A walk with angels on earth

(This article penned by Gary Olivar appeared on the print and on-line versions of Philippine Star's Sunday magazine, Starweek on 23 February 2014.)

Waking up at 6am on a Sunday is one of the most difficult things to do. I'm not a morning person, and if not for my regular morning chores, I would gladly sleep until noon. But that morning was different. I just couldn't turn down the friend who'd invited me to an event to raise awareness of autism, a condition almost unheard of in my youth.

With head still longing for my pillow, I barely made it to the 8 o'clock opening of the gates at the SM Mall of Asia Arena. To say the atmosphere was cheerful is an understatement. I saw scores and scores of people, mostly in green (the theme color of the event), patiently lining up to enter the arena (entrance was free). It was a gathering not only of individuals with autism, but also of families who have pledged unending love and support for their differently-abled kin.

It was a show of love for individuals who have often been misunderstood. Thanks to the wonders of science and research and the initiative of people touched by this condition, we are now starting to understand how special these individuals are.

Autism, according to medical journals, is a neurological disorder which impairs or delays the development of communication and social skills of a person. People with this disorder have an unnatural focus on or attraction to certain objects or activities, which is why they often excel in those fields. But they are unable to empathize with the feelings of other people.

Seated at the ground level of the huge arena, I felt the pride and excitement radiating from parents seeing their children enjoy the show prepared by the Autism Society Philippines (ASP).

The Angels Walk is the annual culmination of ASP's activities for individuals with autism. It also marks their founding anniversary. That Sunday's event was a milestone as they celebrated their 25th year.

Erlinda Koe, ASP's chairman emeritus who opened the show, noted how ASP started in the backyard of one the original advocates with only a handful of members. Touched by autism with the birth of her special son, now a teenager, Koe has made autism advocacy her life mission.

ASP director Carmel Almendrala, mother of Michael, 45, said an individual with autism needs solid family support. "Support is vital. Because of their special needs, the whole family needs to adjust. It is the only way,” she said.

“A child with autism has special needs. He is different, and there is nothing to be done except to accept the condition and find ways to tickle his interest. Once he is interested, he will become very good at it, and parents must be willing to explore all possibilities,” Almendrala added.

Her patience paid off when she was able to kindle her son’s interest in sports. “He’s an athlete, a sprinter, swimmer, power-lifter and now a bowler. He also went into shotput and he did very well in those sports,” she said.

Michael is indeed an exceptional athlete. He is an Olympian in power-lifting ever since he participated in the International Paralympics (the Olympics for persons with disabilities). Recently, he became interested in bowling, where he has likewise received several awards.

Despite their condition, all those who participated in the Angels Walk program had a good time as they laughed, danced and sang with the performers. It was as if they knew the event was for them.

The participants who attended the event and spoke on stage during the program were either advocates or have been touched by autism. Commission of Elections Commissioner Grace Padaca has been an advocate for persons with disabilities (PWDs) since her youth. She contracted polio at an early age, which caused one leg to be shorter than the other. But this obviously did not deter her from pursuing her dreams.

Buhay party-list Congressman Irwin Tieng, who has been an advocate of autism awareness, was also present. Often described as the “Autism Angel“ in Congress, Tieng has promoted and fought for autism and PWD rights. He is one of the principal authors of Republic Act 9504, which increases the personal exemptions of taxpayers with PWD dependents. Also in attendance was Senator Koko Pimentel, who vowed to continue fighting for the rights of PWDs in the Senate.

For his part, Bien Mateo, vice president for operations and program director for SM Cares Disability Affairs, spoke about SM’s commitment to advance the cause of PWDs. “The SM Cares Program on Disability Affairs continues its mission of creating a barrier-free environment for our friends with special needs. We are thankful to our partners – the Autism Society Philippines, the National Council on Disability Affairs, the MOA Arena management, and all our friends from the PWD sector – for giving us the inspiration to find better ways and means of serving the community. It would be impossible for us to do this by ourselves, but together with others, we can all make a difference,” he said.

Koe profusely thanked SM and its president, Hans Sy, for its continued support to ASP over the past seven years. SM, through its corporate social responsibility arm SM Cares, has been partnering with ASP for the yearly Angels Walk, now on its seventh year. The latest walk was done in partnership with Mall of Asia Arena.

The Angels Walk is just one of the many advocacies of SM. Its SM Cares foundation has fully integrated six flagship CSR programs in the overall mall experience, which makes SM truly a mall for all. Aside from the program on PWDs, SM Cares also has projects that advance the rights and welfare of senior citizens, overseas Filipinos, women, children as well as the environment.

Angels Walk 2014 attendees

SM holds the distinction of being the most PWD-friendly mall in the country, according to Mateo. He said all SM malls provide a second home to families with special needs and offer sufficient accessibility to PWDs. There are dedicated areas for parking and disembarking, special restrooms, ramps, braille signages, designated areas for PWDs in theaters and dining rooms, as well as utilities within accessible height like pay phones and wash room sinks. Mall security guards and personnel are also trained to respond to the unique needs of PWDs.

“SM is a mall for all and we intend to continue with that commitment,” Mateo said.

Twenty-five autism advocates, led by Sy, were called to the stage to blow out the candles on 25 cakes carried by 25 children with autism to mark ASP’s 25th founding anniversary.

After the candle-blowing ceremony, participants went out of the arena for a walk around the MOA grounds. Sy himself led the walk.

Just finishing the walk was quite a feat for some of the participants, but everyone seemed to have been psyched up to have themselves a good time. Participants cheered, danced and sang as the walk progressed – something one normally does not see in today’s cause-driven world.

But going beyond the fun experience, Angels Walk is also a testimony to the indefatigable human spirit, truly a walk with angels. These are angels who show how love overcomes the most difficult of obstacles, who give acceptance and support no matter what the cost. Angels who sustain for these special individuals the nurturing environment they deserve.

It was a real honor for me to have walked with those angels. It definitely made the early call time that Sunday worth it.

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Posted in: angels-walk,community,nacw,sm

Coaching a Special Olympian

This article appeared on 24 February 2014 in the print and on-line versions of Manila Bulletin's "Angels Talk", edited by Dang U. Koe, ASP Chair Emeritus.

Special Olympics is the world’s largest sports organization for children and adults with special needs, providing year-round training and competitions to more than 4.2 million special athletes in 170 countries. It gives continuing opportunities to these truly special people to develop physical fitness, demonstrate courage, experience joy and share gifts, skills and friendships with their families, other Special Olympics athletes and their communities.

Our Angel Talker this week Beth Jimenez and her family are based in Texas, USA. Her son John Joseph was diagnosed with autism at age three and this turned her into an active advocate for children with special needs. She now serves as volunteer coach for the Special Olympics of Fort Bend.

*****

My family and I moved to Houston, Texas in 2001. In our effort to look for extracurricular activities for our autistic son, JJ, we discovered that the local school district provided activities for children with special needs under the umbrella of Special Olympics. JJ really enjoyed the competition and sportsmanship, so after he graduated high school and was no longer eligible to compete through the school district, we looked for opportunities that will allow him to continue to compete. We found the ARC of Fort Bend County, a non-profit organization that offers Special Olympics training for adults with special needs – basketball, aquatics, softball, bocce, golf, track and field, volleyball and bowling. We immediately enrolled my son, and he started to participate in almost all of the sports, except for track and field. His favorite, and the one he excelled in the most, was swimming.

John Joseph Jimenez is a person with autism who has won multiple medals for swimming in the Special Olympics.

It hasn’t always been so easy for JJ to swim since he was scared of open waters. It did not stop us, however, from taking him to the beach or riding boats so that he would feel more comfortable with the concept. He would watch his younger sister take swimming lessons, and we could see from the look in his eyes that he was eager to do the same. One day, his teacher took him to the swimming pool and found out that JJ had, amazingly, learned how to swim just from watching his sister. Soon enough, his fear of water turned into love.

Being an expatriate family, moving frequently from country to country, we sometimes found it difficult to find good teachers for JJ. Thankfully, we found a good swimming instructor for him while we were in Caracas, Venezuela. Although he didn’t speak English, he was very adept at training JJ by physically showing him the strokes. The rest, as they say, is history. Now, JJ has won many gold medals in Special Olympics.

