ASP Summer Picnic

By: Kismette J. Cepe, ASP Bacoor Chapter

Summer had a whole new meaning for ASP members last April 8, 2011. Forty (40) children with autism together with their families and 7 therapists coming from Manila, Cavite and Laguna were treated to “A Summer-inator Picnic,” a day of outdoor play and discovery. The event was sponsored by Disney Channel Asia Outreach and Nuvali Eco-Living, in cooperation with Autism Society Philippines. ASP Chair Emeritus, Dang Koe welcomed participants at the Nuvali Evoliving Center, Sta. Rosa Laguna, together with “Summer-inator picnic” project coordinator, ASP Board of Trustee, Cristina Estampador. Canon Digital Cameras, donated by Canon Philippines for the ASP’s Colors of Autism Project, were lent out the members. This made everyone excited to document bonding moments of the unfolding of events.

Icebreaker

The group was formed into teams named after Disney Channel’s Phineas and Ferb characters. Teams Phineas, Ferb, Perry, Baljeet and Doof were each given an itinerary for the picnic. The itinerary filled the teams with activities specially designed for children with autism and their families. Disney commemorative items such as caps were also distributed to shade them from the summer heat.

It was clear that the whole event was not about competing against other teams but more on enjoying each other’s company, appreciating the beauty of nature and engaging in fun events, something that most special needs families often forget because of daunting academic and therapeutic schedules the children have throughout the year. Som etimes, fun is just as a great lesson as any.

Nuvali’s Wildlife and Bird Sanctuary

Teams trekked along the 17-kilometer long natural habitat. Some children with autism (CWA) walked in pairs as they crossed mini bamboo bridges. Other CWAs were very confident and trekked without assistance. Everyone appreciated the beaut y of wild plants and birds in the area.

ASP Family during the hike

Nuvali Sustainability Tour, Evo-living Center

According to Paula Recto of Nuvali, the center houses the exhibit area where Nuvali’s master plan and its interactive exhibits are located. The exhibit displays the efforts of Nuvali to conserve water, segregate wastes and promote the use of alternative forms of transportation. Participants watched a fifteen-minute audio-visual presentation about Nuvali, Ayala Land’s 1,840 hectare premiere eco-city development in Laguna. Here, participants realized that an improved quality of life can be achieved through sustainability. All CWAs inside the venue were able to sustain their attention all throughout the film viewing.

Boat Ride and Koi Feeding

All CWAs enjoyed the boat ride from Evo-living Center to Solenad . They were excited on how some Koi gathered near the boat only to realize that there is a bigger surprise in the following activity.

After the teams alighted from the boat, each participant was given a small brown bag. The children were so amazed at the large number of koi that gathered around the dock. When the children opened the brown bags, they threw in the food pellets down the water and watched the koi opened their mouths. Some were even literally jumping in the air just to catch the pellets. Sounds of koi splashing water in the air and CWA’s laughter filled the midmorning air.

Lunchtime at Reyes Barbeque

Disney Channel Asia Outreach treated all the participants to yummy lunch treat at Reyes Barbeque. As the scorching summer sun challenged ASP’s picnic plans, making minor adjustments to eating indoors with friends was just as fun.

Frisbee and Kite Flying at Nuvali’s Baseball Fields

This 10-hectare facility covers 3 FIFA-sized football fields, 2 baseball fields, 3 sand volleyball courts and a multi-use reception facility. Teams were given Frisbees and kites. It was fun to watch parents fly kites with their children. All kite flyers never stopped experimenting with techniques on how to make their respective kites fly. After a few minutes, the sky is covered with colorful kites from CWAs and their parents. Some were throwing Frisbees while others were in the hall playing musical instruments.

It was hard to end the day as the children and even parents were really enjoying the “A Summer-inator Picnic” activities. Phineas and Ferb goodie bags courtesy of Disney Channel Asia Outreach were distributed to kids to end the fun-filled day. Phineas and Ferb is an original Disney hit show that has a huge worldwide adult fan base because of it’s intellectual, almost nerdy references. It follows the summer adventures of two genius step brothers who are constantly creating unusual gadgets, inventions and schemes way beyond their years, simply because it’s summer and it’s fun. If you’re a follower of Phineas and Ferb, there is wanna-be evil genius character in the show named Heinz Doofenschmirtz, and his ridiculous and “not-so” evil inventions always contained the syllables “inator”. He would make the “Ball Gown-inator” or even the “Mime-inator.” Clearly, Doofenschmirtz was the inspiration for the event’s name.

Everyone went home happy and fulfilled. And for the adults, the day was a reminder for us to be “young at heart”. “There were a lot of thank you messages from parents, therapists and teachers. It’s encouraged ASP to look into more projects like these. Next time, we’re going to make it more fun.” says Estampador with a wry and naughty smile.

Activities are indeed more meaningful if spent with the family. Moreover, with the support from parents and guidance/assistance from therapists, and of course, generous donors/sponsors, summer activities can become more meaningful for children with autism and their families.

Acknowledgements: Disney Channel Asia Outreach, Nuvali Eco-Living and Canon Philippines.

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How To Claim 20% Discount for Medicines at Mercury Drug Stores?

Mercury Drug Stores will finally implement giving the 20% discount on all medicines (branded and generic) on May 1, 2011.

To help facilitate the process, please be informed of the following:

Items needed to claim discount:

1. Valid PWD ID

Click here on how to apply for PWD ID

2. Medicine Discount Booklet

3. Doctors Prescription

a) Prescription should be valid only if within the month

b) Both branded and generic brand should be specified

For persons who will buy the medicines on behalf of the PWD, you will need the following documents:

1. Bring items 1-3

2. Letter of authorization from parent/relative

3. If 3rd party will buy for the PWD, a letter of authorization must come from the parent/relative of PWD

4. Valid ID of authorized person specified in the letter to purchase medicines

Other matters:

1. PWD can only avail of one week’s supply of medicines

2. Discount on medicines applies to both branded and generic

3. Food supplements are not covered by the discount

4. Medical supplies or equipment/apparatus are not covered by the discount

5. Please ask/request to your doctor to issue a seperate prescription for BFAD (Bureau of Food and Drug) Regulated/Control Medications. (call DOH at 651-7800 or BFAD at 8094390 for more information).

Please note that the 20% discount on medicines is ONLY APPLICABLE to the PERSON with DISABILITY. This does not apply to family members or friends. Any person who violates any provision of the RA 9442 may receive fines and imprisonment. (See Penal Clause – Sec 46 of RA 9442).

Official documents that might be useful

1. RA 9442

2. IRR 9442

3. DOH Guidelines 2009-0011

4. Public service Announcement

Useful Telephone Numbers:

ASP Office: 7-903-5496
NCDA Office: 952-2809, 951-6033 or 951-6401
CHR Office: 385-1605, 927-8772 or 377-2477

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Fire safety for persons with autism

By DANG U. KOE, ASP Chair Emeritus

MANILA, Philippines -- Last April 12 this year, six-year-old child with autism Jose Sixto Hernandez, died from a fire that razed his family’s home in Pakil, Laguna.

Fire Safety Tips

The fire started from the second floor of their home, trapping Hernandez, fondly called Amboy, who was alone on the third floor, while his family was on the ground floor.

Autism Society America noted in their website: “It is an unfortunate fact that individuals with autism are at high risk in a situation involving a fire. Children with autism (CWA) have died in fires when they retreated to a favorite hiding place; others died when they retreated from an approaching firefighter, apparently frightened by the firefighter’s appearance (with mask, etc). Some children with autism had escaped fires, only to die after re-entering their dwelling to retrieve a prized object, not mindful of the danger they are placing themselves in by doing so. It is essential that we as parents/care-givers pre-plan for how to ensure our loved one's safety in the event of a fire.”

