The Autism Society Philippines (ASP) is a national, non-profit organization dedicated to the well-being of persons on the autism spectrum disorder. We envision a society where Filipinos on the spectrum become the best of their potentials -- self-reliant, independent, productive, socially-accepted citizens of an Autism-OK Philippines.

25 June 2010

PWA Author, Eric Chen, fan of ASP

By: Tiffany Tan, ASP Board Secretary

Eric Chen, person with autism and author of three books writes to ASP after we featured two articles about him on the blog. He also donated his latest book, Star Child on Earth to the ASP Library.

Click here and here to read previous posts on Eric.

Below is his email addressed to ASP National VP, Peng So.

Dear Peng,

Salamat sa writing to me and for writing the blog entries about me. I am glad that you like my book. Just to clarify a few points:

- I met almost all my Pinoy friends during my stay in Macau (while doing autism work full-time for almost a year) and still have very few friends in Singapore.

- I started learning Tagalog to get closer to my friends. I learnt many things that are extensions of my own Chinese culture: pakikisama, utang ng loob, hiya, family relations etc. As I lived with them in Macau, I witnessed many of their struggles and developed much respect for the OFWs who left behind their families to work in a foreign land.

- I did not really "lose" my job, but I quit to study psychology in 2 local universities, but they both rejected me. Hence, I am taking the second job both to please my mother and to raise money to study Waldorf Education in Australia in 2012.

I look forward to sharing at ASP someday when I visit my friends in the Philippines.
Ingat,
Eric

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ASP continues to defy misconceptions that people with autism have social impairments. Keep reading ASP news, stories and features and help spread autism awareness. Log on to ASP Community Website or email us at autismphils@gmail.com or call 7-903-5496.

24 June 2010

A “Normal” Autism Day

By: Pinky O. Cuaycong

Things are quiet here at home. When Alex is at school and my husband is at work, the pace of the household changes and almost slows down to a grinding halt. Alphonse stays in his “schoolhouse” for the better part of the day, working with his teachers, while I pop in every now and then to check on him. Some afternoons, he takes a nap in the house; most days, he simply runs and play till it’s time to go back to work again. Day in and day out, the rhythm of the household stays the same and while it can be comforting, sometimes, it can also be too quiet.

I don’t miss the drama of the old days, though, when whole days were spent quieting tantrums or getting over painfully aggressive episodes. I’m grateful that Alphonse has calmed down to a considerable measure, and that even in his angriest or saddest moments, he has gained control of his emotions and actions. Of course, there are moments when he still fills the entire house with his howls and cries. When Alphonse cries, he cries with his whole heart and soul, pouring every bit of pain and sorrow into his waterfall of tears and his howls of anguish.

Thankfully, there are more happy moments in this home now. We revel and take pleasure in each and every one of them. Alphonse’s joy at even the simplest things- a squirt bottle cap, hello kitty dolls, a kiss- reminds us that nothing should ever be taken for granted. Not the smiles that he willingly shares with us each day. Not the sloppy kisses that wake us up each morning and send us off to dreamland every night. Alphonse has taught us that everything is perfect, even in his imperfect world.

This is our normal autism day.

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Pinky Cuaycong is Kittymama, full time mom of two boys (a 16-year-old high school junior and a 14-year-old with profound autism), part-time writer, and blogger. In Okasaneko Chronicles, she writes about her life’s deepest passions: her husband of 18 years, her teenage sons, autism advocacy, and Hello Kitty.

ASP Angels for Autism Merchandise

Helps spread autism awareness and fund ASP programs, services and activities. Be an Angel for Autism. Grab one now.

Awiting Para sa Autismo

A pen and tissue paper during a hot day under the tree and one thing led to another.

“This CD is just inspiration and the urge to share my experiences. Dedicated to special children whose challenges leave me in awe; also to parents, families, therapists, doctors and all members of the therapy team who serve as pillars of the entire program for our children with autism,” says ASP Board Member Gina Bermudo, mom to Niko and Xandi, both with autism. Click here to know more

Spinning

Explain autism to young children through this amazing and easy to understand colorful book. Click here to know more.

What Music Therapy did to George
Experiences of a Music Therapist with Special People by Celeste S. Sanchez.

Journeys with My Autistic Son
By Fanny A. Garcia. The English translation of Erick Slumbook: Paglalakbay Kasama ang Anak kong Autistic. Winner of the 2004 National Book Award for Autobiography and the 2005 St. Miguel Febres Cordero Research Awards Outstanding Book (De la Salle University-Manila).

Playing on Parallel Ground CD
Sparkle Band now playing on CD. The sensational pop band composed of teens with autism now has an album. Grab one now. Click here to read up on SPARKLE Band

Our Andrei: Living with Autism
Be moved by a Filipino family’s difficulties and successes in addressing autism in one of its members. Click here to read more about “Our Andrei”.

All-Season Cards
Express your thoughts, share your emotions by this all-time season cards that was created/ made by an Autism Angel to help ASP to spread awareness on autism.






Be an Angel for Autism. Grab one now. Help spread autism awareness and fund ASP programs, services and activities. To order email us at autismphil@pldtdsl.net or call us at 7-903-5496. You may also visit our community website for other updates on ASP.

23 June 2010

Basketball heroes for players with autism

By: Dang Koe, ASP Chair Emeritus

I cried when I saw in 2006 on YouTube the winning moments of American Jason McElwain.

To stay near the sport he loves, Jason, or J-Mac, signed on as “manager” during his junior varsity. He took up the same role for his senior varsity team — fetching them water, toweling their sweat. Amazed at his dedication, his coach had him suit up for the final home game of the season.

J-Mac entered with four minutes to go. It was his first and only appearance for his varsity team. He hit six 3-point shots and a 2-pointer. Spectators from both teams went in frenzy applauding him. After the final buzzer rang, the crowd dashed onto the court in celebration and J-Mac was carried off the court on his teammates’ shoulders.

Jason made national news and became a hero for autism.

Parents from ASP Diliman Chapter dream that one day their children will be given the same opportunities as Jason - to play basketball.

So in April this year, the chapter spearheaded their own version of a basketball clinic. They tapped three incoming junior Education students and varsity players from the University of Sto.Tomas — Coaches Carl Valera, Tim Angob, and JC Cochon — who took up the challenge: Here is their basketball story as gathered by Angel Talker Tiffany Tan.


the Yellow and Blue Team consist of PWA players together
with their coaches during their Basketball Clinic

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Sports programs are the in- thing to do during summer vacations. For families of children with autism, joining a regular sports clinic will be quite difficult, said ASP Diliman chapter president, Jo Palomares.

Coach Carl, brother to Rupert who has autism, recalls how he came to be one of the coaches of ASP Diliman’s basketball clinic:

“Rupert failed to do his assignment in school. When his teacher asked why, he said he was playing basketball with a friend. Our family laughed over this since we knew that Rupert does not know how to play basketball. But when mom broached the subject of me coaching Rupert and his friends, I readily agreed.”

“I did not grasp the enormity of this responsibility until I saw them on the first day. There were six boys with autism who signed up for the basketball clinic. We were stumped on how to teach them. But my desire to transfer the love of the game to these boys won me over,” continued Carl.

Coaches Tim and JC later joined Coach Carl.

EXPLAIN THE CONCEPT OF BASKETBALL FOR CHILDREN WITH AUTISM.

Coach Carl: Most people often think of basketball as just shooting the ball into the ring. This is true, but there are also important skills involved, like dribbling or passing the ball; there’s also offense and defense.

Our goal is to teach these fundamental skills and the rules of basketball in the simplest manner. Basketball is a complex game that requires split-second reaction, non-verbal communication, sharp instincts and team play.

Coaches Tim and JC: Basketball lets them communicate, interact and cooperate with one another. It gives them the opportunity to socialize with others.

Basketball also enriches them physically.

Through the exercises, their bodies become physically fit; like having a workout. While working on skills that relate to body movements; they are also having fun.

HOW DID YOU GET THEIR ATTENTION AND FOCUS?