Our entire family has become involved with Special Olympics. Both my husband and I are certified coaches, and my daughter volunteered when she was in high school and university. She now shows her support by sponsoring some of the events through her company and by donating team shirts to the athletes. While some of our volunteers and coaches have family members with special needs who are directly involved with the sports, others do not have and just want to donate their time and effort to the program because they fell in love with the athletes. Such is one of our head coaches who said that even when she had a bad day in the office, she would always look forward to the practices to see the smiling faces of her athletes. She said she loves that they are so genuine and truly happy to be there, with no pretensions whatsoever.

Volunteers serve as the foundation for Special Olympics. They act as coaches, officials, committee members, competition assistants, speech coaches, and they fill many more roles to ensure the program’s success. To guarantee proper preparation and training, volunteers must complete a certification program prior to becoming a Special Olympics coach, and they must attend training school each season. But the basic requirements for becoming a Special Olympics coach are very simple: a big heart and love for fun.

Once the volunteers are trained, the focus turns to the competitive aspect of Special Olympics. The athletes train intensely under the volunteer coaches for eight weeks prior to each sporting competition. The competition starts with the Area Games and whoever participates earns their ticket to the State Games. This is a very exciting time for the athletes because they get to travel, stay in hotels and eat in restaurants – privileges some of them are not able to experience on their own.

During the actual Special Olympics, volunteers are so important. Special Olympics requires a ratio of one chaperone per four athletes. Many of our athletes require medication so one person is dedicated to make sure that all medications are administered correctly. Volunteers need to wake up as early as 5 a.m. to make sure their athletes have breakfast and receive their medications before heading to the competition site. They also serve as psychologists and counselors to the athletes because, unfortunately, not everyone can win first place. It is in those moments that they try to instill the lesson from the Special Olympics Oath that each athlete utters before the start of every competition: “Let me win. But if I cannot win, let me be brave in the attempt.”

In the end, Special Olympics owes its success to these individuals who volunteer their time and effort. They make such a difference in the lives of each and every one of the Special Olympics athletes.

JJ is now 31 years old, he has been competing for many years and has benefited greatly from Special Olympics. It is quite an endeavor to get him and the rest of the athletes ready for competition, and then another undertaking to bring everyone to the competition. Countless hours have been dedicated to the coaches’ trainings, the coaches’ meetings, the athletes’ practices and the competitions, but it is something that we do gladly and wholeheartedly. JJ has faced many obstacles in life, and we have no doubt that there will be many more. But there is nothing more touching, or satisfying than the priceless look on his face when he’s awarded a gold medal and he exclaims, “I’M A WINNER!”

*****

ASP is starting a series of webcasts from the Special Learning ABA Training Program. March 1 session features Effective Methods to Teach Functional Social Skills by board-certified behavior analysts and highly-trained behavior therapists Tabitha Kirby and Julie Roumeliote. For details, follow us on Facebook or visit http://autismsocietyphilippines.org.

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Posted in: angels-talk,sports

Mand Training across Modalities: Effective Methods to Teach Functional Communication

This 120-minute webcast will review the literature on assessing and determining appropriate communication modalities, provide a task analysis for each type of communication modality, highlight video examples of communicating across modalities, and discuss the pros and cons across various communication modalities.

Many individuals with limited functional communication lack the important skill of manding. Being able to request for one's own desires and needs is a powerful skill, and without this skill, quality of life may be detrimental. Being able to vocally mand is highly desirable, however, is not the only way to communicate. American Sign Language, modified sign language, picture exchange systems, and augmentative communication are all various forms of communicating. While mand training is similar across modalities, there are unique needs when developing a mand training intervention program for each communication modality.

Erin Lombard, M.Ed., BCBA. Erin is currently a behavior consultant with over 12 years of experience working with children with autism and developmental disabilities in homes, schools, and center based programs. She is a Board Certified Behavior Analyst and a previous certified Special Education teacher in Arizona. Along with providing consultation through SBSA, she also currently teaches graduate level Positive Behavior Support courses at Northern Arizona University. Erin is originally from California where she finished her undergraduate degree in Child and Adolescent Studies from California State University, Fullerton. She obtained her master's degree in Special Education from the University of Phoenix. She completed her coursework in applied behavior analysis through the University of North Texas. She is currently working on her PhD in Psychology at Capella University.

Webcast Details

Date: 1 March 2014, Saturday
Time: 9:00 am- 12:00 nn
Venue: Bridges Foundation Inc., 22 Scout Limbaga Street
West Triangle, Quezon City (Map)

Register on-line today!
Pre-registration fee is P500 (up to February 28). On-site registration fee is P600. ASP Members get a discount of P100. Seminar Fee is inclusive of a certificate, handouts and snacks.

Pre-registered participants may pay to Autism Society Philippines, Metro Bank, Kamias Branch Account Number 047-3-04751874-2. Please fax the deposit slip with the name/s of participant/s to ASP office and bring it on the day of the seminar. On-site registrants will be accepted depending on the availability of slots. There will only be 70 slots available. No refund will be given to participants who did not show up on the date of the seminar. For more details, please call ASP at 7-903-5496.

The ASP Education and Empowerment Program serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are their own and may not necessarily reflect the views of the organization.

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Posted in: 4parents,4pros,4public,seminar

APCD conducts Post Yolanda assessment in Ormoc

Mr. Ranil Sorongon of the Asia Pacific Development Center for Disabilities met with the combined ASP Ormoc District 1 and 2 chapters last January 10, 2014 at Pongos Hotel to support family members who live with autism who were affected by Typhoon Yolanda.

Mr. Sorongon oriented the group about his role as the secretariat for the ASEAN Autism Network (AAN) and the APCD; and how these organizations can help the affected families.

He moderated a discussion of specific concerns and raised the following priorities: 1) Rebuilding of the public SPED center and replacement of special education materials lost in the typhoon; 2) Assistance in the diagnosis of children with autism and other disabilities; 3) Continued intervention for the children with autism, most especially occupational therapy and speech and language therapy; and 4) Psychosocial and trauma counseling for parents, caregivers of children with autism. A survey form was also distributed to determine how basic needs of food, water, clothing, shelter, sanitation of each household were affected, how the disaster and the aftermath affected the behavior and other areas of development of the children and how disaster preparedness was implemented before the typhoon.

Mr. Ranil Sorongon is welcomed by the leadership of ASP Ormoc 1 & 2 Chapters

Mr. Sorongon informed the chapter members that the Vietnam Autism Network raised $400.00 from their vocational livelihood projects as a donation to the Ormoc chapters.

Mr. Sorongon encouraged the families present to always keep hope alive. He is confident that we can all rise from this tragedy with the help and support of the national and local governments, local advocacy organizations like the Autism Society Philippines and international disability agencies like AAN and APDCD.

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Posted in: chapters,community,consultation,international,intl,regional

ASP visits University of Santo Tomas

Team ASP, led by National President Jan Peña, met with the UST Nursing Central Boards of Students (NCBS), the college student council of the College of Nursing and with the UST College of Education last 30 January 2014 to deliver their certificates for volunteering in the recently concluded Angels Walk as ushers and marshalls.

Jan Peña and UST-NCBS shared each organization’s advocacy calendar. Upcoming events that touch on autism awareness, acceptance and inclusion include, ”LENSES: Looking, Enhancing, Nurturing Societal Empowerment and Service,” and later, “Positivism Towards Autism.”

Team ASP with UST-NCBS

Through these events, the NCBS aims to develop a sense of awareness on the different issues regarding autism and its implications to society, to demonstrate social activities that exhibits a positive environment and understanding on the needs of persons with autism, to translate learnings from the seminars into actions that can be practiced everyday, to show a positive outlook in dealing and interacting with persons with autism and to differentiate the ways on how we can answer to the needs of these individuals.

ASP Trustees Grace Adviento and Beth Udquin will be resource speakers on the ““Positivism Towards Autism”” seminar to be held on 26 February 2014 at the St. Martin de Porres Building, Dr. Hubert GH Wong Nursing Auditorium from 7:00 AM – 12:00 NN.

