The Autism Society Philippines (ASP) is a national, non-profit organization dedicated to the well-being of persons on the autism spectrum disorder. We envision a society where Filipinos on the spectrum become the best of their potentials -- self-reliant, independent, productive, socially-accepted citizens of an Autism-OK Philippines.

29 October 2010

DSWD Sec Soliman Converges with ASP Laguna

By: Ms. Lian del Valle, Trainer ASP Laguna Chapter (ARC)

ASP Laguna Chapter representatives were invited to the very fruitful and inspiring Laguna Converge Roadshow last October 20 & 21, 2010 in Bay, Laguna. The event was spearheaded by Department of Social Welfare and Development (DSWD) Secretary Corazon ”Dinky” Juliano-Soliman and was conducted by DSWD Region IV. The three-hour Roadshow was also attended by different NGO groups around the region.
Department of Social Welfare and Development (DSWD) Secretary Corazon ”Dinky” Juliano-Soliman during the Laguna Convergence Roadshow

The Laguna Convergence Roadshow aims are:

a) to meet and interact with citizen beneficiaries of the Poverty Reduction Programs of the agency, specifically the Pantawid Pamilyang Pilipino Program (4Ps), Self Employment Assistance Program (SEA-Kaunlaran Program) and KALAHI-CIDSS;

b) to dialogue with LGU officials and staff on the partnership between DSWD and LGU for the implementation of the social protection and poverty reduction programs; and

c) to provide a venue for interaction between the officials of the DSWD and local stakeholders (beneficiaries, local government officials, volunteer groups and local media).

Sec. Soliman is very positive about establishing partnership with ASP Laguna in institutionalizing the setting-up of day care centers for special children. Initially, this will be done in Laguna, and then the Laguna Model will be replicated throughout the Philippines.
The DSWD Secretary Soliman and Ms. Lian of ARC

ASP Laguna Chapter will communicate with the Regional Office of Region IV and looks forward to a strong linkage with DSWD. The chapter will work on a meeting for sub-discussions on a sustaining partnership and hopes to become a continuous “Tulay” at “Kaagapay” of the Department.

To know more about ASP Laguna Chapters’ Autism Resource Center, click here.

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ASP Chapters continues to work hard for the future of persons with autism and their families. ASP Chapters need your support to continue their projects and services. Be an Angel for Autism. Write us at autismphils@gmail.com or call us at 7-903-5496. Or contact ASP Laguna Chapter at asplagunachapter@yahoo.com

26 October 2010

ASP’s Cebu Regional Conference spelled solidarity and success

The ASP 2nd Regional Conference on Autism proved to be a huge success, with more than 300 delegates attending. The conference was sponsored by ASP-Cebu Chapter and was held at SM City Cebu Trade Center Hall from October 23 -24, 2010. ASP-Cebu Chapter is headed by President Sandra Espina.
ASP Cebu Chapter Representatives together with President Sandra Espina (seated-right)
More than 300 attending delegates of ASP Cebu
2nd Regional Autism Conference at SM City Cebu Trade Hall

To show solidarity with the conference, ASP National led by President Grace Adviento flew to Cebu with her entourage: VP- Peng So, Trustees Cris Estampador, Gina Bermudo and Fredes Javier. They were joined by Executive Director Ranil Sorongon. ASP Chair Emeritus, Dang Koe and ASP-Auditor, Evert Malapad, were also there as guest speakers of Day Two of the said conference. Other representatives from the following chapters also came in to give support: Carmona, Tanza, Lagro, Dipolog City, General Santos City, Iloilo, Tacloban City, Cagayan de Oro City and Davao City.
ASP Chapter Leaders and ASP Board of Trustees with Teacher Anthony (seated-2nd from left)
ASP Chair Emeritus Dang Koe as Keynote Speaker during the 2nd Regional Autism Conference

It was a privilege to have Mayor Michael Rama of Cebu City, who came to give the opening message. Mr. Van Aberia of SM Cebu City, testified on “The Heart of SM,” SM Supermall’s Corporate Social Responsibility for people with disabilities. Mayor Jonas Cortez through his representative, gave an inspirational message.

Day 1 of the conference topics and speakers were the following

Experts from Manila: Mr. Lauro Purcil Jr, Chairman of National Committee on UN-Conventions – KAMPI, talked about the Rights and Privileges of Persons with Disabilities on his topic, “Discounts and More… Claim it! UNCRPD and RA 9442”, Prof. Mercedes Adorio, SpEd Professor from Phil. Women’s University: discussed the education of CWA’s in “Mainstreaming or Inclusion”, Prof. Abelardo Apollo I. David,Jr, MOccThy,OTRP, Executive Director of Independent Living, Learning Center (ILLC), shared valuable information on on-the-job training and hiring PWAs in the workplace in “Wanted: Jobs for PWAs.”

From the Pride of Cebu: Dr. Jacqueline J. Espina, Developmental Pediatrician, CIM, CDU: discussed the “Fact and Fiction:” of Autism, Dr. Barbra Charina V. Cavan, Pediatrician/Geneticist: talked about genetics with her topic “Your Gene or Mine?”, Dr. Glenda Basubas, Cebu PSH; lectured on “Seize Those Seizures” and Ms. Christianne Marie Andigan, MHlthSc, OTRP; made things clearer in “Sensing your Child’s Senses.”

Day 2 Conference, topics and speakers

Focusing on the importance of the family’s role in the lives of persons with autism, Cebu participants were peppered with seasoned speakers, Ms. Erlinda “Dang” Koe, (ASP Chair Emeritus), who inspired parents with her talk on , “Living with Autism in the Family: Live, Love and Laugh”, Mr. Evert Malapad, (ASP National’s Auditor and ASP- Metro-South Chapter President) empowered daddies with his side of the story in “Daddy’s Power” and Ms. Rosalyn Marie G. Sorongon, MA Sped, ASP EDEIP Trainer; enlightened parents by showing the “Sibling’s Side of the Story”.

Equally important are the roles of professionals. Dr. Renato Delos Santos a Neuro-Psychiatrist who flew in from Chicago, USA to discuss “Managing Severe Behavior/ Puberty – Adolescent Issues,” through medications. Dr. Myra Altonaga, Developmental Pediatrician; “Management of Autism,” Ms. Mae Sadicon, PASP; gave a lecture on “Language and Autism: A Spectrum of Possibilities and Choices,” Mr. Anthony Grecia, OTRP, MA Psychology, Program Director of Center for GOALS; demystified Autism through “Friends, Puppets, Shades and Games: Developing Social Inclusion and Mutual Friendship Between Children with ASD & Their Peers, Siblings and Classmates”.

ASP would like to thank ASP members, parents, professionals, volunteers, the hardworking staff, donors and supporters for the success of ASP’s 2nd Regional Autism Conference. Keep checking the blog for more updates and stories.

Take this opportunity to Be an Angel for Autism. Donate to ASP Programs and Services. Deposit in Banco de Oro Anonas-Kamias Branch- Savings Account No. 3980002955. Email us at autismphils@gmail.com or call 7-903-5496.

25 October 2010

Stormy Stories of Children with Autism

(Preparing for Super Typhoons)
By DANG U. KOE, ASP Chair Emeritus

I was frantically texting and calling Gio’s yaya. While my youngest son and I were dry and comfortable in my mother’s QC house, the water in our Cainta home reached eight feet high during Ondoy. Gio and his other brother were trapped on our second floor, together with our household helpers. I was so nervous how Gio would react if they had to climb up our rooftop should the water reach our second floor.

September 28, 2009. Tropical Storm Ondoy left the country with some 250,000 affected families. One of the hardest hit cities was the city of Marikina. Many residents were left stranded in their homes due to floods, some reaching up the second floor. For several days, there was no electricity. Some had no food nor water and desperately went up the rooftops hoping for rescue teams to recover them.
Tropical Storm Ondoy left the country with some 250,000 affected families (photo courtesy of Certified Autism Angel John Chua

While the country was preparing for Tropical Storm Juan, Angel Talker Tiffany Tan interviewed three moms from ASP Marikina Valley Chapter how they were able to cope with Ondoy and their child with autism. She asked them to tell their stories and give advice to our readers.