Coach Carl: First, we had to establish our authority in court. We were quite overwhelmed with the different characteristics they had, and some can be quite manipulative.

Second was “how to get the kids’ attention.

I noticed they were all thrilled to get their individual balls. I hit upon the idea of making them sit down.

We made them line up, then we made them sit down on their basketballs. Eureka! Their attention was ours! The concentration needed to balance on their basketballs was enough for them to stop fidgeting.

Coach Tim: We called them by name and gave them direct instructions. It was hard to sustain their focus, so we just did the routines repeatedly until they can do it.

Coach JC: The stretching exercises also helped them achieve more focus. Running around the court made them lose some excess energy, made it somehow easier for us to give lectures.

HOW DID YOU MENTOR THE PLAYERS WITH AUTISM?

Coach Carl: Children with autism thrive on structure, so we set up a two-hour schedule daily on a 13-week session.

Day 1, Orientation. The boys were excited to have their basketballs. For some, it was the first time they held one. Some of the boys were partially verbal. We asked for their names, interacted with them. We tried to give them a feel of how things were going to be the entire summer and tried to inject excitement for the coming days.

Day 2 and 3, Dribbling. We demonstrated dribbling in place, then using the right hand and then the left hand. Then we practiced dribbling with them in place and so on. Mom Resy Benoza said she saw better eye-hand coordination on her son who could dribble a ball without losing his balance. He learned how to dribble, doing it inside the house and even the bedroom just to show off.

Day 4 and 5, Passes. We taught the boys three kinds of passes: overhead pass, bounce pass and chest pass. We were amazed when the CWAs picked-up the skills and even memorized them.

Day 6 and 7, Techniques on Shooting.

Paul, who was fixated on basketball, immediately practiced his fine shooting skills on the first meeting. We trained him with drills.

“Paul was five years old when he started to watch the PBA, NBA and the re-runs of the UAAP basketball. ASP Diliman’s summer basketball activity was perfect for him and his peers. Paul learned to play with other kids. Because of his intense desire to shoot the ball and regular practice, his shoulder muscles developed and grew strong. Paul was awarded the medal “Shooting King!” It definitely made my heart soar!” said mom Odette Goze Day 8 and 9, Basic Defense. The kids were divided into pairs. It naturally followed that if one is doing defense, then the other is doing offense.

The first lessons were always the hardest. We would demonstrate a particular skill and guide them to do it. Constant practice made perfect. The boys joyfully discovered their bodily capabilities.

The warm-up exercises and running around the court were rituals they grew to like. It broke the ice among the boys and us.

We structured the drills like a two-hour kindergarten class. There was a circle time (9:00-9:15) for the warm-up exercises. The boys shouted out their numbers (9:15-9:30) running around the court/jogging; (9:30-9:50) stretching exercises; (9:50-10:10) drills followed by a 10 minute break.

Drills, lesson proper, and practices (10:20-10:50). Twenty minutes before class ended was cooling down time. (10:50-11:00). We ended each schedule with circle time, put our hands together as a team, then say prayers. We taught the boys to greet each other with a high five and give the Team Shout!

And lastly, Mastery of Skills. For the 13 sessions, we divided the skills into two days each, from the simplest to the most complex. We taught them mastery for one skill before moving on to the next. We simplified the activities and aimed for mastery first before team play.

We personally exerted extra patience in dealing with them. We took it one skill at a time. We would lecture briefly on each skill before introducing it. From then on, it was their turn for demonstration.

SINCE BASKETBALL IS A SOCIAL SPORT, HOW DID YOU TIE THE SPORT AND SOCIALIZATION CONCERNS OF THE PWAS?

Coach Carl: The clinic is like a play therapy, in a group setting. A child’s maladaptive behavior is corrected within the context of play, in a non-threatening, unobtrusive manner.

We got discouraged sometimes because it’s so hard to get our message across. It seemed like they were not listening. But we kept on. Later, we realized they were actually listening to us. Sometimes my co-coaches will give a one-on- one demonstration to a student. We also made sure that we really talk to them regularly, and personally.

Coach Tim: Actually it’s really challenging for us to teach them, but by being firm and encouraging them to learn the basic principles and rules, socialization concerns were addressed.

Coach JC: Basketball requires the players to communicate with one another. Before training, we made the students talk to each other to build camaraderie among them. In “Passing the Ball” for example, we divided them into triads. Each person in the triad called out the name of person he will pass the ball to. We did this drill repeatedly until they got faster with it. It may seem like a very simple drill, but it required the player to be constantly aware or else he will not catch the ball.

WHAT ARE YOUR MOST CHALLENGING EXPERIENCES IN HANDLING CWAS AND HOW DID YOU ADDDDRESS THIS?

“Our coaches, they got bitten and scratched during tantrums. But they kept going for six weeks, until their “wards” can throw their shots inside the basket,” attested mom Resy Benoza.

Coach Tim: Remain at ease, calm, and patient at all times. Even if they have tantrums to the point they were hurting us, we must still stay focused and not stop teaching them the things they need to learn. We know that this can really help them improve to become better individuals.

Coach JC: When we had a hard time disciplining a student or making him stop doing an undesirable behavior; what we did was talk to the student at different times so he would realize that what he was doing was wrong. I think also that the child felt the team’s disapproval with his behavior. So, during the last few days, there was an improvement and he was really easier to manage.

Coach Carl: We say words like “cool down” or “keep calm” or “calm yourself” to the student, then lead the student away from the group, and let them take a rest for a while. By using very specific words like these, the student has an idea that he needs to fix himself before re-joining the group.

Tantrums can make the entire group disorganized and have low morale. The challenge is to contain the tantrum without scattering the group. I learned to really put my attention on the child without losing my focus on the group.

WHAT ARE THE VALUABLE LESSONS AND TIPS YOU CAN GIVE TO OTHER COACHES?

Coach Carl: Children with autism are God’s gifts to us. God shows His boundless creation and creativity through special children. We can help fill their needs in sportsmanship.

Through basketball, we can help them in their growth towards maturity.

Put your heart to what you are doing. You must love every second or give your all and let the students learn from you and learn from your students. And of course you should also have a ton of patience; and if that is not enough, put another ton of patience.

Coach Tim: Let your students feel that you care and love them. More important, you must love what you are doing so that you can teach them with all the capacity that you have. Never back down or give up until you know that your students DID LEARN. And when we achieve that, it’s an incomparable feeling. Teaching the boys in this basketball clinic was an awesome experience. And a plus for me in teaching this clinic is gaining new friends.

Coach JC: Basketball is a game of camaraderie, teamwork, cooperation and leadership. Through patience and perseverance, we can make them learn in a good and clean way. Every coach should at least spend quality time to teach basketball to students with autism. I was touched and inspired by the children with their willingness to learn. I believe that they have the potential someday to be good basketball players.

One of the most unforgettable moments in my teaching was when they formed their lines properly and sat on their respective basketballs; it was unforgettable because when I saw them, I knew they were really eager to learn the game. It’s hard to explain how I felt, but deep inside my heart I knew they were special to me. The moment they held the ball and began dribbling it, I can’t stop smiling inside.

Source: Manila Bulletin, June 20, 2010

ASP Laguna Chapter in AKO MISMO TV 5

WHAT: ASP Laguna Chapter Autism Resource Center's
“A Sustainable Work-Live-Play Program for Young Adults with Autism.”

WHEN: June 24, Thursday, 9:30 PM

WHERE: Watch TV 5 AKO MISMO program hosted by Chris Tiu

CLICK HERE to know more about the project

ASP Diliman Chapter’s Basket Ball Clinic Testimonials

By: Tiffany Tan, ASP Board Secretary

Younger brother Rupert needed to play basketball with his friends. He missed his homework. Teacher calls Mom Aileen. She tells story to older brother, Carl.

This gave birth to ASP Diliman’s First Basketball Clinic. Click here to read previous post.

“The only reason why I prodded my son Carl to teach our first Basketball Clinic was because I wanted him to understand his brother Rupert”, confesses Mom Aileen Valera, Treasurer of ASP Diliman Chapter. Rupert has autism.