Team ASP at the UST College of Education

The ASP team proceeded to the UST College of Education to personally deliver the certificates and extend their gratitude for the College’s support. They were warmly welcomed by the Asst. Professor Pia Rabacal, who shared a short essay made by one of the volunteers.

Autism Society Philippines’ 25th Year Angels Walk for Autism
By Denise Teresita Gail J. Policar, GuTS-UST

January 19th marked Autism Society Philippines’ (ASP) 25th Year Celebration. The event attracted 10,000 participants from all over the Philippines, filling the MOA Arena to the rafters -- making it the biggest autism advocacy event in Philippine history.

The call time for the marshals was 5:00 AM. All were a little bit sleepy but were very eager to make the event successful. I was more motivated, especially when I received my all access ID. The breakfast was given and after, there was a small tour around the arena. Looking around the arena, I felt overwhelmed and secretly, I wondered if it was really possible that we could fill the whole place. The arena was huge, much bigger than the locations where I have witnessed advocacy walks for the past four years. After the tour, an orientation was given in order to assign tasks and area of responsibilities for the seating and actual walk. Volunteers from the Guild of Thomasian Speducators (GuTS) were assigned to the first and second floor but I was surprised when my name was asisigned to the fourth floor. When I went up, I was a little bit afraid. The fourth floor was very steep and I was thinking that the children may be afraid of the height. However, I was also thinking positively. More than the physical barrier brought about by the location, the advocacy to promote the awareness and rights for children with autism would be greater.

As the sun rose, more and more people filled in the arena. The place was covered in green, the families of children with autism were all smiles and excitement was radiating off them. Geared with my go-stop sign and neon orange vest, I stood on my ground and assisted the mass of people who entered right after the gate of the Arena.

The Pre-Opening Program started at 8 AM. The program started with the showcase of performers with autism and some invited guests artists. The ASP Dream Girls were truly splendid. A round of applause was given to them as they sang their hearts out to their own version of songs. Another splendid performance was presented by ILLC Heartthrobs who danced and ILLC Hunks who sang “Just the Way You Are.” Truly, their showcase of performance enabled the people to see their abilities, more than their disability.

At around 11:30 a.m., the marshals were instructed to lead the people out who were under their area of responsibility. There was a slight difficulty, especially when the participants had to wait before they could go down the ground floor. As expected, some children with autism from my group started having their tantrums and parents were getting anxious.

The walk started from the arena and then around the mall and back to the arena. A lot of people got to witness the advocacy message of a lot of SPED schools and organizationa. Some passersby stopped and waved their hands, others cheered for the children, while some are still uninformed and seemed clueless about the essence of the walk.

But in the end, it had been truly successful. The mass of the people that I saw was a proof that people are starting to become aware of what autism is all about and understand beyond the stereotypic ideas brought about by the disability. I truly hope that the walk paved way for uninformed people to become aware of what autism is and strengthened the resolve of those who are advocating for the rights and inclusion of these children.

*****

One cannot quantify the sense of fulfillment one gains from volunteering. Become an ASP volunteer, by joining the ASP Angel Corps. By sending your name you are in the list of potential advocates who may be activated when an event or project arises. Sign up today.

The Power of the Arts

Metrobank Foundation’s Art for Healing project has excited me to no end, being a parent of two teenage boys diagnosed with ASD. In 2013, I helped organize a 6-day art psychosocial intervention workshop. In 2014, through a partnership between Metrobank Foundation, MADE, NCCA and SM Supermalls, a new batch of young PWAs was treated to a one-day workshop, exclusive for Autism Society Philippines members at SM Aura, in celebration of National Arts Month.

Art for Healing is a unique art psychosocial intervention workshop for teens with autism. This workshop differs from others as it allows PWAs the freedom to express their own thoughts and feelings without judgment. The focus is not on fine motor skills; but rather expression.

It is in the teenage years where most individuals, neurotypical or otherwise, struggle with their identity. Using the power of the arts, the workshop hoped to draw out how these participants saw themselves -- a potential challenge for teaching artists, in my view. When asked about what his commitment to mentor, despite how the workshop was a mix of teenagers with diverse ASD deficits, award-winning sculptor Jonathan Dangue gave a reply reflective of his inclusive nature, sans hesitation: “Oo ba. Ibang klaseng pag-iisip yan.” His answer assured me that the kids were going to be in good hands.

PWAs enjoying doing artworks

As much as noted artists such as Noell El Farol, Salvador I. Ching, Thomas Daquioag, Ferdinand Doctolero, Rex Tatlonghari were teaching the participants different techniques of expression, it was their open-mindedness and gentle nature that allowed them to connect with the children so quickly. They knew that the kids were very sensitive and that they have to be responsible in maintaining their energies. As they were having fun teaching the kids, the kids were enjoying expressing themselves through their self-portrait and the parents were relaxed and had generous smiles.

Attending psychologist, Dr. Grace Evangelista, was vigilant in keeping the mood relaxed yet productive. She assisted the artist / teachers if there were any sensory or behavioral issues.

Towards the end of the workshop, each child was asked to present their collages and what it meant. Ezekiel, presented an impressive and intricate collage that was given so much thought. The clarity of his thought was also reflected in his description of his collage. Jay Buenaventura showed his affections for his family as he show how he drew each of them in his collage. Show-and-tell did not exclude the kids who were non-verbal. Clay sculptor, Carlos, may have no words but he knew the sounds that his clay dinosaurs made and he also knew that he made us happy with his dinosaur impressions. The non-verbals were equally proud of their work and they clearly want to share.

Most people make the mistake that art is only for the rich or something that cannot put food on the table. Yet I have seen the power of the arts so many times. It has inspired, fulfilled and uplifted spirits. It has provided respite for those who are downtrodden. It builds character and discipline. It has the power to affect lives with its messages. Communities are formed and united with no need for words.

While others need data and evidence, only a trusting nature can understand what I had witnessed that day. I saw the love in each parent’s eyes as they see their children happy with their accomplishment. I saw teachers embracing the uniqueness of their students. I saw the beautiful gentle souls of kids (and adults) with ASD that can only be expressed beyond words. I saw a higher order of thinking that can only be delivered through the arts. I saw fledging community working together to supporting and uplifting kids with ASD. HeART for Healing always awards me to be a witness to the inclusive power of the arts.

We look forward to the stories and revelations from the next Art for Healing workshop in Davao.

This article is a contribution of Ms. Cristina Estampador, former ASP Trustee and current ASP project coordinator for the Art for Healing project.

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Posted in: art,chapters,community,metrobank,sm,therapy

ASP Family Support Group for February 2014

ASPs monthly family support group sessions bring together parents, siblings and other family members to talk about their journey in living with autism. Participants share their experiences and draw enlightenment and strength from others going through the same challenges. We welcome members and non-members to this intimate gathering.

Momie Beth with sons Cholo and Tristan

Our facilitator for the February 22 Family Support Group session is Elizabeth Udquin. Beth is a graduate of Clinical Psychology at the Polytechnic University of the Philippines. She is mother to two children on the spectrum, Cholo and Tristan. Stories on Elizabeth and her family have appeared on Manila Bulletin and UNTV Channel 37. She has inspired others with her experience as a parent in various autism awareness talks and seminars. Beth is also the President of ASP UP-CAMP Manila Chapter and ASP Trustee.

Date: February 22, Saturday
Time: 1:00-5:00PM
Venue: ASP Office, Room 307, ML Bldg, # 47 Kamias Road, Quezon City
Map: http://bit.ly/asp-map

Sign up for the Family Support Group below or call 7-903-5496. Only 15 seats are available.

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Posted in: 4parents,4siblings,fsg

Celebrating NACW 2014 in Davao

Autism Society Philippines Davao Chapter celebrated the 18th National Autism Week with various of fun filled activities. Despite being under a low pressure area and the looming fear of low participation, the rains stopped in time for opening on 19 January 2014 at 3 pm, with the program at SM Lanang Premier SMX conference hall.

Pastor Ruben Hernani Jr. spoke of giving importance and role of the parents and family in caring a person with autism (PWA). This was followed by an orientation from the Davao City Police Office in handling PWAs involved in misdemeanour and from the DSWD on the rights and responsibilities of Persons with Disabilities. A showcase of talents of our PWAs featured Popo Uy, SPED Bangkal students, Henry Basquez, DAICF students and Andrei Morales.