While we still lack documented local experiences for preparing children with autism during fire emergencies, there are many websites where we can get fire safety tips from.

Readers can link to http://www.asmonline.org/programs_law_fire.asp for ASA’s Guide to Fire Safety for Individuals with Autism Spectrum Disorders, which includes the following suggestions:

Be sure that a smoke detector is placed in or near the CWA's room, as well as on all levels of the home. Test those smoke detectors frequently to make sure they are in working order.

Teach your child the basic fire safety tips (stop, drop and roll; touching a door before opening it, etc). This includes picking a gathering spot outside the home.

It is imperative that one family member be specifically assigned the responsibility to get that person with ASD out of the home and to a place of safety.

It is critically important that this person also stays with their loved one to ensure that they do not re enter the home to retrieve a favorite object. Remember that the individual with ASD may become overwhelmed (with the lights, sirens, frantic activity and excessive stimuli) and attempt to flee the situation.

Be proactive by providing your local fire department with as much information as possible about your loved one. This includes advising them of the location of the loved one's room and other places they may flee in an emergency situation.

Visit the firehouse often, so that your loved one can see a fire-fighter with all of their protective and fire-fighting gear, including the oxygen masks, axes and hoses, so that they can grow accustomed to them. Also, acquaint them with medical equipment, such as stethoscopes, blood pressure cuffs, oxygen masks and stretchers, so that they might be prepared in the event of a medical emergency.

If your loved one is non-verbal, prepare a laminated card containing basic information about your child (including any allergies to medication) in case of a medical emergency.

1. Meet the firefighter

Imagine that you are suddenly surrounded by noise so loud that you cannot hear, colors have suddenly changed and it is hotter than you have ever felt. You might automatically understand that these signs mean fire but your child with autism may not.

Into this intense sensory overload, a giant hulking creature that talks funny and has no face suddenly appears. It is possible your child may have a meltdown, attack the "monster" or even hide and further endanger himself. For these reasons, it's important to prepare your child, so that in the event of a fire, he will understand what a fire-fighter is and why he is there. Having an event in which children can meet fire department personnel, see them in their suits and be instructed on how to react in the event of a fire may save their lives.

2. Use picture exchange communication

A non-verbal child with autism may be the most at risk because people tend to assume that she cannot learn. Fortunately, you can use PECS or picture exchange communication system to explain fire situations visually and show your child how to respond.

Using images that your child relates to rooms in the house, show her escape routes. You can draw how to react when smelling smoke, how to feel a door to tell if fire is on the other side, how to cover her face with a wet cloth and crawl under the smoke if possible.

These ideas can be clearly communicated with images, just make sure that your child understands the concepts as you are trying to communicate them. Do not use images she is unfamiliar with to introduce new concepts; use things she is comfortable with and then walk her through the actions the images present.

3. I know my fire safety plan

This is an interactive book created by The National Fire Protection Association (NFPA), in conjunction with a psychologist and a writer of social stories, to teach children with autism and other developmental disabilities what to do in case of fire. The book can be personalized with the child's name and information about the outdoor meeting place. It is suggested that parents use this book while showing children their home escape plan. The book can be found at the NFPA website (http://www.nfpa.org/gallery/Fire%20Safety%20Book/flip_book_r7.html).

Angels Talk tried this book online and agrees with Fire Safety Net (http://www.firesafetystoreblog.com/?tag=autism) that “ NFPA does a great job hitting points that are especially important to children who deal with autism, such as leaving behind personal objects, coping with bright lights and loud sounds, staying at the meeting place, listening to the fire-fighters, and asking parents for help to cope with the situation. The authors use repetition to stress these important factors of a good fire escape plan.”

4. Sensory issues

Children with sound sensitivities may need extra help preparing for fire situations. Often, fire drills and alarms are so shocking and distracting that the child stops understanding what is going on around him. A sound or behavioral therapist can work with the child and slowly introduce the sound (possibly at a lower, less jarring volume) until the child becomes accustomed and then teach him how to react upon hearing that noise.

Laboy also gave a list of other materials for fire safety activities including video images for fire detection.

Autism 101 for fire and rescue

From Pennsylvania Premise Alert, we found Autism 101 for Fire and Rescue (http://www.papremisealert.com/id72.html)

50 percent of individuals with autism are nonverbal throughout their lifespan; another 20 percent may present as nonverbal when highly stressed.

30-40 percent of individuals with autism will develop epilepsy or some other seizure disorder during adolescence.

Individuals with autism cannot be identified by appearance.

They look the same as anyone else. They are identified by their behavior.

When restraint is necessary, be aware that many individuals with autism have a poorly developed upper trunk area. Positional asphyxiation could occur if steps are not taken to prevent it: frequent change of position, not keeping them face down.

Individuals with autism may continue to resist restraint.

Some individuals with autism do not have a normal range of sensations and may not feel the cold, heat, or pain in a typical manner. In fact they may fail to acknowledge pain in spite of significant pathology being present. They may show an unusual pain response that could include laughter, humming, singing and removing of clothing.

Speak in short clear phrases: “Get in.” “Sit Down.” “Wait here.” An individual with autism may take longer to respond to directives. That can be because they do not understand what is being demanded of them, or because they are scared, they may not be able to process the language and understand a directive when fearful.

Individuals with autism may engage in self-stimulatory behaviors such as hand flapping, finger flicking, eye blinking, string twirling, rocking, pacing, making repetitive noises or saying repetitive phrases that have no bearing on the topic of conversation. This behavior is calming to the individual, even if it does not appear calming. They may repeat something you said or something they heard over and over and over again. This is called echolalia and can be calming to the individual.

If these behaviors are NOT presenting as a danger to themselves or others, it is in your best interest not to interfere with it. Allow THE BEHAVIORS to continue as long as the individual is safe and is safe to be around. Trying to stop the behaviors will increase anxiety and may cause the individual to act out aggressively.

Difficulties with rescue

Force entry will be most likely. Families often need to lock doors including interior doors for safety reasons. Some families bar, nail or lock windows to keep individuals with autism from trying to elope or wander.

Plexiglass or Lexan windows may be in place. This makes access a problem for rescue. Also fences with locked gates. So think of bolt cutters.

Adults with autism are just as likely to hide, like children, in a fire situation.

Closets, under bed and behind furniture checks need to be done during search and rescue.

When moving an individual with autism quickly, wrap them in a blanket with their arms inside. This will give them a secure feeling and may help to calm them during a rescue. This will also prevent thrashing while trying to escape an emergency situation.

Extreme caution should be used with any rescue from heights. An aerial tower or platform would be the easiest way to remove an individual with autism. This person may aggress towards the rescuer during this operation. Always make sure you are secured before you attempt to rescue the individual.

These individuals are a bolt risk after rescue. Fire-fighter must stay with the individual with autism.

Uploaded with Permission

Acknowledgment to Manila Bulletin: Fire Safety for Persons with Autism

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ASP Family Support Group for April 2011

Share your hope and dreams with us we will listen

A special treat to ASP Iloilo City chapter members. ASP Executive Director Ranil Sorongon and wife My Sorongon a Special Education Teacher will be in tandem to facilitate and act as Resource Persons of this month’s Family Support Group.

Exec. Dir. Ranil is the Vice Chair of the Regional Council on Disability Affairs-National Capital Region and a member of the Training and Development Committee, CBR Network Philippines. He is also a member of the core group who initiated the organization of the ASEAN Autism Network.

