The Autism Society Philippines (ASP) is a national, non-profit organization dedicated to the well-being of persons on the autism spectrum disorder. We envision a society where Filipinos on the spectrum become the best of their potentials -- self-reliant, independent, productive, socially-accepted citizens of an Autism-OK Philippines.
Showing posts with label siblings. Show all posts
Showing posts with label siblings. Show all posts

09 April 2018

Jefrey 2.0

Jefrey Arcena Nava was born on April 5th, 1992, to Jose David Nava and Benigna Raynera Arcena.

Before he turned one, he slept all day and stayed awake at night. When he learned to stand with support, he’d climb the division of our old crib. He was one year old when he spoke his first two words: “Jefrey ko.” He did not have eye contact. He did not respond when called, but responded when music was playing, by humming along with the tune.

Out of the crib, he’d always tiptoed when walking. He climbed the jalousie windows as one would a ladder, and attempted to even climb the wooden divisions my parents made, blocking the staircase. He liked round things, like the wheels of toy cars; but he turned them upside down or sideways, to spin their wheels. He would also spin anything he could spin.

It was Ate June (Tatay’s older sister and one of Jef’s godmothers), who noticed, “He could be autistic.” The terms “autistic” and “autism” sounded “new”.

Jef had a strong grip and hyperactive. Until he was around six, both my parents had to hold him, when we go out. Jef was fast -- like a real-life "The Flash". One of us always had to watch him. The second we miss, he’s gone.

He was four when my parents brought him to a day care center in Barangay Bagong Silang. At Preparatory level, the teachers noticed Jef would separate himself from his classmates by going to the window; turning toys, glasses, and tin cans upside down; spinning round things. On the second day, the Prep teachers recommended we bring Jef to ERES, because they had a SpED section. A few hours after observing Jef, and an interview with two SpED teachers and the school principal, my parents were referred to the Mandaluyong Chapter of DSWD.

As a prerequisite to Jef’s admission at the DSWD Mandaluyong Day Care Center, Tatay and Nanay decided to have him evaluated at the National Center for Mental Health, where we got his first medical abstract, stating Jef was a trainable child with autism. He was turning eight at the time. He was then referred to Padre Burgos Elementary School for higher-level SpED, and PGH for the therapy, on his anniversary at Day Care. At the the Padre Burgos SpED center, he practiced the three R’s, discipline in the classroom, and eventually pre-vocational skills.

In PGH, he started at the Developmental Pediatrics section, where he was evaluated as a classic autistic. The doctor’s words that endured? “Autism is a lifelong condition. But it can be managed.” From there, Jef had undergone sessions of Occupational Therapy, Psychotherapy, and Speech Therapy.

He spoke again after two years in Speech Therapy, starting with one-worders. He was ten. Then he went on with Group Therapy at UP College of Allied Medical Professions at 11. The Psychotherapy continues to this day.

Out of years of intervention, Jefrey is now vocal and conversant. He knows how to reason out -- uncovering the “whys” of things, He can understand emotions. He can paint, can do some household chores under supervision. He is keen on personal hygiene -- taking a bath every day, washing his hands often. He joins group activities soccer clinics, cook-offs, arts and crafts, and the like. He still loves jolly music, singing along with them playing in his mp3 player on loudspeaker.

While the challenges associated with his autism remain, we are so happy he has gone this far. We are thankful for all the social workers, doctors, therapists, relatives, and friends, for their advice and support.

About the contributor. Rina A. Nava is Jef's older sibling, six years his senior.

05 April 2018

Lessons of Faith

My brother is a person with autism, and I am proud to say it. Kuya Brainard, throughout the years, has been inspiring many people, including myself. Our family is extraordinary because of him. Truly, we thank God for him. It is a privilege having him in the family, for he made our love stronger. Without my brother, I wouldn’t be here, sharing all of the great things he has done; because our journey with him is not as easy as it would be.

My brother was only three years old when my parents found out that he had autism. My parents were heartbroken about it; and they had no idea how to deal with his condition. My brother is the eldest, while I am the youngest; but our relationship as brother-sister seems the other way around. My whole life, I hold the responsibility of taking care of my brother and protecting him. I felt embarrassed at times; because he did not fit in. As a family, we struggled to keep up with him. We also struggled to accept his exceptionality. In hindsight, I realize now that he would be used by God to change us and our perception of him and others like him; and to open our hearts and minds.