After the program, the much awaited Angel’s Walk began, wherein more than 300 individuals participated -- walking around the mall, congregating at the Fountain Court. The song 1Pangako played in the background as the sun set on the fulfilling day. We also conducted an orientation to the security force of SM City Davao.

Photos from Andrei Morales' Facebook album.

A Stress Management Workshop was conducted on January 20 at 6:00pm at the SM City Davao Annex Event Center, facilitated by Mr. Atho dela Cruz, a psychologist and biodynamic healing energy therapist. This workshop was intended for parents, teachers and handlers of PWAs. He discussed how one can relieve stress temporarily through music, massage, communication within family. Before the workshop, Ranny Uy’s family ensemble played cool jazz music, entertaining the audience and setting the mood to start with the workshop. The event attracted more than 100 hundred participants.

A sensory-friendly movie titled “The Nut Job” held on January 25 at 10:00 am at the SM City Davao culminated the week’s celebrations. Bringing up the lights, turning down the sound, allowing the PWAs to bring in thier own snacks, eliminating movie previews and advertisements, welcoming audience members to get up, dance, walk, shout, sing, go in and out of the cinema (without compromising safety) supports desensitization training of PWAs towards acquiring socially-appropriate behaviors inside movie houses. During the showing of the film, once could hear laughing, shouting, and crying specially for the first timers. For the second sensory-friendly movie sponsored by ASP Davao Chapter, the theatre was almost filled to capacity.

A tri-media blitz complemented the weeklong activities. ASP Davao leaders spoke about autism and our autism advocacy on Club 88 forum on GMA-7, DXRP-AM Radio ng Bayan, DXAB AM Radio and MOR FM Radio of ABS-CBN, SM Kapehan and the Sun Star Davao.

This article was contributed by Maripet B. Cagas of ASP Davao Chapter.

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Posted in: angels-walk,chapters,community,nacw,regional,sm,therapy

Discovering Best Buddies

Many of us have long recognized that the deficits associated with autism has made it difficult for young adults on the spectrum to connect with people their age, more so, make life-long friendships. Many long for the company of friends -- which is different from being with their parents, their family or their caregivers.

Best Buddies is an international nonprofit organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships for people with intellectual and developmental disabilities (IDD), founded by Anthony K. Shriver in 1989. Their programs include opportunities at the middle school, high school and collegiate levels. For adults, the Best Buddies Citizen program pairs adults with similar interests to be “buddies” through regular shared activities. While the initial commitment is only one year, the mutual benefit of these creative friendships have paved the way for lifelong connections.

Rhodora Fresnedi, host of the BB training, with ASP Trustees (L-R) Peng So, Carmel Almendrala, Mona Veluz and Cecille Sicam

Best Buddies has a strong presence in Latin and North America, Europe and other parts of Asia; but Best Buddies Cebu is one of their older chapters, having existed for twenty years in ten regional universities. The Autism Society Philippines is among the institutions eager to explore the offerings of the recently established Best Buddies Manila. Diana Rihl, Deputy Director of International Programs from Best Buddies HQ, assisted by Dr. Angelina Onrubia, Best Buddies Manila Program Director, gave a briefing to ASP and other potential partner institutions like Unilab, SHINE, One World, ILLC, Bridges Foundation. DSAPI, Xavier School, International School, British School Manila, among others, last 15 February 2014. The half-day session educated potential Best Buddies advisers on the tools and techniques necessary to roll out the Best Buddies chapter.

The Autism Society Philippines is looking into launching the BB Citizen Program for our PWA members. Stay tuned for more details!

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Posted in: community,friendship,partners

ASP takes part in “No Speed Limit”

The ASP Family were among the early birds who flocked to the Ateneo Blue Eagle Gym for the Ateneo Special Education Society’s “No Speed Limit” -- the organization’s annual fundraiser -- last 9 February 2014, as early as 5am.

The run attracted 1,300 participants -- including ASP leaders and their loved ones. ASP Trustee Peng So completed the 3k run with her CWA Patrick only a pace or two ahead. ASP Trustee Grace Adviento also completed the 3k run; while triathlete hubby Glen Adviento finished the 21k. Even the father of ASP Admin Manager Ida Blasco ran the 10k, in support of the event! ASP Trustee and Marikina Chapter President Alex Cabason made an appearance with the whole family, as they were part of the organizing committee.

PWAs and family during the run

ASP Mona Veluz spoke briefly on stage about ASP’s advocacy; while CWA Carl Veluz was busy assisting the ASP Secretariat at the ASP booth, strategically near the start / finish line. The ASP Booth offered token prizes to runners who tried our “Color Sorting Challenge” -- a skill, some may say, individuals on the spectrum would excel at. Everyone enjoyed the game regardless!

The Autism Society Philippines was joined on the fairgrounds by the Special Olympics, Cerebral Palsied Association of the Philippines, KAISAKA Inc., among other disability groups. The runners who completed the course surely felt the satisfaction of ”helping out while working out.”

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Posted in: community,special,sports

ASP UP-CAMP awarded IBF grant

ASP UP-CAMP Manila, through the mentoring of Mr. Ranil Sorongon and Ms. Carmel Almendrala of ASP National, was formally awarded a grant by the International Bazaar Foundation to execute their “Early Steps Project.” A formal awarding ceremony took place last 10 September 2013 at the Department of Foreign Affairs Building, along Roxas Boulevard in Manila.

Mr. Ranil signing for the document of awarded IBF grant

“Early Steps Project” community-based rehabilitation project strengthens the chapter and empowers neighbors to take control over the therapy and education of children with autism, through:

- Provision of basic therapy and tutorials to children with autism, who belong to the economically challenged families in the City of Manila and nearby places.
- Provision of information and skills to parents of children with autism and volunteers on how to manage children with autism.
- Provision of opportunity to the officers, members and volunteers of ASP UP-CAMP Manila to conduct basic therapy and education services for children with autism.
- Build a family support system where parents, siblings and CWAs who are part of the Chapter are inspired and motivated by their peers.
- Working together to acquire additional support from institutions and non-government organizations.

The International Bazaar is an annual event, led by the Diplomatic and Consular Corps and local concessionaires are sold. The IBF creates a global shopping experience for Filipinos; while providing services to local communities through the capital generated.

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Posted in: cbr,chapters,community,grant,leaders,partners

Dumaguete celebrates the 18th NACW

Autism Society Philippines Dumaguete Chapter joined the nation in celebrating the 18th National Autism Consciousness Week with a several activities. Angels walk started at the Rizal Park and ended at the Dumaguete National High School Gym, with an arts and crafts workshop. The celebration was possible with the help of the City of Dumaguete, Dumaguete City Health Office, Dumaguete City Social Welfare Office, the Department of Health, GPRehab, Dumaguete West Central School, CELTA College of Education, Hermanas of Silliman University and American Corner of Silliman University Library.

18th NACW announcement

ASP Dumaguete Chapter, led by parents and siblings of individuals on the spectrum, spoke about autism and our autism advocacy via radio and TV guestings -- at Power 91 FM, Magic 95.1, DYWC Radyo Bandido, 93.7 Energy FM and Phil Products CATV-6. The team disseminated information about Autism Spectrum Disorder and announced the different activities that we will have for that week including, free pre-assessment for children with signs and symptoms of autism, a Temple Grandin film showing and a Seminar on the Signs and Symptoms of ASD for the day care workers, social workers, barangay health workers, nurses and midwives of Dumaguete City.

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Posted in: angels-walk,chapters,community,nacw,regional

Understanding Campers with Autism

The Kamp Pagkakaisa Volunteers Inc (KPVI) will be holding its 36th “Kamp Pagkakaisa”, a ten-day summer camp for children with special needs, on 4-13 April 2014. KPVI is targeting Tanay, Rizal as the venue for this year.

In order to train the new and old volunteers in handling children with special needs and to keep the spirit of volunteerism alive, ASP National President Mary Janette Peña was invited as a Resource Speaker on "Understanding Campers with Autism" last 02 February 2014 at the TSB Seminar Hall, Meralco Compound.