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ASP Marikina-Valley Chapter’s First Family, the Cabasons, was stranded inside 14 feet of water inside Provident Village. Dad Alex and three of their kids were with him inside the house, while Mom Marivi was stranded in Ateneo de Manila University where she works. Marivi was worried sick for the family. Meanwhile, another family, Mom Chyrill and son Bennie were also trapped in their home. “Bennie thought our house became an instant resort. Water was inside the house. He was so excited he wanted to take a dip on the murky water. We explained to him so many times that the water was dirty and he cannot swim in it.”

Maya’s son JC is not scared of rains is bothered by thunderstorms. He adjusts by covering his ears. Occasional blackouts were tolerable and he would make do by playing with his sister. But Ondoy was a traumatic experience for JC. The thunderstorms, continuous rain, and the long blackout made a very big impact on him. “He saw the water rising up to the garage. When nightfall came, he was agitated, cried and walked around the house.”

Water in Marivi’s home reached almost the top of the house. Her son Vinz, with autism, didn’t complain when they stayed on the rooftop for four hours in the rain. He didn’t complain about the food they had, and might have even enjoyed the bit of novelty experience. “It was such a relief for me that Vinz didn’t pose any problem to his Dad Alex at that time.”

HOW DID YOU COPE WITH YOUR CWA DURING THE HEIGHT OF THE STORM?

Marivi: “When all were rushing to save things from the rapidly rising floodwaters early afternoon of September 26, Vinz had the sense to save his schoolbag, which his siblings failed to do with their own school things. For me, that’s foresight! But he left all his clothes and shoes, so he had to wear his uncle’s huge shirt when he had to change from his wet clothes.” According to Marivi, Vinz has overcome most of the symptoms of autism, even the sensory difficulties. He must have noted the panic-ridden seriousness of the Ondoy situation and went along with all the instructions and with everything that was happening. Vinz was generally quiet and obedient the whole time during typhoon Ondoy. He didn’t fret a bit. When asked by his mom if he was OK during the typhoon, Vinz just said he was worried of not being able to swim.

Chyril: “We were supposed to be evacuated by a relative who works for a shipping company, but I was hesitant because it was raining hard. Bennie might get sick and he might be too excited to ride the boat. He loves riding boats and he loves water. But he has a tendency to put water into his mouth and spit it out. He seemed to try to understand, but still kept saying “swim”. When we showed him the flooded water outside the house, he kept saying “swimming pool.” So we distracted him by going out the fire exit to see the helicopter flying around. He was happy to see that.”

Maya: “The following day, there was still no electricity. JC was very upset and cried, but he would stop. I brought him outside to the terrace to see daylight. We then set up a folding bed, where he had fresh air. He did activities there, read books, played and took naps.

CONSIDERING THE NEEDS OF YOUR CWA, WHAT AND HOW WILL YOU PREPARE YOUR FAMILY IF THERE WILL BE ANOTHER ONDOY?

1. DESENSITIZATION AND THERAPY

Maya: After Ondoy, when rains come, JC will close all the windows, start crying and cover his ears. One time when he was in therapy, I accidentally leaned on a switch. The light fluctuation upset him and he started crying. He also kept looking outside side the window to check for rain. We consulted his speech therapist Teacher Joanne of Milestones and Teacher Jon, SpEd teacher of Children’s Therapy Hub. Teacher Joanne told us to tell JC it is alright to be scared and to comfort him, to ease his anxiety. We were also advised to make him “enjoy rain” by making him walk under the rain. (We actually tried this to desensitize him). She also advised us to do family activities together whenever there is a brownout. Teacher Jon on the other hand, practiced with him by switching the light on and off during therapy sessions, to help him get used to the flickering lights. He also made drawings of rain and children playing in the rain to make JC understand and not fear the rain.

2. PROVIDE ACTIVITIES TO OCCUPY TIME

Chyril and Marivi: Everyone should really be prepared for any activities for our special children in emergency situations such as typhoons. And kids with autism should have something to do to distract them while they are waiting for the storm to pass, or while waiting for rescue. If your kids know how to read, prepare lots of books. Have story-telling with parents or siblings. Coloring activities, crafts or puzzles and maybe play board games with them like dominos or snakes and ladders. Listen to music and sing with them.

Chyril: Bennie played with his PSP (portable play station) during Ondoy which kept him busy.

3. PREPARE EQUIPMENT AND FOOD BEFORE THE STORM

Maya: JC has his own flashlight for brownouts. (He hugged his flashlight to sleep during a recent brownout.)

Chyril: For food, I didn’t have much difficulty. Thankfully, during Ondoy Bennie’s cabinet was stacked with different snacks, like biscuits and drinks. He requested for fried chicken several times, but we couldn’t go out of the house. Good thing we had canned goods like Vienna sausage, luncheon meat, corned beef and pork and beans. Since our house was flooded, life vests can come in handy, just in case.

Marivi: During typhoons and emergency situations, there should be briefing for the whole family beforehand; what to do, where to go, what to bring, what precautions to take. Prepare items such as candles and matches, flashlight, some food stock and water, radio with batteries. A whistle, to signal to rescuers that there are people in that area who need help.

4. MIND CONDITIONING TECHNIQUE

Maya: When my husband and I knew that another super typhoon, Juan, was coming, we were prepared already. We used a mind conditioning technique by repeating to JC of the coming storm, and that there will be rains, thunder, and brownouts. But after the storm, will come the sun and then we will go to SM City Marikina. We repeated this scenario to him over and over for four days before and during Storm Juan. I think it kind of worked because he would say the sentence on his own, “After the storm, sun. Then, SM.” This conditioning helped JC to learn what to expect, and made him calmer. When it started to rain Monday night, he was not as agitated as before. He just closed all the windows. Surprisingly, he was in a pleasant mood. He however cried a little and covered his ears, but he was able to control himself as he would repeat to himself the mantra “Storm, then rain, then sun, then SM”. I am glad the storms didn’t hit Metro Manila too much as I wouldn’t know if this chant will be enough to calm him. However, I know it has lessened his fear, somehow. We know it takes time to help JC adjust and we are hoping that he will outgrow this. We just have to be very patient and supportive.

Source: Manila Bulletin, Stormy Stories of Children with Autism

Uploaded With Permission

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ASP brings back to the country Bimal Rai, one of the first Relationship Development Intervention (RDI) Program Certified Consultants in Southeast Asia on Nov. 27. For more details, visit autismsocietyphilippines.blogspot.com.

23 October 2010

ASP Tacloban Chapter’s Seminar on "Home Activities for CWA”

By: Dr. Geraldine Abuyabor, President, ASP Tacloban Chapter

Last September 25, 2010, ASP Tacloban Chapter held a seminar on “Home Activities for Children with Autism and Other Developmental Disabilities.” The seminar was attended by parents, teachers, and UP college students and was held at the University of the Philippines’ Multipurpose Building, Magsaysay Blvd, Tacloban City, Leyte from 2-5 pm.
ASP Tacloban Chapter President Ms. Geraldine Abuyabor during the lecture

Our resource speaker, Mr. Oscar Javier, is an Occupational Therapist by profession. He graduated from Cebu Doctors College of Occupational Therapists and practiced OT for eight years in various centers in Cebu City. He also trained at the Child Can Foundation in Manila.

Javier’s seminar focused on PLAY as a way to engage a child's attention. He also discussed integrating a “sensory diet” with play. He also talked lengthily about Floor Time by Dr. Greenspan, presenting simple, fun and practical ways of “playing” at home to parents and caregivers (yayas).

Mr. Javier is married to a lawyer from Tacloban City and is blessed with three kids. He will fly to Australia at the end of October to work as a registered nurse. We look forward to more collaborative efforts soon.

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The ASP Chapter Seminar Series serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are of their own and don’t necessarily reflect that of the views of the organization.