Soon other coaches joined Carl together with other PWAs and parents. After 13 sessions, the chapter held their commencement with a Championship Program. Below are their testimonials:

Impact on Persons with Autism
“I saw better eye- hand coordination on my son, and he can dribble a ball without losing his balance. He learned how to dribble, doing it inside the house and even the bedroom just to show off. He followed instructions and waited for his turn to practice shooting. He learned the rudiments of basketball, but more importantly, he learned how to be a team player this summer” - Mom Resy Benoza

“Paul was 5 years old when he started to watch the PBA, NBA and the re-runs of the UAAP basketball. ASP Diliman's summer basketball activity was perfect for him and his peers. Paul learned to play with other kids. Because of his intense desire to shoot the ball and regular practice, his shoulder muscles developed and grew strong. Paul was awarded the medal “Shooting King!” It definitely made my heart soar!” - Mom Odette Goze

“The clinic was like a whole new world of learning for them. It taught them to be more confident of their bodies, that learning is not all books, words and numbers” – Mom Aileen Valera


ASP Diliman’s First Basketball Clinic


Impact on Parents and siblings
“For us basketball moms, the sessions were opportunities to share experiences, to brain-storm on activities, and to announce the dreaded “moving to another school”. We begin to explore while strengthening our bond of friendship.”

“While the boys focused on basketball, some of their siblings gladly, and without hesitation, took part in the championship game’s program. Macky’s Kuya, recited the invocation while Maren and Nina, younger sisters of Drix and Rupert, respectively, danced Tik Tok,” – Mom Rose Dacanay:

Impact on Chapter
“What we have achieved here is parents' dedication, support and friendship that were deeply developed and cultivated. The 'bonding' was such that we found another family in each other. These are the things that you will always treasure, memories that you will forever keep and friends that you will genuinely care for and understand. Our boys, I'm sure feel the same way. - Mom Jo Palomares, President ASP Diliman Chapter.

Basketball can be a useful tool for Persons with Autism, teaching them social skills and team sportsmanship. Click here to read ASP Diliman Chapter’s Basket Ball Heroes for Players with Autism.

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ASP continues to believe that Sharing Hope to others will help Build Dream. ASP Chapters need your support. Be an Angel for Autism. Donate now and help build dreams. Log on to ASP Community Website or email us at autismphils@gmail.com or call 7-903-5496.

Education Frustration

By: Tiffany Tan, ASP Board Secretary

“Do not allow yourself or others to be defined by your limitations but rather by your abilities. Never underestimate yourself,” said Eric Douglas Duquette as he stands before other graduates.
Frustration of a student

Eric was diagnosed with autism and his parents were told he had to be institutionalized. Defying the odds, he graduates Salutatorian and said the experts were right about the “institution” thing, which Eric meant as “institution for higher learning”.

Autism doom sayers can learn a thing or two from Eric’s experience. He attributes his success to supportive classmates and teachers who made him feel wanted as he goes to school each day - a striking contrast to some schools that still refuse to accept children with autism in their classes.

Answer for Frustrated Mom

On June 5 we received a post from a frustrated mom “I got a problem in one of the schools here. The school would not allow my child to be enrolled in the class fearing other parents would disapprove upon learning that my child has special needs.”

The frustrated mom might want to know about Magna Carta for Persons with Disabilities or RA 7277, which contains an extensive Section on Education for PWDs. Click here for more details.

According to the DepEd website, the inclusive education concept or the different types of SPED programs suited to the needs of the learners should be adopted. (Reference: DepEd Order 1997-26 or the “Institutionalization of SPED programs in all schools”).

Stakeholders may also want to know that there are existing guidelines on set by the department on Strengthening the Special Education Program at the elementary level.

Specified are provisions for development activities for children with special needs like training/workshops, camping, athletics, educational tours, plus upgrading of teachers and administrators in Special and Inclusive Education. For NCR, there are 10 divisions with 30 centers receiving the budget of more than 16 million pesos.

For the Basic Education Level the public schools implementing the SPED programs, the total allocation is more than 64 million pesos, allotted to 22 schools. The provisions include student development, leadership training and educational visits.

Ray of Hope

“We believe that our child has her own ability to adapt as normal kids do. How about my child? Where will she belong? Do we sit down here and do nothing?”

Let’s go back to Eric and remind ourselves and our children, that autism is not a hindrance to learning. Children with autism deserve every right to education, as do their neuro-typical counterparts; and being autistic doesn’t mean they are incapable of being schooled in the mainstream.

Click here to watch his inspirational speech. Hope this helps. Please share this article to those who might benefit.

(Sources: DepEd , ABC News, You Tube)

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ASP believes that children with autism will thrive, given the right support and a nurturing environment of encouragement and acceptance. We also believe that parents and caregivers should be informed about the existing provisions accorded to their children. Be an Angel for Autism. Be equipped about PWD rights. Visit our ASP Community Website or email us at autismphils@gmail.com. You can also get in touch with us at tel. no. 7-903-5496.

22 June 2010

ASP Intensifies Chapters in Bicol

ASP intensifies its campaign for autism awareness around the country, this time, in the Bicol Region. With the mission of empowering ASP Chapters, ASP Executive Director Ranil Sorongon visited Legazpi, Naga and Iriga Cities.

First stop, Legaspi City. Click here to read more on the ASP Legaspi Chapter visit.

“Visits like this are physically tiring to the body,” confesses Ranil. “...but emotionally and spiritually enriching. In these rare moments, one will realize, that actions, no matter how little, continue to provide a ray of hope to families affected with autism,” he concludes.

Second stop, Naga City. Last June 13, newly elected ASP Naga Chapter President Niña Sibulo welcomed Ranil together with Vizmyla Briones (Teacher Myla) of Lance Yuri Kid’s Spot Center. Mrs. Sibulo and the teachers and staff of the school were updated on the recent plans of the national office and the activities for 2010.

ASP Executive Director Ranil Sorongon with ASP Naga Chapter
and Lance Yuri Kid's Spot Center Representatives

Last month, ASP Naga Chapter conducted a two day seminar at St. Joseph School Click here to read more.

For the National Disability Prevention and Rehabilitation (NDPR) Week (July 17-23) Celebrations, the chapter plans to conduct a forum on the PWD Laws. They also plan to show the first digital documentary on autism, “Alyana –A Study of Autism in the Philippines” this coming September to raise funds for the chapter.

Teacher Myla and the officers of ASP Naga, also signified to assist in organizing another chapter in Daet, Camarines Norte.

Third stop, Iriga City. Last June 14, ASP Iriga Chapter’s first lady, Mrs. Segundina Buena and social worker, Mrs. Cyril Gonzales welcomed Ranil at the newly built Bicol Development and Learning Center Foundation.

ASP Executive Director Ranil Sorongon with Iriga Chapter Representatives

The two ladies shared the difficulties of sustaining the activities and the enthusiasm of chapter members. Ranil gave some inputs on how to revitalize the chapter by conducting regular activities that will involve the whole family and tapping the local Department of Social Welfare and Development Office for possible assistance to children with autism and their families.

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ASP continues to work hard, weather storms, cross the rivers and hurdle mountains in spreading autism awareness across the country. Help ASP Chapters expand programs and services. Donate to ASP. The time is now! Log on to ASP Community Website. Email us at autismphils@gmail.com or call us 7-903-5496.

RCDA-NCR Conducts Lecture on PWD Laws

As part of its capacity building program to empower its members, the Regional Council on Disability Affairs- National Capital Region (RCDA-NCR) conducted a lecture on the Laws on Persons with Disabilities, last June 11, 2010 at the Quality Life Discoveries Building, Cubao, Quezon City.

The activity was the first in the series of lectures under the Committee on Education wherein ASP Executive Director Ranil Sorongon is a member. RCDA-NCR is headed by DSWD-NCR Regional Director Thelsa Biolena as Chair and Mr. Ranil Sorongon of ASP as Vice Chair.