Ms. Janette Peña speaking to participants

Ten days of living in camp and ministering to a PWA could be quite an ordeal for a volunteer who lacks the know-how in dealing with individuals with autism spectrum disorder. Tita Jan’s 18-year old son, Muneer Peña began the lecture with words that sounded strange and meaningless. Obviously, a few seconds of incomprehensible speech of a non-verbal PWA already rendered the listeners helpless in understanding the message that Muneer was imparting. During this lecture for thirty (30) new and seasoned volunteers of KPVI, Tita Jan explained the nature and needs of a person who has autism. She elaborated on the varied language, behavior and socialization patterns that campers with autism will demonstrate in their attempt to express themselves.

For the volunteers, more important than seeing these manifestations is equipping one’s self on how to address a situation where the demonstrated communication and behavior might distract the learning and living experience of the PWA camper. Tita Jan pointed out that on top of engaging the campers in fun and meaningful activities, a volunteer can do a great service, if he can teach a PWA to overcome a certain language, sensory or behavioral deficit during the 10-day 36th camp.

The volunteers finished the session in positive spirits, enlightened and highly-motivated, eager to make a difference in the lives of campers with autism.

Ms. Janette Peña with certificate after Understanding Campers with Autism

KPVI is a non-stock, non-profit organization established in February 1979 and is composed of volunteer students and professional. KPVI is committed to the welfare and development of children with special needs: the mentally and physically challenged, abandoned, socially deprived, street smart, the physically and sexually abused, and children with autism, Down syndrome, cerebral palsy and ADHD.

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Posted in: best,community,education,volunteers

PWAs shine at the Special Olympics Asia-Pacific Games 2013

The Special Olympics 2013 Asia Pacific Games was held at Newcastle, Australia on December 1-7, 2013, with over 29 nations and 2,500 athletes and coaches from different countries participating. Australia’s Governor-General, Quentin Bryce, declared the Games open at Hunter Stadium. Bryce, who is also the Patron of Special Olympics- Australia, welcomed the participants, saying “Tonight we come together to celebrate our athletes' remarkable sporting talents and determination to give their very best. Special Olympics athletes, I know that each and every one of you will compete with strength, determination and courage.”

One of the biggest moment for the special athletes is when they took their traditional Athlete’s Oath: "Let me win, but if I cannot win, let me be brave in the attempt."

Athletes from the 2013 Asia Pacific Games in Australia were welcomed in Congress by Representative Abueg

The Philippines’ Michael Almendrala, a person with autism, won a Bronze medal in bowling, scoring 415 points. Tita Carmel, Mike’s mother and a Board of Trustee at ASP, shared that being a part of this competition is enough for Mike. “For all of the challenges, training Mike encountered, he passed through he made it to the finish line,’ she said. Mike feels full of pride to win this battle with excitement. Aside from 2013 Games, Michael also represented the country in the Special Olympics World Summer Games held in Shanghai, China last October 2007 where he placed 4th in powerlifting and received commemorative medals too.

Raymond Macasaet, a young man on the spectrum, won a Bronze Medal in the 200m Freestyle Swimming event. Raymond has also competed in Greece at the Special Olympics Summer Games in 2011, from where he took home silver and bronze medals for Freestyle Swimming. Raymond is a student of the Independent Living and Learning Center; and performed at the Angels Walk for Autism 2014 as part of the “ILLC Heartthrobs.”

Mike and Raymond are only two of the many talented PWAs who have grown through the opportunities provided by Special Olympics. Connect with Special Olympics on Facebook to know more about their programs: https://www.facebook.com/pages/Special-Olympics-Philippines.

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Posted in: feature,sports

Capturing the colors of cadets

This article appeared on 10 February 2014 in the print and on-line versions of Manila Bulletin's "Angels Talk," edited by Dang U. Koe, ASP Chair Emeritus.

In the past, most children with autism were not allowed to even touch a camera for fear that they would toss or break the gadget. It never occurred to most people that photography is something they can learn and which can serve as a means of expressing their perception of the world as they see it.

The Autism Society Philippines (ASP) – Baguio Chapter, in collaboration with some of Baguio’s photography clubs and photo hobbyists, conducted 2014 Colors of ‘A’ Spectrum photo-workshop last January 26. Former Baguio City Mayor Peter Rey Bautista, a photo enthusiast who has mentored autism kids in past workshops, said, “Flowers and horses took us places with new found faces during past workshops. This year, it is with cadets in the Philippine Military Academy.”

Our Angel Talker this week is a founding member and current vice president of ASP Baguio Chapter, Belette N. Vizcocho. Belette is also the proud mother of Josef, 21, a fourth year Hotel, Resort,- and Restaurant Management student at St. Louis University and happily living with autism.
Canon Ambassador John Chua conceptualized The Colors of “A” Spectrum photo-workshop with the idea that children with special needs are capable of venturing into the realm of photography. In 2009, John encouraged and influenced Ompong Tan, one of Baguio’s most distinguished and respected photographers, to conduct a workshop for children with autism and other learning difficulties. That workshop led to an SM mall exhibit in time for Autism Consciousness Week. Ompong and his photographer friends have become certified autism angels as a result of that while the project is already on its sixth consecutive year.

The cadets from the Philippine Military Academy (PMA) are more than willing to teach photography to children with autism.

ASP Baguio now awaits the opening of 2014 Colors of ‘A’ Photo Exhibit on February 13 at the Lower Basement Gallery of SM City Baguio. Participants for this year are 22 junior photographers with ages ranging from 5 to 26. Eight of them are from ASP Baguio and four are from ASP Dagupan.

Former Mayor Bautista said, “The kids have now taken the art! Onel Gundran, 17, has even won first place in the 2010 Baguio Photo Walk and in other competitions participated in by professionals and amateurs alike, while others have had exhibits in many places. That’s how good these kids are!

Through the efforts of ASP parents, Major Paolo and Jane Teodoro, the Philippine Military Academy opened its doors to the workshop, a special privilege granted by Vice Admiral Edgar L. Abogado, superintendent of the country’s premier military institution. The participants used a variety of cameras ranging from point and shoot to DSLRs, with the PMA Camera Club acting as mentors to some of the kids.

Participants and mentors from the Baguio Photographers Club, Mukha ng Baguio, La Trinidad Shutterbugs, and the Pangasinan Photographers Club, were warmly met by the PMA cadets headed by Major Concepcion Reaño, who guided and toured their special guests. Each participant – with his family, mentor, and a documenter- had the freedom to capture photos of whatever object, subject, or activity that caught his interest, from the Relics Point, the Simulation Room, to the Tree House, and every other nook and cranny within the compound.

A usual sight during the workshops would either be fast-paced shoots, with the mentor running after or alongside the child, teaching him / her the basics of photography, introducing new techniques to former participants. The newer participants had slower paced shoots, taking time to adjust to the new surroundings, new teachers, and new activities.

At mid-morning, the entire party moved to the grandstand to witness the Silent Drill at the Borromeo Field, where the cadet corps underwent outdoor inspection in ranks and marched with precision. It was a sight to behold. The kids sat still and enjoyed the impressive spectacle, taking more shots from this angle, with their mentors by their side. After the drill, more photo ops of participants with the cadet corps ensued.

Before each meal, the common practice for the cadet corps is to assemble and march into the Mess hall, providing another opportunity to take photos of the cadets in their daily routine. The group joined the cadets for lunch which was another new and special experience for the children to enjoy.

After the good meal and pleasant interaction with the cadets, it was time to move on to another exciting activity – the obstacle course situated down the stretch. Normally off limits to outsiders, some of the more adventurous kids and mentors were allowed to experience hurdling through logs at the mountain side, crawling through concrete culverts, and climbing and descending ropes, all within reach of the watchful cadets who assisted the kids and ensured safety. The rest of the group enjoyed watching the bonding of kids with the cadets in this hideaway amid the tall trees, with the refreshing scent of pines filling the air.

“Families living with autism in Baguio have gained new friends in the photographers and photo hobbyists who mentored our kids. In the past, we admired the bigwigs in photography from a distance. Now, we regard them as allies and friends on a more personal level, helping us in our advocacy of promoting better awareness, understanding, and acceptance of autism in the community. Why, even 17-year-old Ven Wanchakan now includes ‘Sir Ompong’ and former Mayor Peter Rey in his daily prayers,” shared ASP Baguio chapter president Jenny Gundran.