Teacher My Sorongon was the former School Directress of the Center for Autism and Related Disorders (CARD). She has been helping families of persons with autism for more than a decade. She is a member of the Education Committee of ASP and currently the facilitator of ASP’s Siblings Workshop.

Sign up now and learn practical tips and how to advocate for your child with autism.

FREE Registration!

Date: April 23, 2011, Saturday

Time: 1:30 - 5:00 PM

Venue: Kid’s Nook Integrated School, San Isidro, Jaro, Iloilo City

Call: Neva Gregorio - 0921-431-9797

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ASP Back to Back Seminars April 30

Social Skills 9:00AM - 12:00NN

The seminar is divided into two parts. The first part aims to help parents, teachers and therapists understand the development of friendship among individuals with High Functioning Autism. Discussion about the problem of bullying will also be tackled. Part two aims to provide the participants a model by which they can create social skills group in the school and their private practice.

Gieselle Bayhon-Principe

Gieselle Bayhon-Principe is a founder of Outdoor Playgroup Phil., Inc. that specializes in play therapy and social skills training for children with Asperger's Syndrome. She is also the School Administrator of Mind Matter Christian Academy. A graduate of Bachelor in Elementary Education Majoring in Special Education from University of the Philippines. She also obtained her Masters in Clinical Psychology and is currently taking her Doctorate in Clinical Psychology in the same university.

Developing Social Skills Through Effective Communication 1:30PM - 4:30PM

The two to three hour lecture/seminar aims to educate parents, teachers and other individuals working with PWA regarding the effects of communication, language and speech to one's social skills as well as to determine certain behavior related to social communication deficits. This lecture also aims to help caregivers manage the social communication deficits of a PWA.

Kate Reyes

Kate Reyes is the co-owner of Independently, a family centered clinic in San Pascual Batangas. She is also a consultant in various provinces in the country. She currently engages in research and continuing education of speech therapist in management of children with various speech and language related disorder. For the past 10 years, Kate has been a clinician, researcher, teacher, and consultant. Her main goal in practice is to help fight for the rights of children with disability and mainstream them in the society.

Venue: Asian Social Institute #1518 Leon Guinto Corner Escoda Sts., Malate, Manila

SEMINAR FEE is inclusive of certificate, handouts and snacks

Seminar Fee

Single Seminar

(Pre-Reg until April 27)

Member Php 500
Non-Member Php 600

On-site registration

Member Php 600
Non-Member Php 700

Double Seminar

(Pre Reg until April 27)

Member Php 800
Non-Member Php 1,000

On-site registration

Member Php 1,000
Non-Member Php 1,200

Pre-registered participants may pay to Autism Society Philippines, Metro Bank, Kamias Branch Account # 047-3-04751874-2. Please fax the deposit slip with the name/s of participant/s to ASP office and bring it on the day of the seminar. On-site registrants will be accepted depending on the availability of slots. There will only be 60 slots available. No refund will be given to participants who did not show up on the date of the seminar. For more details, please call ASP at 7-903-5496

The ASP Seminar Series serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are of their own and don’t necessarily reflect that of the views of the organization.

Sharing HOPES...Building DREAMS

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AutisMusical 2011

By Abegail Mendoza, ASP Program Assistant

Now on its fourth year, ASP spearheads the AutisMusical, a concert celebrating the unique talents and skills of Filipinos with autism in singing and playing various musical instruments. The event is the highlight of the 4th World Autism Awareness Day, in cooperation with SM Program on Disability Affairs and Sky Dome, SM City North EDSA Quezon City, Philippines.

Mother and son team Aimee and Dave Ponce from ASP Diliman Chapter

To celebrate their chapter induction, PWA John Alfred Aguilar of ASP Valenzuela Chapter amazed the audience with his keyboard pieces. One of the songs he played is the “Cool Summer Nights,” as his tribute to the late Master Rapper Francis Magalona. CWA Natalie Claire Mariquit also from ASP Valenzuela Chapter, also heat up the stage with her “Fireworks” dance routine.

PWA John Alfred Aguilar of ASP Valenzuela Chapter

Original Pilipino Music (OPM) flowed throughout the event. Mother and son team Aimee and Dave Ponce from ASP Diliman Chapter, rendered the heartwarming “Sana”. The two first performed during the ASP Family Day last January. Song and dance numbers from John Paul Lumba of ASP Lagro Chapter paid tribute to Mon del Rosario’s “Sinong Baliw” and Freddie Aguilar’s “Bulag, Pipi at Bingi” and lastly, Gabriel Nazareth of GS Option House, with his three companions sang and danced “Tagumpay”.

John Paul Lumba of ASP Lagro Chapter

Special guests Ms. Myra Tuazon from the House of Representatives sang “My Redeemer Lives” and The Dancing Angels composed of four girls with Downs Syndrome from San Antonio Elementary School, danced to hit song “Fire” from the all-girl group, Twenty One.

CWA Mhar Jason Palmeda sang the Emmy Award Winning song “One Moment in Time” by Whitney Houston and CWA Benjo Herrera sang the “Journey” from Miss Saigon, popularized by Lea Salonga.

Another rising star, PWA Luke Espiritu, member from The Church of the First Born at Marikina City, was joined by teen band mates Jerico Job Bañaga, Kris Lenard Fajardo and Wilon Seth. Luke later gave a short solo act on his base guitar after the band rendered “Tell the World,” a gospel song popularized by Hillsong United. The band also played “Iris” and “Princesa”.

PWA Luke Espiritu, member from The Church of the First Born at Marikina City

Click here to read more on the event.

Acknowledgements: Emcee: Ms. Kismette Cepe, Mommy Lileth Laviña and Yanna Aragon. ASP Chapters: Mandaluyong Chapter, Commonwealth Chapter, UP-Camp, Manila Chapter, Diliman Chapter, Marikina Chapter, Muñoz Quezon City Chapter, Proj. 4, Cubao Quezon City Chapter, Valenzuela Chapter and City of San Fernando Chapter.

ASP believes that with a barrier-free and inclusive environment, children with autism are empowered. We Share our Hopes with you. It’s time to help Build Dreams for Autism. Donate generously to ASP Programs and Services. Deposit to Autism Society Philippines Metrobank, Kamias Branch 047-3-04751874-2. Email us at autismphils@gmail.com or call 7-903-5496.

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Posted in: concert,music,sm,WAAD

Au-some performances by Autists

By: Abegail Mendoza, ASP Program Assistant

The following event is part of the ACT for AUTISM NOW celebrations of the 4th Autism Awareness Day. The event took place at Sky Dome, SM City North EDSA, Quezon City on April 2, 2011.

After the morning’s Autism Walk and festivities, the participants were treated to performances from the top artists with autism at the 4th AutisMusical, a concert celebrating the unique talents and skills of Filipinos with autism in singing and playing various musical instruments.

ASP Dream Girls Vell Baria, Nica Escasinas and Thara Marie Santiago, all teen girls with autism sang their signature song “Angels Brought Me Here” never seizes to amaze audience. The trio has been receiving numerous requests to perform in various events and in TV Shows. Click here to read more about them.

ASP Dream Girls Vell Baria, Thara Marie Santiago and Nica Escasiñas

Another rising teen band from the PWA community is Sparkle Band. Daryl Tan and Bryan Calvin Lu sang solos, while Desly Bianca Lim Alvarado (keyboards/vocals) and the youngest member, Elijah Josef Balila (drums) with their manager, Donna Lim also performed to serenade the audience with the song “Way Back into Love”. The group just came from another performance with UP Sec’s “Can Rock” at another mall. And just like the ASP Dream Girls, they have been receiving various requests for gigs around the country.

