Senate approves Bill 3560

Persons with Disabilities received a very timely gift for Christmas in the form of Senate Bill No.3560. The bill also known as “An Act establishing the institutional mechanism to ensure the implementation of programs and services for persons with disabilities in every province, city and municipality,” was approved by the Philippine Senate on December 16, 2009.

“We are grateful for this law. However, we have to be vigilant and promptly react,” reminds Ka Lauro Purcil, Education Committee Head of UNCRPD.

The bill include exploring livelihood opportunities and other undertakings that shall enhance the health, physical fitness and the economic and social well-being of persons with disabilities ; and for Local Government Units to establish PDAO (PWD Affairs Office) to address the specific needs in their local jurisdiction such as ordinances or policies; accessibility; gathering and disseminating information; and funding.

Ka Lauro, himself a PWD, reminds ASP members to continue working in partnering with government as instruments of services. “Public servants are duty bearers in the fulfillment of these laws. We, persons with disabilities, are duty bearers too. Let us move with solidarity and fervor to ensure their full implementations.”

The bill also amends the term “Disabled Persons” to “Persons with Disabilities”, as the PWD is a person first, before his disability.

“Disabilities should never be a hindrance to excel in one’s chosen field. By being assets in society, many PWDs are breaking barriers and changing the misimpression that they are a burden to the nation,” said Pia Cayetano, principal author of the bill and Chairperson, Senate Committee on Social Justice, Welfare and Rural Development.

Autism Society Philippines will be celebrating the 14th Autism Consciousness Week dubbed as "Giant Leaps... Transcending Boundaries" this January. We enjoin all members, supporters, friends, and loved ones to meet up at SM Mall of Asia on January 24, 2009 for the yearly tradition of Angels Walk to generate autism awareness.

Click here to read more about Senate Bill 3560

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Posted in: 4public

Special Season's Greetings from ASP

Christmas greetings for our Autism Angel

footnote:

Our special artist is no other than VICO CHAM, 18 year old. He is the featured artist in our Autism Beyond Borders Conference Souvenir Program.

Watch out for his ONE-MAN EXHIBIT on Jan. 17, 2009 as we celebrate ASP's 14th Autism Consciousness Week. (stay posted for details).

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Posted in: 4parents,4public,4pwas,advocates

Why Angels Walk in the Malls

It is only fitting that the next Angels Walk for Autism on Jan. 24 will be held in, where else but, the SM Mall of Asia.

Malling is a way of life for Filipino families. But for families dealing with Autism, enjoying the malls may not come that easy. It requires preparation by the family for the child.

Autism is a lifelong developmental disability that affects how an individual interprets what he sees, hears, touches and tastes; thereby impairing his understanding and use of language, and his adaptation to his environment.

Imagine how the senses of a Child with Autism (CWA) are bombarded in a mall setting, with all the seemingly strange sights, sounds, smell, and people around them. Some of them may cry, some may throw tantrums, and others may exhibit "socially inappropriate behaviors." And some, yes, may get lost – which will be a very difficult situation if the CWA happens to be non-verbal, too.

But imagine also how a family feels when, while dealing with their CWA’s behaviors in the mall, the people around them are all staring, if not sneering. And judging: "spoiled brat" referring to the child; "hindi marunong magpalaki ng anak" – referring to the parents.

Really, it is not only the children with autism who need to be educated on malling. There is also a need to educate the mall-goers, and the public in general, on understanding autism.

Angels Walk for Autism

"If we did something for People with Disabilities (PWD), then as an industry, we would be contributing significantly to an often neglected sector of society," said Annie Garcia, president of SM Management Corporation during her speech given at the National Conference of the Philippine Retailers Association last August.

SM swept a total of seven awards (for seven branches) as the Most Handicapped Friendly Establishments during this year’s Apolinario Mabini Awards (August 6, 2008).

They more than deserve the awards because their barrier-free and safe environment for persons with disability (PWD) includes not only their building facilities.

Most importantly, SM people – from the managers down to the frontliners, understand and show compassion for PWDs who may not have physical disability requiring special ramps and comfort rooms, but need all the understanding and compassion they could get.

As Ms. Garcia told other retailers, "I speak to you about our special customers, the customers we should also care for, the ones that need greater understanding, the ones that need our eyes, our ears, our legs, our minds and our strengths, and most importantly our hearts. We know that it is truly all about understanding."

Source: Angels Talk, Manila Bulletin Schools and Colleges Section, January 2009.

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Posted in: angels-talk,angels-walk

U.S. Autism Prevalence Rises 57% in 4 Years

Bethesda, MD (December 18, 2009) -- The U.S. Centers for Disease Control and Prevention (CDC) released their national autism prevalence report today, confirming that the prevalence of autism spectrum disorders in the United States is 1 percent of the population, or one in 110 of children 8 years of age in 2006.

The long-awaited report was conducted by the CDC’s Autism and Developmental Disabilities Monitoring Network in 11 sites in 2006 and tracks prevalence in children 8 years of age. The Autism and Developmental Disabilities Monitoring (ADDM) Network is a group of programs funded by CDC to determine the number of people with autism spectrum disorders (ASDs) in the United States. The ADDM sites all collect data using the same surveillance methods, which are modeled after CDC’s Metropolitan Atlanta Developmental Disabilities Surveillance Program (MADDSP).

“This report confirms what we at the Autism Society have been saying for years about the prevalence of autism in America and the critical importance of early identification and interventions. For the first time, we are hearing our government acknowledge the real increase in autism and validating the impact this condition has on individuals, families and their communities,” said Lee Grossman, Autism Society President and CEO. “The question still remains: How bad does it have to get before families receive appropriate lifespan services?”

This report presents a number of other important details, including:

* The study suggests that while better diagnosis accounts for some of the prevalence, a true increase cannot be ruled out. The report also underscores that “efforts are needed to understand how complex genetic and environmental factors interact to result in symptoms which make up the autism spectrum.”

* The report again highlights that delays in identification still persist. Children in 2006 were being diagnosed only five months earlier on average than those in 2002, thus still missing the critical years of early intervention. (In 2002, children were diagnosed at an average age of 53 – 66 months, and in 2006, the average age was 50 – 60 months.) The report laudably notes that the continued lag in identification needs to be addressed as a public health concern so that this nation “can ensure that children in the U.S. receive optimal early intervention services.”