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Posted in: angels-talk,art,canon,chapters,colors,community,nacw,photography

ASP Naga‘s heartfelt walk for a genuine cause

The Autism Society Naga Chapter paved the road for a genuine cause to celebrate the 18th National Autism Consciousness Week with an “Angels Walk for Autism” in the vibrant city of Naga. The walk started at Plaza Rizal, proceeded along Panganiban Street and headed towards SM Naga City. Parents, teachers, therapists, students with autism and representatives from different organizations and schools such as Naga SPED Center, Nabua Pilot Elementary School, LanceYuri KIDSPOT Center, HELP Learning Center and The Persons With Disability Affairs Office joyfully celebrated the yearly event, with a cheerful stride. SM Naga officials Joel T. Villeza and Ms. Crisanta Sara Golez joined, while carrying their banner ‘SM Cares.”

During the walk of Angels Walk

The fun walk was followed by a Eucharistic celebration. A special intention and blessing from the officiating priest was given for the children with autism, other children with special needs and their parents.

Teacher Ingrid Gunda,PTRP welcomed the participants of the program with an enlightening message. She emphasized the implication of having faith and hope in facing the challenges when handling persons with autism and the value of embracing the mission as advocates geared towards creating meaningful lives of children with autism. Jerick S. Reforba, an adolescent student from Naga SPED Center was her enthusiastic co-emcee in the activity.

Since the event aimed to promote awareness, Ma. Girlie O.Maristaza, a SPED teacher for adolescents with special needs, gave an informative lecture about the nature of autism which was highlighted by a poem presentation.
It was followed by an intermission number from selected male students with autism of Naga SPED Center. They happily danced in the tune of a modern music.

Ms. Edna San Jose shared her inspirational message for the participants. SM Mall Manager Engineer Christian Westley Villanueva gave his message as well. Mr. Jhad Adaque, the SM Marketing officer, earnestly showed his support all throughout the event.

To all who extended their support for the success of the activity (especially the SM Naga Management and Persons with Disability affairs Officer–in–charge Mr.Christopher Molin) and to all who became part of the celebration, we would like to thank you and we pray that you will be unceasingly showered with God’s abundant blessings. You have joined the Autism Society Philippines in embracing an infinite and immeasurable mission. We shall always be part of God’s wonderful purpose. Let our feet continually take a heartfelt walk. Let our lips share a heartfelt talk. Let our hearts pound endlessly for a genuine cause.

(This article is a contribution of Mildred Briguera-Serra, OTRP, ASP Naga Secretary)

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Posted in: angels-walk,chapters,community,nacw,regional,sm

ASP’s rolls out another successful EDEIP

The Autism Society Philippines (ASP) had implemented the Early Detection and Early Intervention Program (EDEIP) for the past nine years. The program has trained thousands of Community Health Workers (CHWs), Day Care Teachers (DCTs) and Parents of Children with Autism (CWAs) nationwide.

The Akbayan Partylist and the local government of Quezon City provided critical support to ASP to establish an accessible and affordable means of early detection and intervention for marginalized Filipino families affected with autism.

ASP Angels Rizalinda Cansanay, Josephine Palomares, Rosalyn Marie Sorongon, Maria Joyla Ofrecia, Elizabeth Udquin, and Christina Borneo once again handled the program as it trained a total of 438 community health workers, 58 Day Care Teachers and 330 parents, siblings and teachers in Quezon City.

The Angels behind EDEIP 20130.

The project helped in detection, not diagnosis of signs and symptoms of person with autism. They provided resource kits to the participants consisting of of 1) Autism Tool Kit that serves as Checklist in detecting children with ASD; 2) Referral Guide that shows steps / actions to take to help children suspected with ASD; and 3) Directory of Professionals that lists Developmental Pediatricians, Psychologists, Psychiatrists, Neurologists, Therapists and Dentists in Quezon City for diagnostic, assessment and intervention services for children suspected with ASD.

The activity was a learning experience for the participants. They mentioned that it was very helpful, especially about the correct misconceptions about autism. The topics that the speakers lectured were overwhelming to the point that the participants had implied a lot of interesting facts that is related in upbringing their children with autism. They want ASP to continue implementing this project as this is indeed very helpful and helps ASP to reach out more to families and communities.

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Posted in: 4parents,4pros,4public,4pwas,4siblings,best,community,education,government

Karen Davila hosts ASP family support group

ASP’s Family Support Group, in observance of the National Autism Consciousness Week, was moderated by award-winning broadcast journalist, Karen Davila. An autism advocate and mother of two, Karen candidly talked about her family’s journey in raising David, her child on the spectrum. Held at the Bridges Foundation last 24 January 2014, the family support group session brought 60 parents together to talk about their own adventures in living with autism. The participants shared their experiences and drew enlightenment and strength from others going through the same challenges.

Ms. Karen sharing her experiences about her son's condition

When Karen found out about her son's condition, she started researching extensively. She tried everything she could get her hands on. She experimented on multiple interventions (even using extra virgin coconut oil) -- as her resources allowed. The GCF diet, which she learned about through her mother, has been most effective in her experience.

Karen believes that, in raising children with autism, parents should also teach their children to adjust to their environment. This may not always be easy; but she believes that parents can do this with dedication, focus and strength. Our children need us to show courage and hope.

Karen also engaged in a lively interaction with the parents, moderating the discussion of questions that were top on the minds of the parents in attendance. Karen was supported by the ASP leadership -- Chair Emeritus Dang Koe and Trustees Ces Sicam, Evelyn Go, Grace Adviento and Peng So.

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Posted in: 4parents,4public,4siblings,fsg,nacw

An Inclusive Cosplay Community for Autism

by Gerard Joseph Atienza, autistic self-advocate and ASP Bacoor Chapter Secretary

The Autism Society Philippines Bacoor Chapter had the honor of hosting the Closing Ceremonies of the 18th National Autism Consciousness Week with CAUSEPLAY, a cosplay event organized by, for, and with people on the autism spectrum on 25 January 2014 at SM City Bacoor.

An event where enthusiasts gather for a competition and dress as their characters of choice, CAUSEPLAY aimed to reach out and promote autism awareness to a trifecta of communities, namely: the cosplay community (mainly composed of youth enthusiasts), families living with autism, and potential autistic self-advocates.

The Event Center of SM City Bacoor was jam packed as cosplayers from across all abilities converged to display their craft in a cosplay competition. CAUSEPLAY opened with a solemn invocation dance from the Archdiocese of Manila Ministry of Persons with Disabilities. Ushering in the happy atmosphere was a modern Japanese dance performance, featuring our partners from the Gendai Shikaku Bunka Kenkyukai (Genshiken) student organization from De La Salle University – Dasmariñas.

The hosts, Kinstuart Ababa and John Paul Luaña, who were both students and volunteers, were highly enthusiastic as they brought fun and humor to the audience throughout the show. Other performances included an Angels Walk encore performance by Buboy Dolor and his classmates from Hopewell Integrated School, as well as song performances by Marie Bien Togonon, Jose Rafael Marquez, and fellow self-advocate Carl Veluz.

The NACW closed with Ms. Carmen Zubiaga, Executive Director of the National Council on Disability Affairs, recognizing the members of the 18th NACW Working Committee for their participation in planning and implementing the activities during the week.

But the highlight of CAUSEPLAY was, of course, the cosplay competition. The contestants, some of them with autism, graced the stage as they feature their costumes and performed their skits – much to the amazement of our panel of judges, who consisted of seasoned cosplayers Riyo Enriquez and Nagi Aborde, and our very own Chair Emeritus Dang Koe.

Three contestants emerged as winners: Alexia Sheridan (playing as Yuna from Final Fantasy X) won as Best Female Cosplayer; Christian Umali (War Machine from Iron Man) won as Best Male Cosplayer; and Gabriel Cruz (Chewbacca from Star Wars) emerged as People’s Choice.