AutiSM Marikina Partners to Harness CWA Talents

AutiSM is the coined name given to the partnership of SM Supermalls and Autism Society Philippines. The partnership started in 2004 and has led to an increase in PWD awareness and advocacy in different malls around the country. This time, ASP Marikina Valley Chapter collaborates with SM City Marikina for their activities.

During the celebration of Book Month held in SM Marikina sometime last August 2010, 13-year-old Christian Ambion, a child with autism and member of ASP Marikina Valley chapter (ASP-MVC), amazed everyone with his energetic and enthusiastic reading of a story. Christian mesmerized the young audience composed of elementary school kids with his reading. Even the public school teachers and the beauteous Ms. Mitchell Martel, Mall Manager of SM Marikina, applauded, amazed at the boy’s talent. They wondered if he indeed had a disability.

Inspired by what transpired during the event, Ms. Martel challenged ASP-MVC President, Alex Cabason, Jr., to hold another activity for the October Children’s Month. In response to the challenge, ASP-MVC gathered parents: Jorge and Tonette Pacunana, Edwin and Maya Ignacio, and professionals: Teacher Joanne Coronado, Speech Pathologist and Administrator of Milestones Therapy Center, Teacher Maan Alvaran, SPED and Administrator of Schola Antipolo Integrated, and Ms. Hazel Navarro, to conceptualize a stimulating activity for the kids.

SM management readily approved ASP-MVC’s latest project “This Kid Has Talent!”, an interactive program aimed at discovering the hidden talents of children with special needs. Based on the concept of Multiple Intelligences, they set up four stations strategically at the SM Event Center, corresponding to 4 of the 7 areas of intelligence namely: Music, Movement, Art and Linguistics. Each station was manned by parent and professional volunteers from ASP-MVC’s partner schools and equipped with necessary materials to bring out the kids’ talents.

The SM City Marikina Event Center opened the program on October 10, 2pm. The activity was open to the public. Kids were busy honing their talents as each was given time to visit and try out each station.

For their concerns regarding their children with autism (CWA), parents availed of FREE Professional Advice from our volunteer Paediatrician, Physical Therapist, Speech Pathologist and Occupational Therapist at the Consultation Area.

Selected CWAs performed different numbers, representing each of the Four Intelligences. For Music, Garin sang “Close to You.” For Movement, Roj Pacunana danced with sister, Lia and her friend Maedin to the music “Catch a Falling Star”. For Art, Nicolo Kwan demonstrated his talent for On-the-Spot Portrait sketching and painting and for Linguistics, Christian Ambion returned to deliver the elocution piece “O Captain, My Captain” and JC Ignacio read a poem. An Acoustic Band composed of teachers also entertained the audience with three songs.
An Acoustic Band performed to entertain the audience

After the program, children who completed the four stations were given small gifts from the chapter and the professionals-volunteers were also given “Certificates of Recognition” for their labours. Ms. Martel and Mr. Cabason exchanged congratulatory and gratuity addresses for the success of the activity. Watch out for ASP-MVC’s Christmas Party at SM Activity Center, SM City Marikina this December!
Acknowledgements: SM City Marikina (SMCM), Ms. Mitchell Martel, SMCM Mall Manager, SMCM Staff and Personnel, “Best Minds in this part of the Universe” ASP-MVC Chapter Officers, Hazel Navarro (ASP-MVC’s PRO), Parent Members: Couple Jorge and Tonette Pacunana and Couple Edwin and Maya Ignacio; Professional Members: Teacher Joanne Coronado (Speech Pathologist) Teacher Maan Alvaran (SPED Teacher) and Partner Schools Milestones Therapy Center, Schola Antipolo Integrated and Tots at Work, Volunteer Parents and Professionals.

How to have a Triumphant Home Management Program

By: Thine Republica, ASP Program Assistant

ASP National conducted a Seminar-Workshop on Home Management Program last September 25, 2010 at Asian Social Institute, Malate Manila. Peng So (VP), Evelyn Go (Treasurer), and Evert Malapad (Auditor) came to support the participants.

ASP’s “suki” trainer, Ms. Rosalyn Marie Sorongon, gave a general orientation on Autism Spectrum Disorders (ASD) and expounded on Management of Developmental Disabilities at Home; while Ms. Apple Malapad, devoted wife of Evert (Auditor) and mom to Mae-Mae, (16) teen with autism, shared her personal experiences, stressing the importance of a HMP and giving practical tips to make it successful.
Ms. Rosalyn Marie Sorongon, during the orientation on Autism Spectrum Disorders
Ms. Apple Malapad, hared her personal experiences, stressing the importance of a HMP and giving practical tips to make it successful.

Seminar Proper

A total of 25 parents and professionals attended the seminar. The Seminar-Workshop on Home Management Program aims to furnish parents and professionals with different approaches on how to teach persons with autism (PWA) at home, focusing on meeting their specific needs, addressing their behavioral concerns, and teaching adaptability to daily family activities, routines, chores, making them functional in the home setting. The participants acquired valuable skills which can support the PWAs on the road to self-reliance & productivity and in the attainment of their maximum potential.

HMP compliments the PWA’s Special Education (SPED) Program being implemented in school and extends its implementation at home. HMP covers other areas which are being given limited time in school, such as personal hygiene and household chores.

Comparing a SPED Class program with a HMP: a SPED Class lasts for an average of 4 hours a day, while a HMP lasts approximately 12 hours a day (assuming the PWA gets 8 hours of sleep). In a SPED class, the Sped Teacher is the implementer, while at home the implementers are parents and/or siblings, caregivers. Teacher-Student Ratio in SPED Class is 1 Teacher to 4 Students, while at HMP probably, one is to one. The HMP is more affordable and less costly than enrolling a child in a SPED Class.

Workshop Proper

Parents as primary implementers were tasked to design a HMP for their child. They were encouraged to regularly discuss and coordinate with the CWA’s Developmental Pediatrician (or a similar professional), report the progress and daily activities at home to the School’s Program Coordinator, educate other members of the family (including caregivers) about the HMP and monitor family members’ compliance to the program.

There are many challenges parents face. Financial concerns, being forced to learn new things in a limited time coupled with feelings of inadequacy can be both physically and emotionally draining. In addition, the fear for their children’s future and the public ridicule CWAs were subjected to contribute mental and emotional stress.

Conclusion

According to the speakers, discouragement is the Parent-Implementer’s “Public Enemy No.1”. To effectively deal with discouragement, there must be a change in parents’ perspective. Parents were reminded that a “small progress” is still “progress”. Parents need to celebrate small victories rather than looking at it as “not being good enough” or being “inadequate”. Getting support from other parents is another key to battling discouragement.

The seminar-workshop was a huge triumph. All the participants discovered and learned new and practical things that they can apply at home. The 25 participants shared their personal experiences and gathered valuable lessons, different strategies in an intimate and interactive forum. It was such an enriching and empowering experience that the participants requested for more seminars like these soon.

“There is always hope for our children. Our hugs and kisses may not be enough to cure autism but if you add commitment and persistence, and personally implement the Home Program, remarkable developmental strides are just an arm’s length away,” said Apple Malapad. Her husband Evert will be one of the Cebu Regional Conference speakers on “Daddy’s Power” on October 23-24, 2010 at SM City Cebu Trade Hall.

Click here to know more about the Cebu Regional Conference.

The ASP Seminar Series serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are of their own and don’t necessarily reflect that of the views of the organization.

“Make Autism Your CSR”: A Challenge to TGTE Delegates

By: Abegail Mendoza, ASP Program Assistant

ASP joined the Thomasian Global Trade Expo (TGTE) last October 15-17, 2010 at the SMX Convention Center. The 3-day exhibit is part of the preparations for the University of Santo Tomas’ (UST) Quadricentennial Celebration in 2011. ASP Chair Emeritus, Dang Koe, was invited as special guest speaker. She expounded on the topic “Autism as a Corporate Social Responsibility.”
The Thomasian Global Trade Expo (TGTE) last October 15-17, 2010  at the SMX Convention Center

UST is Dang’s alma mater. She was also given The Outstanding Thomasian Alumni (TOTAL) Award for Humanitarian Service in 2009, for her competence, commitment and compassion in leading Autism Society Philippines to share hopes & build dreams with Filipino families dealing with autism.