* Increases in prevalence among minority population were significant, with a 91 percent increase in Hispanic children (with 144 percent increase in Arizona contributing to this) and 41 percent in black non-Hispanic. There was a 55 percent increase in White non-Hispanic.

* Prevalence in boys was found to be 4.5 times higher in males than females. The report states one in 70 boys and one in 315 females have autism.

* This study gathered data on prevalence and cognitive impairment, showing a 90 percent increase in children with borderline intellectual functioning and a 72 percent increase among children with average to above average intelligence. As intelligence testing is unstable in the autism community, further analysis needs to be done to understand this change.

* Overall prevalence was lower among the sites with access to health evaluations alone, so sites that did not include educational evaluations likely underestimated ASD prevalence for that site. The lack of educational data would have impacted the cognitive functioning analysis as well.

It is important to note the ADDM study does not cover adult prevalence or those children who receive diagnoses later than 8, which can be common in the Asperger’s community, where the average age of diagnosis is 11 years old.

The ADDM report, which was conducted in the states of Alabama, Arizona, Colorado, Florida, Georgia, Maryland, Missouri, North Carolina, Pennsylvania, South Carolina and Wisconsin, is consistent with the Department of Health and Human Services National Survey of Children’s Health, published last October.

The increasing numbers have long-term economic costs to the country, as autism is a chronic medical condition affecting people across the lifespan. The Autism Society calls on the U.S. government to address the pressing need for community-based services to ensure a better quality of life for people with autism and their families and to increase funding for research into what factors put people at risk and treatments that will mitigate the severest medical symptoms affecting people with this chronic medical condition.

To know more, click here.

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Posted in: 4public

Mission, not Impossible

By: Cathy Genovia ASP Program Assistant

This article is dedicated to Lone Ranger, Dr. Ismael Pastor

“Ayan na si Ms. Autistic,” (Here’s Ms. Autistic), one of the unforgettable greeting I received during the just concluded 3-day live-in Annual Consultative Workshop at Cherry Blossoms, Ermita, Manila last November 18, 19 & 20.

To those greetings I received, I tried to keep my composure and gave my best smile. “Hindi po ako autistic. Nagtratrabaho po ako sa Autism Society Philippines, isang NGO na tumutulong sa mga pamilyang may mga anak na may autismo.” (I’m not autistic. I’m working for ASP, an NGO helping families with children with autism.)

The Workshops were sponsored by The Center for Health Development-Metro Manila (CHDMM) of Department of Health (DOH). DOH takes a giant step in inviting and accepting ASP as one its members for the coalition on Policy Development and the Health Promotion Committee

In all the meetings that I attended, I always make sure of bringing a copy of the Magna Carta of Persons with Disabilities (RA 7277)

“Oh, ‘di ba autistic ka, oh…si Ms. Autistic,” (Oh, aren’t you autistic…oh, it’s Ms. Autistic.) said one of the “heavy set” doctors, while mimicking some of the symptoms of autism like hand flapping and avoiding eye contact.

I reminded the good doctor about the existing law which is the amended Magna Carta of PWDs, RA9442. "Bakit, mamumulta ba ako?!” (Why, will I be fined?!), came his surprised remark.

“Opo, at baka pwede rin po kayong makulong,” (Yes, and you might also be jailed.) RA9442 also prohibits verbal, non-verbal ridicule and vilification against PWDs.

Thankfully, after receiving the copies of the Magna Carta for PWDs, Dr. Emma Ruth Cuevas, Chairperson for the Policy Development Committee, helped me disseminate to other members of the coalition, who are otherwise uninformed of the law.

Dr. Emma Ruth Cuevas during the Policy Committee meeting with the rest of the group

And since autism also falls in the PWD Program of DOH, I suggested to the group to network with the National Council of Disability Affairs (NCDA) on particular issues.

After several meetings, I felt better knowing that autism is not an ignored issue anymore and knowing they are fully supporting ASP’s advocacy gave me a sense of hope.

Committee on Health Promotion of Non-Communicable Disease Program, which ASP signed up as a member is tasked to provide awareness on health and related issues by giving seminars to government health workers and also to doctors and professionals. The committee will include series of orientations on autism to provide understanding of this condition.

members of the Health Promotion Committee

The whole coalition was also invited to join our upcoming Autism Consciousness Week activities, particularly the Angels Walk for Autism, which will be slated on January 24, 2010 at the SM Mall of Asia in Pasay City

The mission and vision of the coalition does not end here. As what Ms. Marylen Reyes, OIC-Degenerative Disease Office of CHD-MM said “We will now be working together… forever”. Upon hearing this, I can truly say: Mission, Not Impossible to achieve.

To know more about the Medical Priveleges of PWDs, click here.

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Posted in: 4public,awareness

Hooked on EDEIP

ASP Cavite Chapters spearheads another jam-packed EDEIP (Early Detection and Early Intervention Project) Seminar on November 26, 2009. Emilio Aguinaldo Elementary School Social Hall was filled with participants coming from nearby towns and municipalities from Cavite City, Noveleta, Rosario and Kawit.

Kawit Mayor Tik Aguinaldo giving
inspirational message

The seminar was hosted in the municipality of Kawit, located at the base of a hooked-shaped shoreline along Manila Bay. Kawit Mayor Tik Aguinaldo and Councilor Gerry Jarin, were the guests of honor.

Ms. Yolanda Labo, DSWD Head of the Municipality of Kawit welcomed the 98 participants, composed of DSWD officials and personnel, daycare workers, public school principals, teachers and guidance counselors, and parents. Other guests included ASP officers and members of Cavite North Chapter and ASP Tanza President, Alma Torero.

The mayor gave an inspirational message and pledged to set up a priority thrust program for Persons with Disabilities in Kawit, Cavite. The mayor also emphasized that PWDs are a blessing and should not be treated as burden to society.

EDEIP resource speaker, Ms. Jan Peña, ASP Bacoor Chapter President presented a video from the Carmona PWDCO (Persons with Disabilities Coordinating Office) as a model program for PWDs in all Cavite municipalities. Jan also emphasized on the importance of early detection to help the participants understand, appreciate and support children with autism.

