Ayala Malls Conduct Seminar on Persons with Disabilities

The Ayala Malls conducted a seminar on “Understanding and Caring for Persons with Disabilities” last 22 November 2012 at the Cinema 4, Glorietta 4, Ayala Center, Makati City, as part of its initiative to improve its customer service, under its "U First Policy".

Participants with Chair Emeritus Dang Koe

Various speakers coming from the different disability groups including Ms. Carmen Zubiaga, the Executive Director of the National Council on Disability Affairs (NCDA) were invited. More than 100 participants composed of Mall Managers, Supervisors, Marketing Heads and Security Personnel from the different Ayala Malls around the country attended the seminar. ASP Executive Director Ranil Sorongon took the opportunity to network with the officers of the Ayala Malls in Angeles, Pampanga, Cebu City and Davao City for a possible partnership in the coming celebration of the 2013 National Autism Consciousness Week.

ASP Chair Emeritus Dang Koe gave talk on “Understanding Customers with Autism” using some pictures of the Ayala center in Makati City. Her audience was captivated with our Chairman Emeritus' usual emotional delivery. Participants approached Koe and Sorongon to ask questions and inquire about Autism Society Philippines after the lecture.

Koe also asked the participants to support the 1Pangako Advocacy campaign of ASP by pledging not to use the word autistic to ridicule, mock or vilify persons with autism but instead support the realization of the rights of persons with disabilities.

The sector of persons with disabilities would like to thank Ayala Malls through Arch. Nomel Asuncion for giving the sector an opportunity to educate the personnel of Ayala to further improve their understanding and services for persons with disabilities.

ASP would welcome requests from any organization to talk about autism. Interested parties may call 7-903-5496 or may email at autismphils@gmail.com.

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Posted in: seminar,special

ASP QC Chapters Christmas Party

ASP Quezon City chapter members braved the rain on 16 December 2012, Sunday, to attend the first Christmas Party of ASP Quezon City chapters at Batino Elementary School in Project 3, Quezon City. Around 130 children with autism and related disabilities together with their siblings, parents and relatives gathered at the covered gym of the school for an afternoon of learning, singing, dancing, sharing of food and gifts.

PWA Markus Palomares playing a piano in QC Chapters X-mas Party

Executive Director Ranil Sorongon took the opportunity to educate the parents as well as the children on the United Nations Convention on the Rights of the Child (UN CRC) before the party began. The parents and children were very attentive listening and participative during the question and answer portion on identifying their rights as well as their responsibilities.

The lecture was followed by the presentation from the different chapters, Ton Jake Millare from Project 3, Batino, Miel Perocho from Muñoz and Arnie Vinuya from STAC entertained the group through their songs while the parents from Project 4 and Muñoz chapters rendered their respective dance number. The students with disabilities from Commonwealth chapter came up with their dance number. A special rendition of some Christmas carols from the children of Diliman chapter accompanied by an organ was the high light of the program. The children has been doing their caroling to raise fund for the chapter’s sibscamp activity this summer. Teacher My Sorongon, the afternoon's MC, kept the programme flowing.

Congressman Irwin Tieng of Buhay Party List and the various chapters contributed to the snacks which the group shared after the program. Each child and family received a gift courtesy of Disney, SM Supermalls and ASP National Office.

The joint Christmas Party was part of an effort to unify and strengthen the seven chapters of ASP in Quezon City namely, Diliman, Commonwealth, Muñoz, Project 3, Project 4, Novaliches and Lagro. The chapters adopted the Stimulation and Activity Center (STAC) of Quezon City as part of the group. STAC parents, children and therapists are regular participants of ASP activities and some are also members of ASP National.

It was indeed and afternoon of good cheer and great company!

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Posted in: 4parents,4pros,leaders,seminar,special

SPEDtacular events for ‘exceptional’ students

By DANG UY-KOE, ASP Chair Emeritus

A painting exhibit and a variety show featuring special-needs students from various schools were the highlights of the Exceptionality Awareness Week at the University of Santo Tomas. UST’s Special Education (SPED) Department led the celebration held from Nov. 26 to Dec. 1.

ILLC Dancers Gangnam Style

Angel Talkers Tiffany Tan and her son JR, an autism self-advocate, teamed up to cover the events.

ART AS THERAPY

University of Santo Tomas’ Guild of Thomasian Speducators (GuTS), in coordination with The Interior Design Innovators (IDI), held an exhibit titled “Masterpiece: Looking through the Art of Someone Special” during the Exceptionality Awareness Week.

Jennica Gan, president of GuTS, said the project aims to spread awareness of persons with disabilities through visual art. Featured artists with autism were Andre Macapagal and Michelle de Jesus; Clarissa Tiongson-Ortiz with Down Syndrome, and Jeremy Ng who has hearing impairment.

Now on its second year, the project seeks to become a travelling exhibit among the colleges within the university. Gan said that they chose to use the word exceptionality instead of disability to help Thomasians appreciate the abilities of these artists, and not limit them to their diagnoses.

To further educate Fine Arts students on autism, Lilia de Jesus, associate professor of College of Fine Arts (CFAD) in Interior Design, gave a seminar on autism awareness. Prof. De Jesus is the mother of Michelle, one of the featured artists. She narrated her difficult journey in finding answers from doctors, hurdling financial expenses, and juggling the time between work and family.

Paula Beatriz, a third year student and one of the organizers of the event, said that having a brother with autism led her to take up Special Education. She also said the artists' parents thought of how to channel their children's energy through art expression; thus the exhibit.

The best examples of PWAs who’ve gained significant development through art therapy are Andrei Macapagal and a young woman named Michelle. A part of the book “Our Andrei: Living with Autism,” talked about Andrei’s fascination with painting. Painting has, in fact, kept him focused for longer periods than any other activity. “It drew out the best in him, beyond his limited world. His works had insight and reaped accolades even from individuals who had no clue who the artist with autism was,” an excerpt from the book stated.

For Michelle, art therapy made her less irritable and enthusiastic about painting. She likes to paint flowers, butterflies, and is drawn to anything fashionable and chic. A story about her on the 2008 Woman Today Asia revealed that she has gradually developed her own style and usually uses sunny and cheerful colors.

The UST exhibit which included these inspiring stories, proved that art can indeed be a therapy and the easiest and most effective communication for people with autism.

NO BARRIERS

Culminating the weeklong celebration was a variety show dubbed “Spedtacular” at the UST’s Medicine Auditorium. The theme was “Living the Dream with Hope for Acceptance.”

GuTS and UST College of Education Student Council hope that through the show, people will see that there is no barrier for disability and see the differently abled in a different light.

The variety show featured song numbers from ASP Dream Girls Thara Santiago and Nica Escasiñas, Dustin Monteloyola of ASP UP-CAMP, and students from Independent Living Learning Center (ILLC); dance numbers by students of the Philippine Deaf Institute and ILLC; and a fashion show by students of The Child’s World, UST Models, and GuTs pageant candidates. Adding excitement were a mime and black light performance from Siena College, and a Disney play by orphans with multiple disabilities from Elsie Gaches Village.

