection of 10 mothers who are willing to undergo training and mentoring. Aside from lectures, they will also undergo mentoring in the implementation of home study programs and in training on how to be co-facilitators group sensory-motor activities. Thee group’s learnings in community-based rehabilitation techniques will be put into action from September 2014 to April 2015 -- a total of eight months. For more information you may visit: http://philippineworkinggroup.com/greetings/

About the Author: Ms. Catherine L. Lopez obtained her Bachelor of Elementary Education, Major in Special Education at San Pablo Colleges and her Master of Arts in Education, Major in Special Education at Jose Rizal University. She is the Job Coach for the office and messenger services of Autism Resource Center. She also serves as the President of ASP Laguna Chapter and cluster head for ASP chapters in South Luzon. She is a mother of a young adult with autism who graduated from UP Los Baños in 2017.

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Posted in: cbr,chapters,community,grant

What if Mabini were alive today

Nearing the anniversary of what would have been Gat Apolinario Mabini’s 150th birthday, Patrick So, writes an essay on this icon of the differently abled. Patrick is a fresh graduate of the Ateneo de Manila University with a degree in BS Life Sciences. He is currently training with GOALS, an occupational intervention center located in Bonifacio Global City and is a budding freelance writer. Patrick lives autism.

Apolinario Mabini and Patrick So both have achieved much inspite of their disabilities.

Indeed, this is an interesting question to ponder on. As an individual with autism, I'd say that if I had the chance to talk to Apolinario Mabini during the time of the revolution, I would have asked him to tell me the story of how he overcame his disability to become the brains of the Republic. I would have learned how he coped despite having been crippled due to the polio he contracted. Just like I consider myself an advocate for autism, I would think that he would have also been someone who would be an advocate in the fight against polio.

If he were alive today however, given that polio has been eradicated from the country, he would have probably ended up being a spokesperson on overcoming disabilities in general. He would have given speeches about his various challenges that he faced such as managing the Philippine Republic’s affairs while having to use a wheelchair. He would inspire PWDs to push on and not to give up. Come to think of it, even able-bodied people would be inspired with him, as the lessons of PWDs can be applied to those who seek to overcome the many challenges that life has to offer.

Alternatively, it would be fun to think that he might have established a foundation that would raise awareness for rare diseases and would have contributed to addressing the needs of such victims. If Franklin Roosevelt was able to contribute that in the USA, then why not Mabini? One thing we must remember about Mabini is that he died at the young age of 38 due to cholera. What might he have done beyond that age, in an era of freedom for the Filipinos is something left to our imagination.

Finally and most importantly, had he survived to see the third Philippine Republic or even the Commonwealth, I see that he would have been active on the front lines of legislation - writing laws that would be pro-poor and would root out anyone trying to exploit loopholes. Given today's context, I see him making an effort in fighting corruption - just like he defended the country's freedom against abuses by our colonizers, I see him fighting for equality even when the exploitation would be coming from his own countrymen.

Generally, I consider Mabini to be a man of all seasons; even though he was in a really hostile environment (Americans who refused to recognize the First Philippine Republic’s independence, paralytic polio and even dissidents, among the ranks), he was able to achieve beyond his expectations. If he could do it, then why couldn’t we follow in his footsteps? It’s about time for the youth to learn from him and achieve more than he could.

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Posted in: mabini,ndpr,self-advocates

ASP Conducts Public Speaking Training for Chapter Leaders

In order to equip the Chapter Leaders and members on the skills in public speaking, the ASP conducted a Public Speaking Training and Workshop last 5 July 2014 at the Parañaque City Hall. Chapter leaders and members came all the way from as far as Bicol just to be trained in becoming effective public speakers and learn from the experts: ASP Chair Emeritus Erlinda Koe; President Janette Pena; Trustees Perlita So and Grace Adviento; and Members, Teacher My Sorongon and Evert Malapad.