After the seminar came the induction of the ASP Cavite North Chapter, headed by Chapter President Arnel Ejercito. The inducting officer is also Jan Peña, who incidentally serves as a board member in ASP National and heads ASP’s Membership Committee as well as the ASP Cavite Chapters.

Resource speaker, Ms. Jan Peña and the participants of the said EDEIP

“Thank you for all the people who made this seminar possible. Because of this many residents are now more aware of autism. Knowing the signs and symptoms of autism will help give them the early intervention they need,” said Mary Rose Mijares, Secretary of ASP Cavite North Chapter.

Ms. Labo is also thankful for ASP’s support in the awareness campaign for parents and government workers. She looks forward to a second training on early intervention in Kawit.

ASP Cavite Chapters are on fire to spread the news to all LGU’s that it is possible to create and support a program for PWDs. We invite all LGU’s to join us in the January 9-10 2010 “Autism Within Borders” regional conference to learn the how’s of creating and sustaining such program. Click here for more details.

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Posted in: EDIP

Cavite Chapters Spearheads Regional Conference on Autism

After the success of Autism Beyond Borders, here comes Autism Within Borders!!

One of ASP’s planned major programs this year is to bring conferences around the regions. ASP’s seven (7) Cavite Chapters - Bacoor, Carmona, Cavite-North (Cavite City, Noveleta, Rosario and Kawit), Dasmariñas, Tanza, Trece Martirez and Molino, wasted no time and jump starts the 1st Regional Conference on Autism, dubbed as “Autism Within Borders” (Ushering a Decade of Empowerment).

ASP Bacoor Chapter President, Jan Peña, also fondly called "Governadora ng ASP Cavite Chapters", proclaimed : “Time is short, but our united hearts and spirits will shoot us rapidly across time and space. With this mission in mind, we can claim 100% success for Region IV - A!”

Caviteños are further emboldened to take this undertaking because of the support of St. Brother Miguel Febres Cordero NEURODEVELOPMENTAL CENTER of De La Salle- Health Sciences Institute.

For further details, please refer to poster and program below:

Digital poster of Autism Within Borders

Schedule of the conference

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Posted in: conference

Have a Merry, not Messy, Christmas

Chinoy and Gio Koe

It was a very messy Christmas.
My helpers and I admired the new Christmas tree we put up and decorated. I excitedly positioned my then four-year old first-born for picture taking. In an instant, he plucked one of the icicles hanging on the tree.

Dangling the decorative item by its string, Gio started flicking it, with eyes fixed intently on the motion he was making. Gio was doing his favorite “stim” (self-stimulatory behaviors usually seen in children with autism).

I dashed to save the poor icicle.

During that entire holiday season, we had to watch out for Gio whenever he went near the “endangered” Christmas tree.

It was a New Year’s Eve nightmare.

Tired after taking the kids around during New Year’s Eve, we decided to eat at a popular restaurant (translation – a lot of people inside). Gio did not even want to get down from our car.

But with all family members already hungry, I carried him and thought I could distract him with food.

Gio created a scene – make that a BIG scene – the minute we stepped inside the restaurant. His poor mother could feel thousands of eyes looking at them while valiantly trying behavior modification techniques school teachers taught her.

Don’t Stress. Plan in Advance.

Teachers will not be around with families during the holiday season. The mere fact that their special students’ schedules are disrupted and routines broken during the Christmas break will pose many challenges.

Most special education schools put in so much time preparing for school Christmas parties and programs. To read more on Have a Merry, not Messy, Christmas, click here.

For the 12 Tips for Helping People with Autism and Their Families Have a Happy Holiday developed by the Indiana Resource Center for Autism, Easter Seals Crossroads, the Sonya Ansari Center for Autism at Logan and the Indiana Autism Leadership Network, and with inputs from the Autism Society of America, click here.

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Posted in: 4parents,awareness

Are you done with Christmas shopping?

Are you having a hard time deciding what to buy for your loved ones this Christmas? Well, look no further!

Autism Society Philippines offers a variety of merchandise to suit your shopping needs.

Awit para sa Autismo CD

Awiting Para sa Autismo
A pen and tissue paper during a hot day under the tree and one thing led to another.

“This CD is just inspiration and the urge to share my experiences. Dedicated to special children whose challenges leave me in awe; also to parents, families, therapists, doctors and all members of the therapy team who serve as pillars of the entire program for our children with autism,” says incoming 2010-2012 ASP Board Member Gina Bermudo, mom to Niko and Xandi, both with autism.

Book Marks by Vico Cham
Vico started painting when he was 6 years old. At 8, Vico painted in a 24X36 canvass a house of Blues Clues cartoon. This made his parents, architects Victor and Catherine, decide to harness his artistic skills. At 13, he mentored under Gabby Atienza, another PWA artist and learned to draw people.

Today, Vico boasts of a collection of as many as 50 computer generated drawings. His decorative art works are displayed in Trotezz Wine Bar and Dancing Hall at Greenbelt Makati. His new obsession is Egyptian themes. Vico won painting contests in his school, Shine Special Education Center. His parents are proud of his private collections. Their family’s wish for Vico to have a one man exhibit will come true on January 17 at SM Podium/SM Megamall (stay posted for details).

Vico Cham is the featured artist in the Autism Beyond Borders Conference Souvenir Program. Grab your limited edition one of a kind Vico Cham bookmarks now. Hurry while supplies last!

Directory of Resources

Directory of Services
ASP has the most updated resource directory of centers and schools that cater to the local Autism community. The directory contains ASP’s member institutions.

Spinning
Explain autism to young children through this amazing and easy to understand colorful book.

Music Therapy Book

What Music Therapy did to George
Experiences of a Music Therapist with Special People by Celeste S. Sanchez.

Journeys with my Autistic Son Book

Journeys with My Autistic Son
By Fanny A. Garcia. The English translation of Erick Slumbook: Paglalakbay Kasama ang Anak kong Autistic. Winner of the 2004 National Book Award for Autobiography and the 2005 St. Miguel Febres Cordero Research Awards Outstanding Book (De la Salle University-Manila).

This year, choose autism. Share Hopes and Build Dreams. Call 7-903-5496 to order or email us at autisphils@gmail.com for bulk orders.

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Posted in: merchandise

Autistic Senator?