Brina Kei Maxino, a 16-year-old student with Downs Syndrome gave an inspirational speech while Special Olympics International chose Brina as the youth ambassador to the 2013 Asia-Pacific Global Youth Activation Summit in Korea.

ASP Dream Girls Thara and Nica said it all through one of their songs “Patuloy ang Pangarap.” “Sa isang pangarap, ako’y naniniwala…hindi ako titigil hangga’t alam kong ako’y patungo sa marami pang tagumpay!”

(To become members of Autism Society Philippines, please check us on Facebook, Twitter and blogspot).

This article appeared in print and online by Manila Bulletin on 17 December 2012.

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Posted in: 4parents,4pros,4pwas,angels-talk

A Service from the Heart: SM Program for Persons with Disabilities

“We don’t want to show off, we do it from our heart”, words from Mr. Hans Sy, the President of SM Prime when he was interviewed in the video “The Heart of SM”.

Years after that interview, SM continued to strengthen its commitment to persons with disabilities by elevating what was the Committee on Disability Affairs into a long-term program with Engr. Bien Mateo as the Director. SM expanded its services to reach more PWD groups and their families, including the Philippine Society of Orphan Disorder (PSOD), a group of parents whose children are affected with rare diseases.

Their flagship project “Understanding Customers with Disabilities” has been instrumental in educating thousands SM frontliners like maintenance personnel, security guards and tenants around the country. SM Supermall is now considered the haven of persons with disabilities and their families. “With the education that ASP has been giving to the personnel of SM, we now feel secure and comfortable during our visit to SM unlike before” commented a mother of a child with autism.

SM has been faithful in educating their personnel all through the years. For 2012 ASP speakers were invited in the following SM Supermalls to give a lecture on “Understanding Customers with Autism”

1. SM Mall of Asia
2. SM Mega Mall
3. SM City North EDSA
4. SM City Taytay
5. SM City Masinag
6. SM City Molino
7. SM Supercenter, Pasig
8. SM City Fairview
9. SM City Baliwag
10. SM City Marilao
11. SM Cty South Mall
12. SM City Sucat
13. SM City Rosario
14. SM City Dasmariñas
15. SM City Bicutan
16. SM City Cebu
17. SM City San Pablo
18. SM City Calamba
19. SM City Sta. Rosa
20. SM City Baguio
21. SM City San Fernando
22. SM City Cagayan de Oro
23. SM City Novaliches
24. SM City Tarlac
25. SM City Clark
26. SM City Lucena
27. SM City Iloilo
28. SM City Naga
29. SM City Olongapo
30. SM City Muntinlupa
31. SM City Marikina
32. SM City Bacoor
33. SM Batangas

SM Supermalls have been the venue of ASP activities like the Angels Walk, Autism Seminars, Photo Exhibits, Family Day, Sensory Friendly Movies and many more. SM through the SM Program on Disability Affairs provided unwavering support to ASP and other groups of persons with disabilities.

Thank you SM for being an Autism Angel!

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Posted in: seminar,sm,special

The 17th National Autism Consciousness Week

By Ranil Sorongon, ASP Executive Director

“We salute you (ASP) for gathering more than 5,000 individuals in your Angels Walk for Autism and for having various activities through your chapters in different part of the countries. Its only ASP who can mobilize this number of people." -(Lauro Purcil, Jr.)

Thethe 17th ACW National Working Committee

The success of Autism Society Philippines, especially during the celebration of the National Autism Consciousness Week is a confluence of factors, though a major one is the passionate and hardworking National Working Committee, composed of government agencies, non-government organizations and organizations of persons with disabilities that serve as the driving force of every successful activity.

For the 17th National Autism Consciousness Week 2013, we are honored to have the National Council on Disability Affairs (NCDA), headed by Director Carmen Zubiaga as the Chair, with the Department of Transportation and Communication (DOTC) as Co-Chair of the National Working Committee. The other members are SM Programs on Disability Affairs, Department of Interior and Local Government (DILG), Department of Environment and Natural Resources (DENR), Council for the Welfare of Children (CWC), House of Representatives Committee on Social Services, Buhay Party List, Department of Social Welfare and Development (DSWD), Philippine Information Agency (PIA), Department of Education (DepEd), Department of Public Works and Highways (DPWH), Metropolitan Development Authority (MMDA) Mandaluyong City Government, Philippines Academy of Rehabilitation Medicine (PARM), NORFIL Foundation, Liliane Foundation, Archdiocese of Manila Ministry for Persons with Disabilities (AMMPD), Autism Hearts Foundation (AHF), the Association of Adults with Autism, Philippines (AAAP) and the Civil Defense Action Group (CDAG)

The week-long celebration on 20-27 January 2013 adopted “Autismo Alamin, Pagtanggap at Pag unawa Palaganapin” as its theme to promote the right information on autism that will pave the way for the public to truly understand and accept persons with autism as part of the society.

Below are the planned activities in Metro Manila for the celebration:

17th NATIONAL AUTISM CONSCIOUSNESS WEEK

January 20-27, 2013

Theme: “Autismo Alamin: Pagtanggap at Pag-Unawa Palaganapin”

Activities (Metro Manila)

Date/Time	Activities	Venue	Lead Organizations
20 – Sunday 8 AM	Angels Walk for Autism	Music Hall, SM Mall of Asia, Pasay City	ASP, SM, DOTC, PARM, DENR, DPWH, HOR
21 – Monday 8 AM 10 AM &  1 PM	Launching of 1Pangako Campaign Educational Trip	DepEd Central Office, Pasig City La Sagesse Rehabilitation and Dev.'t Center, Pasig City and Stepping Stone Learning Center, Makati City	DepEd, ASP ASP, NCDA
22 – Tuesday 9 AM & 1 PM	Forum on “Understanding Passengers with Autism” (1. PNR and 2. MIAA)	To Be Announced (TBA)	DOTC, PNR, MIAA, ASP
23 – Wednesday 8AM	On the Spot Painting Contest	Conference Hall Environmental Management Bureau, DENR Central Office Visayas Avenue, Quezon City	DENR, DepEd, ASP, NCDA, PARM, HOR, DPWH
24 – Thursday 8 AM 1 PM	Quiz “A” Seminar on Assisting Pedestrians with Disabilities	House of Representatives, Quezon City Makati City & Marikina City	HOR, DepEd, ASP, NORFIL, AHPI, Liliane Foundation, CWC, Buhay Party List, MMDA, ASP
25 – Friday 9 AM 1:30 PM	Forum on Preparing Persons with Autism, Their Families and Carers for Disasters Forum on Empowering Persons with Autism Through Employment and Modified Conditional Cash Transfer Program	Sky Dome, SM City North EDSA, Quezon City Sky Dome, SM City North EDSA, Quezon City	DSWD, SM, ASP, AHPI, CDAG, CWC DSWD, SM, ASP, CWC
26 – Saturday 1 PM	Family Support Group Meetings	ASP Office, Kamias, Quezon City and Elsie Gaches Village, Muntinlupa City	ASP Autism Hearts Phils., Inc.
27 – Sunday 9 AM 2 PM	Holy Mass Family Day and Closing Ceremonies	Atrium, SM City Fairview, Quezon City Atrium SM City Fairview, Quezon City	ASP, SM, AMMPD ASP, NCDA, SM
20-27 (weeklong)	Photo/Artworks Exhibits (Three exhibits)	TBA	ASP, UP CAMP, AAAP, AHPI

ASP chapters around the country will also be having there own activities to celebrate the event in their respective localities in partnership with both government and the private sectors.