ASP Chapter Leaders and Officers group

Tita Dang spoke on everything about public speaking -- do’s and dont’s, preparations before and during the speaking engagements, preparing an effective presentation, etc. Teacher My spoke about EDEIP, which is essential in autism awareness. Tita Peng spoke about on how to be an effective speaker on training the SM frontliners.

The atmosphere inside the venue was fun-filled and a learning experience as it was not only a time for them to learn but a time for Chapter leaders and members getting acquainted with each other.

ASP Lagro’s Mayette Tan shared that the training was a very empowering experience for her as she got to know more of other Chapter Leaders and some members. Dr. Anawi Tolentino, from Hagonoy Chapter, echoed the same. “One whole day of trainors’ training is indeed a great learning experience for me, because it made me realize that we as parents and carers of children with autism can bond together and should advocate for their needs and rights with one strong voice,” she said.

Melanie Liang, from ASP City of San Fernando Chapter, shared that “the Speakers Training by the ASP National was a totally awesome experience for most of the participants. It was fun because most of the chapters joined in by sending off their representatives for the training. It was a learning experience because we were equipped with more information about autism -- details that we thought we already know, but we don't. It was inspiring because the force of the national team shared their own journey as ASP speakers, starting from being plain mothers up to being the voices of this advocacy.” She praised the facilitators for being an expert in the field of public speaking. “Ma'am Dang has this contagious energy that filled the room for hours. Her coaching skills squeezed out the little speakers within us. The insights of Ma'am Peng and Ma'am Grace and the rest of the team had fired up the enthusiasm in everyone's heart and mind. It was pretty amazing,” she said.

The members were grateful for this training as they gained a learning experience on being a public speaker. For Melanie, it made her realize that she could go further than being just being an ASP member by becoming a public speaker and to become the voice of his son, Josh.

As the training came to an end, the members were looking forward to be an effective speaker in the future. They promised that they will train more and polish their skills in public speaking.

“All of us in that one room has a child with autism - uniquely different from one another with different needs and yet - all of us are willing to be trained and advocate as ONE not just for one child but for the whole autism community. Each of us can start with our chapter members – inform them what this is and how we can be better advocates not only to them but to everyone willing to listen.” Dr. Anawi said.

About the author: Raphael Torralba is the Program Coordinator of ASP and its resident photographer. He is a former media photojournalist and a graduate of Bachelor of Science in Business Administration Major in Computer-Based Information Systems. His advocacy to serve the PWD community has been recognized by the National Council on Disability Affairs. Raph's youngest brother, Patrick, is on the spectrum.

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Posted in: chapters,training

HeART BEATS 2 Concert

The Health for Autism Research and Training Center (HeART Center) held its second fundraising concert on 14 June 2014 entitled “Heart Beats 2” at Palmeras Garden Restaurant in San Pablo City, Laguna. It featured the musical talents of RV Mendiola, Emman Zamora, Thara Santiago, Franco Cagayat, and Rance Paul Yap, persons with autism (PWAs) whose families ardently support the center’s cause. The performers dazzled the audience not only with their vocal ability and nimble fingers but also with their courage and focus onstage.

The Amazing Duet, Thara & Franco

The performances would not have been successful had it not been for the unconditional love and support from the PWAs’ families who had all but joined their children or siblings in song or on the piano. This is but a glimpse of the kind of treatment of PWAs the center’s founders wish to involve people in, especially those closest to PWAs.

The center’s approach focuses on dietary intervention, aquatic programs and research. PWAs are very likely to be victims of metabolic disorders. Aisa Mendiola told the event’s attendees that even fruits and vegetables considered at worst benign by everyone may bring harm to PWAs. Aquatic programs aid in the management of behaviors and training of PWAs.

These programs were inspired by the experiences of the center’s founder, Aisa Mendiola, with her son, RV, and her student, Rance Paul. Their unparalleled attraction to water was central to the establishment of an incentive scheme that has greatly facilitated their development.

The event’s organizers were overjoyed with the turnout of donors and other supporters who went home with more than what they had given.