By: Mary Aileen Valera
ASP Diliman Chapter

For every tear we parents shed over our children with autism, I wish that a river of tears would wash over those insensitive politicians and wannabes who use the term "autistic" derogatorily.

I personally wish Ernesto Maceda and his ilk to drown in a sea of parents' tears to rid them of their ignorance, arrogance, and to wash their blackened hearts off with greed and love for power.

I would not exchange my son's simple and guileless mind with their convoluted ones. They do the term "autistic" a disservice with their perseverative behavior of stealing over and over again at all times.

If Noynoy Aquino was truly autistic and he becomes president, then i rejoice with hope for my son. Let us all be united in educating the public that people with ASDs should not be ridiculed or looked down derogatorily. Nor should the term "autistic" and "autism" be used in a misleading and insulting manner.

Postscript:

I stumbled upon these blogs by journalist Raissa Robles. Her posts on Noynoy Aquino's alleged autism is very instructive and hilarious.

Click here for the link and here.

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Posted in: awareness

ASP on Call

ASP National President, Ms Dang Koe always say, “ASP is KSP or kulang sa pansin (lack of attention). Kaya lahat ng invitations sa office, lahat po yun ay pinupuntahan namin (that is why we accomodate all invitations) because we want people to be aware of autism”.

We are very thankful because different organizations, sectors from LGUs, NGOs, NUs and other groups indeed invite ASP to share with them about autism.

November 16, ASP Executive Director, Ranil Sorongon, attended the Thematic Cluster Workshop of the UN-Convention on the Rights of Persons with Disabilies at the Mabini Hall, Malacañang Palace.

Participants of the Annual Consultative and Planning

November 18-20, ASP Program Assistant, Cathy Genovia, attended the 3-day live in Annual Consultative and Planning on Non-Communicable Disease Program Workshop, hosted by the Center for Health Development- Metro Manila of Department of Health at Cherry Blossoms, Ermita.

Ging Viado and PWA singers,
Vell Baria and Thara Marie Santiago
were special guests at Mornings@ANC

November 25, ASP Trustee, Ging Viado and PWA singers, Vell Baria and Thara Marie Santiago were special guests at Mornings@ANC. The PWAs girls each presented teaser song numbers from Echoes of Dreams Concert. Other guests were Jerome Vinarao, Director and Ms. Estela, singer.

November 25-26, Dang Koe attended the Summit for Children of Council for the Welfare of Children (CWC) at Diamond Hotel, Roxas Blvd.

November 25-27, Ranil Sorongon attended the seminar-workshop on “Tooling on Managing Program for PWDs for Duty Bearers cum RCDA-NCR Planning Workshop” in Tagaytay.

November 27-29, Cathy Genovia attended the AKAP-Pinoy National Disability Forum and General Assembly on the Promotion of the Rights to Political and Public Life of PWDs at the Atrium Hotel, Pasay City.

November 30, The most awaited event for November, "Echoes of Dreams" Concert for a Cause featured PWA singers with special participation of Ms. Lea Salonga.

Keep posted for more activities and invites. We thank all supporters for never getting tired of inviting us. Thanks for being an Angels for Autism.

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Posted in: awareness,uncrpd

Autism Friendly for All Seasons

By Glenn Adviento

To seek continuous support from the local government, last 23 November 2009, ASP’s five active Batangas Chapters, through ASP Lipa Chapter adviser, Mary Ann Magsino Panganiban, set a courtesy call with Batangas Governor Vilma Santos-Recto. With her are Ms. Raceli de Castro, ASP Batangas City Chapter Vice President and Ms. Lea Mayo, administrator of University of Batangas Special Children Foundation.

ASP National and Batangas Leaders during the courtesy call with Batangas Governor Vilma Santos-Recto

The ASP Batangas Chapter Leaders also requested ASP National Leaders to join the courtesy call in order to invite Gov. Vi to grace ASP’s 2010 Angels Walk for Autism. The Walk next year will be held in SM Mall of Asia’s Music Hall on January 24. For details, email autismphils@gmail.com.

The national contingent was composed of ASP National President Erlinda “Dang” Koe, Vice President Mary Grace Adviento, ASP Executive Director Ranil Sorongon, CWA Adrian Adviento and this author.

Avoiding the Monday morning rush hour, our team left on the dawn of November 23, as they would convene at 5:30 am at a fast food in North Avenue, Quezon City. During the entire travel from QC to Batangas, traffic was thankfully light, except for the Calamba-Sto Tomas Highway.

By 7:30 am, our team met with ASP Batangas Chapter representatives. Courteous staff ushered us inside the waiting hall of the Governor’s Palace. While waiting, we were served breakfast sandwiches paired with the famous Kapeng Barako ng Batangas and watched Batangas’ One Town, One Product Program, which aims to promote entrepreneurship and create jobs in localities.

The governor met us after attending the flag ceremonies. Her mere presence sets a 180 degree twist to the somber mood inside the hall. We were then ushered into the Conference Room. After exchanges of pleasantries, the Governor was interested to know about the rising incidence of autism in the country, particularly in Batangas.

The Batangas Governor, or Governor Vi is no stranger to autism. Before becoming a politician, she did a movie about a married couple going through acceptance of their autistic son, “Ipagpatawad Mo”. Click here to watch an excerpt of the film.

As part of the research for her role on the film, she read up on autism and observed the typical behaviors of an autistic child. And to our amazement, she still remembered one of her vital lines from the movie : "Di dapat sila ang pumasok sa mundo natin, kundi tayo dapat ang pumasok sa mundo nila,"she uttered.” That famous line bagged her the 1991 Urian Award for Best Actress Award.

We then extended our invitation to join ASP’s Angels Walk. She obliged to attend, as long as her schedule permits.

My son Adrian, gave a simple token of gratitude to the governor for allowing the showing of Alyana in Batangas City. Click here to know more.

After meeting with the Governor, we proceeded to Lipa City, where Governor Vi served as Mayor from 1998-2007. We made a stop-over at the Rehabilitation Department of the Mary Mediatrix Medical Center, which to our surprise, is at par with the leading hospitals in our country.

We would like to thank Governor Vi and ASP Lipa and ASP Batangas chapters for their continuing efforts in spreading autism awareness and we look forward to fruitful future endeavors, making Batangas “Autism Friendly for all Seasons”.