RCDA-NCR conducted a lecture on the Laws on Persons with Disabilities

Mrs. Ruth Tacujan, Regional Coordinator of the National Council on Disability Affairs (NCDA) explained the provisions of the Republic Act 9442 (or the amended Republic Act 7222, Magna Carta for Persons with Disabilities). She gave more focus on the privileges of PWDs.

Frustration can lead to Indignation

The Philippines has a lot of PWD laws, but sad to say, claimholders are not familiar of these laws. Even more so, some establishments continue to be reluctant in the providing these services, or open disregard to existing provisions.

Atty. Minerva Ambrosio, the Legal Retainer of DSWD-NCR discussed the salient points of RA 7277 and RA 9442; the Batas Pambansa 344 (Accessibility Law), plus other pertinent laws for persons with disabilities.

The PWD sector is planning to file a case against drug retailers who refuse to honor the 20% discounts on medicines due to PWDS. Click here to to read more about the issue.

Atty. Ambrosio gave a very comprehensive lecture on the “step by step process” on how to file cases against violators. Afterwards, a very lively open forum followed with LGUs, NGOs and PWD organization participants throwing relevant questions to the attorney. Others eagerly listened and took down notes of her answers.

Special thanks to Mrs. Mary Ann Cua of Quality Life Discoveries (QLD) for hosting the meeting.

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ASP believes that claimholders should be educated on their rights and privileges. We continue to work hard keeping you posted on the latest news on PWD laws. Email us at autismphils@gmail.com or visit our ASP Community Website, or call us 7-903-5496.

Paalam KOEpitan Joe

Autism Society Philippines mourns the loss of our beloved Joe Koe, husband of Chair Emeritus, Erlinda “Dang” Koe.

Jose Koe

Joe passed away peacefully in Guangzhou, China after battling with cancer 3 months ago.

An ardent advocate for autism, Joe preferred to be out of the limelight.

We will miss Papa Joe. We will remember his laughter and gentle spirit.

Our deepest sympathy for the bereaved family.

Dang, and her three children, Gio, Hanzi and Chinoy.

Joe Koe was cremated June 23, 2010 in China.

Joe Koe was laid to rest on June 29, 2010 at The Sanctuarium, Quezon City

Note: This is an updated post on Huling Paglalakbay ni KOEpitan Joe

18 June 2010

ASP National President interviewed on NBN 4’s At Your Service

By Catherine Genovia, ASP Program Assistant

ASP National President Grace Adviento was a special guest to NBN Channel 4’s @ Your Serbis (At Your Service) on 17 June 2010.

NBN or the National Broadcasting Network is a government owned TV Station. Hosts William Thio and Atty. Marc Castrodes interviewed Grace during the 30 minute program about autism and the programs and services of ASP.

ASP National President Grace Adviento during the interview "@ ur serbis"

As head of the Public Information Committee, Grace believes that TV is a good source of information for parents or caregivers on autism. “Autism is not a disease but a condition that affects an estimated 500,000 Filipinos and only about two percent of them are given appropriate care,” she said.

Grace with son, Adrian

Grace also explained the different signs and symptoms of autism. She emphasized that early detection and early intervention is crucial for her son Andrian, who now studies in Grade Two. She also told televiewers in case they suspect a child to have autism, to seek a licensed medical professional, such as developmental pediatricians.

To keep parents or caregivers informed on the latest research and interventions for autism, she also invited the televiewers to the upcoming whole day seminar-workshop on The Big Picture: Children CONNECTING to Life Experiences on June 26, 2010. Click here for more details.

Acknowledgements: NBN’s @ Ur Serbis Staff and Hosts William Thio and Atty. Castrodes.

ASP believes that an informed public is an educated public. Autism is not a tragedy, but ignorance is. To request an Autism Orientation in your schools or organizations, call us at 7-903-5496 or email us at autismphils@gmail.com.

ASP Legaspi Chapter dominated by Fathers

ASP expands its wings to the home of the majestic Mayon Volcano, in Legaspi City Albay; with the mission of empowering parents, professionals and students to advocate for the rights and welfare of persons with autism.

Last June 12, ASP Executive Director Ranil Sorongon answers the call of the invitation of Teacher Abe Reblora to an orientation about ASP’s programs and services, the rights and benefits, duties and responsibilities of members, and how to organize a chapter.

ASP Executive Director during the orientation about ASP's program and services

He also briefed the participants on the laws on PWDs like the UN Convention on the Rights of Persons with Disabilities (UNCRPD), the Magna Carta for PWDs or the Republic Act 9442 and its amendments. He focused on the benefits, especially the PWD discounts accorded by the law.

An open forum followed after the orientation to clarify a lot of issues and concerns. Since everyone was there, the group then decided to conduct an election to choose the interim officers.

“For the first time in ASP’s history, more fathers attended the orientation than mothers. This shows a positive involvement of men in the chapter, and the good news is, this time more fathers were also elected as officers,” reported Ranil. (ASP National and ASP Chapter officers are mostly estrogen dominated).

ASP Legaspi City Chapter is headed by Mr. Nelson Ibarra, a father of a child with autism. Teacher Abe Reblora was elected as the Secretary. The group will schedule a PWD Laws Forum as the initial activity and formalize the chapter with the induction of officers during the celebration of the National Disability Prevention and Rehabilitation Week.

Acknowledgments: Teacher Abe Reblora of Sun Beam Therapy and Learning Center of Legazpi City for initiating the Chapter Organization and hosting the event.

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ASP continues to work hard building new chapters to address the growing needs of families of children with autism. Be an Angel for Autism. Donate to ASP Chapters. Log on to ASP Community Website. Email us at autismphils@gmail.com or call 7-903-5496.

ASP links with DSWD Region V Representative

ASP Executive Director Ranil Sorongon took the opportunity to schedule a meeting with Mr. Sammie Buenconsejo, Social Welfare Assistant of DSWD Region V.

“After the Chapter Organization in Legaspi, I wanted to meet with Sammie to maximize my visit going there,” informs Ranil. Click here to read more about the visit. Both had met previously during the KAMPI National Conference last May 31.

“Education should start from the barangay level and the parents should not hide their children with disabilities, but rather encourage them to seek for assistance from the LGUs, especially with the RA 9442 already signed into law,” said Mr. Buenconsejo during a short interview with ASP Board Secretary, Tiffany Tan at the KAMPI conference.

He was referring to the culture and mindset of some kababayans who are still hesitant to bring out their children with disabilities for the fear of being ridiculed or judged as “cursed”. “A good preventive measure would be to educate the children in schools about respecting persons with disabilities,” continued Buenconsejo.

Meeting with ASP Legaspi Chapter Leaders

(L-R) Sammie Buenconsejo, Ranil Sorongon, Abel Reblora and Nelson Ibarra

Mr. Buenconsejo is a PWD himself and travels around the region, and just came from a speaking engagement in Catanduanes, an island province of Region V. He was very accommodating to include in his itinerary the meeting with the newly elected ASP Legazpi City Chapter officers.

Mr. Sorongon introduced Teacher Abe Reblora and Mr. Nelson Ibarra to Mr. Buenconsejo during their meeting at the newly constructed Embarcadero Mall last June 12. Mr. Buenconsejo provided the group with the disability situationer in Region V. He offered the group guidance and DSWD assistance to the new chapter.

Teacher Abe and Nelson on the other hand, shared to him the objectives of the chapter and brought to his attention the lack of information of parents and professionals regarding the programs and services of the government for PWDs. Both parties agreed to support each other to advocate for the rights and welfare of persons with autism.

ASP Legazpi City Chapter will invite Mr. Buenconsejo to be the resource speaker on the coming “Forum on PWD Laws” this coming July in celebration of the National Disability Prevention and Rehabilitation Week-a very welcome partnership between the government and a parent support organization.

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ASP believes that NGO and LGU partnership ensures success of meeting the needs of people with autism and their families. Be an Angel for Autism. Support ASP Chapters by donating to ASP programs and services. Log on to ASP Community Website. Email us at autismphils@gmail.com or call 7-903-5496.