God definitely uses other people and organizations to bless my brother, as well as my family. ILLC, the school where my brother learned to be independent, to relate with other people and to improve work skills. The Autism Society Philippines, through the Autism Works program, helped find my brother a job, and continue to look out for other opportunities for him in the future. SM Savemore Supermarket gave my brother the opportunity to be productive. He has worked in SM Savemore Light Residences in Mandaluyong; and in SM Savemore Mezza Residences in Quezon City. We are grateful for the efforts of the advocates working in these organizations; and also the people who are involved in my brother’s life, who keep on encouraging and praying for Kuya Brainard.

My brother has taught us one thing: BE PATIENT. Everything does not always go as planned; but with faith in God, all will be well. I believe my brother’s autism is not an accident; but is part of God’s plan to change and bless our family and the people around us.

About the contributor. Beatrice Tabije is Brainard’s youngest and only sister. She is a senior high school student at University of Asia and the Pacific.

17 June 2016

ASP Lagro SibsCamp III

ASP Lagro held its third SibsCamp last 24-25 May 2016 at Pueblo Del Sol Village, Tagaytay City, with 10 siblings in attendance. We engaged the services of Teacher My Sorongon as Camp Facilitator and she suggested that the elder sibs who had attended the previous camps be her assistant facilitators -- Leslie Abigail Tan, Louisse Margaux Pagcaliwagan and Fernando A. Tan. The assistant facilitators prepared the games and the mechanics, documented the event and served as watchers and marshals in camp activities.

ASP Lagro Sibs Camp Group

This event was supported by many advocates in our community. Brgy. Captain Renato U. Galimba of Barangay Greater Lagro covered food and transportation. Mrs. Brigida Aniban, a Barangay Treasurer volunteered to cook for us.

We are very happy, because the parents of the attendees expressed their gratitude for the positive effect of the camp on their children.

About the contributor: Marieta F. Tan serves as the President of ASP Lagro. She studied at MBA, UE and UST. She has 4 children.

23 May 2016

Cavite Braces for 5th ASP Sibs Camp

All systems GO! for ASP Siblings Camp Cavite on May 26-28, 2016. ASP families are thrilled to escort the participants to Andrea’s Hidden Villa, a wondrous and PWD-accommodating and friendly resort in Patutong Malaki North, Tagaytay City, Cavite. This year’s twenty campers promise to be an exciting mixture of impassioned Ate’s and Kuya’s from Cavite cities and towns of Carmona, Bacoor, Dasmariñas, Molino, Gen. Trias, Silang and Mendez, plus hi-energy sibs from Manila and Muntinlupa Chapters.

Sibs Camp Cavite is a yearly coming together of siblings of PWA’s of different ages whose families are active ASP members. Since 2010, the summer activity has served as a venue for siblings bonding, self-expression, enriching perspectives and directions, and inculcating compassion, advocacy and leadership.

ASP Cavite Sibs Camp

We thank all the parents who promptly responded to this invitation and did not think twice to motivate their children to engage in the Siblings Camp. We hope to continue making Sibs Camp a must-join activity for every sibling every summer, for it educates, transforms and empowers siblings in their life’s journey with a brother or sister with autism.

We are also heartily grateful for the support of steadfast partners and friends who helped to kick-off the 2016 Sibs Camp (5th in Cavite): Teacher My Sorongon, ASP’s Siblings Camp Facilitator; Mr. Jing Caringal, Head of PDAO, Tagaytay City; Mrs. Romana Bough, long-time ASP angel; and JOLLIBEE - Mendez Crossing Tagaytay! Your spirit behind Sibs Camp Cavite is our strength! From the organizing team of 2016 Sibs Camp Cavite, Salamat and Mabuhay!

About the contributor: Mary Janette Infantado-Peña is a former President and Executive Director of the National Autism Society Philippines. She is also a former President of the Autism Society Philippines Bacoor and Dasmariñas Chapters (Cavite). Ms. Janette is a Graduate of AB Psychology from the University of the Phil, Dil. QC. She worked as a Teacher, Trainer and Supervisor in multi-instructional settings. Ms. Janette is a very active autism advocate, being a mother of a 22-year old young man with autism (Muneer). In 2015, her family was conferred the prestigious 2015 Jollibee Family Values Award for its exceptional contribution to the empowerment of Filipinos with Autism.

05 May 2016

Siblings’ Circle Summer Camp 2016

The ASP Laguna Siblings Circle Summer Camp 2016 (SCSC), with the theme “PWA Siblings, Proud and Aware,” was held on 22-23 April 2016 at Word of Life, a Christian recreational center located in Brgy. Perez, Calauan, Laguna. Ms. Marivic Ramos served as camp director, Ms. Deborah Klaudine Sanchez as lead facilitator, Ms. Inah Cathes Lopez and Sir Reymart Encarnacion as assistant facilitators at SCSC 2016.