Sparkle Band

The International Filipino child prodigy marimbist, Tristan “Tum-Tum” Mendoza, completed the powerful cast of the AutiSMusical. “Wonder boy, now young man thanked our “Awesome God” and dedicated his last number to all mothers. I was surprised to hear Tum-Tum sing “You’ll Be in My Heart” for the first time,” commented MiranaMedina, film maker of Alyana, the Filipino digital documentary on autism. Click here to know more about Alyana.

Tum-Tum Mendoza

Acknowledgements to partners and supporters: SM Programs on Disability Affairs, SM Supermalls, SM Prime, National Council on Disability Affairs (NCDA), Department of Interior and Local Government (DILG), Department of Environment and Natural Resources (DENR), Council for the Welfare of Children (CWC), House of Representatives Committee on Social Services, Buhay Party List, Department of Transportation and Communication (DOTC), Katipunan ng May Kapansanan sa Pilipinas (KAMPI), Philippine Information Agency (PIA), Department of Education (DepEd) and Archdiocese of Manila Persons with Disabilities Ministry (AMO-PDM).

ASP believes that with a barrier-free and inclusive environment, children with autism are empowered. We Share our Hopes with you. It’s time to help Build Dreams for Autism. Email us at autismphils@gmail.com or call us at 7-903-5496. Donate generously to ASP Programs and Services. Account Name: Autism Society Philippines, Account No: SA 047-3-04751874-2

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ASP Cavite Chapters ACT for AUTISM

By: Jan Peña, ASP Bacoor Chapter President

“Narito tayo ngayon hindi upang magtagisan ng talino ang mga batang ito.. narito tayo upang bigyan oportunidad ang mga batang ito na maipamalas ang kanilang mga kakayahan sa positibong pamamaraan na makapagbibigay - kasiyahan sa tao at sa kanilang sarili…”

Such was the opening spiel of ASP Cavite Chapters Gobernadora, Jan Peña during the 4th World Autism Awareness Day Celebrations. The activity was in partnership with and SM City Rosario, last April 2, 2011.

“Autism Special Stars,” highlighted extraordinary talents of children with autism by giving the public an eye-opening and heart-rending show. ASP member schools and partner public schools rendered delightful songs, dances and musical numbers (drums). Colorful creations were made by children with autism in the “Art Challenge” contest. Well-deserved medals and cash prizes and tokens were awarded to participants.

Be-medaled singing stars pose with judges: (from left) Mark Buendia, 6 yrs. old, of Aid of Angels Behavior and Therapy Center, General Trias (1st place); Jodense Valenciano, 19, of Holy Nazarene Christian School, Tanza (2nd place); Kevin Batiola, 15, of God’s Gift SPED and Learning Center, Trece Martires City (3rd place) ; and Jinn VIsto, 6, of Heart of Peace for Early Intervention and Child Development, Inc., Noveleta (4th place).

Art loving CWAs reproduce a colorful illustration with paper and crayons

“Mama… Yes Anak?" Book Launch followed after the activities. Dr. Ma. Luisa Campos-Cagingin, President of ASP Dasmariñas Chapter said Chico, her son who is now 25 years old, is the inspiration behind the book, and also instrumental in leading her to open a school for children with special needs in their city.

Mama, Yes Anak?... Book

Angels Walk for Autism Photo Exhibit featured photos of families depicting candid moments between mothers and children with autism. Photos captured the salient thoughts….

“…If you know them, you will love them…”

“…See what they can do and give…”

“….These pictures are for you to learn to accept them…”

“….Love them for who they are.”

ASP Cavite Chapters Governor, Jan Peña invited the rest of the Cavite community to join hands in unity to support ASP Cavite Chapters Programs and Services. The activities were participated by parents, siblings, family members, Special Education Centers from ASP Cavite cluster chapters namely ASP Bacoor, Dasmariñas, Carmona, Gen. Trias, Molino, Tanza, Trece Martirez, Cavite-North Chapters; as well as those from Noveleta, Rosario and Balayan, Batangas.

ASP continues to work towards an inclusive environment for persons with autism. Help us to continue Sharing Hopes and Building Dreams. Donate generously to ASP Programs and Services. Deposit to Autism Society Philippines Metrobank Kamias Branch 047-3-04751874-2. Email us at autismphils@gmail.com or call us at 7-903-5496.

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ASP Laguna Chapter Walks for Autism on 4th WAAD

By: Ian and Kitt Lopez, Persons with Autism

The 4th World Autism Awareness Day, April 2, 2011, is the first to be commemorated by the ASEAN Autism Network, which was formed in December 2010 in Bangkok, Thailand. The 1st ASEAN Autism Network Celebration, “ACT for AUTISM NOW” is this year’s theme. ASP is a member of this network.

Calamba, Laguna, Philippines April 2, 2011. Hundreds participated in the commemoration of the 4th World Autism Awareness Day in Los Baños, Laguna. ASP Laguna Chapter President, Riza Cansanay, led the contingent for the Autism Walk, together with adult and adolescent trainees/apprentices from the Autism Resource Center (ARC).

ASP Laguna Walk for Autism

We are accompanied by caregivers and trainors Jerome Nicolas, Catherine Lopez, Marivic Ramos, Lian del Valle, and Vay Chavez. As we held our group banner, a team of police officers escorted the group.

The event started at 6 AM at Caltex Gas Station along the National Highway. Participants composed of parents, volunteers students from UPLB, barangay health workers, day care workers, municipal social workers and health workers, selected members of the Los Baños Municipal Council, Paete Intervention Center came to support this special day for persons with autism. The whole group ended in Lopez Avenue for a short program at 7 AM.

Our chapter president, Riza made her welcome remarks as we made our first stop at Agapita Complex. To make the event possible, Mr. Jose Lopez, owner of Plaza Agapita, permitted the chapter to avail the place for a short program.

Vice Mayor Josephine Sumangil-Evangelista greeted the participants and reported that the Sanggunian is working with ASP Laguna to set up an early intervention center in Barangay Maahas.

Municipal Councilor Tony Kalaw also made a short speech supporting ASP Laguna Chapter’s advocacies and programs. The Vice Major was also joined by her office staff, Barangay Kagawad Janos Lapiz and Mr. Joel Umipig, PWD Federation President.

The participants took a short rest and partook in the simple breakfast of porridge courtesy of Lugaw Queen. Other sponsors and donors, Itlog ni Erick, Jollibee, UP Thursday Club and Aqua Altria, helped made this event a success through their donations and contributions.

Authors Ian and Kitt Lopez are persons with autism. Both are self-advocates and regularly submit reports/articles on autism in their community and abroad. Related Article: ASP Laguna Chapter’s ACTs for AUTISM.

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ASP continues to believe that persons with autism can be empowered and is working towards a rights-based, barrier-free and inclusive environment for persons with autism. Help us to continue Sharing Hopes and Building Dreams. Donate generously to ASP Programs and Services. Account Name: Autism Society Philippines, Metro Bank Kamias Branch Savings Account No: 047-3-04751874-2.

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ASP Laguna Chapter’s ACTs for AUTISM

By: Ian and Kitt Lopez, Persons with Autism

The 4th World Autism Awareness Day, April 2, 2011, is the first to be commemorated by the ASEAN Autism Network, which was formed in December 2010 in Bangkok, Thailand. The 1st ASEAN Autism Network Celebration, “ACT for AUTISM NOW” is this year’s theme. ASP is a member of this network.