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Posted in: alyana,awareness,batangas,film,government,lgu,province

Let’s Get Together To Get There

By: Cathy Genovia

The Archdiocese of Manila Office for Persons with Disabilities Ministries or AMO-PDM celebrates its 10th PWD Anniversary at Don Bosco Technical Institute, Makati City, last December 6, 2009.

ASP Executive Director Ranil Sorongon, together with ASP Angels Cathy Genovia and Abby Mendoza, joined the celebrations. As early as 7:00 am, donors lined up to register for the Blood Letting Activity. And by 1:00 pm, PWD participants, their caregivers and visitors also registered.

The performers and the crowd during the 10th PWD Anniversary

The afternoon Eucharistic Celebration started aptly with this year’s theme, inspired by Romans 12:4-5, “We, Though Many, Are One Body In Christ.” And after the mass, the festivities commenced.

Kuya Bodjie of the 80’s children TV show Batibot, joined the celebration. Special needs children showcased their talents in singing and dancing. Kapamilya star Dimples Romana rendered a song number and encouraged special kids to dance with her on stage; while another Kapamilya, Eric Santos rocked the house down.

Magic and puppet shows, face painting, clay dough, paintings/drawings booths for children, filled their day with fun and excitement. For caregivers, homemakers, parents, volunteers, and NGO workers, even our very own Executive Director, Ranil, enjoyed a well deserved, almost one-hour, free massage by volunteer therapists.

After going around and seeing angelic smiles of the children, I knew in my heart AMO-PDM was able to achieve its goal. We would like to thank AMO-PDM for inviting us to celebrate with our PWD brothers and sisters in the Annual International Day of PWDs which is celebrated every December 3. Click here to know more about International Day of PWDs.

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Posted in: ipwdd

Realizing My Mission

By: Cathy Genovia ASP Program Assistant

“I thank God for giving me this chance to be a storyteller, to share my knowledge and spread my love for all persons with autism and the people who have little knowledge about them.”

The Center for Health Development-Metro Manila (CHDMM) of Department of Health (DOH) held a 3-day live-in Annual Consultative Workshop at Cherry Blossoms, Ermita, Manila, last November 18, 19 & 20.

The participants of the Annual Consultative Planning Workshop on Non-Communicable Disease Program

The workshop aimed to form a partnership with Government, Non-Government and Private Sectors for the purpose of strengthening the Integrated Non-Communicable Disease Prevention and Control Program.

Autism Society Philippines (ASP) was one of the invited participants of the said workshop and is one of the members of the Core Group. Most of the participants are doctors from different Local Government Units (LGU). The other 2 Non-Government Organizations are The Seventh Day Adventists and Healthway.

As the chosen representative of ASP, I admit I was so confused at first and didn’t know why ASP was invited, since the topic is all about Lifestyle Related Diseases (LRD). I know for a fact, that AUTISM is NOT a DISEASE.

There are times that I don’t really understand what they are discussing, especially, medical terms that I only heard of for the first time. But, I kept quiet and patiently listened to all the discussions.

At the back of my mind, “What if they made a mistake?” An Angel whispered, “Just wait and for sure, answers will come out”.

Dr. Anchit Cuevas, introduced us to The Rainbow Tent Project of the Pateros Health Department. This project aims to bring information and education services on health issues to the municipality’s different schools. I was curious to find out the kind of services are offered at their Therapy Center and asked Dr. Cuevas. Therapy was limited to rehabilitation services and patients with special needs like autism, were referred to the hospital, this left me frustrated.

That night, my two wonderful roommates: Dra. Reggie Bartolome and Dra. Nitz Villanueva, wanted to know many things about autism. I was intimidated and hesitant at first, but Dr. Reggie assured me that not all doctors are knowledgeable about autism, since not all of the doctors here are Developmental Pediatricians.

That night the answer was revealed: “I have a mission!”

During our second day, Dr. Ruben Siapno of CHDMM presented to us the Operational Framework of Integrated NCD (Non-Communicable Disease) package. The NCD programs are: Tobacco Control, Blindness Prevention, Mental Health, LRDs, PWD (persons with disabilities), Injury Prevention, Philippine Organ Donation Program (PODP) and Renal Disease Control Program (REDCOP).

All NCD (Non-Communicable Disease) organization representatives were grouped into one. One of my doctor teammate told the group that autism would be under Mental Health. Since to my knowledge, AUTISM is not a MENTAL HEALTH ISSUE, but rather, should fall under the category of Learning Disability or PWD.

I reacted and insisted to the group my sentiments. Honestly, I know why I said that, but I don’t know how to explain it further. ASP is working so hard to orient the people in the grassroots level about autism, and here, doctors have to be given an orientation about autism. In my eagerness to prove to the group about the misconceptions about autism, I decided to call for help.

“Tagalugin mo Cath para mas maintindihan nila, wag kang matakot kahit mga doktor sila. Para kasing mababalewala lang ung ipinaglalaban natin for centuries now!” came the timely advice at the other end of the phone from Tita Carmel Almendrala, one of our ASP Trustees.

And now the time has come…

After the break our team leader, Dra. Mona, guided me on how to link ASP to our topic. While in front, I can see all the participants nodding. I informed them some of the 14 signs and symptoms (click here to know the signs and symptoms) and shared some of the actual family stories for them to easily understand the red flags.

One of the CHDMM staff confided to me about her niece with autism. I invited her to join the group and share her story. This was also timely, as the group was able to confirm and realize that I am not just making things up. I invited them to be part of ASP’s Autism Awareness Campaign. ASP now part of the Policy Development and the Health promotion Committee.

For more information on autism log on to www.autismsocietyph.org. Send your email request for Autism Orientation Program or the EDEIP or the Early Detection and Early Intervention Program to autismphils@gmail.com.

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Posted in: awareness,lgu

Commitment Building For Parent Leaders

Twenty – eight parent leaders and Board of Directors of AKAPIN Batangan and second liner leaders attended the Training on Leadership and Commitment Building last July 8-10, 2009 at the Tan Ville Garden Resort, Rosario, Batangas. It was made possible through the efforts of NORFIL – CBR, LGUs of Batangas and AKAPIN Batangan Inc. AKAPIN Batangan has invited 2 resource persons from different organizations. Ms. Nimfa Gamboa of TOPS gave a lecture on effective parenting which emphasizes the roles each parent plays in child rearing. It basically discussed how to become a responsible parent rather than a good parent.