The camp encouraged siblings and cousins of children with autism to be outspoken about their special relatives, brothers and sisters. Three constant E’s are the main objectives of the camp: empower, express and enjoy. All were given the opportunity to express their awareness of the condition of their relatives, brothers and sisters and to discover more of its implications in their daily lives. It also gave them the opportunity to think back to the moments that they felt proud of them. The camp also allowed them to develop camaraderie and share learning experiences among themselves. Participants came from Laguna (San Pablo, Sta. Rosa, Pakil), Cavite (Carmona), Quezon (Infanta) and Pampanga (San Fernando).

Siblings Circle Summer Camp group

The program started at 9:00 am with a prayer led by Ms. Debs Sanchez. A welcome followed given by Ms. Marivic Ramos. She also introduced the camp team to the participants. Together with Ms. Jessica, a staff from the Word of Life Camp, Ms. Marivic discussed the camp rules and regulations.

Fun started with “getting-to-know” activities namely “candy colors,” “inside the box” and the “toilet roll.” Participants were asked to introduce themselves by giving their name, age and the place where they came from and other things about themselves. The campers were amazing as they blended immediately well.

After the getting-to- know activities boodle fight lunch followed. The campers put together their lunch packs on banana leaves spread on the table for sharing. Most of them brought fast food chicken meals so it turned out to be a “chicken festival”. It was a first time experience for most of the campers to eat with their bare hands.

The bible hour, which is compulsory for all groups availing the facilities of the Word of Life Camp Inc. was done after lunch and facilitated by Kuya Ivan, a staff of the camp site. The bible verse was John 3:16 which states “for God so love the world, that He gave His only begotten Son, that whoever believes in Him shall not perish but have eternal life. The emphasis of the sharing is the love of God, which gives us the capacity to love others especially the siblings and relatives with autism. The group was divided into two for a contest of finding the verse in the bible. The much awaited swimming time followed.

After dinner, there was t-shirt printing. They printed their own shirt with a sibling circle design, and went off for another awaited ending activity for the day -- the bonfire. Everybody was excited to gather in front of the bonfire. The facilitators led the sharing by asking each participant the question “What do you understand about your sibling’s/relative’s special condition?” and “What was the time/s that you were so proud of your siblings/relatives with autism?”

The SCSC team tried to give light to some confusion by giving facts and concrete examples. Positive emotions poured out when asked the second question. Some even cried because they pity their siblings/relatives. To lighten the mood, the “chubby bunny” challenge did a great job. It’s a challenge to everyone to put as much marshmallows in their mouth to expand their cheeks one piece at a time and still be able to say the phrase “Sibs proud and aware!” as clearly as possible. Each participant tried to say the phrase as clearly as possible while increasing pieces of marshmallows in their mouth. Everyone had a good laugh. The heating of marshmallows was also a hit, especially when they made their own “smores.”

The second day started at 5:30 am with a morning prayer followed by then the Filipino game “sikyo” or “agawan base” which they enjoyed much. After breakfast everybody got excited with the zip-line ride. One participant got the “Fear Buster” award for conquering his fear of the zip-line. Then the group underwent the traditional initiation by executing the “Human Roll.” Several games were played in the covered court until everyone got tired. After lunch, there was a group picture taking in the different areas of the camp.

And they did the “letter writing” activity where each one has to write a note or letter to other participants whom they like to make friends with. Eventually, all of them made one for each of the participants.

After the activity, everyone packed away their things and spent the remaining hours for bonding. Simultaneously, parents were gathered by Ms. Marivic to give them information on what transpired during the two-day camp. Activities were shared to them and details like how the siblings/cousins see their special relatives, brothers and sisters in different ways and their disabilities as well.

Ms. Marivic thanked the parents for entrusting their children to ASP Laguna and to the SCSC team, for the support in terms of time and efforts to make ASP Laguna Siblings Circle Summer Camp a success! The camp ended with an awarding of certificate of recognition to the participants.

About the contributor: Marivic is an ASP National Trustee and the current Vice-President of ASP Laguna Chapter. A Trainer for Work, Live and Play Program to young adults with autism at Autism Resource Center (ARC). Marivic is a pillar of the autism advocacy community in Los Baños, immersing herself in special education and training and empowerment programs over the years. As an ASP delegate, she was elected to the board of the Philippine Community Based Disability Inclusive Development Network. She is a single mother to a 23 year old young adult with autism, Victor Michael "Mico" Ramos who is now working at ASP National Headquarters as Junior Program Assistant.