HeART BEATS 2 was a proclamation that the center is filled to the brim with promise. The road to what the founders wish to achieve will be bumpy at best, but with the perseverance and unflagging spirit of those already involved and the growing support of multiple communities, these goals are far from impossible.

About the Author: Juan Carlo F. Mallari is a mathematics instructor at Ateneo de Manila University. He acquired his bachelor’s and master’s degrees in Applied Mathematics, Major in Mathematical Finance from the same university in 2013 and 2014, respectively. He had two short stories selected for publications by Ateneo student organizations during his years as an undergraduate and was an English fiction fellow for the 12th Ateneo National Writers’ Workshop in May 2014. He likes to think he loves numbers and words equally and dreams of one day teaching an elective merging mathematics and creative writing. Above all, Carlo is a supremely annoying and infinitely grateful uncle, brother, and son to the four dearest people in his life who happen to carry “Mallari” in their names as well.

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Posted in: chapters,community,laguna,music

Early Detection and Intervention flies in Pampanga

The partnership of ASP City of San Fernando Pampanga Chapter and the city government of the City of San Fernando Pampanga, through the Office of the City Mayor and the City Social Welfare and Development Office, is strengthened by the constant collaboration and cooperation in providing necessary programs and activities to promote community awareness on the nature of disability, autism in particular, the rights of persons with disability and their empowerment, as well as their parents.

Early Detection and Intervention participants

To show ASP CSFP Chapter’s gratitude for the continued support of the city government, a two-day Early Detection and Intervention of Autism Seminar was recently conducted last 19-20 June 2014 at Heroes Hall City of San Fernando Pampanga. This aimed to equip the Day Care workers with the knowledge and skills about red flags in autism and other developmental delays and its management. Day Care workers are believed to be the first, next to parents, to witness the children’s development on the first four years of their lives. The likelihood that they will observe presence of possible delays is vital to providing early appropriate intervention which can significantly improve outcome.

The seminar was attended by seventy day care workers, CSWDO staff and ASP CSFP Chapter member parents. The participants were motivated by the City Mayor himself, Hon. Edwin D. Santiago who visited and shared his insights on the importance of early detection of disability and the role of daycare workers as public servants.

Nature of Autism and its link to related conditions like Attention Deficit Hyperactivity Disorder, Global Developmental Delay / Intellectual Disability and Communication Disorder, behavioural manifestations of autism and behaviour management were discussed on the first day.

Educational goals, treatment options and video presentations in teaching basic skills “the first things first” (sitting, waiting, coming when called, approach & request, eating, toileting) were presented on the second day. The movie of Temple Grandin was played during lunch break to present a concrete example of some behavioural manifestations of autism and to confirm the potentials of persons with autism on the higher end of the spectrum. Had time allowed, the participants are also interested to see another movie, this time, of a person with autism on the lower end of the spectrum.

As the two-day seminar comes to an end, the day care workers expressed their interest and invitation to conduct a disability awareness seminar for the parents in every day care center.

About the Author: Joy Ofrecia is a mother of a teenage boy with autism. She has been a hands-on mother and for more than 10 years, has been implementing home intervention programs along with other school / center-based interventions for her own son and other children with autism. She has earned her Master’s Degree in Special Education from Angeles University Foundation. She conducts orientations and trainings to parents and professionals on autism. She is the current president of the Autism Society Philippines City of San Fernando Chapter. Teacher Joy finds her fulfilment in her role as an advocate of autism and an instrument to empowering parents of children with special needs.

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Posted in: chapters,community,EDIP,government

ASP Marikina congregates at Lyseo de Antipolo

ASP Marikina conducted an Orientation and Family Support Group Meeting for the parents and staff of Lyseo de Antipolo School at 12 Darius St., Kingsville Subdivision, Brgy. Mayamot, Antipolo City last June 7, 2014. Around 20 parents attended the activity. Also present were 8 teachers and staff of Lyseo de Antipolo, and 9 ASP officers and members.