The talk was attended by more or less 100 participants, among them are members of the different ASP Chapters within Quezon City and from south: Tanza, Carmona, Cavite North and Laguna. Her lecture is part of ASP’s advocacy to put autism in the mainstream and to push for the recognition of the rights of persons with disabilities as embodied in the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD).

ASP is also a partner exhibitor of TGTE. As expected, there were thousands of Thomasians from different batches who came to visit ASP’s booth. The booth also displayed different ASP merchandise and commemorative items, as part of ASP’s fund raising campaign. Click here to know more about ASP’s Angels for Autism Merchandise.
The ASP Booth during the TGTE

The ASP’s Signs and Symptoms Tarpaulin was a stand-out. Many students, parents and guests read and studied the tarpaulin. One even commented: “Naku baka may autism ang anak niya!”. Though only a few individuals asked the staff what autism is, there were inquiries about referrals to professionals and doctors who are licensed and qualified to give diagnosis or help.

Autism Angels, Abegail Mendoza (ASP Program Assistant) and Cristine Republica (ASP Trainee) distributed ASP brochures, the ACAP newsletter (which contains ASP’s news and activities) and the UNCRPD handouts to help TGTE delegates become aware and informed about autism, and the Rights of Persons with Disabilities.

We want to thank ASP Parent Member, Angie Tuazon, who was instrumental in forging the TGTE-ASP partnership. Angie is also a Thomasian and mother to Seiji, a young boy with autism.

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Are you an Angel for Autism? Make AUTISM your Corporate Social Responsibility. To request for Autism Orientation, please email us at autismphils@gmail.com or call 7-903-5496.

21 October 2010

Speakers’ Training on Public Speaking

By: Tiffany Tan, ASP Board Secretary

Much sought after speaker-trainor, ASP Chair Emeritus, Dang Koe trained a total of 15 PWD Leaders on October 1, 2010 at Asian Social Institute, Malate Manila. The Speakers’ Training for Public Speaking was part of the revitalization and expansion program of the Katipunan ng May Kapansanan sa Pilipinas (KAMPI). The particular training was sponsored by KAMPI-NCR with the assistance of ASP.
ASP Chair Emeritus Dang Koe (standing) with PWD Leaders
during the Speakers’ Training for Public Speaking last October 1, 2010

The activity aimed to train PWD Leaders by equipping skills on Public Speaking to a general audience. Dang was joined by ASP Executive Director, Ranil Sorongon and ASP volunteer Bing David. Ms. Joyla Ofrecia of ASP San Fernando Chapter and Beth Udquin of UP-CAMP Manila chapter joined the training as representatives of ASP.

According to Sorongon, the activity aimed to develop and nurture effective public speakers from the PWD Sector to educate fellow PWD and the society on about disability as well as the rights of PWD. ASP is a member of KAMPI, a National Federation of Organizations of Persons With Disabilities in the Philippines working to advance the rights and independence of people with disabilities.

Click here to read more about the conference.

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ASP continues to Share Hopes and Build Dreams. Be an Angel for Autism. Donate generously to ASP Programs and Services. Deposit your donation to ASP Banco De Oro Anonas-Kamias Branch Savings Account Number 3980002955. Email us at autismphils@gmail.com or call us at 7-903-5496.

Training to Speak for Autism

By: Joy Ofrecia, ASP Parent Member

I’ve always been a full-time mother to my first born son, Juris, who is now eleven. He was diagnosed with autism in October 2001. And because of my son’s diagnosis, I felt the need to equip myself on how to handle and manage a child with autism.

ASP Laguna Chapter has been very instrumental in my journey with autism through the support group and the trainings and seminars they conduct. My engagements with the chapter helped me to become a fit mother to my child with special needs.

But as time passed, a realization came to me. All the things that happened are preparations for a greater call. I took a course in Special Education and became a certified Sped Teacher. Later, I realized it is also my heart’s desire to empower parents of children with autism and be an advocate not just for my son but for all the persons with autism (PWAs).

Last October 1, 2010 an invitation came from KAMPI (Katipunan ng Maykapansanan sa Pilipinas, Inc.) for a Speakers’ Training on Public Speaking at Asian Social Institute. I had doubts about attending because all I know is teaching PWAs and their parents and I was not sure I had the potential to speak in front of people. After much consideration, I decided to go despite my doubts and nervousness.
Ms. Joy Ofrecia during the Speakers’ Training
on Public Speaking of KAMPI at Asian Social Institute

In this training, I learned how to prepare a PowerPoint presentation and the Do’s and Don’ts in Public Speaking. This training opened new doors for me. It helped me discover the gifts I have been blessed with by our Creator.

Aside from the many public speaking tips, I came in close contact with differently-abled individuals who, despite their physical challenges, continue to live with dignity and purpose. They inspired me all the more to spread awareness, to advocate for autism and the PWD sector in general, whatever it takes.

I believe that not everybody is blessed with potentials or is given the opportunity to speak in front of a crowd, or to be a channel for autism. But each of us can be an advocate in our own special way for whatever cause we truly believe in. Being an advocate means it does not matter how many you have reached, but how you have influenced each individual you have encountered.

I know I still have much to learn in order to fulfill my purpose in life, and this training is a start of a new and greater endeavor as an advocate and a mother of a child with Autism.

Acknowledgments: Thank you so much to ASP, through Mr. Ranil Sorongon, for inviting me and to our Chair Emeritus, Ms. Dang Koe, for the opportunity to be blessed with her expertise.

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ASP continues to Share Hopes and Build Dreams for the future of families of children with autism. To request for a Speakers Training for Autism Public Speaking, email us at autismphils@gmail.com or call us at 929 8447/ 926 6941

Getting Ready to Shutdown on Nov. 1

Before you give up your social media habit for autism on November 1.
Shutdown in an iphone

What is Communication Shutdown?

It’s a global initiative to raise funds and awareness for autism charities in over 40 countries. People around the world have been challenged to go without Facebook or Twitter, for one day, on 1 November 2010.

In the month leading up to Communication Shutdown (1 October to 1 November) people can make a donation to receive a CHAPP (charity app) which signals voluntary shutdown across their networks.

What is the link between communication and autism?

Social communication is one of the biggest challenges for people with autism. By choosing to shutdown their social networks for one day, users will have some idea of what it’s like for people with autism who face this challenge every day.

Rachael Harris, a counsellor and supporter, who herself is on the autism spectrum, put it best when she said, “Electing to shutdown social communication mirrors autistic silence. But it also draws attention to the isolation and intense loneliness experienced by those who are impeded from connecting socially with others. The CHAPP is a powerful way to create a true sense of empathy towards those on the autism spectrum.”

So what will happen to the Facebook and Twitter accounts? Will they be deactivated for the day?

Not at all. It simply shows people that users have chosen to shut down by way of status updates, tweets and profile pictures. When users buy the CHAPP, they are making a donation and helping to raise funds and awareness for autism. If users decide to cheat a little on the day and log on to their account, that’s entirely up to them.

If for some reason people do log on, will it show on their Facebook or Twitter pages?

No, unless they ‘Tweet’ or leave a comment on Facebook, no one will know if they have logged on (only them!). The Shutdown icon is manually uploaded to a user’s profile picture on Facebook and automatically loaded to their Twitter profile on November 01. An automatic message will also show on their feeds to let their networks know that they have shutdown for the day.

Can people still donate and be involved if they don’t have Facebook or Twitter?

Yes, all donations will be greatly appreciated. Users will still receive a screensaver, an email signature and blog buttons to show their support in other ways. There will also be shutdown graphics and messages for them to manually use on other social networks such as MySpace, Orkut, or Hyves. Or they could always open a Facebook or Twitter account!

Will Communication Shutdown happen at the same time all over the world?