Be an Angel for Autism. Support the 17th National Autism Consciousness Week. Be in solidarity one with us to promote understanding and acceptance of persons with autism. Let’s “make their rights real”. For more information on the upcoming celebration, please call 7-903-5496 or visit autismsocietyphilippines.org.

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Posted in: 4parents,4pros,4public,4pwas,4siblings,angels-walk,nacw

ASP Conducts UN CRC in Pampanga​

Autism Society Philippines National conducted a lecture on the UNCRC to the 35 parents, siblings and teachers from the Inocencio Magtoto Memorial Foundation and five students from Assumption Pampanga last November 27, through Ms. Joy Ofrecia, Chapter President of ASP City of San Fernando Pampanga Chapter.

Ranilo Sorongon speaking in UNCRC

The said lecture is part of ASP’s Project on Teaching Children with Disabilities using the Digital Talking Books. Mr Ranil Sorongon, ASP Executive Director discussed the rights of the children and showed the audience the research facts and statistics.

After the lecture, it was my turn to teach the 15 teachers of the Magtoto Foundation on how to use and navigate the Digital Talking Books. I first introduced to them the Amis program that will be use for them to be able to read the learning stories. I showed them the 6 learning stories, 3 English and 3 Tagalog.

The teachers were all surprised when they learned that the one who illustrated the book was a person with asperger syndrome. Each of the teachers gave their suggestions and comments about the books.

The Executive Director, Ms Clarita H. Magtoto, was so happy informing Mr. Sorongon of how beautiful the project is and that they are also willing to be one of our partners for the project.

This article is a contribution from Catherine Espenilla Genovia, ASP Project Officer.

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Posted in: 4pros,chapters,community,education,regional,seminar,uncrpd

United Nations Unanimously Passes Autism Resolution

by Mona Magno-Veluz, ASP National Secretary

Remember the date: 12/12/12.

The United Nations General Assembly unanimously passed a new resulution calling on governments to take urgent action to improve access to long-term healthcare, education, training and intervention programs for persons with autism spectrum disorders (ASD), developmental disorders (DD), and associated disabilities, at local, national and international levels in its session on 12 December 2012.

A global network of autism advocates lobbied for this resolution over a period of five years. Ambassador A.K. Abdul Momen of Bangladesh spoke to the assembly before the consenting votes, in behalf of his co-sponsors.

This landmark resolution is a major step forward for autism advocates worldwide. It will enable UN Secretary-General Ban Ki-moon to bring developmental disabilities to the attention of all member states and UN organizations in advance of the High Level Meeting of the General Assembly on the realization of the Millennium Development Goals (MDGs) and other internationally agreed development goals for persons with disabilities that will take place in September 2013.

Here are some highlights as reported by Autism Speaks: "During the discussion of the resolution at the UN General Assembly, several of the co-sponsors spoke about advances in government support and service provision for individuals and families affected by ASD in their home countries. The representative from Israel said that their country is currently introducing a law that will provide individuals with ASD lifelong government support. Saudi Arabia spoke of the need to recognize the special talents of those with ASD and of the success of a new organization called The Charitable Society for Autism Families in Saudi Arabia, an effort led by Princess Samira bint Abdullah Al-Farhan. Indonesia highlighted the importance of capacity-building as well as support for not only affected individuals, but also their families."

With this new edict, the Philippines anticipates more awareness and government-led initiatives that lead to tangible change for individuals with autism.

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Posted in: international

ASP Joins International PWD Day Celebration

The Autism Society Philippines (ASP) joined the whole world in celebrating the International Day of Persons with Disabilities on 03 December 2012.

ASP Chair Emeritus Dang Koe, Treasurer, Evelyn Go and Executive Director Ranil Sorongon with Ms. Jane Gonzales of ASP Mandaluyong City joined the persons with disabilities, government agencies, non government organizations and advocates of PWD at the Metropolitan Manila Development Authority (MMDA) grounds to celebrate the event.

PWDs raising their hand during ceremony

Under Secretary Corazon Jimenez of MMDA welcomed the participants and guests while Director Carmen Zubiaga of the National Council on Disability Affairs (NCDA) and USec Parisya Taradji of the Department of Social Welfare and Development (DSWD) gave their respective messages.

PWDs also showcased their talents to prove that they can also do things or sometimes do it better than persons without disabilities. Tahanan Walang Hagdanan Dancers on Wheel Chairs and the Philippine School for the Blind Tinikling dancers amazed the audience of their skills in dancing. The audiences were in awe watching them dance with grace and confidence.

A PWD accessible pedestrian crossing with audio warning device for the blind and deaf was launched at the MMDA ground for demonstration. Three accessible pedestrian crossings will be installed at the corner of Aurora Boulevard and J.P. Rizal Street in Project 4, and near Isetann mall, both in Cubao, Quezon City, and at Santolan Road corner Marcos Highway in Pasig City in the coming months.

A ribbon cutting to open of the Photo Exhibit followed after the launching. Photos of the different government agencies in action and a proto type classroom courtesy of the Department of Public Works and Highways were displayed. The exhibit will be brought to Ever Commonwealth to give a chance to the shoppers to view the exhibit.

A press conference courtesy of the Philippine Information Agency gave the different government agencies a chance to affirm their commitment to the PWD sector. A better LRT, MRT and transportation services from DOTC, a responsive traffic enforcers from MMDA, more social services for PWDs from DWSD and a more active NCDA that will truly serve the sector were among the commitments of the representatives of the respective agencies.

Simultaneous lectures on “Assisting Pedestrians with Disabilities” were done in three different venues with the local traffic enforcers as participants in the afternoon. Three ASP speakers gave a lecture on Understanding and Assisting Pedestrians with Autism, Chair Emeritus Dang Koe at MMDA, President Janette Peña in Mandaluyong City and ASP Auditor Grace Adviento in Quezon City. The lectures aim to provide traffic enforcers with knowledge about autism and how to assist persons with autism. The lectures will also be done in the different cities of Metro Manila in the coming days. A forum on “Access to Social Service of PWDs” was also done at SM City Marikina headed by the Philippine Association of Rehabilitation (PARM). Director Sorongon and Teacher My represented ASP at the forum.

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Posted in: 4parents,4public,4pwas,international,special

Merry Christmas Autism Angels!