ASP Marikina during Orientation and Family Support Group

The activity formed the part of the Parents Orientation for the School Year 2014-2015 and was organized in response to the growing number of students with special needs in the school and the need to form a support group for their families.

Ms. Tonette Pacunana, an ASP Marikina officer and a parent-partner of Lyseo, presented and discussed the topic on Understanding Autism after which ASP members Ms. Ditas Tiamzon and Ms. Bernadette Tabares shared their experiences and learnings as parents of children with special needs. Ms. Tiamzon has two sons with autism while Ms. Tabares’ three children have autism, hearing impairment and ADHD, respectively.

Under the guidance of ASP Marikina President Alex Cabason, other ASP Marikina officers and members, and Lyseo Administrator / SPED Teacher Mitch Salvador, the group proceeded with the Family Support Group Meeting to discuss the concerns and queries of the parents. The parents actively participated in the discussion and expressed their appreciation for the conduct of the activity. Ms. Salvador assured the parents that similar activities will be conducted in the future and that a support group will be formally created. The ASP Marikina officers also offered help in any way they can.

About the Author: Tonette Pacunana is a housewife, advocate and mother of young boy with Autism. Mommy Tonette is a graduate of BS – Business Administration at UPCBA Diliman and post grad Diploma in Development Economics and Units in Master Developmental Econ at UP School of Economics Diliman. She worked at Financial Specialist, NGO Microcredit Program II and Department of Trade and Industry from 1993 to 1997 and also from 1997 to 2010 Supervising Trade and Industry Development Specialist, Office of Policy Research, DTI; 2011 to present.

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Posted in: chapters,community,fsg

ASP Family Support Group for July 2014

ASPs monthly family support group sessions bring together parents, siblings and other family members to talk about their journey in living with autism. Participants share their experiences and draw enlightenment and strength from others going through the same challenges. We welcome members and non-members to this intimate gathering.

Ms. Conchita Ragragio

Conchita "Titta" M. Ragragio is a co-founder and past President of the Autism Society Philippines, and past Vice President for the Far East of the World Autism Organization.She is an environmental planner by profession, and is currently the Executive Director of the Corporate Network for Disaster Response. She manages capacity building programs on business continuity and community-based disaster risk management and is a staunch advocate of disaster preparedness. She has five children, one of which is Justin, a young man with autism. Justin, now 31, is a graduate of the Centro Escolar University with a degree in library science and currently works as a library assistant at the Community of Learners. Titta is a grandmother of two (but soon-to-be three) boys.

Date: July 19 , 2014, Saturday
Time: 1:00-5:00PM
Venue: ASP National Office, Room 307, ML Building No. 47 Kamias Road Quezon City
Map: Map: http://bit.ly/asp-map

Sign up for the Family Support Group below or call 7-903-5496. Only 15 seats are available.

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Posted in: 4parents,4pros,fsg

ASP Imus holds seminar series

The ASP-Imus Chapter together with the PDAO of Imus City conducted a seminar on Understanding Autism and Opportunities for CWA. It was held last June 21, 2014 at the Bulwagang Ugnayan of Imus City Hall. It was attended by 8 Sped teachers/therapists and 13 parents whose children are mostly below 10 years old.

Janette Peña receives seminar certificate

Ms. Jan Peña, the Resource Speaker and National President of ASP explained that Autism is not a disease but a life-long disability. She enumerates and discusses the different signs and characteristics of autism.

It is a natural thing for parents, upon learning that their child has disability, not to accept their child's condition and to lose hope. But according to Tita Jan, there is hope and that God gave these children to become our angels. Child with Autism (CWA) can be trained. Early intervention services greatly improve their condition. There are CWA who can be mainstreamed to regular schools, some can pursue college degrees and few are able to land on a job. For those who cannot make it to regular schools, they can still be trained to become functional at home. She cites as an example his 18-year old son Moneer who is non-verbal. He is a big help in their home for, with proper training, he can now do the laundry, cook breakfast, fix their beds and do gardening.