Communication Shutdown will start at 12am, local time, on 1 November 2010 and will finish at 11.59pm.

What exactly is a CHAPP?

It’s a Charity App that has quite a few tricks:

1. It connects with a user’s Facebook and/or Twitter account. This shows their support and spreads the word to their friends and followers. It also signals their shutdown on November 1 by placing a shutdown badge over their profile picture (This happens automatically on Twitter and can be manually changed on Facebook.)
2. It also adds the user’s Facebook picture to our global mosaic of supporters where they can see their picture next to celebrity supporters.
3. As well, it gives them other ways to show support through email signatures, blog buttons or screensavers.

How much does it cost to get the CHAPP?

The CHAPP is given to everyone who makes a minimum donation. Depending on their location, this is USD$5, AUD$5, £5 or €5.

Can people choose to donate more than $5?

Yes - USD$5, AUD$5, £5 or €5 is the minimum amount but there is no maximum.

Do people need a PayPal account to participate?

No, they can donate with a credit card through PayPal, without having a PayPal account.

Where will the donation go?

Communication Shutdown is a global fundraiser for autism where everybody around the world can make a donation to an autism organization in their own country. Our global autism partners are listed on our website. We are continuing to add more and more partners so if a country is not yet represented, it soon will be.

How much of the donation will go towards fundraising costs?

This fundraiser is powered by the people. By spreading the word through social networks, we are able to keep costs to a minimum. This ensures the maximum amount possible will go to autism organizations around the world.

As this is the inaugural Communication Shutdown, we are unable to provide a percentage of fundraising costs at this stage. However, we are committed to full transparency regarding costs and these will be published at the conclusion of the campaign.

Who is behind Communication Shutdown?

Communication Shutdown was initiated by the AEIOU Foundation, a not-for-profit organization that provides early intervention therapy for children with autism in Australia. When AEIOU was presented with a fundraising idea using social networks, they realized it was much bigger than just Australia. After all, social networks aren’t bound by geography. So AEIOU decided to create the first global fundraiser for autism and established F.A.N. Worldwide (also a not-for-profit organization) for the purpose of managing Communication Shutdown.

Who is the local partner in the Philippines?

Autism Society Philippines proudly represents the country in this very first global fundraiser for autism. Proceeds will go towards program development, particularly for implement assistive technology in select special education centers and applied theater for autism to help expand social and communication skills for youth and adults with ASD.

For full terms and conditions please visit www.communicationshutdown.org

20 October 2010

4.5 Billion Social Media Users Challenged to Shutdown Networks

Today more than 40 autism charities and a team of celebrities worldwide are joining forces to launch a global campaign challenging the world’s 4.5 billion *social media users to shutdown their networks just for one day.
The Communication Shutdown campaign encourages Facebook and Twitter users to make a donation and receive a charity app or (CHAPP) that will signal their support and intention to boycott their accounts on 1 November.

Social communication is one of the biggest challenges for people with autism and by volunteering to shutdown the world will have some idea of what this is like. For a $5 donation, the CHAPP will connect with the user’s Facebook and Twitter accounts by placing a shutdown icon over their profile picture.

From today the Communication Shutdown CHAPP will be available on the campaign website www.communicationshutdown.org. The site will also host a global mosaic where supporters can see their profile pic next to celebrities who have signed up.
The Global Mosaic

Even world-famous celebs want to get involved with names including Miranda Kerr, Jim Carrey, Adam Sandler, Toni Braxton, Holly Robinson Peete are all ready to shutdown.

“As someone who relies on social networks to stay connected I will find it quite a challenge not to log on come 1 November. After finding out social communication is one of the biggest challenges for people with autism, I wanted to support the campaign by challenging myself not to use my Facebook and Twitter accounts for the day," independent Filipino filmmaker, Mike Sandejas said.

This global project is also greatly supported by international autism advocate, Temple Grandin. “I can remember the frustration of not being able to talk. I knew what I wanted to say, but I could not get the words out, so I would just scream. People will have some idea of what this feels like when they take part in Communication Shutdown.” Dr Temple Grandin

The Philippines has over 10 million social network users and globally more than two thirds of the world’s population stay connected through networks like Facebook and Twitter. As people become more reliant on these channels to communicate worldwide, the Communication Shutdown fundraising campaign will also serve as a social experiment on social media habits.

This fundraising campaign is truly powered by the people and autism charities across the world encourage people to show their support by donating $5 to receive the CHAPP and spread the message across their networks from 1 October through to 31 October, ready for Communication Shutdown on 1 November.

For more information, videos, images or interviews, please contact Cristina Estampador at cristina@autismsocietyph.org

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** Nielsen’s Global Faces and Networked Places 2009 report.

16 October 2010

ASP Tacloban Chapter Activity


WHAT: "Speech Therapy Evaluation of Children with Speech Delays" by Teacher Kate Reyes, Speech Pathologist from Manila

WHEN: October 18 and 19, 2010 from 9AM to 5PM

WHERE: Tacloban Center for Autism (TCADD), Brgy. Burayan San Jose Tacloban City

WHO: Parents and Professionals.

For Scheduling and inquiries, pls. txt or call to Ms. Ge Abuyador at 0917-306-3530 or 0994-946-558.

13 October 2010

FREE Screening of Alyana in Naga City

Digital poster of Alyana

Help Learning Center, headed by Dr. Fe Delos Reyes, with the support of City Government of Naga and Municipality of Libmanan, will have a free back to back showing of Mirana Medina’s document films ALYANA - a study of Autism in the Philippines and SILENT ODYSSEY - a journey into the Deaf world.

October 14 – Libmanan, Camarines Sur 10:00 a.m. – Silent Odyssey 1:00 p.m. – Alyana

October 15 – Naga City Youth Center 9:00 a.m. – Silent Odyssey 1:00 p.m. – Alyana

Help Learning Center also invites you for a free Seminar on Structured Teaching and How to Raise a Child with Autism by ASP Chair Emeritus Dang Koe on October 14, 9am-5pm.

Fondly known as Mama Dang, she has been an indefatigable autism advocate. She served as ASP National President for an unprecedented 3 consecutive terms and continues the advocacy as the first appointed Chair Emeritus of the society. Her more than a decade of service to ASP is decorated with numerous accomplishments, including being accorded in 2009, The Outstanding Thomasian Alumni (TOTAL) Award for Humanitarian Service for her competence, commitment and compassion in leading Autism Society Philippines to share hopes & build dreams with at least half a million Filipino families dealing with autism. She juggles her time between her family, corporate training, and ASP – including provincial trips as a much sought-after seminar and conference speaker on autism; and writing Angels Talk in Manila Bulletin. In spite of which, she can still keep it together with humor, fair judgment and that rare mix of leadership qualities needed to hold a non-profit organization. Her eldest son, Gio, is now 16 years old, and she extends her advocacy throughout her entire family as they actively participate in ASP activities.

For more information, please contact HELP LEARNING CENTER, Naga City, Tel. (054) 472-9152.

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ASP Chapters continue to work hard to raise funds for projects and activities. Be an Angel for Autism. Donate to ASP Chapters. The time is now. Be an Angel for Autism. Deposit your donationto ASP Banco De Oro Anonas-Kamias Branch Savings Account Number 3980002955. Email us at autismphils@gmail.com or call us at 7-903-5496. To sign up to be a ASP member, please contact our ASP Naga City Chapter President Nina Sibulo at 09394653870. To request for the Alyana road show in your area, write to autismphils@gmail.com or call 7-903-5496 for more information.

12 October 2010

PNoy’s 100 Days Signals Freedom of Speech & Focus on Education

ASP Executive Director, Ranil Sorongon joined 15 PWDs from the Katipunan ng May Kapansanan sa Pilipinas (KAMPI), to attend President Aquino’s 100 Days Address at La Consolacion College, Manila last October 7.
ASP Executive Director, Ranilo Sorongon (right) with other PWDs from KAMPI

The address “Report Kay Boss” (Report to the Boss), is the tag line chosen from PNoy’s Inaugural Address last July, “Kayo ang Boss Ko” (You are the Boss). The President’s accomplishment report focused on the administration’s success in bringing back the trust and confidence of the Filipino people, the business sector and the foreign investors in the government.