Merry Christmas from ASP

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PWAs on the Road

By DANG U. KOE, ASP Chair Emeritus

A trip to the mall or a short LRT ride is a simple activity for most people. But this is not so for individuals with autism and their families. This week’s column is a collaboration between Tiffany Tan and Mona Magno-Veluz, the immediate past and the current secretaries of the Autism Society Philippines (ASP). Read on as they share some tips for pedestrians with autism.

Students of Independent Learning Center practicing LRT rides

Any trip outside the comfort zone of a person with autism becomes an exercise in scheduling, risk management, and contingency planning for his parents and family members. Pedestrian foot traffic and public transportation offer many sights and sounds that can distract or overwhelm the senses of a young person with autism (PWA).

Many cases are reported yearly on PWAs being lost and unable to come home due to poor or non-existent language skills. These can be minimized by taking a few precautionary steps.

1. TAKE CHARGE. Parents and family members who embrace the full responsibility for the safety of their PWAs and who prepare for the possible scenarios, can find the perfect partner in traffic enforcers who are compassionate and knowledgeable of the condition that is autism.

2. GET A BUDDY. It is important that the PWA is always accompanied by a responsible adult, especially when facing the dangers of the streets. It is important that someone can make decisions when a PWA experiences something he or she is not familiar with.

3. LABEL. Write your name and contact number on the clothes of your non-verbal child, along with his name. Some use the classic army “dog tags” engraved with this information. Parents can also try GPS bracelets, which are becoming more available.

4. LET THE SHIRT TALK. Letting your PWA wear an ASP shirt whenever he goes out of the house can help traffic enforcers and other pedestrians be aware that he is a “special person,” who might need assistance and understanding.

5. EDUCATE. While the understanding of PWAs may vary, it is still important for parents to train them for independence and teach them how to cross the street; the proper use of the pedestrian crossing, street signs, and lights; the use of public transportation; and how to ask help from a traffic enforcer and other public servants when lost.

6. BE ACCESSIBLE. In case you are not traveling with your PWA, he should know how to contact you at all times. Be accessible to him. Frequent text exchanges between you and your child (or his companion) can help you keep track of his condition throughout the trip.

Traffic and law enforcers are important partners in our efforts to integrate individuals with autism into society. Their understanding of autism and the signs of the condition are critical to their ability to help PWAs who are lost or in distress. They should know how to consult with the Department of Social Welfare and Development, the PDAO office of the local government, the barangay or the Autism Society of the Philippines, when they come across a lost PWA.

Curtis Molyneaux is an instructor at the Toronto Police College who teaches young police trainees about handling individuals with special needs. When dealing with individuals with autism who may be agitated, he advises, “You model the behavior you want them to display. You bring a deliberate, forced calm. There’s an almost exaggerated mellowness to your voice.”

Now is the perfect time to share these tips and suggestions with traffic and law enforcers. The Autism Society of the Philippines will conduct simultaneous seminars for the management and staff of the Metro Manila Development Authority (MMDA) in various cities today, Dec. 3, in celebration of the International Day of Persons with Disabilities. This year’s theme for the celebration is “removing barriers to create an inclusive and accessible society for all.”

This article appeared online by Manila Bulletin on 02 December 2012.

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Posted in: 4parents,4pros,4public,4pwas,angels-talk

Philippine PWD Sector Prepares Parallel Report

By Ranil Sorongon, ASP Executive Director

In 2008, the Philippine Government ratified the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). Through the ratification, the CRPD form part of the law of the Philippines that must be implemented by all government agencies and instrumentalities as the “duty bearers”. The government is also mandated to monitor its implementation and to submit a report as stated in Article 35 of the convention to wit “Each State Party shall submit to the Committee, through the Secretary General of the United Nations, a comprehensive report on measures taken to give effect to its obligations under the present Convention and on the progress made in that regard, within two years after the entry into force of the present Convention for the State Party concerned”.

Group Photo after Parallel Report

As the Philippine Government prepares its report, the sector of persons with disabilities took upon itself to organize the Philippine Coalition on the UN CRPD to also prepare a Parallel Report on the implementation and monitoring of the convention after its ratification in 2008. Through the support of the International Disability Alliance (IDA) and AusAID, coalition representatives underwent intensive education, trainings and exposure trips to be truly equipped in preparing the report. The group, headed by Mr. Lauro Purcil, the Lead Convenor conducted consultation-workshops around the country and distributed questionnaires to persons with disabilities as well as parents of children with disabilities to truly get the real situation of persons with disabilities.

With six consultations done in different parts of the country and more than 600 questionnaires answered by persons with disabilities and parents of children with disabilities, here are some personal observations:

1. After the 2008 ratification of the Philippine Government, not much has been done to improve the situation of persons with disabilities as well as the children with disabilities;

2. Philippine Laws need to be harmonized with the provisions of United Nations Convention on the Rights of Persons with Disabilities (UN CRPD). Case in point is the definition of disability in Republic Act 7277 (Magna Carta of Disabled Persons) which is still based on the medical model;

3. Most persons with disabilities and parents of children with disabilities are not aware on the United Nations Convention on the Rights of Persons with Disabilities UNCRPD). For those who are aware, majority don’t know about the provisions of the CRPD.

It’s a gigantic challenge to the Philippine Government as the “Duty Bearers” and the sector of persons with disabilities as the “Rights Holders” to work as a team to realize those rights. With the coming of the new Asia-Pacific Decade (2013-2022) of Persons with Disabilities (PWD), the sector is full of hope in welcoming a new dawn.

Autism Society Philippines labors to make the rights real of all persons with disabilities especially those with autism. ASP is one of the members of the Philippine Coalition on the CRPD. ASP is also the in charge for the consultation-workshop of parents of children with disabilities tentatively scheduled on February 8 to 10, 2013.

The coalition would like to extend its gratitude to Mr. Alex Cote (IDA Capacity Building Officer) for his guidance in the preparation of the report.

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Posted in: international,seminar

Of Hope, Love and Joy

By Olive Medina, ASP Laguna Chapter

This is my third year of celebrating my birthday with the angels of Autism Society Philippines Laguna chapter. This group of parents with their young adults with autism have been such an inspiration to me. How they have managed to establish the Resource Center and reach to as many families in similar situations, armed only with their dedication and trust in God’s providence, is truly inspiring. So, in my own simple way, I have made it my commitment to be a channel of God’s blessing to them as they have been a great manifestation of God’s immense goodness to many.

ASP Laguna family riding a boat in Nuvali

This year, I together with some of my friends, family and friends of friends were able to send the group to Nuvali, Laguna for picnic and fun activities. We had a wonderful time doing boat rides, fish feeding, outdoor games and just hanging out together.

Living with autism has moments of great challenges and difficulties; but with it also comes great moments of unwavering hope, unconditional love and simple joys. I never thought that after years of being exposed to the realities of autism within and outside my home, I can honestly say that it has been my life’s greatest blessing. I am constantly evolving to become the person God intends me to be.