17 June 2010

Jet Li Plays Father to Autistic Son in Ocean Heaven

By: Tiffany Tan, ASP Board Secretary

Action star Jet Li sheds his kung fu robe to play father to a 22 year old autistic son in a non-mainstream, low-budget Chinese language production, Ocean Heaven.

father and son (Jet Li and Wen Zhang) are sitting on a dilapidated wooden boat

Jet Li admits to crying a lot after reading the script. He also revealed having a nephew with autism, who withdrew himself for nine months before stepping out of darkness, after constant family support and encouragement. The incident made him realize how important it is to offer attention and care to those who are affected.

from the Chinese drama film "Ocean Heaven", starring Jet Li and Wen Zhang

"This film shows that filmmakers have a responsibility to do something for society. If we can raise people's awareness of the issue of autistic children and their parents, that's enough." said Jet Li.

Jet Li was named TIME magazine’s 2010 Most Influential People, along with Temple Grandin.

Ocean Heaven is expected to open at the end of June. Click here to watch trailer with English subtitles.

Sources: YouTube, China Daily, Press Association

Bonding moments while advocating for Adrian

Glenn Adviento with son, Adrian

Glenn Adviento, ASP National’s First Gentleman is no stranger to ASP programs and activities. He remains steadfast in advocating for his son Adrian and gives his all out support to wife Grace, ASP National President. He also writes for the ASaP e-news.

“We wear t-shirts or buttons to let people around us know that someone in our family has autism. It has always resulted in a positive reaction from people instead of a negative one when our son would have tantrums, no matter where we are.”

Like Glenn, be a proud father to your child with autism. Happy Father’s Day. Send us your stories and email us at autismphils@gmail.com.

A Father's Love Conquers All

Mr. Evert Malapad and Mae Mae

An inspiring story of a father’s love and sacrifice for his daughter with autism.

Mae Mae was diagnosed with autism at age 2½ years old. Evert and Apple were shocked to hear from what was being said by the doctor. They sought a second opinion about their daughter’s condition. The verdict was the same.

Knowing only a little information on autism, both parents sought help by attending ASP’s Family Support Group in Quezon City.

Addressing Mae-Mae’s schooling and therapy needs took a toll on the family budget for the next four years. “One Christmas, we had to forgo upgrading our cellphones and buying new clothes. We were able to save some money for her therapy,” Evert shared. They resolved to make her a priority by adjusting their expenditures.

Drastic move
Mae-Mae’s progress was quite slow after assessed the doctor during another visit. To help her catch up, a tailor-made home program was recommended for her in conjunction with the therapies she is undergoing.

“How do I go from being in car repairs to teaching a special child? In my mind are specifics of car spare parts. Now, the challenge is how to teach my daughter to identify the color red.”

Evert then, was working as a senior technician and managing two auto repair shops; while supervising other 5 skilled technicians. On top of the situation, their house hold helper left after staying only with them for three months. To hire another one will take so much time and effort in training. The decision didn’t take long for Evert to make. He quit his high paying job abroad to concentrate on Mae-Mae.

“Those three months were the toughest. It was a huge struggle for me, but I knew I had to equip myself to meet her needs. I started attending ASP seminars every month. I gained techniques and strategies for Mae-Mae’s home program.“

According to Evert, the implementation constituted a lot of determination and sacrifice. Within two years, they provided her with six programs.

Life Endangered
One of the six programs for Mae-Mae was community integration. The family wanted to include Mae-Mae in their Sunday Worship. Evert decided to have a desensitization program for her. So he prepared Mae-Mae, and drove to the nearby church to make her get familiarized with the church surroundings.

“When Mae-Mae started having tantrums, I quickly carried her to the car. The incident almost cost me my life, when a subdivision security guard was about to grab his service pistol to stop me. He thought that I was a kidnapper! Whew!”

Shifting Gears
Three years went by and Mae-Mae showed a remarkable improvement in her behavior, communication and social skills. “I learned to be patient and consistent. And the whole experience of implementing the programs not only benefited me, but the whole family.”

Evert shifted his gears from car repairs to writing his masteral thesis in Special Education. He presently handles an adult special needs program in a special school in Las Piñas. On top of his new carrier, Evert Malapad serves as President of ASP Metro-South and ASP National Trustee.

“Mae-Mae became a teacher to us. If not for her, we will not be advocates of special children. We would not have become trainers to other parents of children with autism. Mae-Mae brings us to many places – to lectures, to share and bring hope to other parents. And more importantly, Mae-Mae has taught us- love conquers all.”

Happy Father’s Day!

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ASP honors all fathers of children with autism. Be an Angel for Autism this Father’s Day. Send us your stories. Email us at autismphils@gmail.com or visit our community site, or call us 7-903-5496.

11 June 2010

ASP explores partnership with Asian Hospital & Medical Center

Exploring other alternative avenues for the rehabilitation and therapeutic needs of children with autism, ASP responds to an invitation by Asian Hospital and Medical Center, Alabang last June 3, 2010.

ASP Trustee, Gina Bermudo and Executive Director, Ranil Sorongon met with Mr. Jun Amistoso, the Director of Marketing and Business Development; and Mr. Julius Joseph “Josh” Ablis, Manager of the Rehabilitation Department.

The group reported on the present available services for persons with disabilities and expressed their desire to be updated on autism, the present programs and services available, and how to link with families affected with autism.

Gina, a mother of two adolescent boys with autism, shared her excitement after knowing that the hospital’s plans to expand to alternative and biomedical treatment for autism in the near future. She also gave some inputs on how to improve the services to respond to the needs of persons with autism and their families.

ASP Executive Director Ranil Sorongon (2nd from left) and ASP Trustee Gina Bermudo
(2nd from right) with Asian Hospital and Medical Center Representatives

Ranil updated the group on the situation of autism in the country and also shared some information on disability as the Vice Chairman of the Regional Council on Disability Affairs of the National Capital Region (RCDA-NCR) and Head of the Education Committee of the National Anti-Poverty Commission, Person with Disability Sector (NAPC-PWD).

ASP signified its willingness to support the project. The group initially agreed to partner in conducting a Lay Forum at the conference room of Asian Hospital this coming 3rd week of July in celebration of the National Disability Prevention and Rehabilitation Week.

After the meeting, the ASP group was given a tour around the Rehabilitation Medicine Department courtesy of Mr. Josh Ablis. As a Physical Therapist, he gave them a short orientation of the different facilities and equipment.

The hospital will use a multidisciplinary approach and holistic treatment for children with autism and will take an active and aggressive participation to address the needs of children with neurodevelopmental and behavioural conditions.

ASP would like to thank Mr. Josh Ablis for initiating this partnership and Ms. Thess Cristobal, Business Development Manager for the invitation and the warm welcome.

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ASP continues to work hard for the future of the children with autism. Help expand ASP programs and services. Be an Angel for Autism. The time is now! Log on to ASP Community Website. Email us at autismphils@gmail.com or call us 7-903-5496.

June 26 Seminar-Workshop

The Big Picture: Children CONNECTING to Life Experiences
9:00-12:00pm ; 1:30-4:30pm

How do we decide what behaviors or skills we need to teach? What do we do when a child is already exhibiting a behavior that may be inappropriate or inadequate?

Behaviorism is the examination of human and animal behavior using the principles of science: observation, reproduction, testing, objectivity, etc. Applied behavior analysis, then, is the application of this science of behavior to meet a certain end: to increase or decrease a particular behavior, to improve the quality of a behavior, to stop an old behavior, or teach a new.

Often, our goal isn't only to teach a new behavior, but rather to replace a behavior that a child is already exhibiting, a behavior that is either inappropriate or inadequate in meeting the child's needs. To do that, though, we need to analyze the current behavior to determine why the child is using that behavior. We do this through a functional behavior analysis.

This seminar-workshop aims to “connect” the participants’ knowledge and understanding of behavioral strategies to children and their life experiences.