After the Walk for Autism activities, the ASP Laguna Chapter contingent composed of Autism Resource Center trainees, companions and ARC staff, went to SM City Calamba, where they were joined by the contingent coming from Hope Intervention Center, which is based in Barangay Halang.

ASP Laguna at SM City Calamba

The group was treated to a mall tour and a cinema experience. We watched several trailers of recently released and upcoming motion pictures, including “Rio” and “Gulliver’s Travels” by wearing 3-D sunglasses inside the SM Cinema situated at the third floor. The CWAs were also assisted by the courteous employees of SM City Calamba.

We proceeded to the ground floor for the Talents with Autism Program, courtesy of the selected students from Hope Intervention Center and Autism Resource Center. Song and dance numbers of such popular hits as “Shembot” and “Waka-Waka” were rendered by Gino and Company onstage.

Assistant Mall Manager, Cielo Flores of SM Calamba distributed to the CWAs donated loot bags that contained sweets and candies; and distributed packs of spaghetti, mini cakes and drinks, courtesy of various SM City Calamba mall tenants. According to Carl Ancheta, Building Administration Manager, SM Calamba will continue to support the upcoming activities for persons with autism.

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Authors Ian and Kitt Lopez are persons with autism. Both are self-advocates and regularly submit reports/articles on autism in their community and abroad. Related Article: ASP Laguna Chapter Walks for Autism on 4th WAAD.

For more information about ASP Laguna Chapter’s 2011 Hands-On-Training Program on Teaching Children with Autism, contact Ms. Riza Cansanay, President-ASP Laguna Chapter at (049) 536-0655.

ASP continues to believe that persons with autism can be empowered and is working towards a rights-based, barrier-free and inclusive environment for persons with autism. Help us to continue Sharing Hopes and Building Dreams. Donate generously to ASP Programs and Services. Autism Society Philippines, Metro Bank Kamias Branch Savings Account No: 047-3-04751874-2

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18 Roses for Alyana

By: Mirana Medina, film maker and autism advocate

April 2, 2011. The world celebrates the 4th World Autism Awareness Day. We were also celebrating Alyana’s 18th birthday. 18 roses were handed to her one after the other—by her brother Ian, cousins, uncles, even lolos, and Gideon, Alyana’s orphaned cousin. It was a very close family affair.

The debutante... Alyana

It was in 2003 when I started producing the film Alyana; 2006 when it was finally finished and shown. Eight years had gone by! Alyana is now nearly as tall as I am…her mother said she is more responsive, and at least can say “Mama”—one of the sweetest word on earth, I believe. She must have been in Cloud 9 when she first heard that word.

Alyana with Mama and Papa Boyet

My quest into the world of autism began as a study about Alyana, my grand niece with autism. The film research led me to believe that persons with autism do not have a world of their own which is contrary to the common belief of the people in our society.

All people-with or without disabilities, exist and live only in one continuum, in only one world. It is only when we come to understand their condition and the causes of their behavior that the shield of misconception which separates us from them will probably crumble.

More importantly, through this film, people will realize a change in the paradigm of Filipinos that “persons with autism are merely disabled”. Rather, they are “differently-abled”.

The film Alyana is the first documentary film about autism that has been shown in different places and provinces not only in the Philippines but also abroad since 2006.

Autism Society Philippines shares the same belief and envisions the film to be an excellent medium which will further educate and bring the cause of autism in the mainstream. DK True to keeping with its’ vision and mission: To help persons with autism to become, to the best of their potentials, self-reliant, independent, productive and socially accepted members of society.

To request for the Alyana Film Showing in your area, please email us at autismphils@gmail.com or call us at 7-903-5496 for more information. Donate generously to ASP Programs and Services. Account Name: Autism Society Philippines, metrobank Kamias Branch Account No: SA 047-3-04751874-2

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ASP Congratulates Two Masters of Special Education

Believing that continuing education is key to helping children with autism, ASP Chapter Leaders navigate their lives to pursue a higher calling. Today, we salute two leaders from our ASP Chapters.

Evert L. Malapad, current president of ASP Metro South Chapter and Trustee of ASP National Office, is a Bachelor of Science Degree holder in Industrial Technology. Evert used to manage a thriving auto repair shop business. He gave up his promising career to meet the needs of then young daughter Mae-Mae who is diagnosed with autism.

Mr. Evert L. Malapad

Evert’s life took another turn when he decides to pursue a degree in Special Education. He graduated April 6, at and is a recipient for the Best Thesis Award at the The University of Perpetual Help –Las Piñas City.

Dreams become reality for the families of children with autism in Laguna, through the untiring dedication of Riza Cansanay, president of ASP Laguna Chapter. Riza is instrumental in enabling three community-based intervention centers in Calamba, Paete and Liliw, now partially subsidized by their local governments. The Autism Resource Center, Los Baños, which she helps manage, is now a thriving community center, employing adults with autism and other disabilities.

Ms. Rizalinda Cansanay

A graduate in Master of Science in Family Resource Management from University of Philippines Los Baños, Riza adds another feather to her cap, as she graduates this April 17 at University of Philippines Diliman. Her thesis in Masters in Special Education is in line with the Early Detection and Early Intervention Program for Children with Autism.

CONGRATULATIONS to EVERT and RIZA! We are proud of you!

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ASP Cebu Chapter Lecture Series for World Autism Awareness Day

By: Socorro Deligero, ASP Cebu Chapter

With the aim of raising autism awareness in the Visayan Region, ASP Cebu Chapter launched a Back-to-Back Autism Lecture Series, last April 2, 2011 to commemorate the 4th World Autism Awareness Day at SM City Cebu Conference Hall D with the partnership with SM City Iloilo.

ASP Cebu City Chapter members, teachers, parents and professionals, as well as those from Bohol City, were joined by chapter leaders and members from and ASP Cagayan de Oro and ASP Dumaguete Chapters. Ms. Yolanda Michelle A. Bautista was our resource speaker.

The resource speaker with participants coming from Cebu City

The first part of the said event tackled on the culture of autism in the Philippines. Later, our resource speaker discussed the components and the proper implementation of Structured Teaching, focusing on the TEACCH Approach. She also gave some tips at the end of the session.

Teacher Landa listening to a query raised by one of the participants

The second part posted a challenge to everyone. The speaker narrated the trials and tribulations on implementing the Vocational Skills Training Programs for students with autism. She cited some concepts, principles and best practices for such training programs to succeed.

Unending questions, one after another, came after the lecture. Everybody was satisfied with the gracious answers presented by our super dynamic and intelligent speaker. By the end of the afternoon session, participants were better equipped with the information and were hopeful to apply the lessons learned for their children or students with autism.

As the world pays tribute to persons affected by this incapacitating disorder we call AUTISM, we all went home with greater resolve to help persons with autism find their niche in the society. ASP Cebu Chapter will continue to work towards an environment to equip persons with autism achieve their utmost potentials in their respective fields of interests.

Make someone with autism happy by becoming an Autism Angel. Happy World Autism day everyone!!! Donate generously to ASP Programs and Services. Donate to Autism Society Philippines Metrobank Kamias Branch 047-3-04751874-2. Email us at autismphils@gmail.com or call 7-903-5496.

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ASP Dream Girls Give Hope and Inspire Others

By: Tiffany Tan, ASP Board Secretary

Quezon City, Philippines. 4th World Autism Awareness Day Celebrations

An earthshaking prayer by the ASP Dream Girls rocked the SM Sky Dome last April 2, 2011 during the 4th World Autism Awareness Celebrations. “Give us the strength to make it through….grant us faith to carry on….give us hope when it seems all hope…” The lyrics of the song captured the exact sentiments of the families of the children dealing with autism present that day.