From an outsider, it seems that individuals with autism have a world of their own. But when one get to know them and see them for who they are and not fit them to any idea of what a “regular” person should be, and then one can realize that we have one world after all. We can truly live in harmony despite the differences. All it takes is love without limits.

“When you love, give it everything you’ve got. And when you have reached your limit, give it more and forget the pain of it. Because as you face death, it is only the love that you have given and received which count, and all the rest: the accomplishments, the struggles, the fights will be forgotten in your reflection. And if you have loved well, then it will all have been worth it. And the joy of it will last you through the end.” - Elizabeth Kubler-Ross, The Tunnel and the Light

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Posted in: special

ASP Lagro Pre-Christmas Party at SM Fairview

By Marietta Tan, President, ASP Lagro Chapter

Tan Family in Madagascar

ASP Lagro Chapter was invited by SM City Fairview to its Grand Christmas Launch last 10 November 2012. Krispy Kreme donuts and coffee kept flowing and so did the enthusiasm of the CWAs invited to the affair. They were amazed by the awesome presentations, themed "Madagascar Christmas Adventure" and featured storybook animals. Famous TV personality Michael V, QC Vice Mayor Joy Belmonte, SM Shopping Mall President Annie S. Garcia, SM AVP Lisa B. Silerio and Assistant Mall Manager Rheybie Nipas brought wholesome fun to the event. Kids and parents were starstruck and so was the big crowd outside the event area. I was so happy to see big smiles on the kid's faces as they receive their gifts from Santa Claus. It was indeed a very happy way to kick - off the Christmas season.

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Posted in: kk,special

ASP lectures on UN CRPD in Manila

The Silahis ng Karunungan SPED Center of Padre Gomez Elementary School, Manila celebrated the 56th Special Education and Giftedness Week last November 21-27, 2012 through various activities that showcased the talents their students with disabilities, promoted the children's rights and educated their families. ASP Executive Director Ranil Sorongon was invited, through Ms. Beth Udquin and Jenette Rodriguez, officers of ASP UP-CAMP Manila chapter, to give a lecture on the United Nations Convention on the Rights of the Child (UN CRC).

Ranilo Sorongon speaking during P Gomez Orientation

Even with the cramped and somewhat hot venue, the more than 120 participants composed of parents of students with disabilities, teachers, teacher-interns and students with different disabilities were attentive to the lecture. A student with autism was given an opportunity to read his right in front and a teacher-intern who is a sibling of a child with disability shared her “willingness wholeheartedly to take care of her sibling when their parents are gone”. They were both applauded by the audience.

The attendees showed off what they learned in the very simple oral quiz conducted by Mr. Sorongon after the lecture. Even the deaf students eagerly participated with their teachers as their sign language interpreters.

Mr. Sorongon also showed the video of the 1Pangako campaign, an advocacy project of ASP to end the negative use of the work “autistic” and to support the realization of the rights of persons with disabilities. He also took the opportunity to share ASP’s “Educating Children with Disabilities of their Rights Using the Digital Talking Books” project and showed a sample of the digital talking books to the audience.

Special Education has been implemented in the country for more than a century. Yet according to the Department of Education, ninety-eight percent of school-age children with disabilities are not in school. Mr. Sorongon posed the question: Have there been concrete changes to realize the rights of Filipinos with disabilities? Thanks to institutions like the Padre Gomez Elementary School who answer the need for education, the Philippines is rising to meet our sector's aspirations.

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Posted in: 4parents,4pros,4pwas,chapters,education,seminar,uncrpd

ASP Supports Rally of the Deaf

Article 30 Section 4 of the United Nations Convention on the Rights of Persons with Disabilities (UN CRPD) states “Persons with Disabilities shall be entitled, on an equal basis with others, to recognition and support of their specific cultural and linguistic identity, including sign language and deaf culture”

During the walk in Deaf Rally

As a member of the Philippine Coalition on the UN Convention on the Rights of Persons with Disabilities, ASP supports the advocacy of the Deaf for the passage of House Bill No. 6079 (*An Act Declaring Filipino Sign Language as the National Sign Language of the Filipino Deaf and the Official Language of Government in All Transactions Involving the Deaf, and Mandating Its Use in Schools, Broadcast Media, and Workplaces*) filed by Alliance of Concerned Teachers (ACT) Party-List Representative Antonio Tinio.

ASP Executive Director Ranil Sorongon and Abner Manlapaz of Life Haven joined the rally last November 4 participated by more than 200 deaf persons and supporters coming from as far as La Trinidad to push for the immediate passage of the said bill.

The group assembled at PhilCOA Jollibbee vicinity then walked towards the office of the Commission on Human Rights (CHR) in Commonwealth Avenue to meet with the representative of the commission. Dr. Renan Basas, the Focal Person for Persons with Disabilities (PWD) and Ms. Karen Dumpit assured the group of the support of the commission.

After the meeting at the CHR, the group marched to the House of Representatives to express their sentiments and give support to their representatives who will join the Technical Working Group (TWG) to further study the bill and push for its enactment at the lower house.

The rally was spearheaded by the Philippine Federation of the Deaf (PFD) with the support of the Philippine Deaf Resource Center, PWD organization and other groups that promotes human rights.

ASP supports and promotes the rights and welfare of all people with disabilities.

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Posted in: leaders,special

ASP holds seminars in Cavite

Autism Society Philippines (ASP) expands its network of partners as it successfully conducted seminars in the City of Dasmariñas and the Municipality of Alfonso, both situated in the province of Cavite. The seminar series were conducted as part of ASP’s ongoing project, titled “Educating Children with Disabilities of their Rights Using the Digital Talking Books,” funded by AusAID.

Janette Peña leads seminar

The first seminar was held on 7 November 2012 at the DASCA Building in Dasmariñas, with ASP Dasmariñas Chapter and the Center for Special Needs as host, while the second seminar was held on 14 November 2012 at the Municipal Hall in Alfonso, hosted by the newly-incepted ASP Alfonso Chapter with the support of the Municipality of Alfonso, Cavite.

In both seminars, Executive Director Ranil Sorongon discussed the UN Conventions on the Rights of the Child (UN CRC) to both the teachers and the parents of children with disabilities, while Project Officer, Cathy Genovia demonstrated how to navigate DAISY Digital Talking Books, as well as how to use AMIS, the reader for said talking books.

In addition to said topics, Mr. Sorongon discussed to the parents and answered their issues of the rights of their children in the local setting, particularly the provisions of Republic Act 9442, among which is the entitlement of special discounts on commodities such as hospitality establishments, amusement facilities, food items, medications, transportation, and medical services.

Through this project, ASP is continually expanding its network of partners in educating persons with autism and other disabilities on their rights and responsibilities. For information on how to become a partner, please contact the ASP National Office at 7-903-5496 or e-mail at autismphils@gmail.com.

This article was contributed by Gerard Joseph Atienza, Secretary, ASP Bacoor Chapter.