Ms. Anna Romualdez is the Program Director of A Child Can Foundation, Inc. She graduated from Boston College with a Bachelors Degree and a Masters Degree in Early Childhood and Special Education. She also received a second Masters Degree in Instructional Practice and Curriculum Theory and her doctorate in Administration and Supervision in Special Education from Teachers College, Columbia University.

Ms. Sharon May Marasigan is a Case Manager of A Child Can Foundation Inc. She graduated from St. Scholastica’s College with a Bachelors Degree in Psychology. She earned her Masters Degree in SpecialEducation from Pamantasang Lungsod ng Maynila.

Ms. Marie Monica Lerma is a Case Manager of A Child Can Foundation, Inc. She graduated from Ateneo de Manila University with a Bachelors Degree in Psychology. She obtained her Masters Degree in Developmental Psychology from Ateneo de Manila University.








Registration Fees:

Pre-Reg until June 23
Member: P800
Non-Member P1,000

On-site:
Member: P1,000
Non-Member: P1,200

VENUE: Quality Life Discoveries Building, #70, 20th Avenue Project 4, Quezon City
SEMINAR FEE is inclusive of certificate, handouts and 2 snacks

ASP conducts 1st Autism Awareness Seminar in Festival Supermall

ASP conducts its first Autism Awareness Seminar at the Expo Center, 4th floor of Festival Supermall at Filinvest Corporate City, Alabang, last June 3, 2010. The seminar was attended by more than 250 employees, mostly supervisors, front liners and security guards, assigned to the malls and the entire Filinvest Corporate City.

The Seminar is in line with ASP’s vision of evoking positive acceptance of Persons with Autism (PWA). ASP Trustee, Gina Bermudo and ASP Executive Director, Ranil Sorongon responds to the mall’s invitation.

Participants during the Autism Orientation

Gina, the only resource speaker of the seminar, shared the lengthy process of preparation that her family goes through, before going to the mall. Children with autism can be highly manageable, given the proper training, she emphasized.

Using ASP’s eye catching Power Point Presentation, Gina gave a short discussion on the autism symptoms, behaviors and impairments; but highlighted on the uniqueness of persons with autism-showcasing their skills and talents.

She said if the CWAs are given the right opportunities and their potentials maximized, they can become useful members of society.

Gina devised an activity patterned after a local TV game show which became an instant hit with the participants. The aim was to make the activity interactive. It included useful tools and guidelines in how to deal with PWAs during difficult situations or circumstances.

The success of the First Autism Awareness Seminar is attributed to the efforts of Ms. Rose Nuqui, Commercial Center Operations Retail Head; Ms. Wanda Antonio, Operations Manager for their initiatives in spearheading the campaign for Autism Awareness.

A special thanks to Blooey Singson, PR executive/writer for coordinating with ASP regarding this project. For Mica Porlahe, Marketing Assistant and Cherry Apple Lim, Operations Staff for their patience and understanding during the material gathering.

As malls have become an integral part in the lives of Pinoys, ASP continues to build on that dream that Festival Supermalls, too will support future ASP activities, Maraming Salamat at Mabuhay Kayo!

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ASP continues to work hard for the future of families of children with autism. To request an Autism Awareness Orientation in your companies or organizations, email us at autismphils@gmail.com or call us at 7-903-5496.

ASP Cebu Chapter Fund Raising, Dinner-Concert

Join the ASP Cebu Chapter Dinner Concert for a night of relaxation and enjoyment with family and friends. Buy your tickets now and help raise funds for the chapter.

WHAT: ASP Cebu Chapter: Dinner-Concert

WHEN: June 12, 2010, 6:30PM

WHERE: Tara's Cafe IT Park, Lahug, Cebu City

FEE: ASP Member P350, Non- Member 400

For more details contact, SOCORRO DELIGERO (ASP- Cebu Secretariat) at (0922) 824-8567 or (032) 416-5505

ASP Gen. Trias Chapter 1st FSG and Election of Officers

By: Nanette Custodio, adviser, ASP Gen. Trias Chapter

ASP Gen. Trias Chapter, one of ASP’s youngest chapters, had their first Family Support Group (FSG) last May 24, 2010. The FSG was facilitated by Jan Peña, President of the ASP Bacoor Chapter. The meeting was attended by parents and guardians of children with autism, enrolled at Early Wings Behavior and Therapy Center.

Parents from Gen. Trias sharing thoughts during FSG

Jan Peña, former ASP National Trustee, also heads the ASP Cavite Chapters (composed of 6 cluster chapters- Bacoor, Carmona, Dasmariñas, Molino, Tanza, Trece Martirez, and Cavite-North) and is also known as “Gobernadora”. Jan also serves simultaneously as ASP Bacoor Chapter President and ASP National’s Membership Committee Chair.

The meeting started with the presentation of Cavite Chapters 1st Colors of A Spectrum Workshop and Exhibit. Selected members from the Chapters and their children with autism had their fieldtrip at Manila Ocean Park; Manila Zoo; Science Discovery Center and Tom’s World at SM-Mall of Asia; through the partnership of Certified Autism Angel, John Chua and photographers from Digital Photography, Phils.

Family First
The 1st FSG was truly a memorable experience. Many concerns were immediately answered by Jan who generously shared her wonderful insights and experiences in raising up Muneer, her son with autism.

The parents and guardians were then asked to share their own experiences and feelings in relation to their own special children. Most of whom we did not expect to open-up during the discussion, eagerly shared their thoughts.

Parents dealing with CWA said it was an enriching and enlightening moment for them. Knowing that someone is in a similar situation, listening and understanding these feelings created so much impact on them. The FSG was also an avenue for self discovery, openness and truthfulness to oneself.

A brief background of the organization’s programs, services, activities and projects were also discussed by Jan. And the election of officers was held afterwards. A scheduled induction of officers and formal launching of the chapter will come soon.

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ASP continues to work hard, building new chapters to address increasing needs families of children with autism. ASP Chapters need your support. Be an Angel for Autism. The time is now! Donate now and help fund ASP Programs and Services. Call us at 7-903-5496.

08 June 2010

Making friends via autism demystification

By Dang U. Koe, ASP Chair Emeritus

Special eyewears were distributed during seminar so participants can see how some PWAs see things.

Participants during the seminar

Making friends is a big challenge for children and teens with autism.

JR Tan and Bryan Lu, then in grade school in 2004, were coping well with academic requirements.

But they did not have friends.

Their mothers, Tiffany and Babsy, with the help of SpEd teacher Aileen Mercado, met and decided to form SPARKS — Special Partners on Autism for Recreation, Knowledge and Socialization.

“Special partners” do not refer only to teens with autism like JR and Bryan. It also refers to other typically developing children/teens who were invited to join social activities with the likes of JR and Bryan.

“Autism is more of a social communication disorder,” said Heather McCracken, founder and executive director of the Friend 2 Friend Social Learning Society based in Vancouver, BC. The associated characteristics of autism, specifically impaired social interaction, difficulties in both verbal and non-verbal communication, and unusual or restricted repertoire of interests and activities, makes it a big challenge for those affected to form social relationships.

In autism demystification seminar-workshops she had conducted, McCracken pointed out that all children, regardless of their unique challenges and gifts, have intrinsic need to play and make friends, even though those with autism express this need differently.

In order to foster mutual friendships between children/teens affected by autism and their typically developing peers and siblings, McCracken recommends autism demystification.

Angels Talk interviewed one of the country’s leading occupational therapists Anthony S. Grecia. He recently attended the autism demystification seminar-workshop in Vancouver, and was invited by Autism Society Philippines last May to conduct a seminar on “Fostering Social Inclusion and Mutual Friendship between Children with ASD and their Peers, Siblings and Classmates.”

Teacher Anthony is program director of the three branches of Center for Goals Inc. (Alabang, Caloocan & Bonifacio Global City) and is a founding member of Therapy Centers’ Movement (TCM).

*****

WHAT IS AUTISM DEMYSTIFICATION?

Heather McCracken developed autism demystification programs out of necessity for her son, who did not have friends when he was younger. Considering the need for friendship of children like hers, McCracken founded the Friend to Friend Social Learning Society (F2F), which has one mandate: “to foster mutual friendships between children on the autism spectrum (CWA) and their peers, siblings, and classmates.” To meet their mandate, F2F developed and delivered autism demystification and educational programs for children/teens aged 3-18 years old.