Tita Jan closes her talk with a poem which she composed for his son. It is about the different things that she patiently did everyday in order for his child to win in life.

As a mother of a 20-year old PWA, I can say that raising a child with autism is a long journey filled with challenges, struggles, frustrations and anxieties. On the other hand, Tita Jan is right in calling our CWA "angels." My son was sent to us by God to give direction to our life. Looking at him now, who had just finished his high school, I thank the Lord for the gift and the opportunity of raising him. He leads me to this path of becoming a chapter president of ASP Imus and to reach out to those families who are struggling with Autism.

About the contributor: Maria Pamela Genil Turingan is a mother of adult boy with autism. She has earned her Master’s Degree in BS Architecture from University of Sto. Tomas last 1984. Mommy Pam was a full-time homemaker Vice President and Incorporator of Special Care for Special Needs Foundation, Inc., Imus, Cavite - a non-stock, non-profit organization engaged in the rehabilitation and special education of children with special needs. She is the current president of the Autism Society Philippines City of Imus, Cavite.

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Posted in: chapters,community

ASP at the Sensitivity and Welfare of PWDs Seminar at PDEA

The Philippine Drug Enforcement Agency (PDEA) conducted an orientation-seminar on the Sensitivity and Welfare of PWDs for PDEA personnel last May 30 to have ample knowledge on what programs and projects are to be implemented for Persons with Disabilities (PWDs) and to promote sensitivity on PWDs.

PDEA group

The seminar is in line with the Joint DBM-DSWD Circular No. 2003-01 dated April 28, 2003 re: Implementing Guidelines for Section 29 of the FY 2003 General Appropriations Act for FY 2003 entitled “Setting Aside One Percent of Government Agency Budget for Programs / Projects Related to Senior Citizens and The Disabled.”

ASP Trustee, Elizabeth Udquin was the resource speaker on autism and how to handle persons with autism. During the course of the program, somebody from the audience asked her about the difference between autism and ADHD. The question asked is if autism and ADHD is in the same banana. Beth clarified that ADHD is another condition so it opens the opportunity to explain the comorbidities of disability is possible. According to Beth, maybe they observed the overlapping or the resemblance of the sign and symptoms of autism and ADHD. She then gave emphasis about the sensory processing dysfunction that probably the child with autism and a child with ADHD exhibit. As well as a child with autism could have ADHD or a child with autism could also have intellectual disability or a child with autism could also have hearing impairment and visual impairment combined so the Developmental Pediatrician could come up with multiple disability regardless of its ordinal order in terms what is the primary or secondary condition and so on and so forth.

About the author: Raphael Torralba is a former photojournalist for a media agency that caters to persons with disabilities. Raph is currently the Program Coordinator of ASP and its resident photographer. He graduated with a degree in Bachelor of Science in Business Administration Major in Computer Based Information Systems. His passion to serve the PWAs and PWDs earned him as one of the Disability Rights Advocates and one of the Young PWD Leaders. Raph's youngest brother, Patrick, is on the spectrum.

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Posted in: government,PDEA

Q&A with Autism Experts - July 2014

"It takes a village to raise a child." This African proverb rings louder for children with autism. The Autism Society Philippines believes that parents should build relationships with a professional compassionate support team who can advise and counsel them, in addressing the myriad of questions they have about raising a child on the spectrum.

"If you have met someone with autism, you have met ONE person with autism." There is no substitute for personal consultations with professionals, which consider traits and behaviors unique to the individual with autism.

As ASP continues to receive questions from parents and family members year-round, we have reached out to the following experts to help answer some concerns on health, education and intervention.

Do we have very detailed diagnostic tools to find out whether the behavior exhibited by a teen is traits of Asperger Syndrome or just plain Giftedness. I have read in several articles that even in other advance countries it is really hard to diagnose Asperger and Giftedness, hence a lot of misdiagnosed kids. ---Asia T.