Christian Umali won as Best Male Cosplayer War Machine from Iron Man

Alexia Sheridan won as Best Female Cosplayer Yuna from Final Fantasy X

Gabriel Cruz dressed as Chewbacca from Star Wars

The CAUSEPLAY organizing committees would like to thank the following for their unwavering support throughout the event: our partners, Genshiken and Naruto Cosplayers Philippines; our sponsors, Hon. Irwin Tieng of BUHAY Party List and Lea de Castro Music Studio; NCDA; the 18th NACW Working Committee; our host venue and long-standing partner in the Bacoor area, SM City Bacoor; and to the thousands who gathered on that day and helped promote an inclusive and friendly cosplay community for persons with autism and other disabilities.

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Posted in: chapters,community,nacw,regional,sm

Project HeART for Healing Workshop on February 9

The Autism Society Philippines, the Metrobank Foundation and the MADE-NOW (Metrobank Art & Design Excellence – Network Of Winners), the alumni organization of the Foundation’s 29-year art and design program, collaborated to bring you “Project HeART for Healing,” an art therapy program that uses the science of art psychotherapy and the technical skills of the artists in 2013.

Teens with autism in Project HeART for Healing Workshop

Another “Project HeART for Healing” workshop will be held on 09 February 2014, Sunday from 1:00pm to 4:00pm at the SM Aura, with the support of Metrobank Foundation and SM Communications. Moderated by psychologist Dr. Grace Brillantes-Evangelista, the 3-hour workshop is an art psychosocial intervention for teens with autism to help them build a good sense of self and confidence.

This workshop is open to budding artists aged 13 and above, who belong to an ASP member family. Seats are limited to 40 participants. Deadline for submitting an application is 7 February 2014, Friday.

Register now!

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Posted in: 4pwas,art,best,chapters,metrobank,special,therapy

Beyond words

The success of the recently concluded 18th National Autism Consciousness Week could not have been possible without a strong community of volunteer-leaders who forged on despite the challenge of mounting nation-wide, large-scale, multiple advocacy events over several days. No words could describe the gratitude the ASP leadership feels for individuals and companies who have been moved by our advocacy into meaningful action. We hope these come close...

For being the power behind our advocacy for autism awareness, acceptance and inclusion, thank you to leaders and members of ASPs 70 chapters nationwide!

For representing a government committed to disability inclusion, maraming salamat po, President Benigno Aquino, Senator Koko Pimentel, Senator Bam Aquino, DOH Secretary Enrique Ona, Rep. Sonny Belmonte, Rep. Lito Atienza, Rep. Irwin Tieng, Rep, Michael Velarde, Rep. Alfred Vargas, Rep. Arturo Robes, Rep. Emmeline Aglipay, COMELEC Commissioners Grace Padaca and Rene Sarmiento, CHR Commissioner Coco Quisumbing, Gov. Jonvic Remulla, and Pasay Mayor Antonino Calixto!

For being a valuable partner and enabler, thank you to our fellow advocates in the NACW working committee NCDA Executive Director Ms. Carmen Zubiaga, Ms. Brenda S. Vigo (CWC), Ms. Marilyn Dumaano (DepEd Bureau of Elementary Education), Dr. Luz S. Almeda (DepEd-NCR), Atty. Dulfie Tobias-Shalim (DSWD-Protective Services Bureau), Dir. Ma. Alicia Bonoan (DSWD-NCR), Asst. Secretary Dimas S. Soguilon (DPWH), Asst. Secretary Ildefonso Patdu (DOTC), Dir. William Ragos (DENR), Hon. Arturo Robes (House of Representatives Social Services Committee), Engr. Emerito Rojas (NAPC), Dir. Marlene Ruth Sanchez (NCCA), Dir. Emelyn Libunao (PIA), Mr. John Manalili (Presidential Communications Office - Bureau of Communication Services), Deputy Director Teodoro Pascua (TESDA), Dr. Lirio Sobrevinas-Covey (AAAP), Ms. Celia Yangco (Autism Hearts), Ret. Capt. Oscar Taleon (AKAP Pinoy), Ms. Alyanna Marie Rivera (Health Justice Philippines) and Mr. & Mrs. Octavio Gonzales (PACDLD)!

For enabling us to cater to 10,000 angels, thank you Mr. Hans Sy, Ms. Annie Garcia, Mr. Bien Mateo, Mr. Rheybie Nipas, Mr. Chito Bauzon and the rest of the SM Program on Disability Affairs, SM Mall of Asia, SM Cares, and Mall of Asia Arena family!

For sharing their gift of event artistry, warmest thanks and lots of love to Mr. Albert Aragon, Ms. Unikka Padilla, and the Chain Reaction Family!

For bringing our message of hope and inclusion to a nationwide audience, thank you to Atty. Annette Abrogar, Ms. Tex Jimenez, Ms. Jana Egualan, GMA Network, Philippine Information Agency, Philippine News Agency, PTV 4, Net 25, Solar News, ZOE TV, Radyo5, and UNTV!

For never failing to amaze us with their talent, thank you, ASP Dreamgirls, The Soaring Angels of Pasay SPED Center, ILLC Hunks and Heartthrobs, GS Option House, Trisha Cardino, Buboy Dolor and Hopewell Integrated School, Clarence Cruz, and Christian Caragayan!

For generously hosting an intimate gathering parents of children with autism, our heartfelt thanks goes out to Ms. Karen Davila, Ms. Cecile Sicam, and the Bridges Foundation!

For bringing smiles to our Angels Walk 2014 participants with their talent, thank you Donna Lim and the Gold's Gym Zumba Team, Ken Chan, Renz Valerio, Bettina Carlos, Mikoy Morales, Julian Trono, Hiro Peralta and Andrea Brillantes!

For flexing their generous hearts in support of the Angels Walk for Autism 2014, thank you: MIESCOR President Lito Bermudo, Canon VP for Consumer Systems Bong Serevo, Chef Tony’s Snack Food Corporation CEO Anthony Elepano, Eurotel, Sogo Hotel, ABA Special Learning USA, Armadillo Holdings Inc., A Best Print and Cut ℅ Anna Ong, Malate Catholic School Batch 1980 ℅ Nina Serrano, Explore Tours ℅ Arminda Catabay, Tiffany Tan, Baldwin Kho, Joseph Sy, John Tan,and Elvis & Avic Lim!

For being the epitome of devoted ASP über-friends, sa uulitin po, Ranil Sorongon, My Sorongon, Lilet Laviña, Bing David, Excelsis Magno, Evert Malapad, Cathy Genovia and Abby Mendoza!

For capturing the best moments of the week, salamat Jamil Buergo, Mikhail Alexis de Guzman, Nicco Valenzuela, Art of Silence Photography, and FotoKlase sa Kalye!

For warming the arena with their presence and guiding hands, thank you to our production staff, marshalls, ticketing staff, and VIP handlers from Pagkakaisa Volunteers Inc. (PVI), Armadillo Holdings Inc., UST College of Education, De La Salle University – Dasmariñas, and ASP Friends!

For keeping the Angels Walk for Autism a lively and safe affair, salamat po Philippine Coast Guard Marching Band, Riders with Disabilities, and the Philippine Red Cross Medic team!

For making the NACW closing ceremony a possibility, and for making the cosplay community inclusive and friendly for autism, thanks to Ms. Edith Tayko, Mr. Drake Amante, and the rest of the SM City Bacoor family; Nicole Pausal and the entire Gendai Shikaku Bunka Kenkyukai group of De La Salle University – Dasmariñas, Naruto Cosplayers Philippines, and Lea de Castro Music Studio!

We have also been overwhelmed by words of congratulations and support from those who have experienced the joy and the strong sense of fellowship at an ASP event during the 18th NACW. We are humbled by your messages and are fuelled by them to continue with the work that we do for the welfare of all individuals with autism.