One of the highlights of the report is his “Matuwid na Daan” slogan, which signified his political will to cancel anomalous government contracts, resulting to multi-million savings. President Aquino also posted a challenge to all Filipino people to join him in his continuing journey towards “Matuwid na Landas”.

“Many quarters would criticize or protest that the President did not include their respective sectors or that no concrete accomplishments were done. But I firmly believe that ‘winning back the trust and confidence of the Filipino people’ is already one of his major accomplishments. This will propel us, as a people, to reach our goals,” said Sorongon.

Education for All

After PNoy’s address, four representatives, a teacher, a government employee, an army personnel and an outsourcing agent were called on stage. Each was given the opportunity to ask the President directly about his programs for their respective sector.

“During the forum, four students, from the front row of were I was seated, stood up and shouted at the top of their voices. In chorus they protested the cutting down of government subsidy to StateColleges and Universities in the country,” Sorongon informed.

The students from University of the Philippines, Manila, aired their grievances on the proposed budget cuts for the 2011 budget, annual increases on tuition and other fees; plus the added burden to the poor families who cannot afford to send their children to school- from elementary to college.

After their short stint, music was played as the students were escorted out of the auditorium. “I commend the Presidential Security Group (PSG) for handling the situation peacefully. It’s a proof that freedom of speech is alive in our country,” said Sorongon. “Of course, I was surprised and nervous witnessing the incident, but I salute the President for letting the students air their convictions.“

Instead of continuing to answer the question of the soldier, the President chose to answer the students’ plight, “Wag nating kalimutan ang education, di lamang po yung CHED, yung tertiary level, meron rin po tayong DepEd na kasama, meron ring TESDA. Baka pwede pong tignan kung ano kalaki ang inilaki ng budget po ng DepEd, para ma-alala po natin na di pinababayaan ang edukasyon.”

“Let us not forget, that education is not only limited to CHED (Commission on Higher Education), the tertiary level; we also have DepEd (Department of Education) and TESDA (Technical Education and Skills Development Authority).

The President then addressed his next statements to Bro. Luistro, Education Secretary, “Maybe we can look into how much funding was added to the budget of DepEd, lest we take education for granted.”

“ASP, being a member of the PWD sector, has the responsibility to demand from the Philippine government. Being a signatory to the UN Convention on the Rights of Persons with Disabilities (UNCRPD), our government must fulfill all its provisions, including education for all.”

Sorongon is also passionate about education for all, as he is chairman of the Education Committee of the National Anti-Poverty Commission’s Persons with Disability Sector (NAPC-PWD). “No child should be left behind, including children with autism and other special needs,” Click here to continue reading.

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ASP continues to give you updates on the latest news in the autism community. Click here to know about PWDs right to education. Be an Angel for Autism. Donate now to ASP Programs and Services. Deposit your donation to ASP Banco De Oro Anonas-Kamias Branch Savings Account Number 3980002955. Email us at autismphils@gmail.com or call us at 7-903-5496. Sign up now for our upcoming activities.

On Oct. 16, educator My Sorongon conducts ASP seminar-workshop on “Caring for the Caregivers” while author Christine Roa facilitates the monthly family support group meeting.

ASP Cebu Chapter hosts 2nd Regional Conference on Autism, “The Spinning Truth behind the Spectrum,” on Oct. 23-24, at SM Cebu Trade Hall featuring at least 13 well-known Metro Manila and Cebu practitioners and advocates. For more details, visit autismsocietyphilippines.blogspot.com.

11 October 2010

No Child Left Behind…Including Those with Autism

Education for all, no child is left behind…this includes children with autism and other special needs,” said Ranil Sorongon.

Ranil is the ASP executive director and chairman of the Education Committee of the National Anti-Poverty Commission’s Persons with Disability Sector (NA PC-PWD).

UNESCO ’s Education for All (EFA) aims to meet the learning needs of all children, youth and adults by 2015.

This includes expanding and improving comprehensive early childhood care and education, especially for the vulnerable and disadvantaged children.

Angel Talker Lei-lani David contributes this report from the Chapter Leaders Conference of ASP held last August. Lei-lani, or Bing, was ASP’s project coordinator for Early Detection and Intervention Program and continues to be a committed ASP volunteer.
PWA Students Reading a city Ordinance for Special Children

SPECIAL EDUCATION IN THE PHILIPPINES

Education is a fundamental human right. But the status of public special education (SPED) in the Philippines reveals a sad reality. It is faced with challenging issues which are basically systemic. Itincludes lack of funding irrelevant and unresponsive curriculum, mass exodus of SPED teachers, obsolete learning resources, lack of facilities, and the lack of support from school administrators.

Even more heartbreaking is that the whole school community is not ready yet to accept children with autism and other special needs. Parents of typical children in the public school question why students with disabilities are accepted and integrated with regular students.

In a regular public class, every child is competing with 60 more children.

The usual 60:1 student-teacher ratio complicates an already complex situation. Parents of regular students worry that the inclusion of students with special needs will aggravate the inadequate number of teachers and classrooms. Parents of children with autism, on the other hand, worry about how much quality time can be given to the special needs of their children.

DEPED’S RESPONSE

Basic education is free as stated in the Philippine constitution. The Magna Carta for Disabled Persons ensures that disabled persons are given access to quality education and sufficient opportunities to develop their skills.

The main challenge is how to make this accessible to the less fortunate, especially in the far flung areas of the country. And even in the urban areas, many parents cannot afford to send their children to private schools that accommodate students with special needs.

The DepEd is given authority, accountability and responsibility for ensuring access to, promoting equity in, and improving the quality of basic education. The DepEd is currently strengthening its special education programs to address children with special learning needs. It has been conducting Special Education Personnel Enhancement Training Programs for inclusive education.

As part of DepEd’s thrust to democratize access to public education services, more than 900 SPED teacher items were provided since 2007. It is creating capability programs and promotion opportunities for SPED mentors. However, there are only 217 SPED centers all over the country that serve the needs of special children.

SOME SOLUTIONS

In a meeting in Dakar, Senegal in April 2000, the participants in the World Education Forum commit themselves to the achievement of education for all goals and targets for every citizen and for every society.

The Dakar Framework is a collective commitment to action. Governments have an obligation to ensure that EFA goals and targets are reached and sustained. This is a responsibility that will be met most effectively through broad-based partnerships within countries, supported by cooperation with regional and international agencies and institutions.

Here in the country, concerned educators, administrators and teachers offer some solutions on how to address the problems:

a. Require regular teachers in public schools do take units in Special Education.

b. Provide trainings to teachers on how to handle and educate children with autism. c. Allow caregivers or parents to observe and to assist the teachers.

d. Parents and advocates should inform the legislators on the need to allocate more funds for Special Education.

e. Parents should be vigilant in asserting the right of their children to education

REASONABLE ACCOMMODATION

The “Enhanced Guidelines for Quality Education for Learners with Special Needs” is now with the Commission on Higher Education for final review and hopefully for final implementation for the next school year. The guidelines include “reasonable accommodation” for students with disabilities and support services from colleges and universities where they are enrolled.

Reasonable accommodation is defined as “necessary and appropriate modification and adjustments not imposing a disproportionate or undue burden, where needed in a particular case, to ensure to persons with disabilities the enjoyment or exercise on an equal basis with others of all human rights and fundamental freedoms”. The United Nations used this term in the Convention on the Rights of Persons with Disabilities (CRPD). The CRPD is an international human rights instrument of the UN intended to protect the rights and dignity of persons with disabilities.

They have defined that even saying no to reasonable accommodations is already discrimination.

No child left behind… this seems to be a remote chance in the past. The UN ESCO EFA goals should be postponed no longer. The basic learning needs of all can and must be met as a matter of urgency. Instead of saying “to see is to believe”, let us all work together for to believe is to see.