The opening song number, “Note to God,” is composed by Diane Warren, and popularized by Filipina teen singing sensation, Charice Pempengco. Organizers thought the song is a fitting gesture to inspire other parents to keep moving on for their children’s future, and pleading to the Almighty God for help to carry on.

ASP Dream Girls, Vell Barria, Nica Escasinas and Thara Marie Santiago took turns during the stanzas, with alternating vocals and blending of second and third voices, and ended in a more than one minute vocalization solicited a thunderous applause.

ASP Chair Emeritus said during one of the interviews with GMA-7’s SAKSI TV crew “We want to appeal to the public for more compassion and more understanding. Kasi pag hindi na-iintindihan ang autism, pag dating sa public, merong mga incidents na…pag hindi na-iintidihan ang mga actions, sympre, pwedeng pagtawanan….pwedeng kutyain…”

ASP Trustee, Ging Viado, the girl’s mentor revealed that the three ladies have just recently spent over-night rehearsal sessions at her place to polish the opening number and other solo performances as this event is very special. Ging was pep talking to the girls, while parents and caregivers were fussing over their make-up and outfits.

“Madaling makita ito (ang autismo) as negative. Pero para sa akin, hindi disability ang autism. Para sa akin, asset pa nga iyan,” said the father of Nica Escasiñas, one of the ASP Dream Girls.

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ASP continues to educate the public through showcasing of talents of persons with autism. With early intervention, a caring and nurturing environment, supportive family members and hard working educators, persons with autism can reach their fullest potentials, and be empowered to inspire others. For more information on how you can help Autism Society Philippines, call us at 7-903-5496 or email us at autismphils@gmail.com.

Acknowledgements to partners and supporters: SM Programs on Disability Affairs, SM Supermalls, SM Prime, National Council on Disability Affairs (NCDA), Department of Interior and Local Government (DILG), Department of Environment and Natural Resources (DENR), Council for the Welfare of Children (CWC), House of Representatives Committee on Social Services, Buhay Party List, Department of Transportation and Communication (DOTC), Katipunan ng May Kapansanan sa Pilipinas (KAMPI), Philippine Information Agency (PIA), Department of Education (DepEd) and Archdiocese of Manila Persons with Disabilities Ministry (AMO-PDM).

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Quality Life Discoveries Summer Workshop

Quality Life Discoveries would like to invite everyone to join our Summer Workshop 2011

Quality Life Discoveries

- Basic Culinary Arts

- Dance 101

- Sports

- Arts and Crafts

For inquiries or further details, please contact us through the following numbers: (02) 912-7433 or 63922-859-6221.

Enroll now! :)

For more details, click here.

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Philippines ACTs for AUTISM NOW!

ASP National President Grace Adviento

By Grace Adviento, ASP National President, during the 4th Autism Awareness Celebration

"Act for Autism Now" is this year’s battle cry for the 4th World Autism Awareness Day Celebrations. Why "Act Now"? -because autism is considered the fastest rising developmental disability in the world. Adults and children with autism continue to face major challenges: stigma and discrimination, as well as a lack of access to support, multiple barriers, abuse isolation, and violation of their fundamental human rights.

But today calls for a celebration for autism issues are now answered.

ASP has grown from 11 mothers in 1989 to 47 Chapters nationwide. 3 more chapters will be inducted formally today, to make the big Five-O (50). An unprecedented growth is accomplished. Through the mentorship of our Chair Emeritus, Dang Koe, AUTISM ADVOCACY is ADDRESSED.

Mercury Drug Store will implement the 20% discount for medicines on May 1, click here for more details. This is welcome news is a big help to the children with autism who rely on daily maintenance of medicines. Through our advocates in Hon. Arturo Robes, House of Representatives, Commission on Social Services; and Hon. Walden Bello of AKBAYAN and our friends from the disability sector, AUTISM HEALTH issues are finally REALIZED.

High-tech learning software is now made available to at least 400 children with autism including other disabilities in P.Gomez Manila and P. Villanueva Pasay have access to alternative technologies. Through the partnership of Vizzle Technology, Globe Communications and DepEd, autism education issues are finally resolved.

This month, seminars on Handling Special Customers are respectively being conducted in SM Mall of Asia and SM Taytay, Rizal. Simultaneous exhibits Colors of A Spectrum - painting and photo exhibits at SM SM City Fairview, Quezon City and SM Supercenter, Pasig City. Talent shows at SM City Iloilo and SM City Dasmariñas and of course simultaneous Angels Walk for Autism of participating ASP Chapters in SM Supermall Branches. This made possible through SM Program on Disability Affairs. Through the ASP-SM partnership, our families and children with autism are empowered.

Today we also celebrate the formation of the ASEAN Autism Network, for an inclusive, rights-based and autism-friendly ASEAN community, with our mission is to support, assist, facilitate and enhance autism-related family support groups in collaboration with other stakeholders in the ASEAN region and globally. Autism awareness beyond borders is now a realized.

For the future of our children, let’s act for autism now!

Special thanks to our hardworking autism angels Executive Director, Ranil Sorongon, and staff Lanie, Cathy and Abby, our Board of Trustees, our Chapter Leaders, our members, parents, our partners, our supporters, volunteers, thank you for your unwavering support to our advocacy. Special thanks SM Programs on Disability Affairs, SM Supermalls, SM Prime, National Council on Disability Affairs (NCDA), Department of Interior and Local Government (DILG), Department of Environment and Natural Resources (DENR), Council for the Welfare of Children (CWC), House of Representatives Committee on Social Services, Buhay Party List, Department of Transportation and Communication (DOTC), Katipunan ng May Kapansanan sa Pilipinas (KAMPI), Philippine Information Agency (PIA), Department of Education (DepEd) and Archdiocese of Manila Persons with Disabilities Ministry (AMO-PDM).

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Posted in: aan,WAAD

Angel in Congress Flies to World Autism Awareness Event

By: Tiffany Tan, ASP Board Secretary

“Be rest assured na iyong binansag ninyo sa aking “angel,” paninindigan ko iyon at asahan niyo hanggang nandirito ako meron kayong angel sa congress,” said Autism Angel in Congress, Rep. Irwin Tieng of BUHAY Party List. He gave a much needed morale boost to participants of the 4th Autism Awareness Celebrations on April 2, 2011 at the SM Sky Dome, North EDSA, Quezon City.

Autism Angel, Cong. Irwin Tieng

“Although I have been walking with you for four years, I feel lacking in my work for you. I still have a couple of bill pending in Congress….” One of the bills he was referring to is the “Comprehensive, Accessible and Affordable Early Detection and Timely Intervention Services for Children with Disabilities”.

After his speech, he quietly asks ASP Chair Emeritus, Dang Koe what else he can do to help the organization. ASP will be working with the Congressman for another special screening of “Ocean Heaven” a heart-warming story about a dying father, coming to terms with his adult autistic son. Click here and here to read previous posts.

“At the end of the day, all people, Filipinos should realize that we need to help one another, to recognize the rights of people with disabilities.” He vowed to continue working for PWDs.

“Ngayong may additional chapters na ang ASP, in the next few months or years, lalaki pa ang ASP at magkakasama parin tayo. Thank you for inviting me sa pinaka unang walk natin to celebrate World Autism Awareness Day! Congratulations sa ating lahat!”