Ms. Dang Koe, President of Autism Society Philippines was invited to talk about Commitment Building to encourage participants to commit more to the organization, and in promoting the rights of their children with disability. . She narrated how Autism Society Philippines started from a group of parents in Manila and now reaching out to sos many provinces in the Philippines. She also shared her struggles of being a parent of a child with autism, and how she was able to manage and advocate for the rights of her child. The participants gave very good feedback and appreciated how Ms. Koe was able to help her child with autism and how she was able to lead Autism Society Philippines. It gave the participants renewed commitment on leading and continue what they are doing as leaders of their core group and organization.

Ms. Dang koe with Norfil Staff and organizer

NORFIL Foundation Inc Community Based Rehabilitation program organized the parents organization last 2004 of the children with disability it served in Batangas, and it was then recognized as AKAPIN Batangan. The organization on its 5th year, is able to have its own programs and services for their members/ children with disability and the community as a whole through the provision of home based special education and therapy, educational assistance to those children with disability who are schooling, provision of medical assistance and conduct of training to parents with children with disability. It is also active partner of LGU in preventing disability through the conduct of community based ear screening/ vision testing with the help of other organization.They are able to implement these programs and services through individual donors and funders, partner Local Government Units, rotary clubs and Liliane Foundation Philippines who gives sponsorship to children with disability needing medical and educational assistance.

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Posted in: awareness

ASP New Trustees elected

The 2010-2012 of ASP Board of Trustees elected incumbent Vice President Mary Grace Adviento as National President, and current Trustee Perlita “Peng” So as National Vice President during their November 28 Board of Trustees’ meeting.

As per ASP’s constitution and by-laws, the general assembly elects 11 Board of Trustees, and the elected Trustees elect officers among themselves.

Incumbent National President Erlinda “Dang” Koe reiterated that “a team of hardworking angels is behind the next ASP National President” as she respectfully declined the nomination for a fourth term as National President.

Citing her unprecedented three consecutive terms of trailblazing leadership, passionate commitment and unquestionable integrity as ASP National President, the new Board of Trustees immediately passed a resolution, never before undertaken, appointing her as Chair Emeritus of ASP.

Dang has committed to continue the myriad of tasks she has been performing while dispensing her “presidential duties”. She will continue being the official spokesperson of ASP and ensuring that our advocacy is “on line, on air, on paper… all year round.” She will also be spearheading a more aggressive capacity-building project for chapters’ development.

“I have big shoes to fill,” said incoming National President Grace, “but I am assured not only of a team, but also of a family– for that is what we are inside ASP Board. And I believe “Mama” Dang when she told me she will mentor me all the way.”

A Physical Therapy graduate, Grace runs her family’s business operations where her management skills were honed. Like other Board Trustees, Grace is used to “multi-tasking.” She is often seen overseeing the troops of volunteers during ASP’s major and minor events and the many varied needs of talents with autism. She is also the Head of the Education Committee and an active member of ASP’s pool of speakers for public orientation on autism.

Grace joined ASP in 2003 right after her son Adrian, now seven (7) years old, was diagnosed. She immediately volunteered her services and resources after attending her first Family Support Group meeting in ASP office. She served as a Trustee from 2005-2007, and elected as Board Secretary during that first term. She became Vice President during her second term, 2007-2009

Being a Physical Therapist by training, Grace now flexes her beautiful muscles as she prepares to become the youngest National President elected to date.

Incoming Vice President Peng So was “an accidental Trustee,” as both she and and co-incumbent trustee, Babsie Lu, were enticed by the raffle prizes during the 2005-2007 election. Both were nomicated and elected twice, serving until 2009.

Peng is a hands-on mother of two PWAs, 18-old Patrick and 11-year-old Angelo. Although she regards herself as “simply the mother of Patrick and Angelo.” Dang, and the rest of the ASP team, always push her “out of her self-proclaimed limits because inside Peng is a very intelligent woman who has the power to touch the lives of many other families.”

2008-2009 ASP Officers and Board of Trustees

Now, whether speaking to hundreds of mall employees, or facing the television cameras, or attending to the littlest details of ASP’s events, Peng exudes a “presidential stance”…. a woman transformed to serve others.

Tiffany Tan, the wind beneath the wings of ASaP and ASP’s social networking sites, continues to serve as Board Secretary. This low-profile hardworking woman would rather be read than heard.

Evelyn Go prefers to multiply ASP’s “cash in bank” a ten-fold than be nominated to a higher position. After her financial report during the last Board meeting, Dang kidded “I don’t understand Evelyn’s financial jargons, basta alam ko dumami pera ng ASP sa bangko (I just know that she made ASP’s money grew in the bank).

Balik-Board Trustee and perpetual President of ASP Metro South Chapter, Evert Malapad was elected as Board Auditor – a position he held during the 2007-2008 term.

The other “old” Trustees in our new Board are:Senior Mom Carmel Almendrala,Techie Mom Cristina Munnariz, and Teacher Mom Noemi Viado. Another Balik-Board Trustee is Fredeswina Javier . She was a trustee of ASP for two terms in (2001-2003).

The “new kids on the board” are not exactly kids: Mariter Macapagal, founder and executive directress of St. Joseph Cupertino School for Special Children; and Gina Bermudo – producer and composer of Philippines’ first and only CD album on “Awit ng Autismo.”

Outgoing Board Trustee Jan Pena declined to be nominated during the last general assembly elections. She wants to concentrate on chapter matters for the next two years. She vowed to add more chapters in Cavite and beyond!

Another outgoing Cavitena Board Trustee, ASP Molino Chapter President Jackie Garcia, will be concentrating on her doctorate studies but committed herself to be a member of the Education Committee and in campaigning for more chapters in her area.

Outgoing Board Trustee Barbara Lu also begged off from being nominated during the general assembly election. Her family’s new business opportunities may require more time from her. But like the rest, she will continue working during ASP’s special projects. In fact, she is now busy with Angels Walk merchandise, which she said should outdo ABB merch line up.

2010-2012 ASP Officers and Board of Trustees

Come to think of it, there are really no goodbyes from any outgoing Board Trustee. In fact, there are even more angels working now inside and outside ASP’s Board of Trustees!