However, upon experiencing the programs, I realized that the demystification programs could also be used for parents, teachers, therapists, clinicians, and the general community that make significant impact to CWA’s life. The programs basically focus on respecting everyone’s affinities (gifts) and challenges (disabilities).

WHAT ARE THE F2F AUTISM DEMYSTIFICATION GUIDELINES?

1) Autism demystification begins by supporting the CWA to understand and accept her own unique challenges and gifts.

2) Autism demystification programs for peers should include the CWA.

3) Autism demystification should be delivered in a sensitive, age-appropriate, fun and interactive way.

4) Autism demystification should never “single out” the CWA, nor should the child’s name, diagnosis, or any personal information be discussed.

5) Autism demystification should always include examples of other individuals with autism or role-playing to help generalize characteristics of autism, which supports the understanding and acceptance of these characteristics.

6) Autism demystification should use sensitive language and encourage a shared vocabulary, such as “I have the kind of mind..”, “We are all different in our own way,” and “This is my stim (self-stimulatory behaviors), what’s yours?”

7) Autism demystification should be direct and honest, respecting individuality, diversity and privacy.

CAN YOU GIVE US SOME BASIC FRIENDSHIP TIPS?

A core part of the demystification programs is teaching typically developing peers prosocial/helping behaviors and communication strategies to enhance social interaction between them and CWA. Such behaviors are the following:

1) Get your friend’s attention; move closer and say your friends name before you start to speak.

2) Use small sentences and gestures, like pointing, to help your friend understand you. Then wait to give your friend time to answer you.

3) Watch your friend to learn the things he or she likes to do.

4) When asking your friend to play, give choices among the things you know he or she likes to do.

5) Ask your friend to talk, by asking questions like, “What do you like to play or do?”

6) Use friendly words when speaking to your friend, like “good job” or “give me five”.

7) Everybody is different in his or her own way. Being a good friend means accepting differences.

WHAT ARE THE BENEFITS OF AUTISM DEMYSTIFICATION?

The F2F programs have been “kid tested” for a decade with over 100,000 children, as pointed out by McCracken. The identified benefits for children with ASD are decreased anxiety and stress, increased interests and play skills, increased communication skills, increased self confidence, fun and friendships.

On the other hand, the identified benefits for peers, siblings and classmates are their sense of pride in helping others, better understanding/appreciation of diversity, increased self-confidence, better communication/leadership skills, fun and friendships.

Where and how long can the demystification be done?

The demystification programs can be conducted in a group of 20-50 participants, or 1-2 classes.

Each plan is implemented for 45 minutes to an hour. The demystification may require two to three visits.

HOW IS THE DEMYSTIFICATION CONDUCTED?

Autism demystification programs varies according to age group. This is to make sure that autism is understood in a sensitive, fun and age-appropriate manner.

That’s What’s Different About Me program is for 3-10 years old. Activities include puppet play, children’s coloring books, puppet role-playing, seven basic friendship tips art project, finger print art, social clubs, puppet journals and class discussions.

Demystifying Autism: The Friend to Friend Simulation Game Program for 11-18 years old. This program’s activities are simulation games (like Simon Says), autism friendship bingo, watching movies/TV shows (e.g. Mercury Rising, Rain Man, Molly, The Boy Inside, Autism The Musical).

*****

Teacher Anthony said that after studying and going through a demystifying autism experience, he thinks it is a mission and a calling to educate children and younger people about autism. And that it is a challenge to respond to the desire of children/teens with autism to make friends.

“Lack of social skills among youngsters with autism should never be confused with a lack of desire,” McCracken emphasized.

So let’s make friends with them.

Autism Society Philippines will hold its monthly family support group meeting on June 19, starting 1 p.m. Facilitator is ASP Secretary Tiffany Tan, a mother of a teener with autism.

ASP Makati Chapter, A New Beginning

By: Jhoseplex M. Inocalla, ASP Volunteer

Preparation for the birth of ASP Makati Chapter started on this day, May 30, 2010 at the Conference Room of Barangay La Paz, Makati City.

ASP Cavite Chapters “Governadora” Jan Peña, also ASP National’s Membership Committee Head, conducted a Family Support Group (FSG) meeting and ASP Orientation to (10) parents of special children, volunteers and professionals from Bgy. La Paz and Bgy. Palanan.

Jan was joined by Psychologist, Mrs. Adelmar M. Casten, and Educator, Mrs. Marlou M. Inocalla; who are both ASP Professional Members.

During the FSG, the participants openly shared their concerns on having a special child. They focused on the importance of having a strong family bond, when one or two of its members has a disability, or is born with autism.

During the ASP Orientation, the group was inspired by the experiences, testimonials and involvements of other ASP Chapter members in ASP activities like “Angels Walk.” The group was encouraged to share their thoughts on how to make a strong foundation for the new chapter.

ASP Cavite Chapters “Governadora” Jan Peña (2nd from top row) with
ASP Makati Chapter during the Family Support Group and ASP Orientation

After this short activity, we all looked forward to the birth, the new beginning for ASP Makati Chapter. We would like to thank Brgy. Captain, Elmer Jose N. Espiritu, who gave his full support for making this event possible.

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ASP continues to work hard to increase members and keep them well informed, participative, and proactive in the education and empowerments programs for PWA. Be an Angel for Autism. Donate to ASP and help chapters expand their programs and services. Log on to ASP Community Website. Email us at autismphils@gmail.com or call 7-903-5496.

ASP Laguna Concludes Summer Training Program

ASP Laguna recently concluded its Summer Training Program entitled “Teaching Children with Autism,” last May 7, 2010. The 20-day intensive training began on April 12 and was participated by three mothers of children with autism.

The three mothers, Mrs. Sharon Roque of Paete, Mrs. Jane Lumbo of Sta. Rosa City and Mrs. Riza Enriquez of San Pablo City; have decided to give up work outside home to become full time caregivers of their children.

The centers which hosted this year’s observation tours and immersion classes were Hope Intervention Center, Calamba City; Paete Intervention Center for Autism and Related Disorders (PICARD); Love and Hope Intervention Center, Liliw; First Steps Intervention; Therapy Center, Calamba City; and The Learning Center, Merville, Parañaque City.

Photo shows one of the participants doing hands on with a child with autism

This training program is held annually by ASP Laguna with the objective of equipping participants with the knowledge and skills in teaching children with autism. through a combination of lecture, discussion, case analysis, hands on, research work and school tours. It also serves as a fund raising activity of the chapter to generate resources that will help sustain programs and services.

The trainees while doing their case analysis

For more information on ASP Laguna Programs email ASP Laguna Chapter at asplagunachapter@yahoo.com.

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ASP Chapters continue to work hard empowering parents to care for children with autism. Be an Angel for Autism. Donate now and help expand ASP Chapters Programs and Services. Log on to ASP Community Website or email us at autismphils@gmail.com or call 7-903-5496.

ASP gives Autism Orientation through Media Partner DZAS

ASP gave an Autism Lecture and ASP Orientation to long time media partner, DZAS on June 5, 2010. The lecture came as an invitation for their 62nd Anniversary Celebration and is one of their ministries for persons with disabilities.

702 DZAS "Agapay ng Sambayanan" is Far East Broadcasting Company (FEBC) Philippines' first station to go on air. Through its broadcasts, millions of Filipino lives have been touched and transformed by the power of the Word of God.

DZAS has helped hosted a mini-concert on the 2009 NDPR Week Celebrations and also regularly invite ASP to give radio interviews on autism during Autism Consciousness Week.

ASP Executive Director Ranil Sorongon oriented the participants about ASP while Teacher My Sorongon, ASP EDEIP (Early Detection and Early Intervention Program) Educator, gave a lecture on Understanding Autism.