ASP thanks all our generous partners and advocates during the 4th World Autism Awareness Day Celebrations: SM Programs on Disability Affairs, SM Supermalls, SM Prime, National Council on Disability Affairs (NCDA), Department of Interior and Local Government (DILG), Department of Environment and Natural Resources (DENR), Council for the Welfare of Children (CWC), House of Representatives Committee on Social Services, BUHAY Party List, Department of Transportation and Communication (DOTC), Katipunan ng May Kapansanan sa Pilipinas (KAMPI), Philippine Information Agency (PIA), Department of Education (DepEd) and Archdiocese of Manila Persons with Disabilities Ministry (AMO-PDM).

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ASP Chapters now 50!

By: Tiffany Tan, ASP Board Secretary

Three Quezon City Chapters were added to the growing list of ASP Chapters last April 2, 2011, in time for the 4th World Autism Awareness Day Celebrations held at Sky Dome, SM City North EDSA, QC, one of the biggest malls in the world.

ASP Chair Emeritus, Dang Koe, formally inducted the officers from ASP Muñoz, QC and ASP Proj. 4 Cubao, QC Chapters. The event was witnessed by members, supporters and families of children with autism.

Induction of officers from ASP Muñoz, QC and ASP Proj. 4 Cubao, QC Chapters by ASP Chair Emeritus Dang Koe

A drum and lyre band continued playing marching music as the 3 chapters and their contingents joined in the collaborative Autism Walk around the mall. From 11 mothers in 1989, Autism Society Philippines has now grown to 50 chapters. Congratulations to our new chapters!

To view the complete list of ASP 50 Chapters, click here.

ASP continues to Share Hopes and Build Dreams for families dealing with autism. Donate generously to ASP Programs and Services. Deposit to Autism Society Philippines Metrobank, Kamias Branch 047-3-04751874-2. Email us at autismphils@gmail.com or call 7-903-5496.

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Public Service Advisory on Mercury Drug Corporation’s delayed implementation of the 20% discount on medicines for PWDs

By: Rep. Walden Bello

Per approval of the Bureau of Internal Revenue, Mercury Drug Corporation will begin the implementation of the 20% Discount on Medicines for PWDs on May 1, 2011.

According to the Memorandum of Agreement between Mercury Drug Corporation the House of Representatives Committee on Social Services (HRep-CSS) and Akbayan Party signed on March 1, 2011, Mercury Drug Corp. was given one month to prepare for the implementation of the said discount.

However on March 14, 2011 the Bureau of Internal Revenue (BIR) granted Mercury Drug Corporation an extension of one month, from April 2011 to May 1, 2011, to make all the necessary adjustments in their operating systems to properly implement and account for the discounts.

Akbayan shares the disappointment of Filipinos with Disabilities and their families in the announcement of this unexpected delay. Rest assured that we will continue to receive your concerns and act on them accordingly. We will also keep you updated on the status of the implementation of the discount.

To avail of the discount, Filipinos with Disabilities must have the following:

1. PWD identification card;

2. Doctor’s prescription, even for over-the-counter medicines; and

3. Purchase booklet.

In case a representative will make the purchase, in addition to previous requirements, s/he must also present

1. A currently dated authorization letter; and

2. Identification card.

For more info, you may contact Akbayan Rep. Walden Bello through 931-6575 or rep.waldenbello@yahoo.com.

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Philippine Senators file Autism Bills to Address Health Crisis

By: Tiffany Tan, ASP Board Secretary

April 2, 2011, will be the 4th World Autism Awareness Day (WAAD), a UN resolution that brought to the world’s attention to autism. The World Autism Awareness Day resolution encourages all UN Member States to take measures to raise awareness about autism throughout society and to encourage early diagnosis and early intervention.

World Autism Awareness Day poster

It further expresses deep concern at the prevalence and high rate of autism in children in all regions of the world and the consequent developmental challenges. The UN acknowledges that AUTISM is a growing global health crisis.

In 2009, by Mrs. Ban Soon-taek, spouse of UN Secretary General Ban Ki-moon reported that an estimated 1% or the world’s population or 67 million are on the autism spectrum. Click here to watch video (Source: WAAD website)

If we base the information that is given above, the estimated statistics will be as follows. The current world population is 6.91 Billion. An estimated 69 million or 1% of the world population is on the autism spectrum.

According to the National Statistics Office, the current (2010) estimated Philippine population is 92.23 million. If we were to use this ratio to the Philippine demographic, Filipinos with autism will be roughly 922,000!

With the alarming growth of the number of children diagnosed with autism each day, we earnestly urge our legislators to take cognizance of the plight of all Filipino families dealing with autism.

Here is the latest list of Philippine Autism Bills of the 15th Congress:

Senate of the Philippines logo

SBN-1644: Advisory Committee on Autism and Immune Deficiency Disorders in Infants and Toddlers. An Act Establishing An Advisory Committee Within the Department of Health to Study Issues Related to Autism, and Infant and Toddler Immune System Disorders Filed on July 20, 2010 by Defensor Santiago, Miriam

SBN-1626: Autism Prevention, Early Detection, Diagnosis and Treatment Act

An Act Requiring Health Insurers to Provide Full Coverage for the Prevention, Early Detection, Diagnosis and Treatment of Autism Spectrum Disorder Filed on July 19, 2010 by Defensor Santiago, Miriam

SBN-1273: Autism Registry Act An Act Establishing Autism Registry Filed on July 12, 2010 by Villar, Manny B.

SBN-1124: Inter-agency Initiative to Enhance Services for Individuals with Autism Spectrum Disorders. An Act Establishing An Inter-agency Initiative to Enhance Services for Individuals with Autism Spectrum Disorders Filed on July 12, 2010 by Villar, Manny B.

SBN-810: Autism Center. An Act Establishing a Center for Autism and for Other Purposes Filed on July 7, 2010 by Ejercito-Estrada, Jinggoy P.

SBN-287: Philippine Commission on Autism Spectrum Disorders Act. An Act Creating the Philippine Commission on Autism Spectrum Disorders and the Office of Autism Services Filed on July 6, 2010 by Trillanes, Antonio "Sonny" F.

SBN-40: Comprehensive Autism Intervention Act of 2010. An Act Instituting a National Comprehensive Program on Autism and for Other Purposes Filed on July 1, 2010 by Lapid, Manuel "Lito" M., Recto, Ralph G.

ASP would like to express its gratitude to all the legislators who authored the bills on autism. However, as of this publication, all the bills are still pending in the Senate Committees

ASP commits itself to work harder for the future of our loved ones with autism. Help us. Write your senators and lobby for legislation. Share our Hope and Build our Dreams.

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Straight from the mouth of a person with autism

By DANG U. KOE, ASP Chair Emeritus

MANILA, Philippines – Last April 2, Autism Society Philippines took the lead in celebrating the 4th World Autism Awareness Day (WAAD) through activities such as walks, talent shows, seminars, photo and painting exhibits, etc. This was made possible through ASP’s 47 chapters supported by SM Malls around the country.

The WAAD website estimates that one percent of the world’s population, or 69 million people are on the autism spectrum. According to the National Statistics Office, the estimated 2010 Philippine population is 92.23 million. So, we have almost a million Filipinos dealing with autism?

To hear from one of those one million Filipinos with autism, our Angel Talker this week is David Michael Lopez. Kitt, as he is fondly called, graduated Bachelor of Arts in Communication at the Lyceum Institute of Technology, Makiling, Calamba City. He now works in ASP Laguna’s Autism Resource Center as an apprentice and is a regular contributor to ASP’s e-newsletter.

David Michael Lopez works as a chat marketing agent and is a regular contributor of ASP's e-newsletter.