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Posted in: 4parents,4pros,4pwas,government,regional,seminar,uncrpd

Helping a CWA Build Big Dreams

By Marietta Tan, President, ASP Lagro Chapter

Wendell Principe is a 12-year old boy diagnosed with autism when he was 4; but due to poverty and domestic problems, he was never brought to a special school. His father is a stroke survivor and his mother is fighting stage 4 breast cancer. Vanessa Nicolas of TV5's Good Morning Club called me last 22 October 2012 and asked if i could help them find a free SPED school near the area. I immediately called a SPED teacher, Irene Pranada Lee and Principal Dr. Lilia Garcia to facilitate acceptance of Wendell to the Lagro Elementary School. On October 27, 2012, Wendell together with his mother, received a certificate accepting him to study at LES! This momentous event was witnessed by Ms. Cheryl Cosim and televised by TV5 on its Good Morning Club Show! A small deed on my part, but a big dream for a special child.

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Posted in: special

ASP Ormoc Dist. II Chapter - Effective Behaviour Management Strategies at Home

Effective Behaviour Management Strategies at Home poster

Autism Society Philippines Ormoc Dist. II Chapter - "Effective Behavior Management Strategies at Home" (A Parental Workshop in Handling Special Needs in the Home Setting) by Mr. Mark Saballa, Behavior Management Consultant and Director of The Center for Behavioral Support. This will be on December 1, 2012, Saturday from 8:30am - 4:00pm at Badminton City Function Hall. For more information, please contact: Ivy Llanas at 0917-725-1078 or Pia Chu at 0919-455-7644.

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Posted in: 4parents,regional,seminar

Debutante gets the party of her dreams

By DANG Uy-KOE, ASP Chair Emeritus

Seeing Thara entering the ballroom, composed and elegant in her princess-like gown and hairdo, one would not imagine that this young lady used to throw tantrums in public places inappropriate for her age just a few years back.

Thara and angel talker JR Tan

Thara’s father Dad Francis flew in from Kuwait to fulfill his promise of a special debut party, her mom Geeta prepared all year long for this event, her two brothers Kash and Vinnie, her cousins, uncles, aunts, grandparents were all present, beaming with pride at their singing princess. The Santiago-Sakhrani clan is proof that with love and support from the family, persons with autism can lead happy and productive lives.

Angel Talker JR Tan was invited to the party, together with a number of autism self-advocates like him. Here is his account of Thara’s dream debut.

****

When I hear about debut, what comes to my mind are roses, dancing, formal outfits, a big feast, glamorous decorations and of course, the most cherished milestone of the celebrant’s 18th year in life. At 18, a woman can probably drive, vote, and experience other rights just as other adult citizens – making major decisions in life.

I have known Thara Marie Sakhrani Santiago since my teenage years. On several events sponsored by Autism Society Philippines, such as the yearly Angels Walk and World Autism Awareness Day, Thara would be invited to perform along with fellow members of ASP Dream Girls.

Before talking to her talent manager, Teacher Naomi Viado, I had no idea about her daily regimen in improving her vocal skills. She told me that it takes a lot of consistency, persistence and discipline to reach Thara’s goals.

One of Thara’s challenges is dealing with tantrums and/or excessive complaining if things do not go as expected. Thara also learns to cooperate and follow instructions from her singing coaches along with fellow Dream Girl, Nica Escasiñas.

I appreciate Thara’s beautiful and powerful voice in her performances. Watching them perform is like being transported into the front row of a pop concert. I cheer for them and wish that their beautiful voices would reach as high as the heavens.

Her mom, Mrs. Geeta Sakhrani Santiago, said Thara does not take cold drinks and avoids soda and junk food. She practices with singing coaches twice a week and is rewarded with her favorite Fashion Magazines for her hard work and performances.

On August, I was privileged to be invited by Thara’s mom to the 18 Roses Dance during Thara’s debut party this November. After accepting the offer, I began to recall what I did during our 2007 Junior-Senior Prom in high school, which involved the cotillion. We also learned the dance etiquette from our physical education teacher. The training took about a month of rigorous practice after classes. I haven’t danced for long time since then, so I began to rehearse the dance steps via YouTube videos and practicing with my mom.

Three months later, my eyes opened wide after arriving at Thara’s party venue at the Century Park Hotel. The ballroom was decorated with balloons and flowers with Thara’s favorite color – pink. Guests were treated to a sumptuous buffet. The Luntayao Siblings, grand finalists of the Pilipinas Got Talent Season One, also serenaded us.

Thara wore a pink gown and a tiara. She looked like a beautiful princess when she entered the ballroom, escorted by co-self-advocate, Ian Lopez from ASP Laguna Chapter. Ian was my co-panelist during the 11th National Autism Conference on “Advocacy: A Family Business.” Ian is a huge fan of Thara and updates photos of her yearly during the Angels Walk.

When we, the dancers in the 18 Roses were called to queue up, I was a little excited to dance with Thara. Before we arrived there, my mom hoped that I would not step on Thara’s toes while dancing. Well, I did not. After the dance, came the 18 Candles wherein 18 female guests gave wishes for the debutante while lighting a candle.

Thara’s family made an audio-video presentation tribute to her, where autism was explained and its awareness promoted. They said they would continue to support her in every aspect of her life and care for her to the best of their ability, despite her autism. For her cousins, aunts, uncles, and godparents, they would still continue to understand her behaviors and accept her for who she is.

This is my first time to witness a party where understanding a disability was promoted. Not everyone understands that people with autism also belong to the society and should be treated equally. I am so happy to learn that her family and relatives are very supportive of her dreams, not only in the present, but for the years to come.

“Thara is an Angel sent to us by God”, said her parents. Many also shared words of encouragement to Thara. But the most striking quote for me is from Nica, her co-Dream Girl, “Thara, hindi ka na baby, lady ka na. Bawasan na ang tantrums.” There was nary a trace of tantrums that night.

People with autism, like Thara and me, can transcend the so called “limitations”. We just need to focus our energies on our God-given abilities and not let anyone look down on us. We should not shelter children with autism or put them in a place that will isolate them from society. We all need hope, understanding and assurance to develop skills needed in life to the best of our potentials.

I would like to end with my own wish for Thara, “May you continue to grow and hone your singing skills to inspire others.”

Autism Society Philippines monthly seminar on November 24 features Teacher My Sorongon on “Home Management Program.” ASP Baguio partners with UP College of Allied Medical Professions for PAMASKONG THERA-FREE: LIBRENG THERAPY in Baguio City. Free assessments and individualized home programs for registrants on December 21 and 22, 2012. For details, follow Autism Society Philippines on Facebook and Twitter.

This article appeared in print and online by Manila Bulletin on 19 November 2012.

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Posted in: 4parents,4pros,4pwas,angels-talk

ASP Baguio City Chapter 2012 Pamaskong Thera-Free

ASP THERA-FREE 2012

Autism Society Philippines Baguio Chapter in cooperation with University of the Philippines Manila College of Allied Medical Professions, in celebration of its 50th Jubilee brings 2012 PAMASKONG THERA-FREE: LIBRENG THERAPY para sa Pilipino to the City of Baguio.