On Oct. 16, educator My Sorongon conducts ASP seminar-workshop on “Caring for the Caregivers” while author Christine Roa facilitates the monthly family support group meeting.

ASP Cebu Chapter hosts 2nd Regional Conference on Autism, “The Spinning Truth behind the Spectrum,” on Oct. 23-24, at SM Cebu Trade Hall featuring at least 13 well-known Metro Manila and Cebu practitioners and advocates. For more details, visit autismsocietyphilippines.blogspot.com.

Uploaded with permission by Manila Bulletin, No Child Left Behind…Including Those with Autism.

09 October 2010

State of the Art Facility for Children with Special Needs

ASP National Office, represented by Chair Emeritus Dang Koe, and Executive Director, Ranil Sorongon, was invited by the Rotary Club of Makati, last September 17, 2010, for a consultation of a planned “State-of-the-Art, One-Stop-Shop” Facility for children with special needs. Visiting together were Mr. Tony Pasia and Ms. Adette de la Paz of the Down Syndrome Association of the Philippines (DSAPI), Mr. Raul Manaligod of AD/HD Society of the Philippines (ADHDSP).
(from right) Ms. Adette Dela Paz and Mr. Tony Pasia of DSAPI, Mr. Raul Manaligod  of ADHD, Ms. Dang Koe of ASP (center), Mr. Dayal Nandwani  and Mr. Mundy Gonzalez of Rotary Club Makati (left)

Rotary Club of Makati is one of the many organizations responding to the call of this marginalized sector. In fact, the Stepping Stone Learning and Therapy Center, located at Bernardino Street, Makati City, is just one of their many projects. The center provides educational and therapy services to children with developmental disabilities of indigent families.

Mr. Dayal Nandwani, Treasurer, Rotary Club and Mr. Mundy Gonzalez, Member and President, Stepping Stone Learning and Therapy Center shared Rotary Club Makati’s dream of building a “State of the Art, One Stop Shop” facility that will cater to the needs of children with special needs (CNS), train SPED teachers and other service providers and house offices of parent support organizations like ASP, ADHDSP, and DSAPI.
Rotary Officers with ASP, ADHD and DSAPI Representatives

They also consulted the group on the state of special education, status of SPED professionals and the allied medical professionals in the country, as well as the needs of families affected with disabilities. The input will be incorporated in the concept paper that is being finalized by the Project Committee of Rotary Club. They assured the parent support organization representatives that they will work towards making the project into a reality.

In the Philippines, an estimated 500 thousand families, deal with autism daily and each year, the incidence of autism continues to rise. With its limited resources, our country cannot cope with the growing needs of Autism Spectrum Disorder; as well as other families who deal with other developmental disabilities, like AD/HD and Downs Syndrome. We thank the Rotary Club of Makati for taking this initiative in working towards a brighter future for special children.

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ASP continues to give you updates on the latest news about autism in the Philippine community. Be an Angel for Autism. Deposit your donation to ASP Banco De Oro Anonas-Kamias Branch Savings Account Number 3980002955. Email us at autismphils@gmail.com or call us at 7-903-5496. Visit our ASP National office at Room 307, ML Building #47 Kamias Road Quezon City.

08 October 2010

ASP- Dipolog City Chapter Seminar Workshop

ASP Dipolog logo

WHAT: "Free ABA Seminar - Workshop" By David Eisenhart, MA, PCV 267.

WHEN:
October 18-22, 2010 - non-verbal ( GPRehab Dumaguete City)
October 25-29, 2010 - verbal (GPRehab Dumaguete City)
November 20, 2010 (ASP Dumaguete City Chapter) - Seminar and Induction of Officers.
November 21, 2010 (ASP Dipolog City Chapter) - Seminar and Induction of Officers.

For more information, kindly contact our ASP- Dipolog City Chapter President Ma. Lizetta A. Manago at 0908-527-2646 or email her at lizettamanago@yahoo.com

*****

Sleepless in Autism

By: Pinky Cuaycong

It is one of the most beautiful things in the world, the sight of a child sleeping the sleep of innocents.

In those few hours when the conscious mind voluntarily surrenders to rest, the whole world stops for the child and lets him be who he is. Young, carefree, untroubled, unburdened. Sleep lets him put his guard down. It removes his defenses from the world around him. And on those few hours of dormancy, he is simply a child. Sleep is the universe where there is no autism; it does not exist. Yet, for many children with autism, sleep is often the one thing they miss out on the most.

Our family was lucky for many years. For all of Alphonse’s aggression and self-injurious behaviors, we could always count on him to fall asleep at a reasonable time and stay asleep the whole night. We were always ran ragged during the day- exhausted, nervous, and tense- but nighttime was respite time, something to look forward to at the end of a miserably difficult day. As Alphonse grew older and the combination of age, education, exercise, and medication smoothened the edges of this high-strung, excitable child, sleep also became his respite time rather than just ours.
Child with Autism sleeping

Unfortunately, in the last three months, he has been having great difficulty going to sleep. When my husband and I discussed it today, we realized that Alphonse has had more sleepless episodes in the last three months than in the preceding three years combined. Last night, he was awake the whole night, falling into exhausted sleep only at five in the morning. Four hours later, he was up and about. A few weeks ago, he was awake for more than 36 hours, prancing and pacing throughout the night, sometimes laughing himself silly, sometimes shouting himself hoarse. A few days before that, he clocked in at four in the morning, beginning our day earlier than usual.

When he does not sleep, my husband and I do not sleep too. “Cannot sleep” is probably the right operative phrase. We watch him, keep him safe, keep him company, and attend to all his needs. On days following Alphonse’ sleepless nights, while he greets the world with chirpy smiles and bouncy Tigger jumps, his parents turn into robots on automatic pilot, with not much of an active intelligence. What gets us through the day, I really don’t know; we just do. Perhaps it’s the same thing that got us through more than five years of violence and aggression in our home- sheer grit.

On nights when Alphonse keeps us awake, I imagine a safe place for him inside our home. I imagine a room where the walls are safe, strong, and padded, where comfy furniture without hard edges allow him unrestricted movement without worry, where he has plenty of sturdy and safe toys to keep him company. As it is, our room (he shares our bedroom) is securely bolted from the inside to prevent him from wandering, some of the walls now have unsightly dents and marks from furniture slammed accidentally against them, and one wall of the wooden cabinets has a large hole where he kicked it from excitement.

Without this precious time for sleep, our house falls apart a little. And I think, so do we.

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"Pinky Cuaycong is Kittymama, full time mom of two boys (a 16-year-old high school junior and a 14-year-old with profound autism), part-time writer, and blogger. In Okasaneko Chronicles, she writes about her life’s deepest passions: her husband of 18 years, her teenage sons, autism advocacy, and Hello Kitty."

Bataan “Rocks” for Autism

Soon-to-be ASP Bataan Chapter conducted an Autism Awareness Program at Balanga Elementary School. Special guests included Sparkle Band and ASP Dream Girls and Guest Speaker Mr. Rommel E. Arellano, Guidance Counselor in Limay Polytechnic College, Bataan. The activity was conducted last July 31, 2010 as part of the celebration of the National Disability Prevention and Rehabilitation (NDPR) Week.

The SPED Awareness Program aimed to open the minds and hearts of the people in the province to children with different disabilities. “Bataan is not ready to embrace children with autism. Many people laugh at their condition, tease or even hit them.” Program organizer, Teacher Randy Tallorin, who is also a Special Education Teacher and Occupational Therapist, has been conducting the program for the past 2 years.

He said he wanted his ka-Bataenos to be more understanding of children with different disabilities, particularly autism. “I see a lot people here ignoring these children. I would like the public to be informed about these children and to have more understanding and compassion for children with autism and related disabilities, to inspire parents and caregivers to empower themselves”.

Another problem that frustrates him is the lack of knowledge on how to handle children with autism. “Teachers here are not knowledgeable about how to manage their behaviors – when they have tantrums, or how to help them improve their gross motor/fine motor skills. Classes are still held isolated. Children with special needs have separated programs form their “regular” schoolmates. They have separate Lingo ng Wika program, Nutrition program, etc. There is still a “wall” that separates ‘special’ from ‘regular’”.