Let us witness the induction of our new Board during Angels Walk on January 17, 2010 at the Mall of Asia!

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Posted in: elections,leaders,trustees

PWAs can vote and will vote

By Cathy Genovia

Manila Bulletin’s Students and Campuses section invited ASP during their open forum on “Boto Mo, Ipatrol Mo, Ako ang Simula. ” This forum is part of ABS-CBN’s year-long campaign to to encourage Filipinos to begin taking an active role in the upcoming 2010 Presidential Elections.

The forum was held at the head office of Manila Bulletin in Intramuros last Wednesday, Dec. 2.. ASP National President Dang Koe, Vice President Grace Adviento, Executive Director Ranil Sorongon and ASP Angel Cathy Genovia joined.

Students and teachers from schools such as University of the Sto. Tomas, University of the Philippines, De La Salle University, Philippine Women’s University, Philippine Normal University, and Pamantasan ng Lungsod ng Maynila.

MB-SCU's writer Ina Hernando said Manila Bulletin wanted “parents and CWAs of ASP to be reactors--those who have kids who will be voting or adults with autism who are registered voters already-- in our open forum wherein they can ask questions."

ASP National President Dang Koe got the attention of the forum attendees when she started her reaction with the following statement: “There is no truth to the rumor that I came here to endorse a presidential candidate suspected of having autism. But if we do have candidates with autism, they will surely not cheat during the election, and they will not become corrupt officials when elected.”

ASP National President Dang Koe with forum attendees

ASP Vice President Grace Adviento and other invited guests in signing "Boto Mo, Ipatrol Mo, Ako ang Simula"

Dang stressed to the attendees that a part of the autism population “can vote and will vote.. and will patrol their votes. “ This drew a loud cheer from Charrie Villa of ABS-CBN’s News and Current Affairs. Dang also described how a voter with autism will most probably decide on whom to vote : “he will review the qualifications of the position, list down all candidates, review their profiles and compare them with the position’s qualifications.”

After the forum, Dang joined other invited guest reactors and student leaders in signing the “Boto Mo, Ipatrol Mo, Ako ang Simula” wall which signifies their support to the campaign.

ASP would like to thank Manila Bulletin’s SCU Team headed by Ms Ivy Mendoza for continuously supporting ASP’s advocacy. Not only did they invite Dang as a reactor to the forum. They also gave ASP a tent/booth to further promote autism awareness during the mini-concert after the forum.

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Posted in: elections

Cavite Chapters NDPR Week

With the theme of NDPR 2009’s “Tungo sa Katuparan ng Karapatan ng PWDs”, Cavite Chapters ( ASP Bacoor, ASP Dasmariñas, ASP Tanza, ASP Trece Martires and ASP Molino) headed by Bacoor Chapter President, Jan Peña celebrated the week with many activities lined up for all members to enjoy.

First stop, SM City Dasmariñas: Their first activity for the week is the Cavite Colors Exhibit; it features photos from the 1st Cavite Colors Photography Workshop and outstanding paintings made by Persons with Autism (PWAs) during their On the Spot Poster-Making Contest.

The Cavite Colors of A Exhibit

Another exciting activity of the Cavite Chapters was their Special Mini-Olympics games and Sports that was hosted by The Orchard Golf and Country Club in Dasmariñas, Cavite. More than just games and thrills, the Cavite Special Mini-Olympics is a demonstration of collective love, strength and will of people drawn together by a common aspiration to enrich the lives of the differently-abled citizens in the province of Cavite.

Children with Autism during the Special Mini olympics and talents show

In order to showcase the talents of all the participating children with special needs, the Cavite leaders had their Michael Jackson Dance-Alike Contest at the Events center of SM Supercenter Molino, Bacoor.

All participating teams/schools duly registered in the SM-O. Each team had 3-5 representatives with no age level. As expected the kids rocked the house as they showcased their talents.

The oath taking of ASP Molino Chapter officers followed. The following mothers were inducted officially to office: Jacqueline C. Garcia- President, Gina J. Sarmiento-Vice President, Aileen U. Ramos- Secretary, Jocelyn D.

Elisan-Treasurer, Veronica I. Bambilla- P.R.O (English); Mrs. Eloisa S. Manabat- P.R.O (Tagalog); Ellen D.Telan-Auditor and Evangeline P. Detera- Chapter adviser.

Other activities for the celebration followed at The Events Center of SM City Bacoor. They had their Cheering Exhibition, The Awarding ceremony of the Michael Jackson Dance-Alike Contest, Singing Contest and other special numbers by participating member schools.

The whole week celebration ended with a Socialization Night for Senior SM-O participants at the Orchard Golf and Country Club Community Hall, Dasmariñas.

The celebration would not be made possible without the unending support of Autism Angels- Hon. Mayor Jenny A. Barzaga, Hon. Mayor Jun Sagun, Hon. Mayor Roy Loyola, Hon. Mayor Strike Revilla, The Orchard Golf and Country Club, SM City Dasmariñas, SM Supercenter Molino, SM City Bacoor, ASP Cavite member Schools and Hon. Gov. Ayong Maliksi.

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Posted in: ndpr

“Boto Natin, Karapatan Natin, Kabilang Tayo”

By: Cathy Genovia

Who says that Persons with Disability (PWDs) do not have the right to political and public life? Who says they do not have their own minds to choose their own candidates?

“Boto Natin, Karapatan Natin, Kabilang Tayo” is the Theme of the National Disability Forum and General Assembly of Alyansa ng May Kapansanang Pinoy (Akap-Pinoy) held last Nov. 27-29 at Atrium Hotel. Being one of the members of Akap-Pinoy, ASP was also invited to the said forum.

Participants of the said forum with Commissioner Gregorio Larrazabal of Commission on Election

All participants from different regions of the PWD group were given the opportunity to listen and ask questions on their right to vote according to UN Convention on the Right of Persons with Disabilities (UNCRPD) Article 29, Participation in political and public life.

As per Commissioner Gregorio Larrazabal of Commission on Elections (COMELEC) said “Everyone should have a voice” meaning everyone as in everyone who are Filipino Citizen, 18 year old and above have the right to vote as long as they are registered. They may be blind, deaf, handicap or even with autism, as long as they can vote.