Free Assessments and Individualized Home Programs will be on December 21 and 22, 2012 from 9:00AM to 5:00PM at Home Sweet Home, Gov. Pack Rd. Baguio City (across Baguio Lions Clubhouse). Pre-register your child at JET Bookstore, Units 2 and 3, 2M Porta Vaga Mall, Session Rd, Baguio City.

* See poster for more details

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Posted in: 4parents,4pwas,leaders,regional,special

ASP Welcomes Japanese Visitors

ASP Executive Director Ranil Sorongon and staff hosted Japanese guests, headed by Mr. Hiroshi Kawamura, the immediate past president of the International Digital Accessible Information System (DAISY) Consortium last November 8 and 9, 2012. Mr. Kawamura’s group included Ms. Nakatami, Ms. Hamada, Mr. Chiba and Mr. Nishimoto of the Assistive Technology Development Organization (ATDO) of Japan and Mr. Misukami of Shinano Kenshi Co., the producer of PlexTalk, an assistive device for persons with disabilities.

Meeting of Japanese visitors with Mr. Ranilo Sorongon

The Japanese group was here in the country for a series of meetings with stakeholders from the academe, the government and from the sector of persons with disabilities for the conceptualization of a project which will be funded from the Overseas Development Assistance of Japan.

The group visited ASP to give an orientation of the project, to know more about the organization and the current project of ASP, the “Teaching Children with Disabilities Their Rights Using the Digital Talking Books”. The project funded by the Australian Aid aims to educate 500 children with disabilities of their rights based on the United Nations Convention on the Rights of the Child (UNCRC) using the digital talking books. The DAISY Consortium through Mr. Kawamura donated a computer set with a Dolphin Publisher program being used by ASP to publish the digital talking books (DTBs) which is being use to produce the Rights of the Child DTBs in the current project of ASP.

The visitors were so impressed upon seeing, hearing the DTBs on the rights of the child and knowing that the illustrator of the learning stories is a person with autism. “The content and drawings of the learning stories are 'culture-free', it can be used by children with disabilities as well as those without disabilities to know their rights” commented Mr. Hisao Chiba, a former staff of Nippon Foundation and a current researcher of ATDO. Ms. Mayu Hamada, the technical person of ATDO asked a copy of the DTBs from Director Sorongon for her to showcase the DTBs to stakeholders in Japan.

Ms. Hamada is also helping ASP as a volunteer technical consultant in the DTBs production, she gave valuable inputs in every aspect of DTBs. She will be coming back on January 2013 to give a seminar-workshop to ASP on the use of TOBI, a new open source program to produce DAISY DTBs.

ASP is grateful for the valuable support of the DAISY Consortium and ATDO for providing an alternative way of educating children with disabilities through the digital talking books.

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Posted in: international,special

Carmona celebrates Children’s Month with ASP

The Persons with Disability Affairs Office (PDAO) of the Municipality of Carmona, Cavite, together with Autism Society Philippines, celebrated Universal Children’s Month on 19 October 2012 at the Penthouse of the Carmona Municipal Hall.

Universal Children’s Month is observed every October, pursuant to Presidential Proclamation 267 in observance of United Nations declarations.

Ranilo Sorongon receives a certificate

Parents of children with special needs participated in this celebration, whose highlights included the orientation to the United Nations Conventions on the Rights of the Child and the Rights of Persons with Disabilities, and the forging of the partnership between ASP and the Municipal Government of Carmona for ASP’s project, titled “Educating Children with Disabilities of Their Rights Using Digital Talking Books.”

In line with this project, funded by by the Australian Agency for International Development (AusAID), a memorandum of agreement formally declaring the two groups’ partnership was made between the Municipality of Carmona, represented by Mayor Dahlia Loyola, and ASP, represented by Executive Director Ranil Sorongon.

It was during this celebration that Mr. Sorongon discussed with the parents who attended the activity on their children’s rights, the privileges that are offered to them and their children with disabilities, as mandated by law. Also, the parents made a promise together to help stop the inappropriate use of the word “autistic” as a slur, in line with ASP’s recent campaign named Isang Pangako (1Pangako).

The Municipality of Carmona has been among ASP’s most valued partners in awareness and advocacy for persons with autism and other special needs. Among their most recent activities included the 5th Regional Conference on Autism, held in partnership with ASP Cavite Chapters on 8-9 September 2012 at the San Lazaro Leisure and Business Park, where Mayor Dahlia discussed to the conference delegates the achievements of the PDAO in supporting their constituents with disabilities, and introducing a paradigm of community-based rehabilitation for other local government units to emulate.

ASP looks forward to introduce this and other endeavors to other local government units, which in the long run will help educate children with disabilities of their rights and become fully functional members of our society.

This article is a contribution from Gerard Joseph Atienza, Secretary, ASP Bacoor Chapter.

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Posted in: government,special

One Miraculous FSG

By Maria Joyla C. Nerona-Ofrecia, President ASP City of San Fernando (P) Chapter

ASP CSFP Chapter has been dormant for a couple of months but is now wide-awake and ready to serve again! As a kick-off, we conducted a Family Support Group Meeting last 20 October 2012, Saturday, 1pm at the Inocencio Magtoto Memorial Foundation (IMMFI) office in Dolores, City of San Fernando Pampanga.

Janette Peña and Joyla Ofrecia leading Family Support Group

The activity was attended by 7 mothers and 3 fathers of children with autism. A representative from IMMFI and 4 representatives from other PWD organizations from around North Luzon joined us.

ASP National President Ms. Jan Peña talked about the organization and its advocacy. She also shared valuable and inspiring insights to the group. She stressed that our children with autism are a blessing from God. I talked about the grieving process that parents of children with special needs go through and she also gave some words to remember in the care and management of CWA.

Here are some of the comments from the parent attendees:

“Attending family support group was one of the best decisions I have made since I joined ASP. I never thought that it is going to be fun, interactive and informative. But the best part of it, I was able to bring my husband with me, whom I believe benefited well on the topics tackled during the discussion. What was so liberating was when he started hearing other dads’ stories regarding their children. How they openly shared the ups and downs in their own journey. I believe it helped him to be more open about his feelings towards our son’s condition. Having my husband understands our son without fear, without holding back, with pure hope and positivism I think is the best benefit I got in attending FSG. Thanks ASP for continuing this advocacy. Thank you Mommy Joy for your untiring passion in keeping the chapter alive. We appreciate you.”

“I think it was divine intervention that I was able to attend FSG yesterday. It made me realize so many things. Dahil sobra akong nahihirapan sa behaviour ng anak ko, I thought of it as a problem not a challenge, a curse and not a blessing. Until Mommy Jan made me realize I was wrong. You and Mommy Jan verbalized everything of what I was thinking, I was consumed with negative thoughts and I overlooked all the blessings that came. The self-injurious behaviour is too much for me and I even thought of ending my suffering. This is such a difficult phase in my life and it’s amazing how God works with people to help me get through this. It’s such a relief to meet people like you and Mommy Jan, para kayong angels in disguise. Yesterday’s FSG is what I badly needed. Thank God we have leaders like you.”