With the new DSM5 edition, we have been advised to use the term ASD or Autism Spectrum Disorder; and this will certainly cover individuals previously diagnosed as having PDDNOS and Asperger syndrome. That being said, the gold standard for diagnosis remains to be the ADOS2 (Autism Diagnostic Observation Schedule) and the ADI-R (Autism Diagnostic Interview-Revised). The use of both tests for clinical and research purposes need accreditation. Perhaps a diagnosis of autism needs to be done first before a review of features that present as giftedness can be done.

Dr. Alexis Reyes

Dr. Alexis Socorro L. Reyes is recognized as one of the leading developmental pediatricians in the Philippines. She concurrently concurrently heads the Developmental Pediatrics Section and the Atty. Jose Miguel Arroyo Developmental and Behavioral Studies Unit of the Section of Pediatrics of the UP-PGH. She is an Associate Professor of the Department of Pediatrics at the UP College of Medicine and is a Special Lecturer at the Department of Pediatrics of the Ateneo School of Medicine and Public Health and UP College of Allied Medical Professions.

My son is now 14 years old and in grade 7 in a regular high school. He finds difficulties in many lessons which need deeper analysis and use of Filipino. Do I continue to send him to a regular school or one offering a tutorial type lessons like Kumon to help him with his deficits? ---Regina Matias

It would be helpful to find out if his problems in academics is a language problem or if he has cognitive limitations in terms of critical thinking, evaluation and analysis. In either case, using visuals, pictures and graphs help a lot in explaining concepts and building vocabulary in both English and Pilipino. Kumon may not be the answer to his problems in Araling Panlipunan and Filipino since it is a math program. Nor will he really learn deeper analysis from it if he has cognitive limitations. On the other hand, you may want to consider alternative learning institutions e.g. a progressive school with smaller class sizes where accommodations can be made for his particular learning style. Or you can also consider a vocational school where your son can learn functional skills based on his strengths and interests.

Ms. Cecile Sicam

Cecilia Sicam is one of the 11 original founders of the Autism Society Philippines. She has served ASP in many capacities, as President from 2000 to 2004; and as its current Vice President. Inspired by her PWA son Likas, Ces has been instrumental in the founding of Professionals for Autism Foundation, Inc., Center for Autism and Related Disorders, the Philippine Association for Behavioral Analysis, and Bridges Foundation where she is currently its Directress. She taught SpEd for three years Santa Clara, California; and came back to serve Filipino children with special needs.

If a 7 year-old non-verbal child with ASD and oral motor apraxia shows interest in music and has accuracy in rhythm, what method of speech therapy would benefit the child? ---Roschell Chun

Without knowing the child, we can't give a true recommendation of what method to use. However, in individualizing therapy, there won't be one method that always works with every child, even if the same descriptors are used. So, in general, it will be trial and error. Regardless, with oral apraxia, speech therapy needs to be intense happening 3-5 times per week.

A child without ASD would do repeated practice of imitation of words. If the child with ASD is non-verbal, which is the case in this situation, repeated practice won't work until the child learns to imitate. So, initially working on imitation and motor planning are important.

The next part of the answer goes along with the second question as well. If the child is non-verbal or can approximate language, an augmentative and alternative communication (AAC) device can still be beneficial. The non-verbal child can use the device to imitate language. Try to get a verbal response as well. Never say, "No," if the child's language is not accurate. Simply praise them for trying and repeat the correct pronunciation. The child who can approximate language can use the AAC device to improve ability to communicate. It will also allow the child to hear correct pronunciations repeatedly.

Ms. Tabitha Kirby

Tabitha Kirby, MA, BCBA received her bachelor’s degree in psychology and master’s degree in special education with specialization in Applied Behavior Analysis from The Ohio State University. As an expert in the field of behavior analysis, Tabitha has worked in various clinical, school, and community settings. As a consultant for families of individuals with Autism, Tabitha led and implemented a variety of home-based programs.

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Posted in: ask-experts