Teacher My Sorongon during her lecture on Understanding Autism

The Spencer Chapel, venue of the lecture, was filled with about 40 participants, composed of parents, public and private school teachers, other professionals as well as students. Some came as far as Mindoro, Antipolo and Bulacan to listen and to avail of the free medical dental, legal, and other services given by DZAS. Even individuals who were waiting for their turn for bone scan joined the lecture.

ASP would like to thank Pastor Eric Maliwat, DZAS Manager, for inviting us and for supporting the advocacy of ASP. Autism has a special place in his heart as an uncle of a child with autism. Congratulations and more power to DZAS and the Far East Broadcasting Company (FEBC)!

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ASP continues to work hard to promote autism awareness to the general public and evoke positive acceptance of Persons with Autism (PWA). Through the kindness and generosity of media partners like DZAS, understanding about the plight and challenges families face, give Hope to Autism. Donate to ASP now and help expand programs and services for families dealing with autism. Log on to Community Website. Email us at autismphils@gmail.com or call 7-903-5496.

Senate approves 3rd Reading of Special Education Act

By: Tiffany Tan, ASP Board Secretary

Special Education Act was finally approved during the 3rd reading of the 14th Congress last May 31, 2010. The bill consolidates Senate Bill No. 2020, or the Special Education Act of 2008 with House Bill 6740 or the Special Education Act of 2009.

The 14th Congress was adjourned June 5, 2010 and will reconvene on July 26, 2010 to concur for consolidated bills to become law. The passage of the law will pave the way for the creation of a new Bureau of Special Education and mandate the creation of at least one (1) SPED center in each city and province of the country.

Children with Special needs in the Philippines

According to Education Secretary, Ms. Mona D. Valisno, only 2 percent of Filipino children with special needs are able to get support from the government unlike in other countries where they get 100 % state support.

Based on latest Department of Education (DepEd) estimates, there are 5.49 million children with special needs in the Philippines or 13 percent of the total children population. Of this number, an estimated 4.2 million were persons with disabilities.

Children with special needs (CSN) are those who are autistic, gifted or talented, mentally retarded, visually impaired, hearing impaired, orthopedically or physically handicapped, learning disabled, speech defective, children with behavior problems, and those children that encounter health problems under the formal educational system.

A child is considered to have a need to train in a SPED center if he differs from the average child based on mental characteristics, sensory abilities, neuromuscular or physical characteristics, social abilities, multiple handicaps, or has a developmental lag.

Hefty Education Budget

According to Dep Ed 227 SPED Centers all over the Philippines including 16 in Manila and six in Quezon City However, the budget released for SPED which was 84 million as of 2009, was insufficient in order to cover for the big need to put up SPED centers in hard-to- reach places.

With the passage of the Special Education Act, a P600 million yearly budget for five consecutive years for the SPED program, and a separate P20 million yearly fund from the President’s Social Fund and from the Philippine Gaming Corp. will finance the founding and operation of the BSE. (SPED Act Section 23: Appropriations)

Looking forward

According to DepEd, the creation of a New Bureau on Special Education will be tasked to:

** Formulate an appropriate curriculum and developmentally-suited programs to achieve functional literacy for all children with special needs.

**Special instructional materials (such as Braille, large-type prints, or audio-tape or computerized forms) may also be produced without penalty.

**Financial and medical assistance, including nutritional programs, to poor but deserving children with special needs will also be provided.

**Draw up incentives to encourage private sector participation in the education and rehabilitation of children with special needs such as tax deductions, loan assistance and technological or scientific assistance.

This will be a quantum leap for the special education sector because a large majority of this sector has not yet been provided with appropriate educational services, according to DepEd.

Sources: Department of Education, Philippine Senate

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ASP works hard to keep you informed about policy making and advocacy programs that advance the welfare and rights of PWA.Write your senators and congressmen for the quick approval of the Special Education Act in the 15th Congress. Be an Angel for Autism. Donate to ASP programs and services. You can also email us at autismphils@gmail.com or call us at 7-903-5496.

04 June 2010

First PWA to attend National Conference on the UNCRPD

By: Tiffany Tan, ASP Board Secretary

ASP was invited to the KAMPI National Conference United Nations Convention on the Rights of Persons with Disabilities held at Great Eastern Hotel, Quezon City, on May 31 - June 1, 2010.

KAMPI People sharing messages regarding disabilities

The 2-day Conference was organized by Katipunan ng May Kapansanan sa Pilipinas, Inc. (KAMPI), a network of cross-disability organizations of self-help grassroots organizations of PWDs. KAMPI is a member of Disabled Peoples’ International.

The conference was attended by approximately 100 participant KAMPI members, PWD grass root organizations and other important stakeholders from private and national agencies; through the support of the World Bank group.

Participants during KAMPI National Conference

ASP was represented by Ranil Sorongon, ASP Executive Director, Tiffany Tan, ASP National Board Secretary, Ms. Jean Gonzales of ASP Mandaluyong Chapter, and JR Tan, person with autism. Click here to read his report.

The two day conference aimed to 1) Promote equal rights of persons with disabilities, and 2) Develop partnership between duty bearers and right claimers in the local setting.

Day 1 UNCRPD Articles Topics

Mr. Briccio Aguilar, KAMPI President gave the welcome remarks to the participants and introduced each Regional Representatives.

Ms. Venus M. Ilagan, Secretary General of Rehabilitation International gave the Keynote Address. She reported a very comprehensive over-view of UNCRPD. The UNCRPD is an international treaty that identifies the rights of persons with disabilities as well as the obligations on States parties to the Convention to promote, protect and ensure those rights.

The Philippines is a signatory to the UNCPD. Click here to know more of the UNCRPD.

Other speakers: Ms. Jocelyn Ignacio of the Department of Foreign Affairs spoke on the role of DPOs (acronym) and NGOs in the Implementation of UNCRPD (What and how can we contribute?); Dr. Renante Basas, Director Comission on Human Rights talked on the initiative of CHR in support of monitoring the implementation of UN CRPD in the Philippines.

In the afternoon, Mr. Rheybie Nipas, Deputy Program Director on Program on Disability Affairs of SM Supermalls spoke on SM Practices as Model for PWD Friendly Establishment. How we get there? And KAMPI representative spoke on the NHRAP (National Human Rights Action Plan) and the PWDS.

In between talks, there was an open forum to answer personal and regional concerns.

Day 2 Half-Day Workshop on PDAO Law

The workshop served as the network for PWDs, to give voice in pushing for the implementation of relevant programs and policies for the sector. It focused on the newly signed PDAO Law or the RA 1000-70.

On April 6, 2010, President Gloria Macapagal-Arroyo has signed into law establishing the institutional mechanism to ensure the implementation of programs and services for persons with disabilities.

Republic Act (RA) No. 10070, which is the consolidated version of Senate Bill No. 3560 and House Bill No. 1387, amended RA 7277 or the Magna Carta for Disabled Persons.

The law mandates the creation of Persons with Disability Affairs Office [PDAO] in every province, city and municipality with the local chief executive appointing a PWD affairs officer to manage and oversee the operations of the office.

The participants were grouped into NCR, Northern Luzon, Visayas, Mindanao. ASP and the Deaf Organizations had separate groups. After the workshop, each group was given the chance to report on their goals and how they intended to implement the PDAO in their own cities and municipalities.

Challenge to Leaders

Interim KAPMI officers and Regional Representatives took their oaths and signified to support one another for the PWD sector. Ms Ilagan, who facilitated the oath taking, reminded the KAMPI officers to be instrumental in achieving better lives for PWDs and to include younger PWD members.

“The children are our future,” said Ilagan. She also proposed the KAMPI officers to plan a Summer Camp for the PWDs for March next year, to train new PWD Youth Leaders for the future.

Acknowledgments: KAMPI, Sonia Rina Figueroa, KAMPI National Coordinator, ASP Volunteers Bing David and Teacher My Sorongon

ASP actively participates in policy making and advocacy programs that advance the welfare and rights of PWAs. We continue to work hard for the future of our children. Donate to ASP programs and services. How? Click here. You can also email us at autismphils@gmail.com or call us at 7-903-5496.

 
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