“Our whole family attended Angels Walk, this is our third year and it gets better every year to see the overwhelming support! Thanks ASP!”--- Jhoi Madolora Ciriaco

“This event is significant to me. This walk with my special brother, is just a step in the many walks I will have with him in this life. Hand in hand with my brother, the walk will not be weary as we are each other’s angels.” --- Isiah Maru Deogracias

"The event this Sunday, January 19, 2014, the 25th anniversary of the Autism Society Philippines should be the template of all events of PWDs to be noticed and be heard!” --- Jess Docot

“The whole SM Arena was filled with love and caring, I felt the positive energy. Truly, angels all around us.” --- Bong Serevo, VP of Canon

“Iba ang pakiramdam... first time naming nag-attend ng husband ko sa Angels Walk.... I even cried sa prayer…” --- Dhan Belen Ongtawco

"The Angels Walk of ASP done at MOA Arena should serve as the model of multi disability advocacy movement. Aside from a record breaking attendance, the mingling of entertainment and human rights advocacy makes the movement even more attention catching. In a very political society, great numbers talk loud and clear to government. It is demonstrated by the participation of significant leaders of government, non government, business, and other stakeholders. This effort must be sustained. Congratulations!” --- Lauro Purcil, Lead Convenor of Philippine Coalition on UNCRPD

“As a photographer of the event, I feel so blessed to witness and capture those memories of PWD/ASP. It was a successful and meaningful event. All attendees were glad and had a smile on their faces. Mahalaga ang pagdalo sa event na ito to show our love, care and support to each and every PWD.” --- Noel Orcullo, photographer:

"It was a great concerted expression of human love for the children, persons with autism in our society that PWD is accepted by our families, supporters and stakeholders. We must continue to solidify our ranks, work for the improvements and implementations of good laws and organize concrete services for ASP members. Thank you for the invite and congrats!” --- Tony Villasor, staff of Comm. Rene Sarmiento

"It was so touching, my daughter is so thankful I brought her with me" --- Rolen Dimalanta, HR Director, Sogo Hotels

"Congrats again, I'm so proud of you, bringing Heaven on earth thru the hearts of the children and their parents, truly the Spirit of the Lord is upon your people. Thanks for the invitation and to be part of your journey." --- Bing de Ocampo, Community Transformation Head, Armadillo Holding Inc.

“Congratulations!!! You have filled up the Arena. Mr. Hans and Ms. Annie are so happy on the event." --- Engr. Bien Mateo, SM Program on Disability Affairs

"Congratulations ASP team and SM Cares team for a very successful Angel's Walk event! Thank you for entrusting Arena team! Godbless!" --- Ria Mirasol and the whole MOA Arena team

"Congratulations for a very successful Angel's walk 2014. Thank you for being part of this event for a cause. God Bless!" --- Ronnie Osabel / Stage Pro

“There is really strength in numbers. Again, congrats ASP for a job well done” --- Erlyn Aguinaldo, DOTC

“Angels Walk was a resounding success in terms of participation, program and actual walk in and out of MOA! Congratulations to the ASP and PWDs!” --- COMELEC Comm. Rene Sarmiento

“Makulay ang mundo ng autismo - luntian na simbolismo ng buhay... pag-asa... at pagsasakatuparan ng mga karapatan ng mga taong may autismo at iba pang kapansanan. Ang matagal na panahong pakikibaka upang bigyan ng pansin ng lipunan ang mga taong may kapansanan ay unti-unti nang nagbubunga. Patuloy pa ang ating pagkilos baon ang taus-pusong pagmamahal sa ating mga anak. Sa patuloy na paggabay at pagpapala ng poong may kapal tayo ay magtatagumpay.” --- Chie Marquez, ASP Bacoor Chapter President

ASP Logo

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Posted in: angels-walk,nacw

PWA Art Exhibit opens at the House of Representatives

The House of Representatives, in partnership with Autism Hearts Philippines and the Autism Society Philippines, held the Art Exhibit of Children and Youth with Autism on 20-22 January 2014 and the Art Workshop on 23 January at the North Wing of the Batasang Pambansa, in celebration of the 18th National Autism Consciousness Week.

The exhibit featured artworks made by children with autism from different areas of the country. An opening program and ribbon-cutting ceremony was held on 20 January, with Mr. Gerard Atienza and Mr. Ming Barapantao as hosts. The program also showcased Frederick Segui and students of Lagro Elementary School, among others, as they performed and demonstrated the talents that individuals with autism can offer.
Hon. Sonny Belmonte, Speaker of the House, served as keynote speaker, where he echoed ASP’s seven-point policy agenda: mandatory developmental screening, comprehensive needs assessment, inclusive education, public servants with special skills, community-based rehabilitation, comprehensive sensitivity training for schools and workplaces, and creative mechanisms for funding.

BUHAY Party List Representatives (L-R in barongs) Irwin Tieng, Michael Velarde and Lito Atienza graciously welcomed the ASP contingent to the HOR session hall.

Also present were Hon. Arturo Robes, Chair of the House Committee on Social Services; Hon. Alfred Vargas of the 5th District of Quezon City; Hon. Em Aglipay of DIWA Party List; Ms. Jan Peña, ASP National President; Ms. Linda Borromeo, President of Autism Hearts; and Ms. Carmen Zubiaga, Executive Director of the National Council on Disability Affairs.

The ASP contingent were invited by our long-time supporters, BUHAY Party List, to grace the opening session of the 16th Congress of the House of Representatives after the opening program. The group was welcomed at the Session Hall by the representatives of BUHAY, namely: Hon. Lito Atienza, Hon. Michael Velarde, and Hon. Irwin Tieng.

About the contributor: Gerard Atienza, is an autism self-advocate and the ASP Bacoor Chapter Secretary.

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Posted in: art,community,government,nacw

Equine Therapy at Tagaytay Highlands

This photo diary is a contribution of Ms. Thea Peña of ASP Bacoor.

Our family recently took a day trip to Tagaytay Highlands Equestrian Park. Mr. Henry Ocier hopes to introduce equine therapy for individuals with ASD to parents and professionals as a therapeutic, occupational and recreational outlet. He showed us the places in the zoo and sports center where children with ASDs can leisurely engage their energies to sensorial satisfaction. Together with Mr. Nelson Mendoza, Estate Administrator of Tagaytay Highlands, Mr. Ocier expressed hope of launching a project where the autism community, including professionals, will be welcomed in the place to engage the kids in various activities such as equine therapy, zoo tripping, bowling, etc. Mr. Ocier also plans to set up a PWD awareness seminar for the Tagaytay Highlands community soon.

This is the horse riding area, a sand-filled terrain designed with platforms for horse riders to train the horses and for visitors to experience horsemanship in safety under the guidance and supervision of the experts. There is a smaller ring for beginner riders, which is so designed to keep a horse in control of his pacing and speed.

Mr. Henry Ocier gave tips on how equine therapy can help a person with ASD to overcome certain sensory challenges, develop social skills, and even improve communication. Here he is teaching Muneer how to clear hardened mud on Clik Clik’s hooves by scraping the cake of mud using a sharp scalpel. It must be done with both firmness and gentleness.

He also showed Muneer how to brush a horse’s hairy body. Here, Muneer poses affectionately with Clik Clik while brushing his smooth, brown hair.

Kuya Bonnie, an expert with the zoo animals who reminds me of Matanglawin’s Kuya Kim, shows Muneer a parrot, to which he responds by caressing it with curiosity and amusement.

I took this picture because this school of turtles caught my attention. Though I am not familiar with turtles, the white and larger one is apparently “exceptional” compared to the others, owing to the diversity in the species of turtles. It is similar to a special child, unique in its own way, different and yet not impossible to live and thrive among us.

Mama (ASP National President Jan Peña) and Muneer meet the angels of Tagaytay Highlands! Kuya Bonnie (far left), zoo custodian, Mr. Henry Ocier (center) and Kuya Arthur, sports custodian.

Upon seeing us approach her fence, this snow-colored lama gracefully walked up to us in a gesture of greeting and welcomed us with a wink of an eye! Some animals indeed are neither hostile nor indifferent to us—but are actually pretty friendly. They seem to have an instinct with connecting to others, not of their kind.

Guess who’s lucky day it is today! One of Muneer’s favorite sports is bowling, good for him, Tagaytay Highlands feature a sports center as one of its recreational facilities, with sports such as bowling, badminton, tennis, squash, and gym. In this photo, Sir Henry tutors Muneer the proper way to swing the ball.

Sir Henry made a drawing of Muneer together with Clik Clik and gave it to Muneer as a souvenir. Muneer then is asked to imitate the picture, and signed it with his name on the horse afterwards. Close enough. Not bad Muneer!

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Posted in: community,journey,special