02 May 2015

ASP Laguna Siblings’ Circle Summer Camp 2015

The ASP Laguna Siblings Circle Summer Camp (SCSC) is an annual event for siblings and close relatives of children with special needs. It has been with the theme “Siblings Shine in April”. The main objectives of the camp: have fun, discover oneself, build friendship and learn. It served as an opportunity for the siblings to shine by discovering the inner talents, to develop camaraderie, and most especially share learning experiences with others.

ASP Laguna Siblings Circle Summer Camp group

This year’s camp was held on April 25-27, 2015 in Word of Life Inc., a Christian campus located in Brgy. Perez, Calauan, Laguna. The SCSC team is composed of the following: Marivic Ramos as Camp Director; My Sorongon and Deborah Sanchez as Lead Facilitators; Inah Cathes Lopez and Reymart Encarnacion as Assistant Facilitators/Documenters.

ASP Laguna Team welcomed the eleven participants from Los Baños and Sta. Rosa Laguna, San Fernando Pampanga, and Lucena, Quezon. The SCSC program started at 10’o clock am. It began with a prayer lead by Inah Lopez followed by a welcome message,an introduction of the Camp team and presentation of the camp rules by Marivic Ramos joined by Ms. Jessica, a staff from Word of Life.

The campers were given ample time to have their informal bonding. The SCSC team observed that most of the campers easily got comfortable with each other. The SCSC team has encouraged the participants to have a Buddy-System. During their bonding moments, some of the participants initiated to play ball games. It was successful because everybody enjoyed the games as well as the swimming activities. After dinner T-shirt printing was done followed by the group games wherein the campers were divided into 2 groups to play the Filipino games such as “luksong baka, patintero, hagaran,” “human spring and caterpillar race.”

The second day, started with an early morning exercise and jogging, and another round of Filipino game the “Sikyo or Moro-moro.” At 9:00 a.m., the group attended the Sunday Worship service lead by the Word of Life student pastors. Zip line activity followed which thrilled the campers and camp facilitators. In the afternoon, two (2) age groups were formed to easily facilitate an activity that will precede the group sharing activity. After the group sharing, they were again tasked to prepare for a performance to be done during the camp fire that evening.

The creation of ASP Laguna Siblings Circle was realized on the third day. The campers have elected leaders to represent and take a lead in future activities in coordination with ASP Laguna Chapter. The elected officers are the following: Patricia Calderon as President, Aldrin Lambon as Vice President, Catherine Dellosa as Secretary and Patricia Ofrecia as Treasurer. The group was then briefed regarding the new group in Facebook that will be created by ASP Laguna wherein the campers could join and invite other siblings or cousins of persons with special needs. Members were encouraged to post in the FB group.

Simultaneously, the parents were given feedbacks and evaluation of the summer camp activities in general terms by Ms. Marivic Ramos and My Sorongon. The chapter president, Ms. Cathy Lopez acknowledged the hard work of the SCSC Team and expressed gratitude to all parents for the support by allowing encouraging their children to join which contributed much to the success of ASP Laguna Siblings Circle Summer Camp 2015.

The camp ended as parents witnessed the giving of recognition awards to their children as they shine and excel in varied activities.

About the contributor: Inah Cathes Lopez is a sibling of a PWA named Ian Lopez. She was once a participant of a Sibling Camp wayback year 2001. She is a graduate of B.S. Biology in Laguna State Polytechnic University, San Pablo City Campus. She is now working as a Quality Assurance Analyst in a food manufacturing establishment located in San Pablo City, Laguna. Like any typical sibling of a PWA, she had also experienced certain challenges and hardships while growing up. She had her fair share of moments wherein she could not find comfort in her parents since her parents had to focus on the other sibling, but with the help and guidance of Sibling Camps, she found strength and dedication in supporting and guiding fellow siblings.

06 October 2014

The Sibling Factor

ASP Sta. Rosa had a simple yet fun time with some of the siblings of its members last 14 September 2014 at the Erolin residence at Tagapo, Sta. Rosa which is currently the registered office address of ASP Sta. Rosa.

Ms. Olive sharing a story of "Spinning"

The activity aimed to help the siblings understand their brother or sister with autism and try activities like shooting rings, following patterns and matching pictures with words that they can play with their siblings. We had story telling and we used the book "Spinning" written by Teacher Irene Sarmiento, written from the perspective of a sibling. Everyone enjoyed the simple but sumptuous merienda and the siblings were given prizes for their participation. This was a way for them to also learn how reward system can make their brother or sister with autism get motivated.

About the Contributor: Olive Medina is mom to CWA Enzo and his baby sister Lizzie. Aside from fulfilling her duties as a wife and mother, she works as General Manager for a logistics company, a part time college lecturer and part time yoga instructor. She is also the president of ASP Sta. Rosa Chapter.