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HOW IS IT BEING A PERSON WITH AUTISM?

Being a person with autism, I found it hard to make people understand me. I wanted to communicate, that’s why I took up a degree in Communication.

I survived college by earning high marks on all the subjects I took up after four years.

WHAT KEEPS YOU BUSY?

I had a job as a chat marketing agent selling memberships to clients overseas. But I resigned because I did not reach the quota and did not generate high sales.

I am currently working as an apprentice at Autism Resource Center, Intan Street, Santa Fe Subdivision, Barangay Batong Malake, Los Baños, Laguna. The Sanggunian Bayan has banned the use of plastic bags as packing materials for dry and wet goods. Since Los Baños is known to be a “plastic free” community. I help in paper bag making. I also receive profit sharing in all the services, like photocopying, typing, ring binding, and laminating, among others.

My profit sharing is inconsistent because it depends on the communities that avail the services. I work part-time at Saint Therese of the Child Jesus Parish, on Monday afternoons and receive a small allowance. Hopefully, I will find a stable job in the next five years and become more independent from my parents.

WHAT ARE YOUR DREAMS AND ASPIRATIONS? HOW WILL YOU ACHIEVE THESE?

I want to be the best employee by meeting the deadlines and doing well. I also have to manage my time properly in all the activities I am doing, especially in going to the office and back home on time. I can secure a bright future if I become more productive in the workplace.

I aspire to become a successful entrepreneur.

ARE YOU SEARCHING FOR THE RIGHT GIRL? DO YOU WANT TO GET MARRIED AND RAISE A FAMILY OF YOUR OWN?

In 2007, I had a girlfriend named Rose. We dated by going around places in her hometown in Batangas. Once we went to a mall, watched a movie, ate at a cafeteria, but paid separately. We later broke up because she was too busy with her studies.

I am not looking for a girlfriend, yet. Right now my priorities are work-related. I need to become financially capable first. I also keep myself fit by participating in the sports programs. When I have my own family, I want to give my children good education and teach them good values.

WHAT IS THE GREATEST OBSTACLE OF BEING AN ADULT WITH AUTISM?

One of the greatest obstacles is demonstrating appropriate behavior. (May I suggest to all persons with autism to control inappropriate gestures). I also have to improve my personality, learn to deal with different people, distinguish/discern right from wrong, and have the right work attitude. These are some of the obstacles I have to overcome before achieving all the goals I want to fulfill in life. I should also try to become a role model to younger children with autism.

WHAT CAN YOU SAY ABOUT THE CURRENT AUTISM BILLS FILED IN THE SENATE?

They will help formulate and carry out an integrated and widespread master plan on autism; generate an investigative, therapeutic and rehabilitation clinic; recommend occupational training programs for autistic adults; and provide complimentary diagnosis and rehabilitation services to impoverished autistic individuals.

WHICH OF THOSE BILLS DO YOU THINK WILL BE THE BEST TO HELP PWAs AND THEIR FAMILIES AND WHY?

Senate Bill 1626 or The Autism Prevention, Early Detection, Diagnosis, and Treatment Act. This is because it will help families become more aware of autism and know how to take care of their children on their early childhood years. When he/she is early diagnosed with autism, parents will help their children survive, learn how to behave, and teach them how to become role models in society.

WILL THE FUTURE BE BRIGHT FOR PERSONS WITH AUTISM?

For parents of children with autism, please do not lose hope, I know not everybody can be like me, but in their own time, they too can duplicate what I have achieved. Persons with autism will have a bright future if they strive hard in their studies, learn to be obedient to superiors, and become more productive. The future will be hard for us, but together, we will continue walking those steps.

World Autism Awareness Day is a UN resolution that brought to autism to the world’s attention.

The WAAD resolution encourages all UN Member States to take measures to raise awareness about autism throughout society and to encourage early diagnosis and early intervention.

It further expresses deep concern at the prevalence and high rate of autism in children in all regions of the world and the consequent developmental challenges. The UN acknowledges that AUTISM is a growing global health crisis.

Uploaded with Permission Acknowledgment to Manila Bulletin: Straight from the mouth of a person with autism

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Fighting for CWA Rights

By: Abegail Mendoza, ASP Program Assistant

“Dapat tayong lumaban, mag-ingay at isulong ang karapatan ng ating mga anak….. dapat tayong mga magulang ay magkaisa,” (“We need to fight, to make noise and promote the rights of our children… We should be united as parents,”) voiced one father during the Family Support Group (FSG) last March 19, 2011 at the ASP National Office.

ASP Treasurer Evelyn Go, mother of Gelo, a 19 year-old PWA, facilitated the afternoon’s FSG with 4 mothers, 3 fathers and two 2 PWAs. Among the topics discussed were particular concerns for children with autism. Two sad stories were brought up in the said meeting. Everyone was attentive to listen.

Participants of the said Family Support Group

One mother shared her heartbreaking experience. Recently, her 28 year old son with autism died in the hospital. She related how hospital doctors and personnel continued to ignore her repeated requests for assistance. To have an accurate report on cause of death, the family had their son autopsied.

Another story involves a father’s frustration over a school in Quezon City. He alleges that the school refuses to accommodate back his son with autism due to his repeated protests on improper implementation on “reasonable accommodation”. He says that although his son is accommodated, the services given to him are inadequate to meet his special needs.

Painful Resolutions

While awaiting results of the autopsy, mother visited ASP for consultations in filing a case against the hospital and its personnel/staff for alleged negligence. She resolved to attend ASP’s activities, like the Family Support Group, in the hopes of educating other parents on how to defend the rights of CWAs and dreams of building a hospital catering specifically to their needs.

Click here to read “Avoiding Hospital Horrors: How to prepare your child with Autism for Hospital.”

The father on the other hand received a letter of dismissal from the school saying that they could no longer accommodate his son due to “unrealistic expectations” by the father, and that they have already done everything to help the child. The father decides to file a complaint letter to the Department of Education for discrimination and violation on his son’s right to education.

ASP Executive Director, Ranil Sorongon, advised the participants that in similar cases on violations on the rights of persons with autism, they can file a formal complaint to the Commission on Human Rights (CHR). This ensures of incident being documented. Should complainant decide to pursue the case, this document will help prove their case in court.

Education is Key

ASP continues to receive increasing incidents on similar cases encountered by the parents. Through ASP’s regular Autism Awareness and Orientation Seminars to Public Schools and Universities, more people are becoming aware in addressing the unique problems encountered by families. Soon the same module will be extended to hospitals.

To request for an Autism Orientation Seminar in your institutions or companies, write us at autismphils@gmail.com or call us at 7-903-5496 for more information.

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Colors of Autism Spectrum Exhibit

Colors of Autism poster

Autism Society Philippines, SM Cares and SM Committee on Disability Affairs presents, "Colors of Autism Spectrum", an Art Exhibit by Andrei Macapagal and Vico Cham, "Proudly Autistic" . Celebrating 4th World Autism Awareness Day, April 2, 2011 at SM Hypermart, Pasig City. Exhibit run from April 1 - 3, 2011.

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Light It Up Blue - World Autism Awareness Day @ Mall of Asia

Light It Up Blue poster

On World Autism Awareness Day, SM MALL OF ASIA joins Autism Hearts Foundation & Autism Speaks in the global campaign called Light It Up Blue by lighting up its GLOBE in Blue on April 1 & 2. Chronicling its magnificence by Int'l media, the 1st ever Philippine landmark SM MOA's GLOBE joins famous landmarks worldwide to shine a bright light on Autism. Click here for more details.

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