The COMELEC also demonstrated to the participants the parts and use of the Precinct Count Optical Scan (PCOS). It is the automated election system for 2010 national and local elections. They also showed the participants the proper way to insert their ballot paper in the machine. As expected, different reactions and different questions were asked.

Under Magna Carta for Disabled Persons and its Implementing Rules and Regulations, RA 7277, Chapter 7 stated the Political and Civil Rights of PWDs.

Section 29: System of Voting- Disabled persons shall be allowed to be assisted by a person of his choice in voting in the national or local elections…

The companion of a PWD must also be 18 year old and above. It can be his/her spouse, his/her child, sibling, parent or any relative until the 3rd degree.

So to all our PWDs friends out there, exercise your right. Vote wisely!

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Posted in: 4public,4pwas,elections

Early treatment may help kids with autism Two years of therapy can help children as young as 18 months, study says

updated 8:26 a.m. ET Nov. 30, 2009

CHICAGO - The first rigorous study of behavior treatment in autistic children as young as 18 months found two years of therapy can vastly improve symptoms, often resulting in a milder diagnosis.

The study was small — just 48 children evaluated at the University of Washington — but the results were so encouraging it has been expanded to several other sites, said Geraldine Dawson, chief science officer of the advocacy group Autism Speaks. Dawson, a former University of Washington professor, led the research team.

Early autism treatment has been getting more attention, but it remains controversial because there's scant rigorous evidence showing it really works. The study is thus "a landmark of great import," said Tony Charman, an autism education specialist at the Institute of Education in London.

There's also a growing emphasis on diagnosing autism at the earliest possible age, and the study shows that can pay off with early, effective treatment, said Laura Schreibman, an autism researcher at the University of California at San Diego.

The National Institute of Mental Health funded the study, which was published online Monday in Pediatrics.

Children aged 18 months to 30 months were randomly assigned to receive behavior treatment called the Early Start Denver model from therapists and parents, or they were referred to others for less comprehensive care.

The therapy is similar to other types of autism behavior treatment. It focused on social interaction and communication — which are both difficult for many autistic children. For example, therapists or parents would repeatedly hold a toy near a child's face to encourage the child to have eye contact — a common problem in autism. Or they'd reward children when they used words to ask for toys.

Children in the specialized group had four hours of therapist-led treatment five days a week, plus at least five hours weekly from parents.

After two years, IQ increased an average of almost 18 points in the specialized group, versus seven points in the others. Language skills also improved more in the specialized group. Almost 30 percent in the specialized group were re-diagnosed with a less severe form of autism after two years, versus 5 percent of the others. No children were considered "cured.

Ashton Faller of Everett, Wash., got specialized treatment, starting at age 2.

"He had no verbal speech whatsoever, no eye contact, he was very withdrawn," recalled his mother, Lisa Faller.

Within two years, Ashton had made "amazing" gains, she said. Now almost 6, he's in a normal kindergarten class, and though he still has mild delays in social skills, people have a hard time believing he is autistic, Faller said.

The treatment is expensive; participants didn't pay, but it can cost $50,000 a year, Dawson said. Some states require insurers to cover such costs, and Autism Speaks is working to expand those laws.

MSNBC Mental Health News

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Posted in: therapy

International Autism Conference to focus on the Science of Autism

International Autism Conference will gather 16 medical experts all over the world who will present the most current research, knowledge, information, diagnosis, assessment, treatments and policies surrounding ASD in support of people under the spectrum and their families.

Thirteen of the 16 doctors presenting in the conference are leading experts from the Medical Investigation of Neurodevelopmental Disorders Institute of the University of California Davis (MIND Institute), an international, multidisciplinary research organization based in Sacramento, California.

Included in the agenda of the three-day conference are infrequently, if not never-before discussed topics such as the Genetics of Autism, the Neurobiology of Autism, the Epidemiology of Autism, Social and Neurocognitive Development in Autism, as well as Identification and Pursuance of Scientific Research to address the needs of Autism in the Philippines where about half-a-million Filipinos are diagnosed to be afflicted by the disease.

More topics will be discussed by the MIND doctors including Medical Interventions for Autism of All Ages, Play and Imagination in Children with Autism: Guiding Social Experiences with Peers, Training on the Use of ADOS, and Diagnosis and Evidence-based Treatment of Adolescents with Autism, among other topics.

Three experts from Autism Speaks USA will also join the 13 experts from MIND Institute in the conference to discuss the Identification and Pursuance of Scientific Research to Address the Needs of Autism in the Philippines.

According to Autism Hearts Philippines Executive Director Christine Roa, “Concerned individuals including health practitioners and teachers from all over the world will definitely find their participation greatly beneficial as the conference will help them understand the many facets of the disorder to be able to better assist their family, friends and acquaintances suffering from the developmental disorder.”

The conference will be held in Philippine International Convention Center on February 3-5, 2010. It will also mark the start of the New York-based autism advocacy group Autism Speaks’ Global Autism Public Health Initiative in the Philippines (GAPH), which is dedicated to service delivery and research collaboration on Autism.

“The conference will mark the beginning of united efforts to create change in the lives of people with Autism. We enjoin all Filipinos especially families living with autism to support our advocacy by registering their participation in the International Autism Conference,” said Roa.

For more information and online registration, please log on to www.iacphil.com or email info@iacphil.com, or call +(632) 819-3724 or +(632) 818-9926.

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Posted in: awareness,conference

Bad Taste in the Mouth

To Whom it May Concern:

I felt the recent interview left a very bad taste in the mouth of everybody particularly for those parents or relatives with special children, autistic cases in particular.

A Bad Taste in the Mouth

It should have been delivered in a much nicer way without offending somebody else.

Likewise, Noynoy’s remarks was really absurd when he said that over the years of his dealings with everybody including the media, he said that he is a person with sense and hindi walang kwenta. This remarks alone meant to disgrace autistic children.

He could have replied in a more tamed manner with great emphasis of respect to those special children.

Likewise, Ted Failon and other newscasters of ABS-CBN should refrain from using autistic to degrade somebody else.

I hope a public apology shall be given out immediately by the entire management of ABS-CBN to rectify such uncalled for remarks.

A lot of people including myself are not happy.

Thank you.

Albert L. Briones

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Posted in: 4parents,4public,awareness