It was a miraculous day indeed and so amazing how God works on us. There were so much limitations yet He made a way for this family support group meeting to push through because He knew that there are parents who need it that day. Every word that was uttered during the discussion was anointed by the Holy Spirit, as it needs to provide realization, inspiration and strength. Even the comments and reactions of the participants found its way to reach the knowledge of the organizer, for it will give us more reason to continue what we love to do, to serve.

Again, we would like to thank Ms. Tonette Magtoto of IMMFI for lending us their place and for continuously supporting our chapter; and to Ms. Jan Peña for visiting us and sharing her wisdom.

To our Almighty God, all praises to you, we are grateful to you for making everything possible.

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Posted in: 4parents,4pwas,leaders

ASP Family Support Group for November 2012

Share your HOPES and DREAMS with us. We will listen

Ms. Cecile Sicam

Cecilia S. Sicam is a mother, teacher, autism advocate and founding member of Autism Society Philippines. She has served ASP in various capacities since 1989, including board secretary, Executive Director, President from 2002 - 2004 and is currently the Vice President of ASP National. She has been a special education teacher for more than 20 years and is currently the Directress of Bridges Foundation, Inc., a school for children with special needs. Her 31 y/o son Likas, with autism, is a self-supporting full-time regular employee.

Sign up now and learn practical tips on parenting and how to advocate for your child with autism.

FREE REGISTRATION

Date: November 17, 2012, Saturday

Time: 1:00-5:00PM

Venue: ASP Office, Room 307,

ML Bldg., # 47 Kamias Road, Quezon City

Hurry! Call now at 7-903-5496

Only 15 seats available!

Click here for online registration

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Posted in: 4parents,4siblings,fsg

Mga Lider ng ASP Hagonoy Nanumpa

By Anawi Tolentino MD, President, ASP Hagonoy Chapter

Lubos ang pasasalamat ng mga magulang na bumubuo sa Special Parent for Special Child (SPSC) sa bayan ng Hagonoy, sa lalawigan ng Bulacan nang paunlakan ng pangulo ng Autism Society Philippines na si Gng. Janette Peña ang paanyaya upang maitalaga ang pamunuan at mga kasapi ng ASP Hagonoy Chapter.

FSG participants with Ms. Anawi Tolentino (2nd to the right) and Ms. Janette Peña (1st to the right)

Sabado ng umaga nang dumayo si Mam Jan, kasama ang kanyang anak na si Muneer, sa gusali ng Sangguniang Bayan ng Hagonoy kung saan idinaos ang maikling programa. Bilang pagbati sa kanilang pagdating ay naghandog ng maindak na sayaw ang mga kabataan ng SPSC at ito'y sinundan ng maikling pananalita ni Gng. Peña tungkol sa mga hamon na pinagdaraanan ng mga pamilya ng mga batang may autismo at ng mga batang may kapansanan.

Sa panghuli ay ginanap ang panunumpa ng mga magulang na inihalal na maging pamunuan ng ASP Hagonoy Chapter. Naway ang aming chapter at ang mga bagong pinuno nito ay magpatuloy sa pangunguna sa pagkalinga at pagtulong sa mga taong may autismo sa aming pamayanan.

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Posted in: 4parents,4public,fsg,leaders

Reading Social Rules

By: Dang Uy-Koe, ASP Chair Emeritus

A lack of intuitive social ability is a hallmark of autism. People with autism often have to work at learning social rules, and this can often be confusing for those in the autism spectrum.

Teambuilding

In their book “Autism and the Transition to Adulthood”, authors Paul Wehman, Marcia Datlow Smith and Carol Schall listed social skills that can be helpful in the community and the workplace. Families are advised to work on these skills with their case teams.

• Using Social Amenities. “Many of our students who barely acknowledge other people have to be reminded several times to call the name or tap the person they are communicating with, before asking for what they want. Sometimes adults have to hang on to the item they’re asking for in order to elicit a ‘thank you,”’ said Cecile Sicam, school director of Bridges Foundation, Inc. It might be necessary to teach phrases such as “please, thank you, you’re welcome” at school, at work, in stores, banks and restaurants.

• Using Appropriate Greetings. Teacher Cecile is mother to Likas, 30, who has been working for Tube Ice for many years now. Likas often exhibits an aloof manner when greeting relatives and refuses to kiss them even when prompted to do so. He says “hi” or just nods his head in acknowledgement.

On the other hand, Teacher Archie David of Independent Living Learning Center tells of a student who had a habit of bidding goodbye to everyone by name. Being polite, people were often compelled to wait for their names to be called before they themselves leave. The problem was addressed when he learned it was alright to just say “goodbye, everyone.”

• Terminating Conversations. A common complaint of peers, supervisors, and co-workers, is that the worker with autism walks away while being spoken to. But the more common complaint is when they do not stop talking about their favorite topics. Teacher Cecile said her son does not “read” people’s responses and does not readily stop when others give nonchalant acknowledgement.

Teacher Archie said that through role-plays, a student was taught that glancing at watches, lack of eye contact and no follow-up questions are hints for him to terminate a conversation.

• Sharing Workspace. During a practice interview, a PWA blurted out he expects his employer “to give me my own office space.” But actual workplaces are sometimes shared spaces and even rearranged from time to time. This can be especially upsetting to a worker with autism who relies on consistency of physical spaces. On the other hand, other PWAs have the tendency to invade other people’s personal and work space.

• Accepting Correction or Suggestions. Most people do not like to receive correction or criticism. People with autism, however, often react more strongly. Teacher Cecile shared that Likas has the tendency to overreact and say “sorry, never again” repeatedly as if he caused a catastrophe. “However,” she said, “several of our students would shout, throw things on the floor or hit when corrected. There maybe a need to focus on teaching these students exactly what to say and do when given correction or suggestions.

• Responding Assertively. People with autism can sometimes be easily taken advantage of. One young woman with Asperger Syndrome was arriving at work each morning quite distraught. The problem was that a strange man had been sitting next to her on the bus and putting his arm around her, and she did not know how to respond. Social skills training was needed to teach her to say “Leave me alone.” (from the book “Autism and the Transition to Adulthood”).

• Waiting in Line and Taking Turns. Teacher Cecile, who is also the current national vice president of Autism Society Philippines, recounted that many of their students will run off the line or jump around after a few seconds (even while waiting seated). “We have to give them fidget toys or weights on their laps to extend their waiting time.”

• Asking for Help and Revealing a Problem. Authors Wehman, Smith and Schall wrote that “one of the most important social skills at work is to ask for help when it is needed. Individuals with autism faced with difficulty at work might become upset, stop working, and even leave. Students with autism might also be reluctant to reveal that they have a problem for which they may need help. In either the work or school setting, social skills training can be used to teach individuals how to ask for help and how to talk to others about a problem.”

This article appeared in print and online by Manila Bulletin on 04 November 2012.

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Posted in: angels-talk