One day a parent of a 16 year old boy came to consult with Teacher Randy. Their son still attended classes in Grade One. “Can you believe that?! He was still being taught ABCs and 123s. But that’s ok. My advice was to teach the teen what is appropriate for his age, something functional, like pre-vocational programs. We talked to the teacher, conducted a seminar and gave training on how to teach teens with autism.”

Inspiration from Artists with Autism

Doors were closed to the idea of helping children with autism as Teacher Randy approached groups for help. “I received nothing. I gained nothing. I was ignored. But I did not lose hope. My eagerness to inform my region is still here in my heart.”

“I continue my advocacy. And being knew I was not alone in this battle. Being an ASP member gave me strength and inspiration to an ASP member also gave me the idea of continuing to conduct awareness programs.” Through ASP, Teacher Randy contacted friends from Sparkle Band and ASP Dream Girls to join local talented special children, like and AD/HD and John Kyle, who has autism deaf students from Balanga Elementary School, for the NDPR Week Celebrations.
ASP Dream Girls: (from left) Thara, Vell and Nica
Bryan Lu (Vocalist/Drummer)
Teacher Randy with the Sparkle Band

Teacher Randy saw to it that many parents, teachers, government and NGO representatives and children with disabilities came to the event. People were surprised to find out that the performers had autism and the audience realized that, even if certain performers still deal with stereotypical behaviors like lack of eye contact, or hand flapping, they are capable of learning and being independent. They had proven that, with proper intervention and support, children with autism can also thrive and develop their God-given talents.

“The activity united concerned individuals, groups and institutions to work together to promote the cause of autism; and to link with other local resources, agencies and support groups. After the event, a local TV crew came to interview me. And to my surprise, government agencies have signified their willingness to help children with special needs in my hometown."

There was a good reason for Teacher Randy to dance during the 3rd Chapter Leaders Conference. He joined other leaders as ASP Dream Girls gave their powerful performances. Click here to read more. Soon, other people in Bataan will “rock” for autism.

Acknowledgements: Bataan Association of Rotary Clubs, UP SPED Council, Mrs. Merlinda T. Taban, Principal and students of Balanga Elementary School, CLTV 36 and Bataan Today for covering the event. Interviewed with Thine Republica.

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ASP continues to build new chapters. Currently, there are 46 Chapters around the country. This year, ASP targets the big 50, before the end of the year. Keep posted for more news. We Share our Hopes with you. It’s Time to Build our Dreams. Donate generously to Autism Society and help expand programs and services. Donate to ASP’s Banco De Oro Savings Account No. 3980002955 Ask for your Official Receipt. Donors will be acknowledged. Call us at 7-903-5496 or email us at autismphils@gmail.com.

05 October 2010

October 10 ASP Marikina Valley Chapter "This Kid Has Talent!"

ASP Marikina Valley Chapter will have an activity on Sunday, October 10 Sunday, entitled: "This Kid has Talent!". It will explore talents of CWAs as well as regular kids in art, music, language and movement. There will be 4 stations representing each of these areas, with separate activities. All kids will go through each station and the kids who complete the 4 stations get a prize. At the end of the activity, there will be a program showcasing the talents of selected kids. This activity will be held at 2:00 pm in the SM Marikina Event Center. Admission is free. It is open to kids from age 4-17. For details, please contact Mr. Alex Cabason 0939-466-8665

October 16 Seminar - Workshop

Caring for the Caregivers
(Equipping the caregivers with proper knowledge, skills
and attitude in managing autism)

9:00am - 4:00pm

This seminar-workshop is designed for caregivers (yayas, yayos and house parents of institutions caring for children with autism). It will discuss the proper caring for children with autism (CWA), 24/7 can be a roller coaster ride of emotion and often, it leaves the caregivers exhausted and drained in all aspect of their lives. As a result, they have high levels of stress and get easily burned out which lead to the caregivers’ irritability, impatient, lack of self confidence and commitment in constantly nurturing a CWA. To help our caregivers accept and embrace their crucial role in the life of a CWA, proper training in the management of autism is a vital step in caring for our caregivers. Hopefully, this empowerment session will lead to changing the views and most especially the attitude of our caregivers toward their wards.

Ms. Rosalyn Marie Sorongon earned her BS Psychology degree from Assumption College, Makati. She has a Master's Degree in Education Major in Special Education from the University of the Philippines, Diliman. She conducts general orientation and management of developmental disabilities for parents, caregivers and professionals. She also gives training on Autism Spectrum Disorders (ASD) and its management in the home setting. Teacher My was a former School Director of the Center for Autism and Related Disorders (CARD).

Ms. Noemi Viado (Teacher Ging) is the founder and School Directress of GS Option House for Autism and Related Disorders in BiƱan, Laguna. Teacher Ging earned several units for a Masters in Special Education from the Philippine Normal University. She has attended numerous trainings in the field of special education both in the Philippines and abroad. Teacher Ging is on her second term as Trustee of ASP.

VENUE: Asian Social Institute, #1518 Leon Guinto cor. Escoda Sts. Malate, Manila

SEMINAR FEE: is inclusive of certificate, handouts and 2 snacks

Registration Fees

(Pre-Reg until October 13)

MEMBER P800.00
NON-MEMBER P900.00

On-site Registration

MEMBER P1,000.00
NON-MEMBER P1,200.00

Pre-registered participants may pay to Autism Society Philippines, Banco de Oro, Savings Account # 3980002955. Please fax the deposit slip with the name/s of participant/s to ASP office and bring it on the day of the seminar. On-site registrants will be accepted depending on the availability of slots. There will only be 30 slots available. No refund will be given to participants who did not show up on the date of the seminar. For more details, please call Autism Society Philippines at 7-903-5496.

The ASP Seminar Series serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are of their own and don’t necessarily reflect that of the views of the organization.

Sharing HOPES...Building DREAMS…

ASP Family Support Group for October 2010

Tell your hopes and Dreams to us and we will listen

This October, don’t miss the chance to meet Ms. Christine C. Roa, author of Federic’s Flight (one of only two local books authored by mothers published on autism) as she facilitates this month’s FSG.

Mom Chrissy is a communication and education specialist, part owner of South Kids International School, and Program Consultant of Brighter Beginnings Daycare Center in Unilever, Phils. She served as ASP’s Vice President (2005 to 2007) and continues to contribute to the success of some of ASP’s major programs and events.

“After Grade School, High School. After High School, College. After College, work. After work, eat chicken,” says her son Federic Christian. Fedi, now 15 years old is an 4th year high school student at the New Era University.

Hurry! Call now to register in the October 16 Family Support Group. Take home practical tips on parenting and how to advocate for your child with autism.

FREE Registration!

Date: October 16, 2010, Saturday

Time: 1:00 - 5:00 PM

Venue: ASP Office, Room 307, ML Bldg.,

#47 Kamias Road, Quezon City

Hurry! Call now at 7-903-5496 Only 15 seats available!

October 10 ASP Naga Chapter Photo Workshop

WHAT: ASP Naga Chapter Photo Workshop

WHEN: October 10, 2010

WHERE: Penafrancia Resort, Carolina, Naga City

Output of this workshop will be exhibit at SM City Naga from October 18 - 22. Same day, ASP Naga Chapter will give Talk for Autism - Learning experience for PWD Kids and Fun Day with Jollibee Mascot

Contact: Ms. Nina Sibulo (President) 0939-465-3870

October 9 ASP Batangas Chapter Seminar "What’s Life After School?"

Ms. Rizalinda Cansanay

WHAT: Seminar on "What's life after school? Live, Learn and Play Program for young adult with Autism"

WHERE: Teacher Conference Center, P. Herrera St Batangas City

WHEN: October 9 Saturday 1PM - 5PM

Speaker: Ms. Riza Cansanay

CONTACT: Ms. Raceli de Castro 0908-874-1210

 
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